Shut Up Already!

K has a big fucking mouth and she just will not shut up. God! She embarrasses us to death! She must drive everyone crazy with her ramblings. On and on. She never stops. I'm not sure which K was in charge yesterday, but I'm ashamed of her. She completely crossed the line and talked to too many people, gave out too much personal information, and even shared some of our secrets.  We, the K's, are very angry with her for this lapse in judgement.  I'm not sure who she was, but she's a talker.

Man, she would not be silenced, and she spoke quickly (according to Husband) and loudly (according to our mother) and I'm totally humiliated today.  We had a couple of friends over last night, and I'm afraid that K got on their nerves.  Now, they gave no indication that this had happened last night, I'm just assuming that if this K got on our nerves, then she got on everyone else's as well.  I'm terrified of going back through my Tweets; God only knows what all was said and to whom.  It's a sad fact that even though I seem to recall a number of different conversations, I'm not certain today who those conversations were with.  This is quite common with us, in fact it's pretty much a daily occurrence in our life.  So every morning, whomever is out and about is supposed to go back through our Tweets and text messages and emails and Facebook posts, and try and piece together what happened the day before.  This doesn't always take place--a lot of times we forget to do this.  It depends on which K is in charge. Some of us are very self-conscious and worry incessantly about what was said and done the previous day and will not relax until we've read all those pieces of information which are available to us via computer or phone or handwritten journal entries.  Some days we find that K didn't talk to anyone at all, or she just barely interacted with others, choosing to show herself only to those certain few with whom she feels comfortable and who she likes and trusts (to some degree, not completely of course).  Just today our husband told us that there are days in which we talk a great deal (like yesterday) and days in which we stay quiet and hardly talk at all.  He knows now that these are different K's, and he's come to accept that.  He even admitted to me this morning that he very much likes the one he calls Switch Kellie, the one who first showed herself to him for a week back in January.  It seems to me that Dr. H, our psychiatrist, got to meet her too.  I really can't remember.  I suppose I should take the time everyday to re-read all the blog posts and journal entries so that I know exactly where we stand, mentally speaking, and so that we have knowledge of our prior behavior and activities.  But I've come to realize within the past 24 hours that I have a good many blog entries at this point, or at least more than I have time to read over again everyday.  Time is short, especially when you are someone who tends to lose time on a regular basis, and so we can't afford to spend too much of it refreshing our memory of the past several months.  We just have to check our day-to-day activities and interactions, and hope for the best, i.e. hope that we don't say something inappropriate or ask a stupid question (again) or in any way give away the secret that we actually don't remember much of anything that happened to us the day or night before.  Hell, we can't even remember what happened to us a few hours ago, much less days or months ago.  So everyday is like a crap shoot for us...We have to decide which blog posts to read, how many texts and Tweets to go back through, and how far back in our journal to explore, and all of these decisions will, in the end, affect our ability to carry on conversations with Tweeps or friends which make sense and follow the proper timeline. Since K has no concept of time, she usually can't recall when something happened to her, even if it happened that very morning or sometimes even in the past half hour.  I can't stress enough how frustrating this is, not just to K, but to all those parties involved.  K always ends up looking foolish, but she tries to play it off by just pretending that she'd been drunk or drugged at the time.  That's her fall-back excuse: that she was too impaired to remember things properly.  And the thing is, most of the time it works.  Most people really do believe that her forgetfulness is caused by pot-smoking or alcohol or all those pills K has to ingest every day.  We worry that our friends will figure out our secret at some point, hell I guess some of them have already figured it out by this time... I guess our memory loss is severe enough to be quite noticeable to everyone who's around us frequently.  I wonder what they think about that. I wonder if they think K is an idiot.  Or just a stupid pothead. 

Here's a good example of how easily we forget things: I am unable to remember what this blog post is about. I can't recall what I've just typed, and can't remember unless I scroll back up to the beginning and read it all over again.  I hesitate to do that, as it not only makes the perfectionist within us go crazy and try to correct each and every little mistake and we could end up spending hours rewriting this whole blog entry, but it also breaks the stream of consciousness which I like to just let go of and see where it leads us.  So I'm stuck now, stuck here in this situation in which I can't remember what I was talking about, but I don't really have time to find out, and so I'll just flounder and  flail about and try to compose some sort of blog post which has an understandable point and which all ties in together somehow.  I know, in my heart, that this is not going to happen.  I know that I will repeat myself, not just today and tonight but probably in this post alone, and that I do so all the time.  All the time.  Sigh. So much wasted time. So many lost memories.  Some of which we're glad to be rid of, others which could really help us in our recovery process if only we'd remember them.  It could be that every time K goes to therapy, she starts all over again, from the beginning, with her therapist. 

 I'm having a memory clip play in my mind right now, and it's showing me my doctor, and she's explaining to us that we've discussed these things before, whatever these things may be. I can see her looking at us, with this look in her eye, that says "I've told you this a hundred times".  I wonder if she and I are making any progress at all in K's treatment.  I wonder if she'll decide I'm too difficult to treat and just give up on me ever getting better, and dump us as a patient.  Our last therapist dumped us for forgetting too many appointments.  What if this doctor does the same thing? What if we get dropped again, and any progress which has been made is lost, and we must once again go to a new doctor, and spend the approximate 2 years it always takes for them to get an idea of what's really wrong with us? This would be a tragedy.  I don't know what makes me think this, but I have an idea that we, the K's, have gone further in our therapy with this current psychiatrist than we've ever come with any one prior to her.  We are learning, we are taking steps toward healing. We've made some progress.  I know this because I read some of our journal and some of our blog and I found that we're starting to remember things from our childhood.  Now K is absolutely terrified at the thought of having total recall of her childhood trauma(s).  She's not sure that she wants to remember, but some people (we can't remember who now) have told us that we can't truly heal unless we face our fears head-on.  So in order to get better, we have to see what all the fuss is about-we have to relive the horror that must've taken place at about age 4 (we've gleaned this information from the memories we've recovered and from old diary entries).

Shit.  I just paused to take a drink of water and I've once again lost my place and have no idea what I was talking about.  I don't want to read this post again. Maybe I should just shut the hell up.  Maybe I've said a whole lot of nothing.  I wouldn't be surprised at that. Not at all.  If only our brain would stay on track for more than just minutes at a time!  If only we could focus long and hard enough to finish a blog post!  Have any of our previous blog posts made sense or had a message?  Has this entire blog been a huge waste of my time, and yours, the reader's?  I shall stop now, for the shame and embarrassment is overtaking me at this point.  I'll just go take a pill and try and forget my humiliation.  It just popped into my mind that I could have blog posts which look and sound pretty much exactly like this one... now wouldn't that be funny and sad at the same time?  All I can really remember right now is that yesterday there was a K here who had a big mouth and wouldn't stop talking and spilled the beans to just about anyone and everyone and now, today, right now, the K that's doing the typing of this post is completely humiliated and feels as though everyone out there in the cyber world is laughing at us.  Are you laughing at us?  Do all of you make fun of us all the time?  Am I the laughing stock of Twitter?  Or is this just K's paranoia taking control of our mind and twisting things around so that K looks like a failure at everything she's attempted to do with this blog?  What was this blog post about again? Oh yes. One more thing, before I forget (HAHA!), I'd like to apologize to all those Tweeps with whom I had interactions yesterday and last night and even early this morning. I'm very sorry that I talked your ears off.  I'm sorry that I was a nuisance.  I'm sorry if I bothered you, or if I've been bothering you for quite some time now.  I really can't remember what's been happening since...well, I don't know.  I just can't remember.

Not Too Early To Tweet

It's 7:04 A.M. and I'm up with no one to talk to or nothing to do and I can't make any noise or else we'll wake somebody up so I can't vacuum or anything like that and I can't leave the house so taking a walk is out of the question and I just don't know what to do with myself.  So many voices in my head, all talking at once, each one trying to be heard over the others. I'm being told to eat, to go back to bed, to blog, to make a list of today's errands, to wash our hair, to give ourselves a pedicure, to draw pictures in our sketch diary, and someone wants a cigarette. Several of us want to write, just in different places-one wants to write in our journal, one wants to sketch in our diary, and a couple want to blog.  I guess blogging wins, as it has the most votes.  Our psychiatrist is going to be disappointed in us (she wants handwritten journal entries). Oh well.  We don't care right now. Another K can handle that task. The Good Daughter will be here once Mom wakes up, and she's trying to spend less time on the computer and pay more attention to her family, so I guess I better blog in a hurry.

It's been a strange couple of days (or has it been weeks? We're just not sure) and I find that we are missing Twitter.  We think it's time to go back to Tweeting, which is our outlet, where we share honest thoughts and actions and where we are free to be whomever we happen to be.  Some of us have friends on Twitter, and we miss talking to them.  I wonder how everyone is doing.  I think maybe I'll have a cup of coffee and either blog or Tweet....stay tuned...

