Emergency Therapy

I had to go see my psychiatrist for an emergency appointment the other day. This was the first time I'd ever tried to see her without a scheduled appointment; I wasn't sure she'd see me at all.  At first it seemed like she wouldn't see me, as two hours passed after I made my shaky, tear-filled phonecall to her office and still no one had called me back as they'd promised.  I was completely honest about my reasons for needing to see her so urgently. I told the receptionist that one of my friends had died and that I was having a complete and utter meltdown.  Her tone of voice never changed-it was professional-when she explained that Dr. H was with a patient and she'd have to talk to her and get back to me as soon as was possible.  I hung up the phone wondering if I'd wasted my time. What made it even harder to deal with was the fact that I'd sat patiently by the phone all morning, waiting for the time to come whereupon their office would open so I could call.  And then they tell me someone will get back to me. And then I sit, and I wait for the call. All the while, I'm going more and more out of my mind.  I was really not doing well at all that day, in fact I'd been doing poorly for a thousand days by that point in time.

We're not entirely certain when the event happened, but my psychiatrist and I have used my journal, this blog, and my Tweets and text messages to get an idea of a timeline. My doctor believes that my friend Bill died sometime around June 4.  The blog entry made on June 5 was written in a dissociated state; my doctor believes he died sometime between the evening of June 4 and the morning of June 5, as that's when I seemed to completely lose my mind. I don't remember these things. I don't remember when Bill died. I don't remember freaking out, but there's evidence right here in this blog.  I don't know how much time passed between my freakout and my emergency psych appointment...I just know that someone pushed me to make the call to my doctor, and eventually I did.  I thought I could handle Bill's death, I really thought I was OK. But I was very far from OK. The first thing I had to deal with was the terrible, overbearing guilt I felt. I felt guilty because I'd been meaning to email Bill, and catch up with him, see how he was doing.  I kept putting it off. I'd emailed him a few months earlier, and found out he had been sick, but I had no idea just how bad it was. And so I procrastinated.  And now it is too late. I will never be able to email Bill again.  That's hard to believe, hard to accept. I've known him since I was 17 years old and first moved to the city to go to college. He lived downstairs in my apartment building and we became friends. We even dated briefly, but it was his best friend who became my long-term boyfriend. Which means I was around Bill all the time. I was good friends with his girlfriend, and the four of us went out all the time, and took trips to Florida or to New Orleans together.  I had a lot of wild and crazy times with Bill. He was quite a character. A punk rocker with a mohawk and a motorcycle jacket. He loved tattoos, hot rods, and whiskey.  He looked all rough and tough but he had a sensitive side which he worked hard to keep hidden. The only reason I even know about it is because as I said earlier, we dated briefly. It didn't last long, and it ended with me shoving him naked out of my apartment and throwing his clothes out the door after him.  That makes me laugh even as the tears well up in my eyes thinking about it. Oh, Bill. I can't believe you're dead.  Making this all the more difficult is the fact that there will be no funeral, as per Bill's wishes.  He wasn't a religious guy and I'm not surprised he requested cremation with no service. But that puts me in a position in which I'm unable to say goodbye in any formal way.  There won't be a grave I can visit. I can't place flowers at the site of an accident. Nothing. He's just...gone.

When I finally got the call from my shrink's office, they told me to come right then at that very moment. So I ran out the door as is, hair unkempt, no makeup, tear-streaked face. I don't remember driving there but I do remember that once I got to the office, the receptionist was very kind and asked me if I'd like to sit in a private room (there were several people in the waiting room).  And so it happened that I was able to sit secluded and cry without embarrassment until my doctor was able to squeeze me in and talk to me. I don't remember everything about the session itself. I told her I was missing a lot of time and we did some investigation work using my journals and cell phone. She had told me at the last session to get a calendar and begin writing everything down, so that I might be able to keep track of my days and nights without losing so much time. So I'd been doing that, I'd been writing things down...and then there was a gap. Just suddenly, all the information cuts off. I have no idea where I was or what I was doing during that chunk of time, and we've come to gather that it's about 15 hours.  She told me that she believes I was in a dissociated state this entire time. I'm missing 15 hours. You have no idea how disconcerting that is unless you've experienced it.  It's like a drunken blackout, only there is no alcohol involved and you're not hungover afterwards. Also, you don't pass out. I was conscious during those 15 hours, and I have a feeling I never left my house. But anything else? It's just a blank.  My psychiatrist and I determined that we could never truly know what happened during that time period, and so far no one has come forward with any sort of damning evidence against me for some horrible stunt I pulled while I was blacked out, so I'm going to assume that I didn't get into any trouble.  If I had to take a stab at a guess, I'd say I was crying. Possibly curled up in a fetal position on the bed.

