Showing posts with label marriage. Show all posts
Showing posts with label marriage. Show all posts

Tuesday, May 22, 2012

About a Wedding

I spent most of  yesterday in bed, sleeping, in an attempt to recover from my exhausting weekend. But oh, what a weekend it was!  On Friday, I drove my husband and my mother 7 hours to Savannah, Georgia to attend my nephew's wedding.  From the moment we got there, it was a non-stop whirlwind of activity and celebration up until (and after) we left Sunday.  We stayed in a breathtaking 2 story loft type residence inside an old cabinet making business.  I loved the exposed brick walls, 15-foot ceilings, industrial-looking pipes everywhere-it was very urban and modern and funky.  We had a downstairs apartment with 2 bedrooms and a kitchen and a huge great room with pool table and 50" flatscreen TV; my sister and her husband and my niece and her boyfriend stayed in the upstairs apartment, which was just as hip plus had a fireplace and a balcony.  Savannah is an amazing old city.  In case you've never seen the movie "Midnight in the Garden of Good and Evil", I'll tell you that Savannah is gorgeous. 


The Savannah Historic District is one of the nation's largest; this city is just a beautiful old Southern coastal town with beautiful architecture and gigantic shade trees dripping with Spanish moss, and 22 different parks with fountains and old statues and cobblestone streets complete with horse-driven carriages.  There's a waterfront area where artists set up their easels and paint and artisans sell their crafts and street musicians perform.  There are delightful little cafe's and pubs, and my husband and I found our way to a few of these Friday afternoon. The wedding festivities began with a rehearsal dinner Friday night. I didn't attend that, but it was my responsibility to get my mother dressed and do her hair and makeup.  After everyone left for the rehearsal dinner, I was able to breathe easier, and my husband and I went off on our own and walked the streets of downtown and had dinner at an eclectic little place which offered $2 beer.  After some sightseeing, we headed back to get ready for the pre-wedding cocktail party, held at a fancy old restaurant/bar.  I intentionally skipped all my meds just so I could drink at the party.  And drink I did!  I think I was trying to make up for my lack of Xanax.  After several drinks, my brother-in-law brought me my own bottle of champagne, every drop of which I drank...and then a second bottle appeared.  I drank and danced and smiled and pretended to be at ease, but truthfully I was a nervous wreck. For a person with Social Anxiety Disorder, this was the ultimate test:  It was crowded and noisy and I was surrounded by hundreds of strangers, all of whom seemed young and thin and beautiful.  But I hung next to my husband and my mother, and so I felt somewhat shielded from the dangers of the reality outside my little bubble.  It was so wonderful to spend time with my big sister, whom I rarely get to see as she lives on the other side of the country.  She introduced me to someone as "her beautiful sister" and I took that as a sarcastic comment but my husband said she was being sincere. It's not that I think she'd try to be mean to me, it's just that I'm paranoid by nature and always assume the worst.  We stayed for a good long while, long enough for me to see my 83-year old mother drink and dance with several young men, including her grandson (the groom).  I was thrilled to see her having such a good time, and she said it was the most fun she's had since Daddy died.  After she was too tired to go on, my husband and I took her back to where we were staying and put her to bed.  There was another party to attend, but I didn't think I could handle another crowded social function, so instead we stayed in and my husband made me margaritas (my sister stocked our kitchen with snacks and our bar with liquor!) and he opened a bottle of Captain Morgan's and we did some more partying by ourselves.  I got so drunk that I ended up hugging the toilet for a good part of the evening.  Oh well, it was totally worth it.

The next day was hectic and entailed a breakfast get-together where I consumed much champagne and orange juice.  I intentionally skipped my meds again so I could enjoy all the champagne I wanted.