We just haven't been ourself (LOL!) lately.  That means we haven't felt like K, whatever that means.  Wait-I seem to remember K being out yesterday for a few hours.  I didn't have therapy last week, which bums us out, but the lady never called to tell me when to come in.  I suppose I should've called them, but that's really hard for us, calling people I mean.  I guess one of us will have to call them tomorrow.  The Good Daughter I assume. She's here most of the time lately, co-conscious with other K's. Co-consciousness means that you are more aware of what others in your system are doing; you know what they're feeling and thinking.  Like right now. The Good Daughter just spoke to Mom. I heard her. I guess that means our time is up...

Charging my phone now.  Prepare for Tweeting today- Yay! We've missed Twitter, and it's been difficult to keep our thoughts in our head and share them only with our psychiatrist, because we're still afraid to be totally open and honest with her.

The Good Daughter

Since she's been mentioned in the blog before (I think the last post?)...This will be a blog post about one of the K's, someone we've seen/been everyday for the past 4 years or so. She believes herself to be the most important K. The jury is still out on that. Although we must admit, she's the most important one right now, this month.  She's caring for our mother, whom she loves very much, and who is suffering from shingles at the moment.  She tells us that the pain is worse than that of childbirth.  It was this K who made all the phone calls to all the doctors and drugstores and relatives until she procured some pain medication for her mother, who refuses to let us take her to the hospital. (She really needs a shot of morphine or something). The doctor we took her to last week refuses to refill her Lortab prescription. The Good Daughter doesn't trust doctors, in fact if she were capable of hate, it would be directed at doctors, because they let her daddy suffer for so many years. The Good Daughter was always Daddy's little girl.

The Good Daughter has been with us for as long as we can remember, and she is the K that most (not all) of our family members know.  From a very early age, she's been responsible for making important decisions (in the nature of what's right and wrong), for being sociable to strangers, for making our family proud, and for maintaining our image as a "good girl".  She comes out whenever we run into friends of our parents or people from church, or anyone who should believe us to be a moral, respectable, responsible young lady.  She usually shared co-consciousness with the smart K until we got to high school, then The Good Daughter went into hiding for several years, not returning until we were in college. Anyway, the rest of the K's appreciate what The Good Daughter does-we couldn't get by without her-but they think she's too much of a wuss. TGD doesn't drink or smoke or do drugs of any kind.  She's very sweet, and respectful, and affectionate.  She always says "Yes, Ma'am" and "No, Sir" and she doesn't curse.  She's the K who usually meets parental figures (of our friends) for us, and they always seem to love her. It's interesting to note that The Good Daughter has a very Southern (USA) accent whenever she's with our mother. The rest of us hate that. I mean we really hate it; we think it makes us sound less intelligent. Thankfully, not all of the K's have this accent.

The Good Daughter is young, but has aged over the years. I'm not sure exactly how old she is, but I'd guess she's in her early 30's.  She dresses modestly, meaning she doesn't let any of K's tattoos show and she doesn't like anything tight or low-cut.  She is one of the few K's who likes to dress in colors. (Most of us wear black)  She can be casual or professional, depending upon what the situation calls for.  She's very practical, helpful, and dependable.  She's quite a penny-pincher with money and likes to clip coupons and shop at thrift stores.  She is not materialistic, but she does appreciate nice things.  She mails cards on special occasions and reminds us to stay in touch with our friends via texts, emails, and phone calls.  Ironically, she does NOT hang out with our friends.

UPDATE: The Good Daughter took our mother to the Emergency Room, where she was given a shot of  Dilaudid for her excruciating pain.  We have been to the ER twice now.  Our mom is still very sick and in a lot of pain, but she's found a new doctor whom we hope will help manage her pain.  Apparently this Shingles thing that Mom has can last for months.  We really don't want our mother to suffer that long, but we are powerless to stop it.  All we can do is keep giving her medications, pain pills, and ice packs.  TGD is doing all she can to make our mother as comfortable as possible.

Today she went to the library and checked out a book about Shingles, in the hopes that her mom can read it and gain some insight into her affliction. Perhaps get a few tips on how to deal with the pain.  The Good Daughter comes and goes, but always comes out whenever we're alone with our mother. Also when relatives show up, or repairmen or anyone who needs to speak with the "lady of the house".  TGD is getting tired, as she's been tending to Mom for several years now, but that is her job.  The purpose of The Good Daughter is to take care of our parents (she was the caregiver for our father for 2 years before he died) and make our family proud.  She often does the grocery shopping and pays the bills.  She answers the phone and makes appointments for dentists and whatnot.  She's the responsible one, and K couldn't survive without her.  The other K's are very irresponsible, except for the smart one.

I don't know what else to say about The Good Daughter.  She's got the most important job out of all the K's.  She is the most reliable, but even she can't be on time for an appointment. We are always late due to our warped sense of time. TGD tries to keep up with time and takes a lot of notes about what needs doing when.  Sometimes we find notes left for us by TGD, telling us our errands for the day.  She's a list-maker. None of the K's can function without a list, instructing them what to do. We find lists everywhere, lists of all sorts of things.  What to do, who to call, where to go, what to buy, when to take meds, even when and what to eat. In fact, she's telling me right now that it's time to make tomorrow's list of things which need to be done.  I guess we better listen to her, as she's the one with all the common sense.

Disconnected

We've been struggling.  We feel terribly guilty, but we can't remember what it is we did wrong.  I can't figure out who I'm supposed to be today.  The Good Daughter is taking care of Mom but it's not real.  I'm not in control of that "me", she just comes out and takes charge of things around the house.  I'm glad she's able to do those things, such as give our mother her medications and put ice packs on her back and bring her food and water.  Mom is very sick right now and is in a lot of pain.  She needs us.

Husband needed K this morning, but she just couldn't pull it together. Tried to fake it for his sake. We're all over the place, feel disconnected from everything. We went into some kind of trance state, or maybe we were just dissociating, but Husband says I was staring into space and unresponsive for a few minutes.  We were at a shopping mall, and then Husband left us alone for just a few minutes, and I had a freakout.  There was just too much for me to deal with-too many people, too many voices, too many colors-I was overstimulated. Just too much noise. Too much movement. Everything was just too much. Had to get out of there.

Took an Alprazalam and tried to drive home, but it was hard. Couldn't concentrate. Can't focus. Had to keep repeating out loud to myself where it was that I was going, or else I'd have forgotten. So we're driving down the road saying, "We're going home. We're going home. Just go home." but man it was hard today.  Sometimes we can't drive.  Too much to look at.  Distractions everywhere. And I forget what I'm doing, I forget that I'm driving.  It's amazing I've not wrecked and died.

We haven't Tweeted in what seems like a long time, but I don't really know how long it's been-could be days, could be months.  For some reason I'm afraid to get on Twitter now.  We miss several of the Tweeps but feel too ashamed to come out of hiding.  I guess that's what we're doing now, hiding.  Not unusual for the K's.  But I miss Twitter. It was an outlet for my madness. Why did I stop? Why can't I go back?  I just can't remember. I can't remember how to get back to being "here". We are lost. Lost inside our head apparently. Who the hell am I now? Need to take meds and just go to bed.  Maybe when we wake up, we'll be someone everybody likes.  I hope so.  It's so important that people like us. Don't know why, it just is.

I caught myself smoking a cigarette this morning. I don't smoke anymore.  Thought that was odd. Blog post from last night (? I think) is embarrassing and I'm ashamed of us.  I'd delete it but this blog is my record of my illness and symptoms and I guess it's important to keep it since it was written by that angry K.  I hate when she comes out.  She draws negative attention to us. And she hurts people. I seem to recall that she screamed at Husband sometime....not sure when, but I remember the look in his eyes and it was very sad. We feel terrible about that. He doesn't understand our sudden outbursts of anger. I think he's worried about us...

Damn.  I want to blog but can't concentrate. Can't figure out what to write about. Need to empty my head, which is overflowing with information and thoughts of all kinds, but can't seem to do that today.  Hmm.  Pills I took are kicking in and I'm getting sleepy.  Yay;! Naptime at last!  Hope this works, and brings "me" back.