 “When you are sorrowful look again in your heart, and you shall see that in truth you are weeping for that which has been your delight.”   ~Kahlil Gibran

The Inevitable Crash

Well, here we go again.  I was feeling so good.  I was living my life, and things were going pretty darn well.  I got to take a weekend trip far away and had an absolute blast.  I was really living high.  I felt so good it made me nervous.  And this is why. Because invariably, once I'm up, I must come down.  The better I feel, the harder I crash.  So based on how content-even happy-I was up to this point, this has the potential to be a real low.  I can look at the situation from outside myself and see that it's silly.  But I suppose it is akin to that feeling you get the day after Christmas when you're a kid. One day you're on top of the world, the next day it's all over and you just can't imagine waiting a whole year to feel that happy again.  That's where I'm at now.  It's the day after Christmas and all the good stuff has already happened.  There's nothing left to look forward to.  I can't see any reason to be cheerful.  I know it's terribly selfish of me to want it to be Christmas everyday, and indeed I don't really want that, as a special occasion would not be special if it occurred too frequently.  I simply want to be...optimistic.  Hopeful.  For what, I don't know. I just know that I need something to dream about, something to wish for, something to wait for.  During these downhill slides, I lose sight of everything good in my life. It's as though I'm wearing blinders and can't see what's right in front of me. The depression creeps in and wraps its icy arms around me. At least one part of me disagrees with what I'm telling you right now.  One of the K's sees the bright side of things and can always find something positive, no matter how crappy the situation.  But that's not me.  No, I'm the realist. Note that I did NOT say pessimist.  REALIST.  I believe that life is rough and slaps you around and most people are only looking out for themselves.  I believe these things because these are the things I've learned in my lifetime.  Maybe I'm just cynical, but I know that I've learned a few things in my time on this earth, and what I've learned is not necessarily of a positive nature. No, the world is harsh and cold and tough and there's always something standing in the way of your happiness. It's how you handle all of these problems that makes the difference in your life.  Take my current situation. I've been so happy for so many days in a row now that I'm crashing hard and fast back down to earth. I can either continue to free-fall and land in a jumbled, broken mess or I can try to fly, as silly as that sounds.

Skip ahead 2 days: I did not fly.  I crashed and burned. Yeah, I really fell hard this time, and lost my shit pretty hardcore. I've been hiding in my bedroom for the past two days and I just can't bring myself to come out. I have an adjoining bathroom, and I have a stash of Diet Coke and a box of Cheez-its.  I was separated from my pills, but my husband was thoughtful enough to bring them to me, and so now there is no reason for me to leave this room. Truth be told, I'm scared to leave this room.  I have been sitting on the bed for an indeterminate amount of time, watching the sky outside my window grow darker and darker, the clouds reaching out like fingers trying to grab me. Now it's pitch black and I can't see a thing. Normally I'd be far too paranoid to have the blinds open, but since I have no lights on anywhere, I know that no one can see me. I hide in the shadows. I am like a statue, I haven't moved in what must be hours...nothing except the hands on my keyboard that is. Twitter is my connection to the outside world.  It is the only way I will communicate-I'm not answering my phone or the door. The support I receive from people on Twitter helps us hold on, it really does. Sometimes a tweet makes all the difference in the world to us by letting me know there's someone out there somewhere, and I am not alone. I'm not sure which K is tweeting during this meltdown; probably a few. We are all over the map, personality wise. I am coming in and out of consciousness... I can't keep up with how often I'm switching or who's out when. I keep eating Xanax and Risperdal and Seroquel. Just feels like my mind is in overdrive and the pressure is almost unbearable. If I didn't know better, I'd think my head was going to burst wide open like a water balloon. There's a lot of arguing in my head. All the voices are yelling at me and each other and there's an ungodly amount of noise inside my mind. That's the reason I'm in seclusion. I can't tolerate any more stimulation of any kind-audible or visual. I MUST sit alone in the dark, in the silence.  This is my only respite.

An Animated Day

Today (Wednesday) has been quite a trying day, but interesting at least. We were supposed to be at therapy at 9:30 this morning.  I found out around 9:00 that the car wouldn't crank. Luckily, my husband was home and getting ready to go to work at 10:00...so I called my psychiatrist and told her I'd be a half hour late. Obviously I started the day off on a highly stressful note, and that is my greatest trigger, so it really came as no surprise that I had a rough day.  Hubby drove us in his car when we left, and he had to stop at the drugstore on the way to work. I waited in the car, and by the time he came back I was no longer in my body.  I struggled to pull myself back inside my head, but it was a hopeless battle. I dissociated and don't remember anything until he's getting out of the car, and I see that we are at his job, and like a robot I get out of the car and walk around to the driver's side and get behind the wheel... Hubby kissed me goodbye then disappeared inside but I just sat there in the car with the engine running for a long time.  I was trying to figure out how to make the car move. Everything began to physically transform and the inside of the car took on an animated appearance, like a cartoon. I began to operate on auto-pilot.  Driving to my doctor's office was exactly like being in a video game. I don't know how else to describe it. My hands weren't really touching the steering wheel; it seemed very far away, much too far for me to reach. I was looking through the windshield and it was unreal, everything was far in the distance and out of focus. I had the distinct feeling, nay knowledge that I was untouchable, unstoppable, impervious to harm. I knew I could not, would not wreck the car or have any sort of accident or run-in with the police. It wasn't possible, for all of this was just a game.  Not real.  I don't know how long it took to get to the psych's office; everything was in slow motion yet seemed to be flying by very fast at the same time.  I don't understand how that was possible, but that's how it seemed to us.  Once in the parking lot, I just sat in the car for a long time with the air blowing in my face. I pulled the visor down to look in the mirror and was quite upset to see that the reflection looking back at me was wearing bright red lipstick.