 I LOVE champagne.  After breakfast, everyone scattered  to do their own thing and my hubby and I went sightseeing.  We walked all over town and ended up in a frozen drink bar.  From a wall of colorful assorted frozen drink machines, I chose the blue one.  I ordered my drink and then saw the sign which proclaimed that the drinks are made with 190 proof pure grain alcohol and are much stronger than regular bar drinks.  Needless to say, I thought that drink was going to put hair on my chest!  We headed back to the apartment to prep for the wedding.  I helped Mom get dressed and did her makeup and hair and Mom left to get wedding pictures made.  Husband and I had an hour to ourselves before we had to leave for the wedding.  Which means that I was ready on time, but that there was enough time for me to get very anxious.  I stuck some Xanax in my purse but really didn't want to take any because I wanted to drink at the reception.  Well, once my husband and I were all decked out in our formal attire (he looked so snappy in his bow tie!) we headed down the street 2 blocks to catch the trolley which my nephew had hired to take everyone to the church.  The wedding was beautiful and afterwards we headed to a mansion for cocktails and hors d'oeuvres.  Servers clad all in black milled about with trays of food and wine, and there was an open bar which we took full advantage of.  I admit, I didn't do any mingling.  I knew no one but a  handful of relatives there, so I wasn't comfortable talking to anyone.  I put Mom in a chair and got myself a Cosmopolitan and spent the next hour or two chatting with my husband and trying not to have an anxiety attack.  It seemed to take an eternity, but at last it was time for dinner, and the wedding party filed into the ballroom and everyone went to their assigned seats.  I was so relieved to find that we were sitting with my mom and sister and niece.  I had a cocktail with me, then a man came around and poured champagne, and then after that a man came around with 4 different kinds of wine. I chose white.  The dinner was ultra gourmet--filet mignon and a single gigantic shrimp served with asparagus. It was much fancier than I am able to describe.  I ate very little but drank plenty.  After that there were speeches and toasts and dancing and general merrymaking.  I can't remember how I got back to the apartment...  it seems that my husband and I did some more drinking that night and I guess I passed out at some point; I woke up in the wee hours of the morning wearing my clothes.  There was no sleeping in that day, for we had to make the journey home.  I stumbled into the kitchen to make coffee, then started packing my suitcase.  For a 3-day trip, we had a ton of luggage.  Plus a cooler filled with drinks and plastic bins filled with snacks and all of Mom's medical equipment...it looked like we were moving.  I think it took Husband 20 minutes to load the car.  It was raining the day we left, and that seemed to match the mood of everyone as we said our goodbyes.  It was sad-Mom cried.  The drive home was long-about 8 hours-and exhausting.  I kept having to stop to throw up, presumably from all the drinking I'd done the night before.  Finally we pulled into our driveway.  I hated that our trip was over but was also glad to be home.  Then I saw the evidence of the stress of the trip.  I found that my legs had been picked at and scratched at and were all bloody and raw.  My upper arms were also covered in sores due to compulsive skin picking.  I don't remember doing it but it's obvious that it was a reaction to stress and the pressure of being around so many strangers.  I skipped all my meds for 3 days and went "all-natural" -something was bound to happen.  And so I dealt with the anxiety by drinking too much and picking at my skin. Also bit my nails but not as bad as it could have been.  In retrospect, I don't think I could've had a better time.  And I'm so proud of myself for not freaking out during all the excitement.  My doctor had warned me I'd probably dissociate during the wedding, but I don't think I ever did.  I remember the ceremony. I remember the reception. I got a little floaty and distracted during dinner, but I think I successfully stayed in my body for most of the whole event... Wow!  This weekend gave me not one, but two things to celebrate.

Monday, January 23, 2012

The Mystery of Marriage

I just celebrated my 2-year wedding anniversary, so I've decided to write about our feelings on marriage.  K never wanted to get married, in fact she was very much opposed to the idea of marriage; she found it to be an antiquated notion which was only useful for tax purposes or naming heirs in the current day and age.  She thought it was old-fashioned as well as obsolete, so she decided by the time she was a teenager that marriage was NOT for her. (Insert horrible mistake at age 19 here, but it was only 8 months before K kicked him out so that hardly counts as a marriage)  She didn't fall in love, not really, until she was 24, and it did seem that she was going to marry that guy.  He appeared to be everything she wanted, and The Kellie was madly in love with him, but he was evil and the relationship was toxic.  He proposed three times over the course of five years.  Once we said yes, once we said no, and once we said yes and then he changed his mind and broke our heart.  That's a story for a different day.

K moved around a lot, and she'd always end up with a boyfriend whom she'd inevitably dump just as soon as marriage was mentioned. It was a fairly simple task, since she never "loved" any of these guys anyway.  I don't know how or why this happened, (I'd be scared to even date K) but K received 7 marriage proposals from 5 different men over the course of her dating career.  That doesn't count the one she finally accepted and followed through with, the one from her Husband. (I never group him into any of K's categories, for he is the exception to all our rules)  She was engaged four times, but even during those times she knew, on some level, that she wouldn't get married.  Perhaps the logical K's knew it would be a disaster, and they were trying to protect all the K's, or protect the guys she was hurting.  K broke a lot of hearts, and in the end karma bit us in the ass, but after a lifetime of nothingness, we finally found true love and happiness. It was a long and difficult journey with a lot of good scenery along the way.