I'm so very sorry if I've said or done something bad or hurtful or inconsiderate. I don't want to be like that. But I realize that some of the K's are less congenial.  Shit.  We're just going to go to bed for a while..,

The Criminal Returns

I'm back but can't stay long.  I'm here because K got so mad she disappeared. I can come at anytime, anyplace. It happens without any warning signs whatsoever.  Anger boils over and erupts like a volcano, spewing hot, molten hatred onto everything around us.  Things get thrown, things get broken. Sometimes things even get burned. I love the smell of something burning.  There is yelling, from more than one person...Lots of yelling, in fact, as some try to shut me up and others try to win this internal battle, which becomes an external battle if anyone else happens to stumble into my personal space. I will scream at them just because.  K is afraid of this part, this unsolicited and inappropriate anger.  She disappears and won't come out again until the drama has died down.  I'm the angry one, the one who is so filled with resentment and bitterness.  I used to be around a lot when K was a teenager, and she got locked in a hospital because of me. And jail too. Yeah, I've been arrested, so fucking what?! We get K in trouble. We love trouble. I am mean, a bitch, or so "they" say, but I say I'm just brutally honest and speak my mind. And I use colorful language. FUCK YOU!!! See? I can curse like a sailor. I frighten small children, and I get a kick out of it whenever it happens too.  I've made men cry. HA. I'm strong and outspoken and fight for what we believe in, but K doesn't always agree with what I believe in. Like the crime, the shoplifting. The vandalism. Hell, K doesn't even like to litter, for fuck's sake. What the fuck ever. I like to cut loose and be impulsive and throw caution to the wind. I like to have fun, it doesn't matter if that fun is legal or not.  The K's want me to write this blog post because I've been out for a little while (long enough to do the forbidden-smoke in the house! HA!) but I have to disappear before tonight. K has obligations tonight which require self-control and good manners and shit like that. Possibly even talking to other people.  But I don't know how to express myself without yelling and cussing and throwing things. I have tantrums like the little girl who lives in our head, but mine are much more frightening.  Is that the right word? Hell if I know. Fuck this shit. K is making friends online, but I can make them disappear if I want to. I can scare them off for good.  I've done it before, I can do it again. We don't need any fucking friends. They don't understand us and they want us to be someone else usually. Fuck everything in fact. What's the fucking point of any of this shit?! Wasted years of therapy, all the motherfucking pills, this "support" bullshit, this fucking blog. What the fuck good does any of that shit do? K is fucked in the head-always has been, and always will be.

Conversations Inside My Head

we are overreacting. no, we are right. we are being melodramatic. no, just sensible. we need some space and peace and quiet. no more twitter. that's just fucking stupid it's our connection to the outside world. you talk to more people online than you do in real life. well that's just fucking sad man. How pitiful.  No wonder our husband is upset with us. we spend all damn day and night on the laptop, blogging or writing or researching or tweeting or some fucking thing god only knows what.  first you get obsessed with facebook. now it's twitter.  what the hell? just admit that you have a problem. FUCK YOU I don't have a problem. This is my fucking life and i'll live it how I want. If I want to pout, I'm going to pout. And you can't stop me! i'm not giving it up completely, just temporarily. Just til things blow over. I think that's already happened, you're just stretching out the drama.  you fucking baby. stop behaving like this.  stop it NOW. you're overly-sensitive and too easily upset, no we're just moody.  well this is one hell of a moodswing. complete mental shutdown and social withdrawal because of the actions of one Tweep, and the inactions of another Tweep. Grow Up K!  Fuck! You're making yourself look like a damn fool, a wimp, a cry baby. People aren't gonna want to be your friend anymore cause you're too damn sensitive.  Get the fuck over it, damn!  One of the two people you're upset about has already sent you an apology.  So what the fuck is the problem? what about the other person? She doesn't like us. So what if some bitch doesn't like us? what the fuck do we care?you better be careful what you say-you never know who may be reading. oh hello paranoia, nice of you to join us, just chill the fuck out, all of you!!!you guys are really embarrassing me. people are looking at us. everybody's staring. put your sunglasses on. no, it's nighttime. fuck. well, who's going to see you anyway? just drop it, can we please?? it's no big deal. one of them was in a bad state of mind and probably wouldn't normally be like that. the other girl we don't even know and she might get hundreds of emails that all say the same thing. so i'm just a nobody. she'd never talk to me anyway. Stop it K! Go smoke a bowl or take a pill or something.  Damn! get a fucking grip. you're way over the top. reel it in K. No danger here. relax. they're not out to get you. just relax...there is no plot against you. no one cares about you that much you speck of dust! you're nothing. no one. at least, no one important. Stop it! We're a good person! K is really sweet and kind and FUCK YOU she's a pushover I will NOT let you talk about us like that. We are doing quite well, thank you very much! Rant much? yes, yes we do. sorry. who are you apologizing to?! Be an adult. have a backbone. and SMILE for fuck's sake. the world is not ending.

Bad Twitter Vibes

We're struggling today.  Something happened yesterday or last night (we think) or at the very least it was quite recently, and it's upset us and we are unable to move on past this incident.  I don't know how to get over it without discussing it with my psychiatrist, but I don't see her until next week, and I can't wait that long for someone to console us.  So I'm going to tell the tale here, at the risk of embarrassing one or all of us K's on Twitter. That's where all this started. Twitter.

I began using Twitter sometime in December of 2011, from what I can tell, although we had the account for much longer; I created my blog close to New Year's Eve. I used the account before December to occasionally tweet to my husband, and to myself.  That's right, I tweet to K.  It helps us remember things, people, places, events.  So I think I tweeted to myself for about 2 years before I ever followed or was followed by anyone.  I was completely anonymous on Twitter.  I told no one that we had an account or a blog. NONE of my real-life friends know I have a blog or Twitter account. I used the blog to empty my mind of all the crap that was pounding in my head at most every moment of every day. I wrote in our blog as a way to release my confusion, frustration, and tension. I could say how I felt, and no one would ever know or judge me.  But I was severely depressed in December, and someone in our head got the idea that perhaps we could find some type of support group online using Twitter.  Or at least, find another person, anyone, who understood what it is we go through everyday.  What I'm talking about is our dissociation.  Hallucinations, voices, lost time, severe memory loss.  All of these things together make my everyday life quite a challenge on many days.  We have good days and bad days.  Sometimes we forget we're ill.  Other days we are so ill that we cannot function at all.

So anyway, I began to search Twitter for someone "like me".  I don't even know now how I found anyone at all....I can't remember.  But somehow we found some people who were at least similar to us, for example a woman with OCD, and we began to follow them, and this led to people following me, and so on and so forth.  Now I can't recall exactly when this happened, but at some point I came across a person on Twitter who had a blog and who wrote about the same kinds of experiences that I have.  This person described symptoms just like mine, and I was thrilled to know that I'm not the only one.  I began to read her blog from the very beginning; it took me weeks, even months, to read all her posts from the beginning of her blog.  But I got to this one part in her blog where she talked about finding someone online who was "just like her".

I was elated-this woman had gone through a situation exactly like my current one.  She had found someone who seemed would understand her and her illness.  Of course I'm not giving any names, but this woman contacted the other woman she'd found, and apparently they ended up becoming friends.  Now let me say this first and foremost-I was NEVER expecting to be friends with the woman with the blog.  I was just hoping she might answer a few questions, or give me some advice about how to handle my symptoms or at least what to say to my shrink.  I was first diagnosed with Dissociative Identity Disorder way back in 2004, but shortly after that I had to move and so I lost both my psychiatrist and my psychologist, who was helping me explore my diagnosis and treatment options.  When I moved, I forgot. That's right, I forgot my diagnosis. I guess it was just too much for us to handle and so we pushed it out of our mind.  I forgot about the therapy sessions in which I'd "switched" and I forgot about all the different "me"s who had shown up for therapy.

What was left in my memory was my prior diagnosis, which was Schizophrenia.  I'd been diagnosed with that around 1998, and that was the label I wore for all these years.  I saw different doctors, but they always assumed that my diagnosis was correct, simply because I heard voices in my head.  I know now that this is not indicative of being Schizophrenic, it's just a classic symptom.  So basically, what happened was I'd been going through my day-to-day life thinking I was Schizophrenic.  I certainly had some of the same symptoms-hallucinations, delusions, loss of train of thought, social withdrawal, and paranoia, in addition to the voices which I heard in my head.  So this diagnosis seemed to fit, and it was assumed by each doctor that I saw that this was the proper diagnosis.  No one had ever explored other options, except for that one psychologist who'd finally identified the real problem but whose diagnosis I had forgotten.

I'm telling you all this so that you understand how it is that I believed myself to be Schizophrenic when in fact I wasn't.  I wore the label for years, as scared as I was of it.  I told only a couple of people whom I trusted, including my sister.  Fast forward a few years, and K began dating a man who was in college, studying psychology.  It was he who first declared my misdiagnosis.  He said he simply did not believe I was schizophrenic, but rather that I had some sort of dissociative disorder (Apparently I had "switched" in front of him before).  I knew nothing of such disorders, but it was only a few months later when my psychologist threw out the term Dissociative Identity Disorder.  I really don't remember too much from that period in my life. It feels like a hundred years ago. But I've lost my place in this story and to be honest we don't even remember what it was that we were writing about.  I hate when that happens, and it happens frequently.  Oh yes, now I remember.