 
I do NOT wear bright lipstick, although we're aware that some of the K's do. I unceremoniously wiped it off with the back of my hand, then just stared stupidly at the red streaks coloring my pale skin. Decided I just didn't care-what difference did it make?-and just left the red lipstick smeared all over my hand.  Finally walked into the building but it felt more like I was gliding or floating or something.  I couldn't feel the ground beneath my feet. I made it inside and walked up to the counter and signed my name, but not without some difficulty. I was unable to write in cursive; I had to print my name, and the handwriting was shaky. I had taken 1 mg Xanax while in the car at my husband's job, and as soon as I sat down in my usual corner chair I took another 1 mg.  There were a number of people in the waiting room with me; I'm not sure how many because I kept my head down and wouldn't look at anyone. I pulled my legs up underneath me and tried to curl up into a ball in my seat... and the waiting started. I was antsy and anxious and very eager to see my psychiatrist, as I'd been under a lot of stress since our last appointment.  I got out my notebook and tried to make a list, but just couldn't focus...I was too distracted by the thought that everyone in the room was staring at me. I kept looking down, or took out my journal and flipped through it, or played with my phone, perhaps even tried to tweet I can't remember now.  I just couldn't think about anything except how things were in what looked like claymation...3D cartoons of sorts. I was looking around the room in wonder when this guy came in the door... He was younger than K's body but walked like an elderly person, all hunched over and wobbly and he shuffled across the floor using a crooked wooden can and his jeans were hanging very low around his hips, exposing his striped boxer shorts, and for whatever reason, he scared us. K's heart began to pound just as soon as she laid eyes on him (even though she never looked directly at him) and of course our luck would have it that he came over and sat down in the chair right beside us. Panic started welling up inside me. My body was turned away from the strange young man, and I was intentionally looking across the room, through the other people, staring at the wall with nothing in my head except the irrational fear I felt of the person to my left. I wasn't sure I could handle it, and thought briefly about going outside and sitting in the car, but I was terrified my name would be called while I was out and I'd lose my place and have to wait even longer to see the doctor.  So we sat there, panicking, in the middle of a childlike environment filled with caricatures of people...and then my name was called. The receptionist walked over to me and asked me to come with her. I was confused but did as I was told; I wondered if we were being scolded for some reason.  She walked us out the door and around the building to a back door, while explaining to us that the toilet had overflowed and how sorry she was for the inconvenience. It was bizarre to me, but so was everything right then. Now I'm in the psychiatrist's office and I'm trying to explain to her how everything feels like a video game...and she asked me if I was a different person. I can remember all these things because we wrote them down in our notebook. We take notes in therapy now and it is really helping us.  So she asked me if I was a new K, but I didn't know the answer to the question.  It's strange to not know who you are.  I really can't even begin to put it into words. You feel lost and empty and...like nothing.  I told her I didn't know for sure who I was at the moment, and that I felt "switchy".  I don't remember the rest of the session, except for one part:  she was telling me how to use a calendar to keep up with time, so that I can remember when things happen.  I guess that sounds silly to someone with a normal grasp of time, but to someone who struggles to keep up with what day of the week it is, this is a really big deal.  She asked me if something happened this past Sunday or last Sunday, and I didn't know the difference.  I admitted that I never knew when things happened, that I use old text messages as clues to how I spent my time. So she told me to get a calendar and take notes on it, like it was a diary. Write down when I go places, when I do things.  She said it'd help me put my lost time together.  I intend to try it.  I don't remember the rest of the session, nor do I remember driving home.  The rest of the day is scattered and disconnected. I can only recount bits and pieces of it...someone bought McDonald's fries and K doesn't eat at McDonald's anymore, hasn't in years.  I remember we decided that perhaps if we took a nap, that the proper K would be with us whenever we woke up.  I might have tweeted about that, I'm not sure.  Then there's a big chunk of time missing, where I'm assuming I was napping. Next thing I know, I'm putting on an act for my mother, and pretending everything is normal as I put her to bed.  After that, I found myself hanging out with my husband in our bedroom, and I remember him asking questions like "Which K are you?" and "Are you switching on me?". Again, I remember because I made notes about all these things. I found the questions intriguing. I don't remember anything else after that. I think his questions flipped some switch in my brain, and my reality shifted once again. Next thing I know, I'm waking up in bed in my clothes and wearing my glasses.  And that's when I began to write this blog post.

Someone Else's Tears

It's happening again.  Right now.  I've just come to, or "just woke up" or something.  I feel like I've been gone, away from my physical form, and just returned, but my body hasn't moved.  (I don't think.)  Anyway, the point is that I have just regained consciousness or regained my sense of time or something, something has changed, and I find that I'm crying.  Tears are pouring down my face.  I don't have any recollection of when I began to cry or why. I don't know if this is important, or whether my doctor will find it interesting or helpful, but I wanted to make a note of it.

Shut Up Already!

K has a big fucking mouth and she just will not shut up. God! She embarrasses us to death! She must drive everyone crazy with her ramblings. On and on. She never stops. I'm not sure which K was in charge yesterday, but I'm ashamed of her. She completely crossed the line and talked to too many people, gave out too much personal information, and even shared some of our secrets.  We, the K's, are very angry with her for this lapse in judgement.  I'm not sure who she was, but she's a talker.