I think K wasn't so much opposed to marriage as she was terrified of it.  Her parents were married only to each other for 50 years, so you'd think she'd feel good about marriage.  The truth is, K's parents were part of the reason K didn't want to get married.  She grew up watching them...and she didn't like what she saw.  Now there was no substance abuse or violence or infidelity in their marriage, it was strong and dependable and could weather any storm.  Mom and Dad loved each other, of that I am certain, but they never seemed to K to be in love.  K never saw them kiss, or hug, or hold hands.  K used to joke that her conception was probably the last time they ever had sex and they were probably drunk when it happened.  We never heard them speak lovingly to each other, or even say "I love you", except maybe on special occasions.  The one instance of romance that K witnessed between them occurred when her father was on his death bed; he asked K's mother for a kiss, and K witnessed them peck each other on the lips for the first time as well as the last time. It brought tears to her eyes.

I have gone off on a tangent, and have yet to tell the story of how I came to marry Husband.  We met in fourth grade when he moved to the area from a state about 800 miles from K's hometown. We weren't friends, we just knew each other from school.  After fourth grade, his parents sent him to Catholic school, and K remained with her classmates and she didn't see Husband again until they ended up at the same high school.  They met for the second time in 9th grade, and as it turned out they had both gone down the "alternative" path, meaning that they dressed "weird" compared to the other kids and listened to different music and had different interests.  They ended up in the same small circle of "freaks" and became friends and remained so until junior year, when K broke the heart of Husband's best friend.  Naturally, this split the group up and thus K was no longer speaking to Husband, as he was on his friend's side.  K didn't really care about losing friends, she packed up and fled to another state, and was alone for her final year of high school.  (Coincidentally, K moved to the same state and even the same city that Husband was from) She focused on school and her job and had good friends and so she didn't really need a boyfriend.  She wouldn't see Husband again until she was in her 20's and had moved back to her home state but to a much bigger city to go to college.  Husband had moved here and there from state to state, but had ended up in the same city as us, and once in a blue moon, he and K would run into each other at parties or a bar.  It was rather awkward for K (since their friendship had ended abruptly) and so she never really spoke to him.  He ended up moving back to K's hometown and that was that.

It wasn't until K was 26 and visiting her parents one weekend, that she actually had a conversation with Husband.  She was in town with that guy who kept proposing, and they ended up at a restaurant and as it turned out, Husband was the manager of that restaurant.  At some point, he spoke privately to K, and apologized for anything he'd ever said or done to offend us, and said that he hoped we could be friends again.  And so K forgave him for taking that other guy's side way back when, and they were on friendly terms again, but they wouldn't be real friends, and hang out together, for years.  Here's the irony: it was Husband's best friend, the guy whose heart K had broken in high school, that brought K and Husband together. Years later, this friend discovered K on MySpace (even though she wasn't using her name) and sent her a message. (He worked in the same city in which K lived)  They ended up dating casually and K went to visit him where he lived in her hometown and that is when she discovered that this guy's roommate was Husband.  This was the beginning of a new chapter in the book of K and Husband.  She became good friends with Husband, as she was often visiting his home to see the other guy.  Well, it wasn't very long before K decided she was bored with that guy and so she stuck him in the "friend" category, but she continued to hang out at his house sometimes, when she was in town,  and she became better friends with Husband as time went on.

At some point, K's mother got to where she could no longer live by herself.  Her health had been deteriorating since the death of K's father, and she had trouble getting around and needed someone to help her with cooking and cleaning.  She did NOT want to go to a nursing home.  At the same time, Husband's roommate needed a new place to live, a place closer to his job.  K just happened to have a condo which needed a tenant, as she'd decided to leave her life behind us and take care of our mother. This is how it came to pass that K moved back to her hometown and in with her mom. Husband's roommate rented K's condo and everything worked out splendidly.   She began to spend more time with Husband, and he ended up being K's best friend.  Everyone always joked that the two of us should be a couple, (we did everything a couple does except for the sex part) but K never thought about him in that way-she never had in all the years she'd known him.  She loved him as her best friend and their relationship grew stronger for the next 2 years.  They spent time together nearly every day and talked on the phone for hours, sometimes 'til sunrise.  One day, he wrote K an email about his true feelings for her.  When K saw the email she knew what it was about before she opened it, and so she was scared to read it.  She didn't know how it was going to affect their friendship, and so she let the email sit in her inbox for about 24 hours.  Finally, she had a few drinks and smoked half a joint and read the email.  It was the most romantic thing ever-Husband is a writer and has such a way with words!-and K began to cry.  She was thrown into a situation which she couldn't control and she was confused and scared and excited and a million emotions all at once.  She didn't want to talk to Husband after that, not for a while, for she had to digest his words and think long and hard about whether or not she was willing to take their friendship to the next level and go out on a date with him.  Husband tells us now that the period in which I made him wait, after he sent the email, was torture...but I had to do it.  I had to think, and on some level I think I must've known that our decision would affect the rest of my life.