I found the woman with the blog who had the same symptoms that I had.  I thought, after reading her blog, that I had finally found the answer to all my questions about what was wrong with me.  I've been called "mentally ill" since I was first hospitalized at the age of 16, and I've been diagnosed with a dozen or more different disorders, but I've never had a doctor give me a satisfactory explanation as to why or how.  This woman's blog opened my eyes to this new term, which was somehow strangely familiar to me.  Dissociative Identity Disorder.  It seemed to ring a bell somewhere deep inside of us but I just couldn't put my finger on it.  But what I did was this: I began reading everything I could find on DID. Every book at the library was checked out and read.  I Googled and Wikipedia'd and read any information I could locate on this disorder.

Around this time, I found an old diary which talked about my diagnosis of DID, and it was a tremendous help; I took it to my psychiatrist.  But what was most informative to me was this other woman's blog.  She described my experiences perfectly, although of course we lived very different lives.  I decided that I absolutely had to contact this woman, just as she'd done when she'd found someone else "like her".  I figured if she could do it, if she could find a similar soul and communicate with them, then so could I.  Again, I never expected to become good friends with this woman, I just wanted some advice from someone who suffered from DID.  I got her email address off her blog and I guess it took me days to get the courage to write the email, I can't remember.  I just remember that when I sent the email, I was excited.  I was excited by the thought of her emailing me back and telling me she understood.  That she'd been there, that she'd gone through the same things.  When she didn't respond to my email, I realized that I'd told her about the blog but forgotten to give her the address, so I sent another email, this time with all my contact information as well as my blog URL.  I thought maybe she would read my blog and agree that I was DID and that perhaps she could help me figure out what to say to my newest psychiatrist, who had not yet fully diagnosed me but who was in the process of doing so.

Well, I waited for what seemed an eternity, and I never heard from the woman.  She never responded to my emails.  I thought I must've come across as some psycho stalker or something; I couldn't remember what the emails had said.  I was discouraged but determined to make contact with her, for she was the single person I'd come across in my entire life who seemed to understand the symptoms we have.  Months had passed since we sent the email, or at least I think so.  One of the K's is very bold and wanted to send her a Direct Message on Twitter.  Well, that's how we found out we'd been UNfollowed.  Now we know for a fact that she had followed us at one time, for we never delete our messages and so we still had the email from Twitter, telling us she'd begun to follow us.  That could, in fact, be how we found her in the first place; I just don't know (damn this memory loss!).  But I tried to send a DM and that's how I found out she was no longer following us. So without thinking about it much, I sent a Tweet, saying she'd begun following me in January and I wanted to DM her but she must've unfollowed me because I couldn't do that and she responded, very coldly I thought, "I never followed you back. You have our email."  So my feelings were hurt.  I admit it, I'm overly sensitive. But for her to assume that I'd followed her first really pissed me off.  SHE followed ME first, and I had an email to prove it.  Anyways, I took this straight to heart and got my feelings hurt and I never did send her another email.

However, I continued to read her blog.and learned how she'd been able to better understand her illness through her writing. So I wrote. A lot.  I blogged, I had a diary on my laptop, I had a hardbound journal, I had a sketch diary.  I wrote and wrote, and indeed began to learn things about myself and my symptoms.  The first time I read a blog post that had been written by one of the other K's, it really freaked me out.  I mean, there was now solid evidence that I was going through something major.  Still, I didn't mention it to my psychiatrist. I just continued to research, to read, to learn.

I don't know how I had the courage to do it, but I actually went so far as to contact the other woman with DID, the one that had advised my blog writer when she'd written her an email.  I was scared to death that she was going to be mean to me, like I felt the first woman had been.  But she wrote me back and was very nice.  She told me a few things about dissociative disorders and said while she didn't have time to be a great source of support (she's very busy), she'd do her best to answer the occasional email or Tweet.  I have since made contact with her a handful of times (we think) and she's always been very nice. However, I found out, upon reading her blog, that she considers herself to be cured.  She no longer suffers from DID-she'd gone through something called integration, in which all of the personalities merge.  So I was back at square one. The one person I'd communicated with was no longer suffering from the illness I was trying so hard to understand.  So I continued my search. I was successful in finding a woman who has a dissociative problem, but after I emailed her I found out that she does not have DID.  Still, she became, and remains, a tremendous source of support for me, and I owe her so much for all the advice she's given me since I first contacted her.  She's the person who told me how to create a blog actually.  Her blog is brilliant, and I'd post a link but again, don't want to embarrass anyone.

It was a gradual process, but I began to find others like me, other people who heard voices and lost time, and I even found a few with DID. Now it's extraordinarily difficult for me to talk to strangers, as I suffer from Social Anxiety Disorder, and I fear most people.  So just sending an email to someone I don't know is very difficult for me.  Which is one reason I'm proud of us-we actually reached out to some people on Twitter and met some folks with similar disorders and symptoms and we attempted to be social and supportive in the hopes that what goes around would come back around.  And it did for the most part.  I met some wonderful people, who didn't think less of me because of my mental illness, who didn't judge me, who understood moodiness and depression.  Still, it bothered me that the DID woman with the blog never wrote me back.

Then one day, she wrote a blog post, and I gained some insight into her feelings.  She blogged about how much she appreciated her readers, and that she was so happy to be able to help others struggling with similar disorders.  She wrote that she loved getting emails from people who'd been helped through her blog.  So I decided to once more send her an email-I thought since she said she appreciated the positive response from her readers, well I thought she'd like to hear how much she'd helped me.  But before I could find the courage to send such an email (I mean, this would've been the third email sent to her, and that was like stalker material), she wrote another blog post.  This one stated that she didn't read the blogs of other mental patients, because she found them to be triggering. Well, that certainly made sense to me, as I am often triggered by things I see or read.  So I never sent the email to thank her for her help, the help she doesn't even know she's given me.  I'm afraid of her now.  I really am.  She hurt my feelings twice, and I can't risk getting hurt a third time.  I began to focus more on the people I'd met on Twitter, and on my own blog.

I was starting to communicate with a number of Tweeps and actually, for perhaps the first time in my life, I felt accepted in spite of my psychiatric condition. I gained confidence and started initiating conversations with people on Twitter.  This is unbelievable to me as I write these words-I have NEVER been able to approach a stranger and start a conversation.  So I seemed to be making progress, getting better.  Plus, I was sometimes offering my support and experience to help others on Twitter, sometimes a young girl who was cutting, sometimes a man with an anxiety problem.  I felt like I was doing something that made a difference.  I felt like I was helping as well as being helped, and this made me happy.

At last I had the courage to bring up the subject of dissociation with my doctor, and was happy when she agreed with me, that yes, I had a dissociative disorder.  She didn't say I had DID-it will take a long time for her to positively identify my disorder-but she told me I was on the right path.  So I continued my reading and researching, and talking to people with DID.  They all seem to think that DID fits me like a glove, and I have come to believe that too, but I won't know for sure until my doctor has treated us for a long time, probably years.  I am impatient but understand her point.  She wants to get to the heart of our illness and see what's really going on in my head.  My biggest fear at this point is that we'll have to relive the childhood trauma which she believes is the cause of this illness.  Otherwise, I'm feeling more positive and confident and social. I even got an invitation to join a DID support group, which I did. The people there seem incredibly supportive and understanding. Hopefully I'll be courageous enough to participate in the group.

But now here's where the bad part comes in again.  One night, maybe last night, I'm just not sure, I was on Twitter, just lurking really, not talking to anyone, just reading the timeline, and I noticed a person with whom I'd communicated several times was on there and seemed to be having a very difficult time.  So I thought I'd reach out and let her know that she wasn't alone.  Well, I'm not sure how it happened, but she misunderstood me and got all upset and accused me of yelling at her.  I was shocked. I'd never had a disagreement with anyone on Twitter.  And, as is my nature, I took it personally.  It completely smashed my self-esteem and I was crushed at how mean she'd been to me when I'd only been trying to help.  I guess I'm not very good at offering help or advice.  And so I've come to a decision.  I've decided that I won't be using Twitter as I had been doing up to this point.  I'm not going to try and help people, for it only sets me up for rejection and ridicule and failure and pain.  I'm going to take some time off from Twitter; my husband says I'm obsessed and spend far too much time online anyways.

So I will continue to blog, as it is something that I do for myself, not for anyone else. The blog is my outlet for my madness.  I'm always surprised if someone reads it, and delightfully stunned if I get a comment.  But it seems to help me better understand the different K's, we communicate with each other through the blog you see. So that's pretty much all I wanted to say.  That I was blogging and using Twitter to help myself get better and find support, but that I'd been hurt and felt like I failed. And so I'm not going to do the Twitter thing for awhile.  At least, I'm going to try and stay away from it.  I DO have an obsessive personality, so it will be nearly impossible for me to give up my current obsession cold turkey.  But it must be done.  My feelings are hurt and my confidence is blown.  I'm scared to use Twitter right now.  I shall miss my new Tweeps, and I'll definitely miss the support I received from the other mentals out there.  But this is how I feel right now.  I'm hurt. It's going to take me some time to get over it.  I take everything so personally, it's a character flaw I have no control over.  So there you have it.  That's why I won't be on Twitter for awhile.  It's also why I don't trust anyone on Twitter anymore.  Too much negativity.  Too many bad vibes. Too much disappointment.

