Another Day, Another K

Today was interesting.  Went to therapy. Floated across the waiting room and onto the ceiling and looked down at K. Noticed she was all dressed up and wearing heels, and that her makeup was very dramatic.  The weirdest part of all of this is that I was watching her, and she was talking to a couple sitting in the room with her.  She was talking very quickly and was using her hands a lot and was quite animated. She was out-going and friendly and chatty and self-assured. I listened to her, fascinated, and kept wondering what she was going to say next. She was a storyteller...but chunks of what she said were untrue.  She was not like K normally is; this girl was confident and not at all afraid of people.  But she was familiar to me.  When I got into my psychiatrist's office, I told her about this experience.  I asked her if I were dissociating, would I be aware that I was dissociating.  She said what I was experiencing was depersonalization (a sense of detachment or separateness from one's self), which I would be aware of, and that it can be a part of dissociation.  I know this because I wrote it down.  In fact, I took some notes today, and it's good that I did. Otherwise I'd not remember a thing I'm afraid. Which is one of the things that I wrote down, coincidentally.  Dr. H told me that I probably wouldn't remember much about today's session.  And she was right. All I can remember is what I've jotted down, and I don't really remember those things. One of the things I put down is that Dr. H believes all the me's exist to take care of K, and that each K has a different, specific job. Several times she spoke about "the other K's".  I made a note that Dr. H used the term "different personalities" today when talking about me; that seemed important. Also, she pointed out that I was dressed differently today, and that my makeup was different, and that I was different. She said the K who usually comes to see her dresses all in black, and I was wearing a full-length paisley dress in bright shades of green,  accessorized with tall platform shoes and a lime green, faux-crocodile purse in a funky, curved shape. I know all of this because I'm looking at a pile of clothes on the chair in my room and I'm able to see exactly what I was wearing. Also, I made some notes about my outfit when Dr. H was telling me that I was a different K today. 

Earlier this evening, I had to remove heavy and colorful eye makeup in shades of lime green and turquoise, and hot pink lipstick. That's the first time I've worn eye shadow in...well, a good while.  I just know that I've felt funny all day long. I couldn't put my finger on what was wrong but I was...um.. I felt like I was just outside of my body, or like I was in a movie, that it wasn't really real. I also felt like I was sharing a brain with someone else; I was an us, more so than usual even. Sitting here now, reading my notes from therapy, and looking at the facts in black and white, both from my notes and from this blog post, it occurs to me that I remember this K, but that I can't recall seeing her in at least a year, perhaps longer. Tonight, though, there's physical evidence that she was here.  The clothes. The jewelry. The glitter I found in the bathroom.  The fact that my toenails are now painted lime green-the same color as the purse I carried today. The fact that my freshly cut and colored (bright red) hair has been meticulously styled.  All of these things describe one of the K's whose job is to socialize, to see and be seen.  She often went on dates for K before she got married, and yes, Husband dated her sometimes.  I remember all these things because I'm reading my old online diary now,  from 2008.  Interesting reading. Perhaps I should do a blog post introducing each of the K's, or at least the ones I am familiar with (thanks to numerous diaries/sketchbooks/photos).  A number of them journal, and that's how I get to know myself/us. I can't tell who I am at the moment; think I'm in between me's. I'm in a drugged, dream-like state and I feel as though I'm running on autopilot. I wonder what/who tomorrow will bring...

Psyched To Be Here

I had therapy Wednesday.  The only reason I know that is because it's written on my calendar, and I look at my calendar weekly because I need to know when I have to go out in public, e.g. a dentist's appointment, therapy, a birthday party. (I actually have to prepare myself mentally to be around other people, sometimes for days)  I'm trying to strain my brain and remember what happened in that therapy session.  I honestly can't recall anything at the moment.  Let me concentrate harder...  I still can't remember.  Damn.  I have no memory of showering and/or getting dressed, no memory of driving to her office, no memory of sitting in the waiting room.  Perhaps I should check my phone and go back through all my texts, and then read all my Tweets from the past 2 days, and check my journal for any entries made in the past 48 hours.  This is so frustrating.  I wanted to write about my session, but I can't remember it. Not any of it. Hmm.