A year later,  miraculously in our mind, he proposed. By that time, we, the K's, had fallen head over heels for Husband and couldn't understand how we never noticed it before then. The next thing I knew, we were in Las Vegas at a chapel.  And I've been in a different place, mentally, ever since.  I think perhaps these unknown feelings I have been experiencing are called security and contentment and I am slowly beginning to accept them as valid feelings.  The thing we haven't spoken about, and which seems really important, is how I went about dating and marrying and living with Husband without him ever knowing about US.  It was no secret that K had always suffered from depression; Husband knew her when she hospitalized at age 16.  Also, once they became friends in adulthood, she gradually began to trust him enough to open up and, when she was drunk or stoned, she'd tell him little bits of information about her mental illness, without ever going into specifics.  He knew I was on a good deal of medication.  He knew I'd been diagnosed with a chronic mental illness, and he knew about the voices and hallucinations.  He did not know about all the K's (even though he'd met more than one of us over the years) and I never told him out of fear.  Plus, I suppose I thought I was such a good actress that I could hide it from him the same way I hid it from everyone else my whole life.

It worked for almost the first two years of our marriage.  In fact, it was only weeks before our anniversary when K had a severe episode and switched to a K that Husband didn't recognize.  We tried desperately to explain to him what was happening, why it happens, how it happens, but I didn't have the words.  How do you tell someone you love that you are not the person they think you are?  (at least, not all the time)  I cannot put into words how difficult and confusing and stressful the situation became after that incident, and there was a lot of crying on both our parts.  He couldn't believe we were married for 2 years and he never knew about it.  He couldn't believe I hid this from him for all these years.  Truthfully, the talk I had with Husband about the different K's was the very first conversation of its kind in K's life.  She had NEVER told anyone, outside of her therapist Patty, about Kellie World and our existence there in various forms, on different planes of reality.  Suffice it to say that Husband's mind was completely blown, and we feared that he would leave us...but it turns out that this love is True Love and he has promised to stay with us and take care of us and accept and love us, no matter what or who we are or may become.  That, my friends, is what we call a happy ending.

Friday, January 20, 2012

How I Became a Walking Drugstore

Since the diagnosis which I've had for years has practically been scratched off my chart, so to speak, I figured this was a good time to review what disorders we DO have, or at least the ones we've been branded with,  be them true or false.  Now my mind is still reeling over the statement Dr. H made yesterday ("I don't think you have schizophrenia") and I can't help but wonder if maybe some-or all (?!) of the doctors from my past have been wrong.

The first time K ever saw a psychiatrist was when her parents had her committed, at the age of 16,  to a psych hospital, for what they deemed my being inappropriate and out of control.  Bizarre behavior led my parents to believe that I was on hard drugs (which was ridiculous; I'd never even smoked pot) when in fact I was just suffering through major depression with suicidal tendencies.  I think I tried to kill myself for the first time somewhere around this time, but that memory just won't come back to me no matter how hard I try to remember.  So, I tried to kill myself plus my parents thought I was strung out on heroin, hence I ended up being committed to a hospital.  First psychiatrist of my life, Diagnosis: Manic/ Depressive (a couple of  years later called Bipolar II).  This woman put me on Lithium and suicide watch, then proceeded to tell me that I wouldn't be so depressed if I'd just wear more colorful clothing. The audacity!  I was hospitalized for 3 months, during which time I was given a handful of different medications and yet I continued to dress all in black, and I kept writing gloomy and dark poetry.  I think they released me after they decided that I was no longer suicidal, or else they were just sick of me.  I continued to see that same psychiatrist (she had a different sports car for every day of the week, and I can't stand people who are obsessed with money and possessions) until the day came when we had a family session, and my parents were told by this shrink that they, in part, helped contribute to my mental problems.  My father was furious, and my mother was angry and in shock. They were good parents, they really were They grabbed my arm and pulled me out of that office and I never saw that doctor again.  (although I realize now that my parents probably did have something to do with my problems, even though they always had good intentions)

The next doctor proclaimed I had Major Depressive Disorder and put me on a handful of antidepressants. I can't remember how long that lasted.  When I graduated from high school, I moved to a new city and was without a doctor for a while.  Bad idea.  Two intentional overdoses followed Freshman year at college.  After the second overdose, I decided it best for me to seek help with my mental "issues", and so I went to the local hospital and inquired about mental health services for low-income persons (I was just a student after all).  I don't remember that, but I somehow know that it happened.