NOTE: Not all of the K's necessarily feel this way.  Some of us may continue Tweeting. And we'll definitely continue blogging,as it seems to make us feel more "sane". Hopefully, I'll see you Tweeps again soon. I just have to be sad for awhile, and we need to be alone to sufficiently sulk. That's all I need right now-just a private pity party for the girl who made a fool out of herself, not once, but three times.  I wonder if I'll ever have the courage to speak again to someone in need.  I wonder if I'll ever be able to comfort someone, cheer someone up, make someone smile.  I have my doubts. It seems everything I do now is wrong.

The Evolution of My Self-Mutilation, Part II

(This is going to be a very difficult post to write; I've never confessed these things to anyone. I'm completely humiliated and ashamed and embarrassed to death to admit these things out loud, but I feel it's important to speak out. Perhaps I can help someone else.)

In the first half of this post (The Evolution of My Self-Mutilation: Part I), I described how I began cutting at the age of 13.  I was always very careful with my routine, never daring to nick an artery or something that could cause a trip to the hospital, as that would reveal my secret.  I was a cutter throughout my teens and into my 20's, but then I took a break for several years and didn't cut. I turned to tattoos and body piercings as a substitute.  I told myself I was better, that I'd outgrown such behavior. That was a lie. I started cutting again on my 30th birthday.  But this post isn't about cutting, it's about self-injury, which comes in many forms.  I didn't need a razor blade to harm myself.  In fact, the self-injury actually began many years before I picked up a knife and made my first cuts.  This post is about my main form of self-mutilation.

I've suffered in silence since the age of 9 from a disorder whose name I never knew until two months ago.  This particular disorder is actually visible to others, in a tangible, physical way, or at least its symptoms are; it's much harder to hide than say Bipolar Disorder.  It's something I've misunderstood and been ashamed of and hidden from family and friends, and my doctors as well, all these years, for almost my entire life. Dermatillomania is an impulse control disorder characterized by the repeated urge to pick at one's own skin, often ending in bloody wounds and causing tissue damage severe enough to leave scars.  The urge to pick-or scratch, bite, tweeze, or squeeze- is similar to an obsessive compulsive disorder, but for some people the condition is more akin to substance abuse; I haven't yet figured out which one of those two groups I am in.  The activity causes great anticipation in me before I engage in the behavior (as with substance abuse), and while I'm doing it I feel a tremendous sense of anxiety relief (as with OCD).  Plus, 79% of patients, including myself,  report feeling a pleasurable sensation while picking.

My first memories of picking at my skin were in 4th grade, and it was on my face of all places.  There was no way to hide it. I can remember staring into the mirror and seeing all these flaws on my face, all sorts of imperfections.  Well, we, the K's, cannot tolerate imperfections, especially when we can alter the appearance of the flaw and hopefully remove it altogether. (This thinking stems from my Body Dysmorphic Disorder) So I began to squeeze any little bump I thought I saw on my face.  Then I mashed some pores on my nose that seemed dirty.  This led to my scratching at a mole on the side of my cheek. And so on and so forth...worse and worse every day. One day I was feeling sick at school and the teacher sent me to the nurse, and she looked at my face and decided I had chicken pox and so I got to go home that day.  I was too embarrassed to tell her that I'd created those angry red spots myself.  To this day,I find the subject completely humiliating and I hesitate to write about these things here, but when I started this blog, I said I was going to be honest, and so here we go.

How did my parents not notice?  Well, they did notice, but I pretended that it was just acne.  Puberty came early for me and so it wasn't hard for them to believe the lie.  As the years went on, I honed my skills and began using implements, not just my fingernails, to pick.  Tweezers were, and still are, my "weapon of choice", but at different times I have used scissors, nail files, needles, safety pins, and nail clippers, plus weird little things here and there, such as a paper clip or a thumb tack.  Anything I can use to remove the perceived imperfection, which apparently only I could see.  That's the thing which kills me, the fact that no one else can see all those blackheads on my face, or all those pimples, enlarged pores, scars, or ingrown hairs.  That was what I saw when I looked in the mirror.  I saw something flawed, something ugly.  I started wearing my hair in my face, but then in junior high I discovered that I could have just as much fun-yes, FUN-picking at the skin on my arms as I could my face, and no one would be able to see it.  That was a real turning point for me, when I moved from my face down to my body.  It was easy to wear long-sleeves and keep my skin covered, and since I quit picking at my face, my skin cleared up and I actually had a very nice complexion.  It's ironic, that everybody in 4th grade thought I had acne and teased me, but once I was in high school and everybody else had acne, I had smooth skin. (We never teased anyone with acne-one of the K's wants me to tell you that.) I'm not sure if my skin-picking was a precursor for my cutting. I just know that my cutting and my skin-picking coincided beginning in 7th grade and lasting until I was in my 20's.  I'd cut and cut, then take great pleasure in picking at the scabs from the cutting. I loved seeing how many times I could make the same wound bleed.  We'd go through phases of terrible picking, and then we'd stop for awhile, and let our skin heal.  Often we'd just move to a different part of our body to pick while the first area healed; the cutting was random and could occur anywhere on us. Try to imagine how horrible this looked-my body covered in rows of razor blade cuts on my thighs and upper arms, and then surrounding the cuts were open wounds, all shapes and sizes, all over my body from the chest down.  The only part of my body that didn't get cut or picked at was my hands, but even they were subject to abuse-I bit my fingernails down to the quick, I tore at my cuticles, and I chewed the skin all around my nails, resulting in horribly ugly hands which I mostly kept in my pockets.  It wasn't until my mid-20's that I was able to control chewing on my hands, and my nails finally grew out and I kept them manicured and no one would ever guess that I'd been a nail-biter for so long.  That was the same time I gave up my cutting and skin-picking for several years, and I actually had nice skin with no bloody wounds or scabs. I was modeling then, so it was important to keep my compulsions in check, but God it was hard to do.  I was only able to maintain this smooth, clear skin for those few years in my mid-20's; I was cutting and picking again by the time I turned 30.  And this time, I had a new favorite area to pick at-my lips.  Yes, I'd bite and tug at and peel the skin from my lips until they were raw and bloody. To this day, I cannot keep my fingers away from my bottom lip. It's a compulsion which my husband tries to help me control; if he sees me chewing on my lips he'll tell me to stop.  He also polices me when I shave my legs or pluck my eyebrows, as he knows how these activities can easily trigger me and lead to my either cutting or picking.

                                          
I have these episodes in which I lose time and stop thinking about anything other than the imperfections on my skin.  I can go into the bathroom, and won't emerge for hours, literally.  Some days, I have shorter picking sessions scattered throughout the day and night, but a lot of times I go into my bathroom, lock the door, and get lost in the mirror.  I have lost entire days like this (when I lived alone of course) and I always feel the same way when it's over=baffled.  I usually don't remember what I was doing, and I can't believe I was in the bathroom for such a long period of time.  I will look down at my body and be shocked to find bleeding, open wounds scattered all over my arms, shoulders, legs, chest, and sometimes even my breasts.  God this is embarrassing.  But I want you to understand that this compulsion is something that certain people deal with. This is a real disorder.

Approximately 2% of the population has this disorder.  It's considered a similar condition to and is often comorbid with Trichotillomania, where persons pull out their hair, and is as difficult to treat. Thank God I don't pull out my hair.  Treatment for Dermatillomania include Cognitive Behavioral Therapy and prescriptions for SSRI's.  I do take medication which helps me, but I've never sought therapy for my disorder because I'm just too ashamed and embarrassed to admit to my psych doctor that I have this problem.  She knows I self-harm, she just doesn't know to what extent.  Dermatillomania causes intense feelings of guilt, shame, and embarrassment, and this increases the likelihood of self-injury. Suicide attempts occur in approximately 12% of patients with this condition.

 And I have to interject this now--The Kellie is really very angry that we are divulging this information to anyone, let alone The Public. The Kellie has a diva's reputation to uphold.  The Kellie is NOT a compulsive picker.  She has soft, smooth porcelain skin which she works hard to maintain.  She can't look at us when we're covered in sores and scabs; she is disgusted by us.  I'm fairly certain that anyone would find us disgusting.  I mean, this is a really gross habit.  No, not habit, compulsion.  I am powerless to stop this behavior.  In fact, I usually don't even realize I'm doing the picking.  I lose time, a lot of it, and I become absorbed in the activity, and it's as though someone else is driving the car, so to speak, and I don't have true awareness of this...not really.  I see the aftermath.  I see the bleeding, gaping holes in my flesh, the peeling skin, the nasty scabs, and of course the scars.