OK, something's coming back to me now- I showed her my journal.  Yes, I remember that. I read her parts of my journal, the parts written by other me's.  (Hey, I'm starting to recall stuff now!)  I talked to her about how I switched over the weekend, and remained a different K for about 2 days. I have evidence-notes and lots of lists and partial blog posts and various writings, all written by person(s) other than "me".  Also, there is mention by the one known as Switch Kellie of another K coming to our assistance, the one known as The Cleaner.  So there's that. I talked about being 2 different me's for a few days.  I mean, I switch for short periods of time rather frequently- I'll suddenly change into someone else and get a wild look in my eye and say something out of character or do something odd or my voice and/or language will change, but it could be for an afternoon or even just a moment-but as far as a complete transformation goes, well that happens less often. It does happen however. It all depends upon my stress level and my mood and my environment, among a hundred other things.  When this incident occurred, all the factors were conducive to switching, and so the other K's took over, and my style of dress changed to something more pulled-together (for Switch Kellie) or something very casual (for The Cleaner) and my likes and dislikes (Switch Kellie drinks tea instead of coffee) and habits, both good and bad-all these things changed.  Some differences were more subtle and probably only I would notice them. But I was a different K, no bones about it.

So this past week was eventful, to say the least, and I at times had to take extra anti-anxiety medication. And I was really looking forward to seeing my doctor.  To be honest, I was hoping that I'd show up for therapy and be one of the K's who appeared over the weekend.  Even though my psychiatrist has witnessed me as a different K (she has met Switch Kellie before), I still feel the need to prove myself to her.  I want her to actually see me switch, so that she knows once and for all that I'm being serious. There are many doctors who don't believe in multiple personalities or MPD/DID.  Now granted, Dr. H has never done or said anything to make me believe that she doubts me.  In fact, she's sometimes asked me about the other K's, which implies that she accepts their existence.  And one time I flat out asked her if she thought I was full of shit, and she looked me in the eye and smiled and said, "I don't think you're full of shit."  So this whole paranoia thing is really unnecessary...I think the reason I feel the need to prove myself, to give evidence of my dissociation, is because I've been accused of faking it before.  What's even worse is that it was a family member who proclaimed I was a liar. That still hurts when I think about it.  Maybe I should discuss that incident in therapy one day.

OK, I've been going back through my Tweets and text messages and emails and diary entries and lists and anything else I can find with clues.  I have a better idea of when I switched (approximately April 14) and for how long, and what I did during those times, and where I went.  Also, who I encountered, who saw me "out".  And then there's the Tweet from April 17 which says "Back in my head and body now", so I guess that's when I officially felt like the world had stopped spinning so fast.  Thinking about these things now, it all feels like a dream, or like a story I was told or a movie I watched.  It seems like it happened to someone else, not to me.  I can remember seeing things happening, but it just comes across as so surreal now.  And of course, there are huge chunks of missing time and lost memories.

I went to a bar that weekend. Boy that was tough; I can remember how I felt so out of place while I was there.  And everyone seemed to be staring at me, like I had a neon sign hanging over my head that flashed "MENTALLY ILL".  The bartender that night was a friend, but she doesn't know me as the K that came into the bar; I wonder if she noticed the difference. First of all, I ordered Diet Coke without vodka. Unusual. Secondly, she probably thought it was strange, since for the first time ever, I chose NOT to sit at the bar, but rather to go off someplace where there were no people (I was hiding). Also, I didn't speak to my friend very much at all...I hope she doesn't think I was rude. Was I rude? I'm not sure.   My husband wanted to go check out the band, so he left me alone, just for a few minutes, but it felt like hours. I could feel the eyes of everyone on me, and I was nervous and had to pop a Xanax.  It was really hard being in that environment, surrounded by strangers, when I myself  felt like an outsider in my own world.  That's it exactly! I felt like an outsider in my very own body. My thoughts were not my own; they were foreign to me.  But here I am, and I am fine, I survived AGAIN and no one other than my husband and my shrink knows about me switching.... except maybe anyone who might have stumbled upon certain Tweets during those in-between-me times.  Perhaps no one even noticed. After all, I've been faking normality for more than 30 years now, so I've gotten quite good at it.