K found a psychologist who worked on a sliding-scale fee and who was near her apartment and she began to see this man every week.  Sometimes he would make us take tests, all sorts of tests, sometimes written tests with questions, other times it was puzzles for K to solve, and one time he simply asked us to fold a piece of paper.  Believe it or not, this was one of the more difficult tasks for us, for it had to be PERFECT and it took me a long time to fold the paper; these tests led to our new (additional) diagnosis of Obsessive-Compulsive Disorder and some new medication.  K's OCD is easy to spot, although she's not your stereotypical hand-washer or compulsive cleaner. (Actually, one of the K's is a cleaner who's afraid of dirt)  K is an organizer, a list-maker...with a compulsion to turn the toilet paper around so that it rolls over the top rather than being pulled out from underneath.  Silly things like that.  K saw this psychologist for about a year, until the day came when he told her that she needed medication and he was going to have to hook her up with a psychiatrist, but all of that would have cost money, money which K simply did not have.  So we left that place and went unsupervised and unmedicated ("all natural") for what seemed like a long time...but we can't be sure how long.

K had gotten married at the age of 19, and pretended to be "normal" and went "all natural" and thus didn't take any medication or see any therapist during the year that her marriage lasted.  After the messy divorce, K became very manic-her worst episode ever up to that point-and went a bit crazy and started partying and dating lots of guys and going shopping and doing a lot of risky, stupid things such as dabbling in drugs and driving really fast.  This lasted for a couple of years, and K thought she was happy and having fun, like a regular college student...and then she crashed at the age of 23.  She fell into a deep, dark pit of despair, the likes of which she'd never known and from which it seemed she'd never crawl out of.  Somehow, someone helped us find a new doctor.  I can't remember much after that, I know there were more pills and more labels (Borderline Personality Disorder, Social Anxiety Disorder, Bulimia, Panic Disorder) and this pattern of going from doctor to doctor and getting pill after pill went on until K abruptly disappeared and turned up on the other side of the country.

K didn't go there alone-she was much too insecure and frightened by being out in public.  She had a friend with her, who knew she had a history of depression but who had no idea the extent of K's illness.  They lived in this big, new city for a couple of months before K had a freakout and her friend had to take her to the hospital. (K got lost coming home from work; she totally forgot where she lived and had to call her roommate to come get her) They poked and prodded and questioned K all night.  When it was finally over (a couple of days later? I don't recall), K had a pocketful of prescriptions and the name of both a psychiatrist AND a neurologist.  The neurologist took pictures of our brain, and determined that K was having little mini seizures in her head, and I believe these seizures are what destroyed much of K's memory.

The psychiatrist made us fill out a mountain of paperwork and assessment tests and then there were hours of interviews and therapy sessions, and in the end, he gave K (who was 27 by this time) her new, improved diagnosis: Schizophrenia.  That word scared the living daylights out of K, and she went into a state of bewildered shock.  She turned up hours later at a girlfriend's apartment; apparently K had walked miles from the hospital to the girl's place (this was K's best friend, whom she trusted with info about her mental illness) and K burst into tears when she got there and had a meltdown and proclaimed that she didn't want to be schizophrenic, that it was too serious a condition, that it frightened her.  It took her a very long time (years) to come to terms with that particular mental health label.  How twisted it is that I've now been told I don't have this, after it took so long for me to accept that I did have it.  (sigh)