Recently, as in two weeks ago, I had to go see a medical doctor because the self-harm had gotten so out of hand that my wounded legs would NOT heal, and I feared I was getting infected.  I was totally humiliated to show him the dozen or so large (3 inch x 2 inch) sores on my calves.  They were all bloody and scabby and it was obvious I'd been picking at them as early as that very morning.  He was very understanding and did not embarrass me.  He gave me a steroid cream and said it should clear up my skin in 3 weeks.  So far, I've got the same large wounds, only now they're all dry and cracked and peeling.  It is my belief that the scars from these particular self-inflicted wounds will be the worst ones I've ever acquired, and will probably result in me never again being able to wear shorts or dresses. Sigh. (Last Summer I wore short dresses and told everyone the sores on my legs were just mosquito bites, but that excuse won't cut it this year)

I don't want to make myself ugly, really I don't.  But this is my fate.  I've gotten much better about the cutting, and only do it in times of extreme stress, but the picking is harder to control. I can stick my hand in my sleeve and pick at my arm right in front of someone and they'd never know. And I do.  Thankfully it's Winter now, so it doesn't seem odd that I'm all covered up.  But I worry about Spring and Summer...I have a whole new group of friends now that I've gotten married, and I do NOT want any of them to find out about this.  My big fear is being invited to a pool party. I can stop picking long enough to heal for special events (I wore a sleeveless wedding dress) but I can't stop altogether and it's impossible to predict when some skin might be visible.  I worry constantly about my secret being exposed.  Sometimes, I'm still asked to model, and whether or not I take the job has to do with which areas of my body will be seen.  I had to turn down 2 jobs in the past few months because my arms were too scabby.  I don't know if this condition will ever be under control. I fear that I'll have to deal with this for the rest of my life.  Man, that's a hell of a lot of scars.

Another Day, Another Dilemma

Lost.  A whole day and night, for the most part, just gone.  I feel like I've been manic and have just crashed.  I also feel like I've been doing a hell of a lot of talking and socializing but I can't remember with whom.  Pretty sure we made some new online friends....now if only we could remember their names.  That's so annoying-to know that I made conversation with someone and we got along well but then after it's over I can't remember who they were or what we talked about.  Makes friendships difficult online.  In real life, I can at least recognize a person's face (well, sometimes) but even then I still have trouble remembering conversations, or even names. I've been trying so hard to develop a support system for us on Twitter, and I think we've done a pretty good job, only when I really need to talk to someone about something important, I can't remember just who it is that I'm close to. *sigh*  Truthfully speaking, I don't know if I'm actually close to anyone, either online or in real life.  And it's far too embarrassing to tweet everybody, asking if we're friends or not.  Plus, the paranoia is stifling me.  I'm paranoid I might've been the mean K at some point, and perhaps said something horrible to another Tweep and maybe I've angered someone or worse, hurt someone's feelings.  I worry so much about what other people think about us; that's the number one reason we keep our illness a secret from the outside world.  My closest friends don't know about my mental illness.  A lot of people know I take anti-depressants and so they assume I'm just chronically depressed or maybe bipolar or something they're familiar with.  I would never dare tell anyone about my dissociative disorder.  That's just TOO weird.  People can't wrap their brains around it. I don't want people to look at me differently, or treat me differently, or talk about me behind my back.  So I hide my symptoms.  From everyone.  Most of the people I hang out with in real life have been with different K's at different times but never even knew.  Because I keep quiet.  I'm shy, and I"m scared of revealing my terrible secret.  This disorder I have is the stuff of Hollywood movies, the type of mental illness that's always portrayed in a negative light, as though we are dangerous or deceptive. I don't think I'm either of those things, although I am aware that one of the K's has tendencies to do things which we find questionable or even wrong.  But that's not all of me.

 I have different me's, different parts of me which have different functions and different personalities and I can't always be sure that everyone is doing what they're supposed to be doing.  After all, I don't have access to my entire mind, just to parts of it now and then.  I know about several of the K's, but I don't know how many of us there are, nor do I know which ones come out most frequently or which ones have the most friends or anything like that.  I wonder if we'd have any friends at all if we were to expose ourselves and admit to everyone we have an illness.  I don't think they'd be able to handle it.  I think everything would change and I'd never be looked at the same way again.  So I've turned my search for friends online, where people can't stare at me or pass judgements based upon how I look or dress or behave in public.  Online, I am honest about who and what I am.  Everyone I've met on Twitter knows I'm mental, and they accept it.  Most everyone I talk to on Twitter is mental as well, and that's the way I prefer it.  I can't relate to "normal" people, because I'm not normal.  I would much rather converse with someone who understands what it's like to be afraid of people or to hear voices in their head.  I need empathy, and that's something that my real life, "sane" friends simply cannot give me.  They will never understand.  No one can, unless they've experienced it themselves.  I had a counselor once who'd attempted suicide at one point in her life.  I trusted her because she'd been where I was.  She "got it".  That's what I need.  People who get it.  And I seem to be finding these people-everyday I get up and find evidence of my having chatted or DM'd or emailed or texted people and it seems to me that we've had a conversation or an exchange of some kind that has had a positive impact on my state of mind.  I know I'm finding support, I have physical evidence in the form of notes or a journal or texts on my phone.  So I'm accomplishing my mission, which has been, since I joined Twitter in December, to find others like me.  I just have to sortof start all over every morning, figuring out who I talked with and what we talked about.  This is impossible of course.  So if you are reading this and you are one of the several people with whom I've conversed recently, then by all means say hello!  Please don't take it personally that I can't remember our conversation or personal info about you. Hell, I'm doing good if I can recognize a person's name as that of someone I know.  A lot of times I'll see people in my timeline who I just know I've talked with before, but I'm too afraid to interact with them because it's just too embarrassing to admit that I have forgotten everything I knew about them.  Now, after a certain period of time, these things get better.  If I talk to you everyday, of course I'm going to remember you better than if I only talk to you once a week.  Now I must tell you, some of the K's are very social and love to talk, but others are quite shy and try to avoid contact with others.

 There's no way of knowing which K is tweeting at any particular time (except the mean one is easily recognizable, and probably the little girl too, though she's never used Twitter before as far as I know) so if you send me a Tweet and don't hear back from me, I'm sorry.  It usually means I just can't remember how I know you.  Some of you I've grown quite fond of, but I have trouble separating in my mind the ones I know well and the ones I don't know very well.  I see the names in the timeline everyday, so they are familiar to me and this confuses me further.  I guess what I'm trying to say is, I feel like I've had a very productive week, in that I made new friends and had really nice conversations and made connections with people, I'm just having trouble now remembering who those people were.  If we have interacted before, then by all means you should feel confident in speaking to me.  If I don't remember you at all, I'll be honest and tell you, but please don't take this to mean that I don't like you or that our conversation wasn't meaningful to me.  I just have a shit memory, and with the lost time and blackouts, it's a miracle somedays that I can remember my own name.  To sum up, thank you to everyone who has made an effort to be my friend.  We really do appreciate it.  It means a lot to us.  But if you want to talk to me, it might not be a bad idea to say something like "Hi, we spoke Thursday about the new Tim Burton movie" or just give me some kind of clue as to your identity.  If I interact with you more frequently, I'll learn your name and personal info quicker.  I just need that chance.  If I've introduced myself to someone and then never spoke to you again, it's because I've no memory of us meeting.  I always have to be reminded of everything. And I do mean everything.  To prove my point-it's 6:00 p.m. now and I find that I've forgotten to get dressed today.  I'm still in my pajamas and I don't think I remembered to eat today either.  This is my normal.  It's a guessing game really.  Just be patient with me-I'm a really good friend to have, if you can just stick around long enough to get to that point. I'm not going to lie, it's hard to be my friend. Not just because of the memory loss, but because I'm moody and just plain weird.  Most importantly, perhaps, is the fact that I don't trust people. Not ever. This makes it very difficult to get close to me.  But I long to be close to people, or at least just a couple of people, just so I don't feel so alone in this journey of life. I need friends. Everyone does.  It's usually pretty easy for me to make friends, but hard for me to keep them, because I literally forget them when they're not around.  I guess all of this sounds ridiculous, and I suppose it is, but this is my reality.  I have to be reminded who my friends are.  I don't know what I'd do without Husband with me, telling me who people are when we are out in public. He reminds me of how I know them, when we've hung out, what we've done together.  If I didn't have his support and assistance, I'd never be able to go out. (which I don't do all that often anyway)  To put it simply, please be patient with me and try to understand that I can like you and be your friend, even if I don't always remember you or our previous conversation.  I know it's frustrating, but believe me it's a lot worse for me than for you.  I may ask you the same questions over and over again, but that doesn't mean I'm not listening.  I just have a hard time retaining information.  Stick around and I'll eventually get to know you.  It just takes me a long time.  You know what? I've totally forgotten what this blog post is about.  I have no idea what I've been talking about, or whether this post even has a point.  So now I must read it over again, probably for the twentieth time... God I'm exhausted.  I wonder if I remembered to sleep last night?  To all those Tweeps out there who spoke to me in the past 2 days or 2 months, thank you. Thank you for talking to me, thank you for noticing me, thank you for giving me a chance.  Now let's do it again.