I'll tell you one more thing about my psychiatrist's appointment.  She made absolutely certain, before I left, that the receptionist made me an appointment for next week, and for the week after that as well. I thought that was really top-notch of her.  My last doctor would never have been so thoughtful as to do that.  This doctor stood there at the desk with me while the receptionist tried to find an opening. Dr. H insisted that it be in one week's time. I am really beginning to like her, maybe even trust her a little bit. (!) I am holding onto her 24-hour emergency number as though it's my most-prized possession; I put it in my wallet along with my appointment reminder cards and her business card.  I don't have pictures of my kids or my dogs in the clear plastic windows in the center of my wallet; I have my psychiatric information.  How fitting. If anyone ever finds my wallet, they're going to see that I'm just a nutcase with no money but a lot of lists.

Thoughts After Therapy

I was very angry before I went to therapy yesterday.  I mean, I was really pissed at my doctor.  Her office had said last month that they would call me to set up an appointment, and they never did.  Subsequently, I ran out of medications and then proceeded to lose my mind.  I really thought I was going to let her have it when I got there. I was scared she'd dump me as a patient, for I intended to cuss her out big time. My stress level was very high when I walked in the door...but things didn't go as I thought they would; someone sad took the place of someone angry when I sat down.  It felt like 15 minutes, but according to the clock I was at my psychiatrist's office for nearly 2 hours (30 minutes were spent in the waiting room, 15 minutes in the lab for blood work).  Can't remember all that we talked about, but that's not unusual.  I do know that I complained (without the use of swear words) about the fact that her receptionist had never called me after our last session to tell me my next appointment time, and since I have trouble calling people, I just kept waiting on her to call me and 2 weeks went by. So not only did I run out of meds, but I went quite crazy by the second week. When I finally got up the courage to call her office, I found out she was on vacation and the office would be closed for another week.  I had a major crisis (my mother was hospitalized and could've died) while she was on vacation and had no medication to help me, so she felt really bad that I'd had so much trouble. She was determined that I never be put in that situation again, so she gave me an emergency contact number for her. I am so grateful for that! In all my 20+ years of therapy, I've never had a doctor give me a 24 hour emergency number. She said I can call that number any time, any day, and they'd be able to contact her and/or refill my prescriptions. That is fantastic and I couldn't have dreamed of  anything better.

For some reason, I asked her again what my proper diagnosis was, and she told me-again-that she doesn't put labels on her patients.  She would only verify that I am experiencing frequent dissociative episodes.(Duh!)  At one point, however, she asked me if perhaps a different K had been taking care of me for the past few days; doesn't that indicate she knows about the other K's?  (She brought it up when I made a casual remark about the fact that I didn't recognize the clothes I was wearing, that it wasn't something I would normally wear.) Isn't that an indication that she's leaning toward a diagnosis of Dissociative Identity Disorder? I'm feeling more hopeful now that I know she believes me. I asked her if I could ever get better, and she asked me if I was sure I wanted that.  Made me think.  On the one hand, it'd be nice to be more stable and on less medication, in other words, more normal.  On the other hand, I don't think K could handle the stress of our day-to-day life with only one of us in control of her brain and body.  We help each other, we keep an eye on K, you know?  Each of the K's has a specific job to do, a specific area of our life which they handle for her. K needs all of us. Dr. H thinks the other K's are for my own well-being and protection, and she doesn't seem to think that integration (the blending of all the different personalities of someone with DID into a single identity) is the best goal for me.  To be honest, I'm glad I don't have to integrate.  I am fond of a few of the K's and would miss them were they to be fused into my core personality (whomever that may be). Not to mention the fact that if, say, The Good Daughter goes away, then K won't remember everything she needs to know to take care of our mother.