Man, she would not be silenced, and she spoke quickly (according to Husband) and loudly (according to our mother) and I'm totally humiliated today.  We had a couple of friends over last night, and I'm afraid that K got on their nerves.  Now, they gave no indication that this had happened last night, I'm just assuming that if this K got on our nerves, then she got on everyone else's as well.  I'm terrified of going back through my Tweets; God only knows what all was said and to whom.  It's a sad fact that even though I seem to recall a number of different conversations, I'm not certain today who those conversations were with.  This is quite common with us, in fact it's pretty much a daily occurrence in our life.  So every morning, whomever is out and about is supposed to go back through our Tweets and text messages and emails and Facebook posts, and try and piece together what happened the day before.  This doesn't always take place--a lot of times we forget to do this.  It depends on which K is in charge. Some of us are very self-conscious and worry incessantly about what was said and done the previous day and will not relax until we've read all those pieces of information which are available to us via computer or phone or handwritten journal entries.  Some days we find that K didn't talk to anyone at all, or she just barely interacted with others, choosing to show herself only to those certain few with whom she feels comfortable and who she likes and trusts (to some degree, not completely of course).  Just today our husband told us that there are days in which we talk a great deal (like yesterday) and days in which we stay quiet and hardly talk at all.  He knows now that these are different K's, and he's come to accept that.  He even admitted to me this morning that he very much likes the one he calls Switch Kellie, the one who first showed herself to him for a week back in January.  It seems to me that Dr. H, our psychiatrist, got to meet her too.  I really can't remember.  I suppose I should take the time everyday to re-read all the blog posts and journal entries so that I know exactly where we stand, mentally speaking, and so that we have knowledge of our prior behavior and activities.  But I've come to realize within the past 24 hours that I have a good many blog entries at this point, or at least more than I have time to read over again everyday.  Time is short, especially when you are someone who tends to lose time on a regular basis, and so we can't afford to spend too much of it refreshing our memory of the past several months.  We just have to check our day-to-day activities and interactions, and hope for the best, i.e. hope that we don't say something inappropriate or ask a stupid question (again) or in any way give away the secret that we actually don't remember much of anything that happened to us the day or night before.  Hell, we can't even remember what happened to us a few hours ago, much less days or months ago.  So everyday is like a crap shoot for us...We have to decide which blog posts to read, how many texts and Tweets to go back through, and how far back in our journal to explore, and all of these decisions will, in the end, affect our ability to carry on conversations with Tweeps or friends which make sense and follow the proper timeline. Since K has no concept of time, she usually can't recall when something happened to her, even if it happened that very morning or sometimes even in the past half hour.  I can't stress enough how frustrating this is, not just to K, but to all those parties involved.  K always ends up looking foolish, but she tries to play it off by just pretending that she'd been drunk or drugged at the time.  That's her fall-back excuse: that she was too impaired to remember things properly.  And the thing is, most of the time it works.  Most people really do believe that her forgetfulness is caused by pot-smoking or alcohol or all those pills K has to ingest every day.  We worry that our friends will figure out our secret at some point, hell I guess some of them have already figured it out by this time... I guess our memory loss is severe enough to be quite noticeable to everyone who's around us frequently.  I wonder what they think about that. I wonder if they think K is an idiot.  Or just a stupid pothead. 

Here's a good example of how easily we forget things: I am unable to remember what this blog post is about. I can't recall what I've just typed, and can't remember unless I scroll back up to the beginning and read it all over again.  I hesitate to do that, as it not only makes the perfectionist within us go crazy and try to correct each and every little mistake and we could end up spending hours rewriting this whole blog entry, but it also breaks the stream of consciousness which I like to just let go of and see where it leads us.  So I'm stuck now, stuck here in this situation in which I can't remember what I was talking about, but I don't really have time to find out, and so I'll just flounder and  flail about and try to compose some sort of blog post which has an understandable point and which all ties in together somehow.  I know, in my heart, that this is not going to happen.  I know that I will repeat myself, not just today and tonight but probably in this post alone, and that I do so all the time.  All the time.  Sigh. So much wasted time. So many lost memories.  Some of which we're glad to be rid of, others which could really help us in our recovery process if only we'd remember them.  It could be that every time K goes to therapy, she starts all over again, from the beginning, with her therapist. 

 I'm having a memory clip play in my mind right now, and it's showing me my doctor, and she's explaining to us that we've discussed these things before, whatever these things may be. I can see her looking at us, with this look in her eye, that says "I've told you this a hundred times".  I wonder if she and I are making any progress at all in K's treatment.  I wonder if she'll decide I'm too difficult to treat and just give up on me ever getting better, and dump us as a patient.  Our last therapist dumped us for forgetting too many appointments.  What if this doctor does the same thing? What if we get dropped again, and any progress which has been made is lost, and we must once again go to a new doctor, and spend the approximate 2 years it always takes for them to get an idea of what's really wrong with us? This would be a tragedy.  I don't know what makes me think this, but I have an idea that we, the K's, have gone further in our therapy with this current psychiatrist than we've ever come with any one prior to her.  We are learning, we are taking steps toward healing. We've made some progress.  I know this because I read some of our journal and some of our blog and I found that we're starting to remember things from our childhood.  Now K is absolutely terrified at the thought of having total recall of her childhood trauma(s).  She's not sure that she wants to remember, but some people (we can't remember who now) have told us that we can't truly heal unless we face our fears head-on.  So in order to get better, we have to see what all the fuss is about-we have to relive the horror that must've taken place at about age 4 (we've gleaned this information from the memories we've recovered and from old diary entries).