And so that diagnosis stuck, and after that wherever K went and whenever K would change doctors, she'd fill out all the required forms and papers and she always had to list her mental problems and so she wrote down what the doctors had always told her, and for the most part, each new doctor simply looked at her chart, took it as fact, and prescribed more medication: anti-psychotics and mood stabilizers and anxiety meds.  This is how she lived her life throughout her young adulthood.  See a therapist, take medication, get better, quit taking the meds, have a meltdown, repeat.  In the spring of 2002, K had just found a new therapist.  This therapist she found listed in a local new-age magazine, and K, being quite superstitious,  took that as a "sign".  This therapist, Patty,  was the best one K ever had.  K liked her from the start, and they connected and K trusted her and she truly seemed to care about K's mental health and quality of life.  She worked in tandem with a psychiatrist who prescribed even more medication for K. This situation remained constant for 7 years.  During those years, K would get to a really good, stable place and then she'd quit taking her meds and have a meltdown and have to start over with the pills and she went from one extreme to the other-either drowning in a sea of despair or elated to the point of skipping down the sidewalk.  Patty was there to help K deal with her obsessive thoughts, or depression, or fears...she sometimes gave K homework assignments designed to provide insight into the mind of K and her subconscious.  One of these assignments was to draw a picture of what K believed herself to look like.  I believe this was a self-image/self-esteem test.  At the next session, K showed up with at least half a dozen different pictures.  Now I didn't realize this until just recently, but about 2 years after K first started seeing Patty, the term Dissociative Identity Disorder came out of her mouth.  K wrote about it in her diary, but then forgot about it.  Perhaps it was just more than she could handle, so she removed herself from the reality of this diagnosis and went on with her life and blocked out anything that had to do with that disorder.  Therapy during those years is difficult for us to remember, but I have little snippets of memories, like a few seconds of film; one of these mini-memories is Patty asking us what our name was.  We didn't know the answer to the question...we were K, weren't we?  In another partial memory, Patty is telling us that different people have come to therapy in our body.  All of this was news to K, or at least I think it was...damn this memory loss!  We were just starting to make strides in this therapy, these sessions which focused on who K was and what had happened to her as a child (she clearly had all the classic symptoms of sexual abuse). I believe Patty might have suggested K had Post-Traumatic Stress Disorder, I remember someone said it.

Just when K seemed to be making progress, just when things were beginning to come out, just when K was starting to open up and be completely honest with Patty....well that's when the unthinkable happened.  K got dumped.  She drove to her therapy session that day, just as she did every week or every other week if she was doing well, just as she'd done for 7 years.  When she got there, she was eager to talk to Patty, she had a lot to say, but Patty sat her down and got all serious and told K that she had missed an appointment the week before. At this particular mental health facility, they had a rule: you can only miss 3 appointments. After that, you are automatically dropped for being a non-compliant patient.  Well, K remembered that one day she had been trying to call them to change her appointment but no one would answer the phone.  We called repeatedly throughout the morning and afternoon.  It was Memorial Day, so K determined that they must've been closed for the holiday.  This is why K missed that last appointment.  She really did try to call and reschedule, honestly she did.  But she was being dumped, and this HURT, terribly, K takes everything so personally, and so it hurt her feelings that Patty didn't want to see her anymore.  From somewhere deep inside us, this angry K suddenly appeared and acted like a total bitch and said horrible, insulting, rude things to Patty.  I watched from outside my body, and couldn't believe what was happening.  It just didn't seem real, it couldn't be true.  K stormed out of Patty's office, got into her car, and hauled ass out of the parking lot.  She started bawling almost immediately, and did so for the entire hour's drive back to her home.

K's world was turned upside down.  Since her psychiatrist worked together with her therapist, K certainly didn't want to see that psychiatrist anymore.  She called and cancelled her next appointment.  For the first time in seven years, K was without a doctor or a therapist.  She had some medication, but would soon run out.  She started frantically trying to find a new doctor.  But it is harder than you'd imagine to find a psychiatrist who accepts Medicare and Medicaid.  We were losing hope, then we called Dr. H's office, and the lady on the phone was so nice and helpful and we explained to her that we really needed to see the doctor, that we'd run out of medications and we were having some withdrawal symptoms as well as feeling unstable.  They got me in quickly, and even though my medical records had not been faxed from the other doctor's office as had been requested, the doctor met with me and we talked for over an hour.  I left feeling hopeful.

Our last psychiatrist, who'd worked alongside Patty, well, we hated her.  She was an evil bitch who didn't seem to give a rat's ass about me and how I was doing, she just wrote out my prescriptions; when I came in crying, she'd increase my dosage.  I never felt anything but distaste for that woman.  This new doctor, Dr. H, well she had shown me more compassion in one session than that other shrink had shown me in years.  I had medication refills now, and I was eager to start therapy sessions with Dr. H.  That was 2 years ago.  It took Patty two years to label me DID, and it took two years for Dr. H to find out about my dissociative disorder.  That brings us to the present day.  We have had 2 sessions in which we discussed dissociative states.  She's ready to get to work it seems; she asked me to bring the diaries which are the evidence of our illness.  I'm terrified, yet excited at the thought of beginning the healing process, of accepting what and who we are, and of learning to love K as she is, in spite of her faults.