The Criminal

FINALLY!!!  I'm out dammit and I'm looking for some trouble. First thing I did was break the fucking rules and smoked in the house.  Then I self-medicated, and it wasn't even Happy Hour yet! Ha!  K had to go to the store and I wanted to steal something.  Just for the thrill of it, ya know?  That adrenaline high.  Tried and tried to convince the others to shoplift... anything....but they resisted.  Pissed me off too. I don't get out much anymore.  They won't let me cause I do bad things. I can't be trusted.  I wanted some gd cigarettes but OH NO they said. Fucking do-gooders.

Hospitalized at 16

I had never even met with a counselor before, much less a psychiatrist.  So naturally it never even occurred to me that my parents would do something like hospitalize me.  Yes, my behavior was out of control, but I was 16 and my hormones were going wild and I was terribly depressed and confused and of course, unmedicated.  I was acting out and engaging in reckless behavior, skipping school, smoking cigarettes, cutting my arms, and I was shaving parts of my head. I had been dressing all in black and staying in my room alone, listening to depressing music. I never wanted to go out or do anything. I barely ate or slept. I sat in the dark and wrote poems about death.  These days, I'd just be called goth or emo, but back then it wasn't an acceptable lifestyle. Naturally my parents assumed I was on drugs.  The truth was I'd never even smoked pot before! But they decided to send me out of town to a fancy hospital where young people were treated for behavioral problems and substance abuse.

They had to lie to me to get me there.  They said we were taking a weekend trip, which didn't seem unusual since my family traveled a lot, but I was pissed that they were making me go with them.  I climbed in the backseat of the car and sulked for the hour's drive to the hospital.  Of course, I didn't realize we were going to a hospital until we were there.  Before I knew what was happening, some people dressed in white grabbed my arms and started pulling me towards the door, all the while telling me to relax and not fight them.  RELAX?  When strangers are assaulting me? When I'm being forcefully taken inside what looks to me like a prison, it's difficult to relax and stay calm.  I started screaming curse words at the nurses, my parents (who disappeared as soon as they'd taken my suitcase out of the trunk; they didn't even say goodbye) and anyone within earshot.  I was furious with my parents, for lying to me, for deceiving me, for leaving me in such a place.  At first I didn't know where I was or what was happening so I thought maybe they'd shipped me off to a half-way house. I was both angry and scared.  I remember a desk and some papers I had to sign....they wanted me to read a bunch of crap and then sign if I agreed to it but I didn't bother to read it-I didn't give a shit what those papers said.  I just wanted to be alone.  Just leave me the fuck alone, I thought, or maybe I screamed, I can't remember now.

I do remember this part quite well--the strip search.  The nearly-unbearable humiliation of the strip search.  Full body cavity search, performed by a very large football-playerish woman, and just to be clear I had to stand there completely naked and let her touch me. Everywhere.  Even inside of me. God-I swear I just felt a chill run up my back.  I haven't thought about these events in many, many years.  Apparently, they still get to me though.  She was checking for drugs I suppose, or razor blades or anything else I might use to hurt myself with. The funny thing, if you can call it that, was that I'd recently been sick with mono, and so I had these bruises on my inner arms where the doctors had drawn blood.  Well, to the people at the hospital, these were "tracks" and this made me look like a heroin addict. They started asking about all the drugs I used.  I tried to tell them that I'd never used any drugs at all, but they told me that "Denial is the first sign of addiction" and so I had to get drug tested at random times throughout the course of my stay.  I don't think I ever actually convinced them I was drug-free, despite my clean urine tests. Interestingly enough, not only was I the only person there who did NOT have a drug or alcohol problem, but I learned more about drugs and how to use them and how to hide them than I ever could have learned on my own.

I was placed on Suicide Watch, which meant another nurse came into my room and unpacked my suitcase and removed any and every little thing that I might possibly find a way to self-harm with.  She took my belts, my shoelaces, my ink pens, my jewelry, my razor (of course), my toothpaste, my mouthwash, and any other liquid I had in my suitcase.  I didn't see the point in all of that, but I was powerless to stop it.  The whole while she was searching my things, I was being watched.  I found out the next day that being watched was going to be my norm for months.  I wasn't allowed to take a shower without a nurse in the bathroom with me, watching. I was not allowed to shave my legs.  I was given toothpaste to brush my teeth with, but was not allowed to have it in my bathroom. (Did you know that you can die from eating toothpaste?) I was watched every moment of every day.  I had to have a witness go with me whenever I went to pee. Talk about embarrassing!  I was lower than low already, and the humiliation of all of this just compounded my feelings of hopelessness and despair.

One day I was caught staring out of a window, and because they took this as a sign I might be planning to jump out of it, I was punished and sent to isolation.  This was a tiny room with no windows and only a mattress.  If I had to use the bathroom, I had to call for the nurse, who escorted me to the bathroom, watched me do my business, then took me back to my little cave.  I'm not sure how many days they kept me in isolation; I have no sense of time anyway, plus without windows I couldn't tell if it was day or night.  After I was allowed to go back to my room, I found I now had a roommate.  She was mean.  I did not like her, so I chose not to speak to her. She'd threaten me at times or curse at me, but I just stayed silent. I really didn't talk to anyone much the whole time I was hospitalized. I had no interest in making friends. I had nothing in common with these people-they were all junkies or sex addicts or criminals in my mind. I was different.  I was just depressed.

Every morning we were awakened at the crack of dawn and sent to a large sitting room, where we had "morning meditation".  The counselors gave us pep talks and read "inspirational" materials to us. We were given our schedule for the day and released to go dress for breakfast.  I wasn't actually allowed to go down to the cafeteria with the rest of the group, as I was on suicide watch.  I ate alone at a table in the corner of the sitting room, supervised by an orderly, and given only a plastic spoon to eat with.  I guess they thought I might hurt myself with a plastic fork.  Anyway, this whole eating in silence thing lasted for about a month and a half.  After that, I had earned the privilege to go to the lunchroom with the rest of the group, but I was still only allowed plastic utensils.  The nurses circled our table, making sure we were actually eating, and we were not allowed to leave unless we'd consumed what they considered to be an acceptable amount of food. This was hard to do, as the food was terrible and I'm so finicky anyway.  But I loved mealtimes, as it was one of the only times I got to leave the ward and see evidence of the outside world.  There were windows in the cafeteria, so I would gaze at the trees and watch the birds and dream of running away.

After breakfast, we went to "school". I sat in a classroom with kids of all ages and was given assignments, which to me were quite simple and so I used most of my classroom time to draw or write depressing poetry.  Class time was the only time I was allowed to use a pencil, and I would sketch and write letters to my friends back home (not sure if those letters ever actually got mailed).  After school was over, we had gym.  Now when I'd been at my high-school, I'd gotten out of taking gym by being the teacher's aide in the art department.  I hated exercising. But since it was so friggin' boring in this place, I began to work out in the weight room (supervised of course) and by the time I got to leave the hospital I had lost weight and toned up a good bit.

After gym, we were allowed to shower (again, I was watched) and then got to rest for half an hour, and then we went to group therapy.  This was when all the patients sat in a circle and we went around the room and talked about what was wrong with us.  Everyone had all these exciting tales of drug use and promiscuous sex and shoplifting, but I was innocent.  I had no stories to tell. I was a drug-free virgin.  I remember my shock upon meeting this one little girl who was 11 years old and who slept with men in their 30's; she guessed that she'd had sex with over 25 men.  I just couldn't believe it.  I always listened to everyone's stories with great interest, because my stories were so boring.  I mean, I looked like a delinquent, but I didn't actually do anything wrong. It seems there may have been a suicide attempt at one point in my teens, but I don't really remember that; I just have a scar on my left wrist to show where I'd cut myself. This was the reason I was kept on suicide watch throughout my stay.

What I longed to do was go outside though.  We were never allowed outside of the hospital.  I didn't feel the sun on my face for over 3 months.  And I don't even like the sun, but I was really just wanting to get away from the cold, clinical, all-white rooms which were all I saw every day.  The highlight of the day was when we got smoke break.  I guess this ages me, but back then there were no laws preventing teens from smoking.  So every day at the same time, all the smokers (which was pretty much everyone on that floor) got to congregate in the recreation room and smoke cigarettes.  The lighter was mounted to the wall, one of those things which got hot but didn't actually have a flame, and it had bars over it so that none of us could burn ourselves.  There was just enough space between these bars to fit a cigarette into, and that was how we lit our cigarettes. Naturally we were closely watched during smoke break. We were all allowed one pack of cigarettes per week; if you ran out, too bad. 