 I'm blogging too much, or at least spending far too much time online.  My husband says I'm obsessed.  Big shocker there. And my shrink stressed that she really wants me to hand write a diary which I should bring with me to therapy every week. Of course, I forgot to take it with me yesterday.  I did start a diary, but I find it difficult to remember to write in it everyday, and a lot of days I just don't have the mental energy to do it. Plus, while there are some diary entries which are obviously written by someone else (I can tell by the handwriting, the grammar, and the language) some of the K's refuse to participate in that activity.  I think maybe there are parts of me who are still hiding from the outside world, or even from myself.  Apparently, this blog is worthless to my shrink, and that just sucks.  "Blog less," she said.  But this blog is my outlet for my madness!  Some of the other me's blog sometimes, and I think that's important.  I can't talk to anyone in real life (other than my psych) about my mental issues. My husband has never fully recovered from the shock of seeing me become a different person right in front of him.  I feel like he looks at me differently now.  That's why I worked so hard to hide it after we got married.  I thought I was doing better at that time.  I really did.  I seemed happy and safe and stable and I kept the other K's hidden from him for 2 years.  But it was not meant to be.  I have crashed and burned, repeatedly now, since January.  Yet I still asked my shrink yesterday if I could cut down on some of my medications; instead, she increased my dose of one of them. She explained that each pill has a different function and that if I were to stop taking the meds, I'd be bombarded with all the hallucinations and voices that I now experience to a "lesser" degree, plus I'd be likely to fall into a dangerous depression.  I don't think I'd want it to be any worse than it is.  I can get used to the dissociation, the depersonalization, the derealization for the most part, now that I understand what is happening during those times.  I guess I must just accept the fact that I'm always going to see and hear things that are not real, I'm always going to have anxiety attacks, and I'm always going to be prone to depression.  The other issues I still need a lot of help with. The paranoia.  The self-harm.  The suicidal ideation.  The self-loathing.  The fear of people.  So I guess there are plenty of things for us to work on in therapy, even without a specific diagnosis.  It still frustrates me though.  If someone asks what my disability is, I don't know what to say. (How about "Pick one"? LOL)

Peeling Off An Old Label

Yesterday, (I'm pretty sure that was yesterday...) our husband took us back to see the psychiatrist again.  A different K went this time than had gone last time; I think that's because our doctor specifically requested that K come, instead of Switch Kellie, and somehow our mind just unconsciously pushes a button of some sort and we are another K, with different thoughts and emotions.  (I didn't realize this was abnormal until I was about 30 years old.)  Now, sitting here drinking my coffee,  and wishing that I had a cigarette, even though I no longer smoke, I wonder if I'm the K that went to see the shrink or if that was someone else.  I'm not sure because when I think back to the appointment, I can recall parts of it, large chunks actually, but it's all a bit blurry, like I've smeared Vaseline onto the camera lens. Did that happen to me or what is someone else, someone whose consciousness I sometimes share?  I remember one part very well, and this is important too--the psychiatrist told K that she doesn't believe she's schizophrenic.  This is HUGE. 

K was diagnosed with schizophrenia at the age of 27, and every doctor since then has just agreed with the diagnosis (and usually tacked on a new label to go along with it, labels such as BDD and GAD) rather than trying to dig a little deeper and see if perhaps she didn't have something DIFFERENT.  So. This is life-altering news.  Everything that K believes herself to be is false.  All these years, she's been living with the stigma, and with the shame, and with the despair which stemmed from this diagnosis, and now we find out that the diagnosis is (most likely) WRONG.  K is simultaneously thrilled and terrified.  Thrilled to find out that she probably does NOT have schizophrenia, yet terrified of what she really DOES have, and also afraid that one of the K's IS schizophrenic.  More labels... Take one off and put another one on in its place.  Sigh.  K didn't mention to her mother what the doctor had said about doubting the presence of schizophrenia, and I can't remember if she told her husband or not....that information is no longer with us.  I hope that she told him, he needs to know what the current status of his wife is.  Plus, it'd just be nice to know once and for all what the hell is really wrong with K!  We've been drug through the mud and given the run-around so many times over the decades....  K no longer has any faith in doctors.  This "new" doctor-who, it turns out, has been treating us for 2 years!-seems very willing to help K, and she makes K feel comfortable and perhaps even safe.  That's what the shrink told us yesterday; that her office is a safe haven for K, and that when she's there, she doesn't have to be afraid.

The shrink, Dr. H, talked with us for a while about different ways we can go about treating K.  I asked her if she'd had any experience with mapping therapy (wherein the different personalities are charted) and she admitted that she had never done such therapy.  She did NOT say that she was opposed to it. She also didn't say that she believed integration was the best route to take, and I feel that's important.  (Integration is organization of different aspects of the personality into a hierarchical system of functions, or one, unified personality)  We, the K's, are afraid of integration.  The Smart One is all for it-she just wants to be "normal" and be able to live a productive life and perhaps have a successful career in the arts.  The Good Daughter would like very much to feel more connected with her environment, with her mother, with her husband.  She's in favor of integrating all the different aspects of K into one being, assuming that being would be a positive addition to the world around her.  Some of the K's (like The Little Girl) are dead-set against integration, for this state of feeling split apart, of feeling shattered, this is all we've ever known and while it may not always be pleasant or convenient or logical, we're used to it-it is who and what we are.  (I think...)