Tuesday, January 17, 2012

Finding Funding

We've never-and I do mean NEVER- been good with money.  Over the years this has been a constant  source of a great deal of stress, shame, and a lot of problems, both financially as well as legally, for K and her family.  Since the only jobs K was capable of handling (after dropping out of college due to a breakdown) were entry-level positions, they offered little pay and no benefits.  I was almost always just scraping by each month, and I inevitably ended up the same way: in the red.  The damage to my credit rating and bank account compounded each day/month/year until there was simply no way to get myself out of trouble.  I was too proud to ask for help-I waited until it was offered-and usually I'd find myself in a black pit of debt which I can't even venture a guess as to how many times Daddy and/or Mom had to bail us out of.  They helped K with her credit card troubles, paid her bills, and saved the day...for years.   K is very ashamed of and embarrassed by this; she wants to take care of herself and be independent; she hates her unemployed status.   Twice I've considered filing for bankruptcy but I'm proud to say I did NOT take that route.

Growing up with parents who were raised during the Great Depression means you are hard-wired from the get-go to be frugal, or at least that's the way it was in K's house.  Her father's most-used expression was "Money doesn't grow on trees",  and he knew better than anyone the value of a dollar, as he began working at the age of 9 (he picked up golf balls at a golf course).  He taught K from the time she first began walking to watch the ground for lost change (the man could spot a dime from across a mall parking lot!) and stick her finger inside coin slots on vending machines to see if someone had forgotten a quarter. (To this very day, I'm compelled to do this)  I don't want to infer that he was cheap; rather, he was thrifty. He wanted very much for K to be financially stable and to have enough money to be comfortable and never have to struggle the way he and his family had during the Depression of the 1930's, or even the way he'd struggled when he and my mother first got married.  He, like many from his generation, wanted his daughter to grow up and marry someone "from a good background" who would work hard and take care of her; instead she got married at 19 to a con artist who stole thousands from me and my family. But that's a whole other story.

K absolutely, positively can NOT handle money, not by herself.  It gets spent or it gets lost.   (I have a theory that I actually misplace just as much money as I "foolishly" spend.) We tend to be quite frugal, but at least 2 of us are the type to enjoy shopping, and we overspend when manic. During her brief teenage marriage, (it lasted less than a year)  K attempted to balance a checkbook and pay bills and such and it was a colossal failure.  (It didn't help matters that her husband was stealing checks from her and forging her signature)  On one hand, K is exceedingly frugal, to the point of being obsessive about it; she'll drive out of her way simply to save a few cents on gas or to buy something on sale.  On the other hand, we have no way to gauge how much is too much (we tend to overdo it) and we're generous to people and always try to help them out and many people (mostly boyfriends) over the years have taken advantage of that.


Most of us are non-materialistic.  (I'm being told, no-urged to say that.) There are periods of time scattered throughout the years in which K was responsible for herself, times when she had run away from her problems (financial and otherwise)  and started a new life elsewhere and had a job and even went to school several times over the years. At one time, she even owned a house of her own; she had to sell it when she suddenly decided to move to the other side of the country.  She'd up and disappear to a different state sometimes, the first time at about age 17.  In instances like that, her parents would use money as a lure to try and get K to come back home; but K was always a free spirit and wanted to be on her own and would often refuse to cash the checks her parents would send her.  She would rather ask passers-by for quarters all day long, (but  K was never a panhandler)  or sell her blood at the plasma center, if she wasn't making enough money at whatever job she happened to be holding at that time, rather than accept help.

K was very good at getting a job.  A job application was just paperwork after all, which we're good at, and the proper person almost always showed up for the interviews.  K would get a job and keep it for as long as she was able to maintain the facade of being "a regular person"; if someone suspected anything, or if her paranoia told us they did, then we'd just go home and never go back to that job. K did NOT ever tell anyone at her job(s) about her mental health problems; she was too ashamed and embarrassed and didn't want her co-workers to treat her differently.  What kinds of jobs did we have?  Well, K got her first job at a fast-food joint when she was 16 and after that she worked various jobs in retail (three times selling shoes, at one time she was actually the assistant manager at a funky little clothing store in the mall) or customer service, or in an office doing paperwork. I'm really good with paperwork, as long as I'm taking my medication properly and am not having a "schizo" day (which can happen at any time).  Stress is K's biggest trigger and eventually any and every job, no matter how trivial or mundane or even enjoyable, would become too stressful for her and she'd have a meltdown and usually quit her job without warning, or a lot of times she got fired for calling in sick too many times. (When our mental health was too fragile to deal with Real Life, or when the voices were so loud she couldn't hear herself think much less answer a phone, K called in sick.)