Now there were very strict rules at this hospital, and one of the rules was that we were not allowed to share things with the other patients.  One day, a boy had no cigarettes, and I felt bad for him, as he'd been brought in a few days before, all bloody from having punched through a window while high on cocaine. So I gave him a cigarette.  Just one.  And that's all it took.  He and I were both punished for a week, in isolation, in 2 separate locations of course.  After my second stint in isolation, I followed the rules. Now every other day I was visited by a psychiatrist, who determined that I was Bipolar (except at that time it was called Manic-Depressive) and I was placed on Lithium and some anti-depressants. I hated that doctor, and I'll be specific as to why.  She actually had the nerve to tell me one day that I would NOT be depressed if I only dressed in colorful clothes!  She said I felt bad because of how I looked. I was livid, and argued with her about this matter until the day I was released.  I never gave in to her wishes.  I continued to wear my all-black wardrobe.  She did NOT like that at all.

One day, she told me that I was going to be allowed a parental visit.  I had mixed feelings about that. On the one hand, I loved and missed them, but on the other hand I was still very angry with them for sticking me in such a hell-hole.  I recall the day quite vividly, as it was the first time I was allowed to go outside the building in 3 months. I loved the feel of the sun on my skin and the cool breeze...I got to go out to lunch with my folks, and of course they had a million questions, to which I gave the answers I thought they'd want to hear.  I lied and said I wasn't so depressed anymore.  I told them I wanted to come home.  But it'd be another month before that would happen. When I got back to the hospital, I was strip-searched again.  Also, the gift of chocolates my mother had given me was confiscated, because apparently there is a drug in chocolate and I wasn't allowed any stimulants of any kind. No coffee, no soda. Another thing they did was take away the stamps my father gave me with which to mail them letters. The nurse told me that in the past patients had used postage stamps to smuggle in LSD, so they were forbidden.

Although I was only there for about 4 months, it felt like years. Afterwards, when I told my parents how I'd been treated-the strip searches, the supervised bathroom visits, the isolation room-they felt terribly guilty about having made me go through such an ordeal. In an attempt to make up for it, they bought me a new car.  I don't think they ever understood just how horrible the whole experience had been for me, though, because after my discharge I was still made to visit that same psychiatrist for about a year or so.  She was a bitch. I resented the fact that she drove a different luxury sports car every time I saw her; I decided she only went into psychiatry for the money.  One day, my parents were told to come with me for a family session. At some point the doctor told my parents that they had, in fact, played a role in my becoming so depressed and out of control.  My parents were furious at this accusation, and my father cursed at the doctor and pulled me out of there and I never saw her again. I was taken off the medication (my father decided she'd just been drugging me to bill the insurance company) and I wouldn't have another doctor for a few years.  In that time period, I got much, much worse, but I hid this from my parents, for fear I'd be sent back to a hospital.

This was not the only time I've ever been hospitalized, this was just the first time.  To this day, I am absolutely terrified of psychiatric hospitals because of the horrible experiences I had while I was in this place.  I tried talking to my current psychiatrist about my nightmares of this hospital stay just the other day, and she told me that things like that simply do not happen in psych hospitals these days.  She thinks my memories are delusions or false memories or something.  But I know better.  I had nightmares for years after this little hospital stint.  I've been sent back to hospitals several times since then, but I've never had to stay as long as I did this first visit.  And to this day, I get a chill up my spine when I drive past such a hospital.  They scare the living shit out of me. Because of this fact, I have been lying to my psychiatrists for years about my true thoughts and actions; I'm scared that if I tell the truth, I'll be locked up again. I don't think I could handle that. In therapy this week, my shrink talked about how she believed in hospitalization for patients with severe symptoms. This haunts me. I don't know if I'll ever be able to open up to her again, I'm too afraid.

My Psychiatrist is Making Me Crazy!!!

This day has been more than we could handle.  Was so anxious about therapy that I didn't sleep for 2 days, nor did I eat.  Once there, the myriad of questions I'd had for her completely vanished from my mind and I couldn't remember what it was I wanted to talk to her about. I pulled out my notebook, in which we've been noting things like questions for the shrink and ideas for blog topics.  I read her several of our questions, but she was no help at all. Yesterday, I was ready to accept my DID.  Today, I flat-out asked for a diagnosis.  She says she doesn't believe in putting labels on her patients.  So all I could get her to verify is that I have  a lot of dissociative episodes and I also have at least one mood disorder. (Again, she would not be specific) 

So I don't know which disorder I have, only that I have a great deal of trouble with dissociation and amnesia and losing time and dozens of other symptoms which you'd think she could use to give me a motherfucking specific diagnosis.  FUCK ALL THIS SHIT!!!  Just fucking say what you want to say for God's sake.  I am upset with my psychiatrist because she refused to give me a specific diagnosis.  I want a label.  I need to know who and what I am.  This shit can't be normal. I've been pretending my whole life and we're absolutely exhausted by it at this point.  I don't think I can fake it anymore.  I don't think I can paste on a smile and be whomever you need me to be without blowing my cover, so to speak.  I need to be ME, who happens to be an US.  And I'm OK with that.

Obviously there must have been something terrible in my childhood to mess me up in the head this badly.  We can't even discuss this shit with our doctor.  To my horror, we talked about psychiatric hospitals, and she pretty much said that if it comes down to it and we get worse, she won't hesitate to hospitalize me.  NOT what I wanted to hear. I've had some horrific experiences in mental hospitals over the years.  Most important question I asked her was this: "Do I have to remember the childhood abuse in order to get better?"  I was relieved to hear that no, it isn't always necessary or desirable.  I don't think I could handle the truth anyways.

Fuck this shit.  Just fucking take a pain pill and go to bed.  Your head feels like it's been hit with a hammer.  You've been in a manic state and haven't slept but 3 out of 48 hours. I've eaten one meal this whole week. I think I might be dying.  And FUCK ME I haven't told you the rest of it.  How Hubby says I'm spending too much time on the computer and he says I don't do anything else anymore.  Nothing. No eating, no sleeping, no sex.  He says I'm obsessed.  He's right.  I'm obsessed with learning about my mental illness so that I can take better care of myself and live a better quality of life.

FUCK ALL THIS SHIT just fucking give it up.  You're beyond help.  You can't even talk to your own husband about your true feelings because it freaks him out.  None of your Real Life friends know you're sick, except for some depression.  I'm living a LIE.  Our life is a sham.  I'm not K, I'm an imposter.  I don't know who or what we are anymore. Just want to sleep away the pain.

(The Next Day:)

Which I did.  Took a handful of pills and slept for 12 hours straight.  God I needed that.  Still, woke up feeling frustrated and angry, at everything it seemed.  To make things even worse, Mom had a talk with me about how I'm being a terrible wife and am going to lose my man if I don't stop spending every minute on the computer.  Apparently, I'm ignoring him, the housework, cooking, laundry, etc.  I don't mean to. It just seems less important to me than this project I'm on, this project of self-discovery.  I just need some support from people who understand some of what I'm experiencing.  I'm going through a major mental health crisis right now.  I mean, I just found out that the diagnosis I've had since 1998 is incorrect. I'm NOT Schizophrenic.  It's going to take me some time to realize that I'm not that person anymore.  As soon as the diagnosis was stuck to me, I became that.  This is why my current shrink says she won't label a patient; she says they become the label.

So how am I supposed to fill out forms which ask about my mental health?  Just put down "non-specific madness"?  Or "Sometimes psychotic weirdo who's kept heavily sedated"?   Every so often, paperwork comes in the mail to reassess my mental health for The System.  I just hope that Dr. H refusing to give me a clear-cut diagnosis doesn't cause me to lose my benefits, i.e. my health insurance.  FUCKFUCKFUCK   What a miserable day.  Too much worry about being hospitalized, too much worry about losing my husband, too much worry that Twitter has taken over my life.

Well, this morning, I started my hand-written diary, just as my psych told me to do.  I didn't know what I was going to say, but it took 7 pages front and back anyway.  And I'm 99.9% certain that I'll be writing in it some more tonight.  Man.  I wish I could talk to someone in Real Life about this, someone who also dissociates, someone who also doesn't recognize them self when they look in the mirror half the time.  Someone who won't be freaked out if I switch and start speaking differently or acting differently.  Fuck.  This just fucking blows. I'm not important enough to wear a label I guess. And the kicker is, I've always resented the labels.  I've worn so many over the years....it's ironic that I'm now label-free and feel lost without one.  Who the hell are we and what the fuck is wrong with us?!?  Be specific, doc. We need to know.

Incidentally, while I was in therapy, I asked my shrink what her job was and why I come to see her.  (I'm not sure which K was at the session, but she had a ton of information and questions and wanted answers)  She told me that the reasons I came to therapy are whatever I want them to be.  She said it's her job to help me anyway she can, but that what I got out of it depended upon what I put into it.  Once again, non-specific answers. Fuck this!  I think I"m just going to get trashed tonight and be pissed off and drink til I pass the fuck out. Yeah, that sounds like a plan. And I bet I'll be an angry drunk tonight. Oh fun.