Shit.  I just paused to take a drink of water and I've once again lost my place and have no idea what I was talking about.  I don't want to read this post again. Maybe I should just shut the hell up.  Maybe I've said a whole lot of nothing.  I wouldn't be surprised at that. Not at all.  If only our brain would stay on track for more than just minutes at a time!  If only we could focus long and hard enough to finish a blog post!  Have any of our previous blog posts made sense or had a message?  Has this entire blog been a huge waste of my time, and yours, the reader's?  I shall stop now, for the shame and embarrassment is overtaking me at this point.  I'll just go take a pill and try and forget my humiliation.  It just popped into my mind that I could have blog posts which look and sound pretty much exactly like this one... now wouldn't that be funny and sad at the same time?  All I can really remember right now is that yesterday there was a K here who had a big mouth and wouldn't stop talking and spilled the beans to just about anyone and everyone and now, today, right now, the K that's doing the typing of this post is completely humiliated and feels as though everyone out there in the cyber world is laughing at us.  Are you laughing at us?  Do all of you make fun of us all the time?  Am I the laughing stock of Twitter?  Or is this just K's paranoia taking control of our mind and twisting things around so that K looks like a failure at everything she's attempted to do with this blog?  What was this blog post about again? Oh yes. One more thing, before I forget (HAHA!), I'd like to apologize to all those Tweeps with whom I had interactions yesterday and last night and even early this morning. I'm very sorry that I talked your ears off.  I'm sorry that I was a nuisance.  I'm sorry if I bothered you, or if I've been bothering you for quite some time now.  I really can't remember what's been happening since...well, I don't know.  I just can't remember.

Another Day, Another Dilemma

Lost.  A whole day and night, for the most part, just gone.  I feel like I've been manic and have just crashed.  I also feel like I've been doing a hell of a lot of talking and socializing but I can't remember with whom.  Pretty sure we made some new online friends....now if only we could remember their names.  That's so annoying-to know that I made conversation with someone and we got along well but then after it's over I can't remember who they were or what we talked about.  Makes friendships difficult online.  In real life, I can at least recognize a person's face (well, sometimes) but even then I still have trouble remembering conversations, or even names. I've been trying so hard to develop a support system for us on Twitter, and I think we've done a pretty good job, only when I really need to talk to someone about something important, I can't remember just who it is that I'm close to. *sigh*  Truthfully speaking, I don't know if I'm actually close to anyone, either online or in real life.  And it's far too embarrassing to tweet everybody, asking if we're friends or not.  Plus, the paranoia is stifling me.  I'm paranoid I might've been the mean K at some point, and perhaps said something horrible to another Tweep and maybe I've angered someone or worse, hurt someone's feelings.  I worry so much about what other people think about us; that's the number one reason we keep our illness a secret from the outside world.  My closest friends don't know about my mental illness.  A lot of people know I take anti-depressants and so they assume I'm just chronically depressed or maybe bipolar or something they're familiar with.  I would never dare tell anyone about my dissociative disorder.  That's just TOO weird.  People can't wrap their brains around it. I don't want people to look at me differently, or treat me differently, or talk about me behind my back.  So I hide my symptoms.  From everyone.  Most of the people I hang out with in real life have been with different K's at different times but never even knew.  Because I keep quiet.  I'm shy, and I"m scared of revealing my terrible secret.  This disorder I have is the stuff of Hollywood movies, the type of mental illness that's always portrayed in a negative light, as though we are dangerous or deceptive. I don't think I'm either of those things, although I am aware that one of the K's has tendencies to do things which we find questionable or even wrong.  But that's not all of me.