The older she got, the worse her mental illness got, and with age came new symptoms.  K had stopped taking her medication after she got married, because she'd lost her father's health insurance, and simply couldn't afford to pay for it on her own. (Psychiatric medications are very expensive) So she was off her meds for several years and during that time period, she had a number of "episodes".  I'm not sure how many, that was lifetimes ago and I don't even remember who that was.  Sometimes, though, I'd somehow end up at a clinic or doctor's office, and somebody would be kind enough to help me or advise me, and on many occasions I would see a doctor who would give me medication(s).  They'd usually make some sort of arrangements with me to come back, see a therapist or psychiatrist, and get medication refills.  A lot of these clinics had a sliding-scale fee, and I only had to pay what I could afford. I honestly don't know what would have become of me were it not for these clinics.


I bounced around from city to city, year after year,  but I tried very hard to maintain at least some type of medication schedule and therapy sessions.  There were years in which I lost my doctor for some reason (once I threatened to punch my shrink in the face and he threatened to call the police, so he was no longer my doctor after that) and thus had to go without medication for stretches of time every few years.  During these times, I'd hold it together for as long as possible, and then I'd crack.  First a tiny crack, then the whole fucking thing crumbles and emotions and thoughts and words come gushing out and I am just trying to stay afloat in a sea of crazy.  Sometimes when this happened, K could easily be influenced by the "wrong crowd" to do something bad, to shoplift or do something illegal, even though K is a good person and such behavior isn't like her...But I fear I've gotten way off the subject, which was supposed to be money.

I don't know if it needs to be said or if it's implied by my crazy ramblings, but in case you're wondering, no, K does not work anymore.  I'm embarrassed and ashamed to say that she last held down an actual job in approximately 1998.  After the year 2000, K applied for Disability-at the urging of her then-doctor (he told K that she had a "brain disease" and that she had no business trying to handle the stress of a job, which would only make her symptoms worse); up to that point, K didn't even realize that there was such a system in place to help people  like her.  The process was long and tedious and complicated and the only reason K was able to get through all the paperwork and interviews was the fact that she had a very dear friend, who happened to be disabled herself, (only her disability was physical rather than mental), and this friend walked K through the process.  She helped her fill out forms and applications-which seemed to be never-ending.  She accompanied K to interviews with mental health professionals and doctors and Social Security people.  Thinking about it now, and realizing how much she went through to get to the other side, I'm really surprised that K was able to successfully complete the application process and get her Disability payments-it literally took years to get all that stuff sorted out.  But she finally did, and she is now on Social Security Disability and has Medicare to help with her doctor's bills and prescriptions.  Otherwise, I'm not sure what might've happened to us.  Disability has saved K's life, literally.  She wouldn't have been able to continue with her existence were it not for the medical insurance she is now eligible for.  Thank the gods for Medicare and Medicaid!


Let me sum up.  Money is the root of all that is evil (K really feels this way), it changes people, it makes them greedy and selfish.  K has seen this phenomenon in Real Life, as in when one of her friends was in a bad car accident and received a hefty settlement; K finally cut him out of her life because he'd become so obsessed with the money, the possessions, the THINGS, that he was no longer the friend K knew and loved.  This has happened more than once and each time these things happen, it just proves to K that she is right about money being a bad thing.  Money is the devil.  We hate it.  We'd much rather live in a world where bartering was the norm.  K would love to trade paintings or handmade jewelry or some sort of art for food and clothes, etc. but unfortunately, that's just not the way it works in the Real World.  Too bad for K.

These days, K is married to a loving, generous man who takes care of her and the bills.  Sometimes K is able to write checks and see that the bills get paid on time, sometimes she can't even handle something as simple as that, and she must depend upon Husband to manage her money, or lack thereof.  It's difficult to stay on top of your finances when you have blackouts and can't remember writing checks or using a debit or credit card.  She definitely still struggles with money; they are on a tight budget to say the least, but things are much better and much less stressful now, and therefore K can relax, just a little bit, and not worry so much about being homeless. (Yes, this is one of her actual fears.)