 I have different me's, different parts of me which have different functions and different personalities and I can't always be sure that everyone is doing what they're supposed to be doing.  After all, I don't have access to my entire mind, just to parts of it now and then.  I know about several of the K's, but I don't know how many of us there are, nor do I know which ones come out most frequently or which ones have the most friends or anything like that.  I wonder if we'd have any friends at all if we were to expose ourselves and admit to everyone we have an illness.  I don't think they'd be able to handle it.  I think everything would change and I'd never be looked at the same way again.  So I've turned my search for friends online, where people can't stare at me or pass judgements based upon how I look or dress or behave in public.  Online, I am honest about who and what I am.  Everyone I've met on Twitter knows I'm mental, and they accept it.  Most everyone I talk to on Twitter is mental as well, and that's the way I prefer it.  I can't relate to "normal" people, because I'm not normal.  I would much rather converse with someone who understands what it's like to be afraid of people or to hear voices in their head.  I need empathy, and that's something that my real life, "sane" friends simply cannot give me.  They will never understand.  No one can, unless they've experienced it themselves.  I had a counselor once who'd attempted suicide at one point in her life.  I trusted her because she'd been where I was.  She "got it".  That's what I need.  People who get it.  And I seem to be finding these people-everyday I get up and find evidence of my having chatted or DM'd or emailed or texted people and it seems to me that we've had a conversation or an exchange of some kind that has had a positive impact on my state of mind.  I know I'm finding support, I have physical evidence in the form of notes or a journal or texts on my phone.  So I'm accomplishing my mission, which has been, since I joined Twitter in December, to find others like me.  I just have to sortof start all over every morning, figuring out who I talked with and what we talked about.  This is impossible of course.  So if you are reading this and you are one of the several people with whom I've conversed recently, then by all means say hello!  Please don't take it personally that I can't remember our conversation or personal info about you. Hell, I'm doing good if I can recognize a person's name as that of someone I know.  A lot of times I'll see people in my timeline who I just know I've talked with before, but I'm too afraid to interact with them because it's just too embarrassing to admit that I have forgotten everything I knew about them.  Now, after a certain period of time, these things get better.  If I talk to you everyday, of course I'm going to remember you better than if I only talk to you once a week.  Now I must tell you, some of the K's are very social and love to talk, but others are quite shy and try to avoid contact with others.

 There's no way of knowing which K is tweeting at any particular time (except the mean one is easily recognizable, and probably the little girl too, though she's never used Twitter before as far as I know) so if you send me a Tweet and don't hear back from me, I'm sorry.  It usually means I just can't remember how I know you.  Some of you I've grown quite fond of, but I have trouble separating in my mind the ones I know well and the ones I don't know very well.  I see the names in the timeline everyday, so they are familiar to me and this confuses me further.  I guess what I'm trying to say is, I feel like I've had a very productive week, in that I made new friends and had really nice conversations and made connections with people, I'm just having trouble now remembering who those people were.  If we have interacted before, then by all means you should feel confident in speaking to me.  If I don't remember you at all, I'll be honest and tell you, but please don't take this to mean that I don't like you or that our conversation wasn't meaningful to me.  I just have a shit memory, and with the lost time and blackouts, it's a miracle somedays that I can remember my own name.  To sum up, thank you to everyone who has made an effort to be my friend.  We really do appreciate it.  It means a lot to us.  But if you want to talk to me, it might not be a bad idea to say something like "Hi, we spoke Thursday about the new Tim Burton movie" or just give me some kind of clue as to your identity.  If I interact with you more frequently, I'll learn your name and personal info quicker.  I just need that chance.  If I've introduced myself to someone and then never spoke to you again, it's because I've no memory of us meeting.  I always have to be reminded of everything. And I do mean everything.  To prove my point-it's 6:00 p.m. now and I find that I've forgotten to get dressed today.  I'm still in my pajamas and I don't think I remembered to eat today either.  This is my normal.  It's a guessing game really.  Just be patient with me-I'm a really good friend to have, if you can just stick around long enough to get to that point. I'm not going to lie, it's hard to be my friend. Not just because of the memory loss, but because I'm moody and just plain weird.  Most importantly, perhaps, is the fact that I don't trust people. Not ever. This makes it very difficult to get close to me.  But I long to be close to people, or at least just a couple of people, just so I don't feel so alone in this journey of life. I need friends. Everyone does.  It's usually pretty easy for me to make friends, but hard for me to keep them, because I literally forget them when they're not around.  I guess all of this sounds ridiculous, and I suppose it is, but this is my reality.  I have to be reminded who my friends are.  I don't know what I'd do without Husband with me, telling me who people are when we are out in public. He reminds me of how I know them, when we've hung out, what we've done together.  If I didn't have his support and assistance, I'd never be able to go out. (which I don't do all that often anyway)  To put it simply, please be patient with me and try to understand that I can like you and be your friend, even if I don't always remember you or our previous conversation.  I know it's frustrating, but believe me it's a lot worse for me than for you.  I may ask you the same questions over and over again, but that doesn't mean I'm not listening.  I just have a hard time retaining information.  Stick around and I'll eventually get to know you.  It just takes me a long time.  You know what? I've totally forgotten what this blog post is about.  I have no idea what I've been talking about, or whether this post even has a point.  So now I must read it over again, probably for the twentieth time... God I'm exhausted.  I wonder if I remembered to sleep last night?  To all those Tweeps out there who spoke to me in the past 2 days or 2 months, thank you. Thank you for talking to me, thank you for noticing me, thank you for giving me a chance.  Now let's do it again.

When Do People Sleep Around Here?

It's far too early for me to be awake.  Then again, I've not yet been to sleep, not that I can recall, for the past night, maybe two, (maybe more) and as I'm looking at the clock and out the window, I'm seeing that the sun is up and the clock reads 7:42. WAIT- Now the clock says 10:10! How did we lose so much time already?? It's going too fast dammit, this "time" business! Therefore it's tomorrow already, now how did that happen?  It seems to keep happening to us lately, a great deal.  I feel as though I've been suffering from insomnia for some time now, at least a week or more I'd venture to guess, but it's impossible to say as I don't keep a sleep diary.  Maybe that's a good idea-a sleep diary-a diary to tell me when I've allowed my body to sleep and for how long and little details like that.  It might actually help us to take better care of ourselves, and therefore lead to a life filled with less sickness and more healthy days.  K gets sick easily and always has I guess, it's hard to remember now... K's always had a weakened immune system because of her poor eating habits, e.g. she does NOT eat fruits or vegetables and she very often forgets to eat at all.  So it should come as no surprise then, that she got sick, dangerously sick, in May of 2010.  This was her most dangerous illness ever, the one that nearly killed her.  It was her own fault really, if she'd only taken better care of herself and paid attention to what was happening to her body and to how she felt then perhaps she'd have gone to a doctor sooner.  Perhaps she would've ended up with only some bronchitis or mild pneumonia or something much, much less serious than what she ended up with in the hospital.

Acute Respiratory Distress Syndrome (ARDS), also known as respiratory distress syndrome (RDS) or adult respiratory distress syndrome is a serious reaction to various forms of injuries to the lung.

ARDS is a severe lung disease characterized by inflammation of the lung parenchyma leading to impaired gas exchange with concomitant systemic release of inflammatory mediators causing inflammation,  hypoxemia,   and frequently resulting in multiple organ failure.  This condition is often fatal, usually requiring mechanical ventilation and admission to an intensive care unit.

Kellie, herself, was in Intensive care for what seemed a very long time but which we know now was only a week, plus then an additional week in a regular private room, NOT on the Critical Care Unit but just "normal" like a regular, sick person would be.  Sigh.  I wonder how many times we've typed words to this effect?  Have I  been spouting off bits of information like this all damn night and morning?!?  God this is so fucking exhausting, I really and truly cannot express that enough.  IT'S EXHAUSTING TO BE "NORMAL"; wish I could let go and just "BE" but I'm not sure that this K, this current K, Switch Kellie, can relax enough to be any other way.  I mean, we are somewhat uptight, (not really, we just seem that way because of the serious nature in which we often speak) we are nervous about coming out to play, I guess you could say.  WE ARE AFRAID!!!! At least, some of us are, I think perhaps THIS K is not nearly so afraid as the others.  I'm not afraid.  Not usually, although I certainly do have that paranoia thing happening for me.  Not sure if that stems from Schizophrenia or what.  (At least one of the K's is schizophrenic; that's one of the things that's making all of this so damn difficult!)  We keep getting misdiagnosed because different K's show up for different doctor's appointments, and none of them have ever "compared notes" shall we say.   Should we publish these findings as a blog post, or simply keep all this information to "ourselves"?  This is utterly over-the-top exhausting, for all of us involved and certainly for K, whom I fear hasn't slept in days, we really can't be sure.  Hopefully Husband is seeing to it that we get at least SOME rest and food and the like.  This always seems to happen to us around Christmas time, is that important?  Yes, I think that IS important-Good job at finding that out for us. K has suffered from the holiday blues for many, many years now, every year, every holiday season, without fail, for reasons unknown to her but which seem vaguely to feel like...homesickness.  Even when she's at home.  That makes no sense, no sense at all.  This is madness I tell you, absolute madness.  If only I were able to efficiently organize all my notes, all my papers, all my lists; perhaps then we'd be able to step back and look at the situation from a different point of view (as if we need any more points of view!) and form some sort of opinion about K's current state of mental health. Sigh.  This is really and truly becoming a nightmare for me, for us, for K.  There's just an overwhelming amount of work to be done, work which feels so utterly important, and I believe that it IS important, at least as far as K's recovery is concerned.  K's recovery is the reason we're all here now.  We want K to get better.  We want K to have a chance at a somewhat "normal" life, although not entirely normal, for to be normal is to be boring, no offense of course to anyone reading this who may be considered by society to be "normal".  Oh what I wouldn't give for another 6 hours of extra time today, whenever today is! Time to work, to write, to get this shit out of my head, and perhaps even to sleep.

Regrets: Old and New

Still in bed and wish to stay here for as long as possible this morning.  Yesterday was horrific, at least what I can remember of it.  I checked my Facebook page, my Twitter, my phone....all signs point to some lost time and dissociation. Don't know who wrote that last blog entry. Was having a very schizo day all around.  That's not necessarily literal, that's just what I say when we're having a mentally trying day.  Which is most days. Depends on who we are that day.  Yesterday we were weak and pathetic. Lots of crying, I remember that. Plus, a look in the mirror reveals raccoon eyes and mascara trails down my cheeks so it's easy to figure out.  I cried about something that happened 10 years ago, more so than I'd cried when it actually happened. I cried about not getting a marshmallow Santa in my stocking. I cried about my Daddy. (It's not long until the anniversary of his death, and both I and my mother get very depressed around this time of year.) Yes, depression on top of the holiday blues...it's not fun.


How do I explain to you what happened to me? I don't even know myself. I feel so traumatized though. I can't remember what was the initial trigger or even if there was one; I just know I was in a different place all day long. But the end of the day brought a slap in the face. Mom wanted to watch a video of the family Christmas party from 1994 and of course we couldn't say no, so for the first time since my daddy died, I got to see him again. When I heard his voice I began to sob. I was always Daddy's little girl. I miss him more than I could ever express in words. After he died, I had a(nother) breakdown and went to a dark place. I did a series of paintings called "Doctors Are Sick". I can't remember how many paintings there were exactly, but I very distinctly remember that they were done in a style I'd never used before, as though someone new were painting. Those were the most important pieces of art I've ever done, because they represented pure emotion.  For the first time in my life, I had painted without restraint.  I sobbed uncontrollably as I created these canvasses, often times lying the painting on the floor and using my hands to manipulate the paint. These paintings were dark and gloomy and all had a hospital/medical theme, as my father had been sick for several years before he finally died and I spent an enormous amount of time in doctors' offices and hospitals.  I poured all of my grief onto those pieces of canvas, all my pain.  I was quite proud of them actually, but only because I knew they were pure.  Pure feelings. No gimmicks. No trends. No technique. I was painting for no one but myself.  For a while I kept them hidden, but one day someone came over and saw them. I don't remember how everything came about, but in October of that year-I wish I could remember what year that was-my paintings were hung in a show at a gothic/industrial/fetish event.  The event coordinator liked the paintings because they were so dark. Almost all of them were done in black, gray, and hospital green. One of them was a doctor, crucified on a cross made of money, atop a mountain of pill bottles. Here's another one, called "Pinned-On Smile":

Several of the paintings contained hypodermic needles, and I didn't know what the significance of that was until I had a dream one night and remembered that at one point, the hospice nurse gave us the option of putting my father into a drug-induced coma so that he wouldn't suffer so much pain. I realized after waking from the dream that I had a lot of issues with the fact that I helped decide to give my father that shot. It's as though I helped kill my Daddy.  So there are lots of needles in the paintings.

I suppose I might've sold them to a heroin addict or perhaps a drug rehab center.  But the paintings succumbed to a tragic end; the event coordinator never got back with me about them.  She had them in her possession and I was supposed to meet her to pick them up.  Well, before that happened, she moved to another state. She claimed to have left the paintings with her former boyfriend, who lived in the same city I did.  Well, before I could retrieve my art from him, he fucking died!  I never saw my paintings again.  I have a few photos of some of them, that's all I have left.  At least my sister got to see them; she appreciated them more than anyone else could've and they moved her to tears, so in the end I have that. Plus, just getting all that suffering out of me and putting it someplace else was very liberating. Bonus:paintings don't leave scars!


We really need to see our shrink but have to wait another week or so.  I can't remember when my appointment is but it's sometime in the near future.  Not soon enough however.  The self-injury has gotten worse than it's been in years.  I haven't used a knife since the mid-90's, so I keep telling myself that I've gotten better, but to look at my skin proves otherwise.  The other day my mother saw me in a dress and started to cry when she looked at my legs.  I'd forgotten how bad they looked until that moment. I ran away from her and made a mental note to keep my skin covered up until all my wounds have healed.  Luckily, it's winter now so it's not suspicious to wear lots of clothing. Come Summer, I'm fucked, as these current wounds are already showing signs of terrible scarring. But I'm better!  I didn't use a razor blade!  I used tweezers and a nail file and scissors and my fingernails. That's an improvement, isn't it?


God I am such a NON techie. I got a new phone for Christmas, and I don't know how to use it yet, and I totally humiliated myself yesterday by sending someone unknown either a Tweet or a text; I have no idea what it said or how I did it, I just saw the words "Message Sent" and completely freaked out.  It was too late to take it back. Plus, since there's been a 2 hour wait at the wireless store, I've not had my old phone data transferred to my new phone, so I don't know who anyone is who calls or texts me, as their names are not currently stored in my phone. My solution has been to not answer the phone. People who know me really well (that's hilarious-as if somebody actually knows me really well) aren't shocked when that happens; I often go off the radar for days at a time. It's hard to believe, but most of my real life friends don't even know about our illness. I'm an excellent actress.  Well, most of the time.


Yesterday I just couldn't hold it together. It took everything I had to be the Good Daughter and not let Mom know how bad things were. I kept slipping off to my room to escape, or finding tasks to do in other rooms, so that nobody in the house would see that we were struggling. Unfortunately, by the time my husband and I were alone at the end of the day, I was totally exhausted from trying to be "sane" all day and night and I just melted into a puddle right in front of him.  He's never seen me like this.  We're still newlyweds. I told him about all these things before we got married (of course) but he's never actually experienced me being another me.  I have the K that he knows and loves inside of me but she wasn't around yesterday.  Not sure where she was.  The voices were so loud I guess they drove her away.  My biggest fear is that we will drive our husband away, just like all the other people in my life. I'm worried about K.  She's having a rough time right now, and she can't talk to anyone about it. There is no one she can trust. I tried to be honest with my husband (who really does need a name!) about the thoughts in my head, but it only succeeded in scaring him. I don't want him to be afraid.  How can I make him forget everything he saw and heard last night?  What if he never looks at me the same way again?!? He's already laid eyes on my self-inflicted wounds; I try to hide them at all times but there's no hiding my FACE, which I've been obsessively picking at. Both my arms and legs are covered in bloody scabs. I am fucking disgusting. We want The Old K back, the chick who's 23 and talented and thin and pretty and smart and funny and sexy and popular and who always looks put together.  Where the fuck did she go?