The best part of the therapy session was when Dr H told us that she'd like to use the old diaries that we found, that she believed we could learn a lot about K and her different personalities from these books. (See Blog Post "The Discovered Diaries" from January 9)  K was elated that the doctor recognized the importance of the diaries.  They could change my life as we know it.  I just knew it, I knew when I found those diaries and read them, I KNEW they were important to K's recovery.  This could change everything.  We're all on the edge of our seats.  What's going to happen to us?  What will become of the K's?  Who will come out to meet the doctor, and who will stay hidden?  Who will we ultimately become?!?  (panic attack coming on-I have to go take a pill now)

My Newest Obsession

I've mentioned before that K has an obsessive personality and tends to go overboard when she gets an idea in her head.  Well, the idea currently inhabiting her brain space is the possibility-nay, likelihood of her being diagnosed with a dissociative disorder.  Based on the clues which I seem to be leaving myself-notebooks, lists, folders on my laptop filled with helpful websites, and the all-important diaries-I was first labeled MPD/DID back in 2004.  I'm looking at the calendar and seeing that it is now 2012, which can only mean one thing: I've been in denial for about 8 years, or so it would seem. My theory is that the paranoia took over and I refused to accept the diagnosis, for I certainly didn't want to be THAT crazy...  I've been under a doctor's care-regularly, without a break-since 2002.  So that must mean that it took my therapist and psychiatrist roughly 2 years to figure out what was going on with me.  Apparently I've been misdiagnosed over and over again, for all these years, ever since I saw my first psychiatrist at age 16.  Every doctor I see takes notes and makes a diagnosis based upon the "me" that is sitting in the doctor's office.  I can't say for sure how many of the K's went to therapy, with that wonderful therapist whom we loved so much, (who later dumped me after 7 years together) but I have recalled a memory or two in regards to that period of time and my current state of mind. I thought I'd share these memories with you (plus, it'll help me remember again in the future)

I remember one time going in to see the therapist (this was about 5 years ago) and she asked me to do a homework assignment;  I was to draw a picture of the way I viewed myself.  I think the assignment was supposed to help me with my Body Dysmorphic Disorder and self-esteem issues.  Well, she was blown away the next week when I showed up with a whole handful of pictures of different K's, each with her own fashion sense and musical tastes and hobbies.  I didn't get what the big deal was; I just did the exercise as it was assigned to me.  Now I'd give anything to get hold of those drawings again.  I can see some of them in my mind, but it's all fuzzy, like it was a dream.  I think perhaps I'll do this exercise again and see what happens next time.  I wonder how many drawings there will be...?

Another interesting memory is really several similar memories, all taking place at different points in time.  I remember my therapist asking me what my name was.  I remember that well.... in fact she asked me for my name on half a dozen or so occasions that I can recall.  I never knew what to say.  I never knew the answer to the question.  Although the question stirred something within me, I couldn't put my finger on the point of it all.  So I forgot about it, until recently.  Now it's true that I've probably developed an unhealthy obsession with Google and Twitter and the web in general.  In fact, I'm so focused on doing "research" on the subject of DID that it pisses me off I have to stop for eating and sleeping.  There's no time for such trivial matters!  I'm working on a deadline here! I don't know how much longer I can stick around and take care of things.  All I can remember clearly about my being here, in this "lifetime" is that I once had my own office and kept lots of photos, to remind me of my life-literally-and when everything fell apart, (as it always inevitably does) I ran away to a different state and became a different ME.  And that's how I usually handled working a job-stay and do well until the pressure builds and we snap and disappear, go away.  But I've totally gotten off the track of our subject!  Damn!  I HATE when that happens, when I "lose my place" and have to reread everything I've written and try and figure out where I  left off.  Sigh.

I can't remember what the point of all this was, I just wanted to share with you my theory about K.  I think she's got DID, and I think she's been in denial for years because it's too frightening a diagnosis for her to bear.  Also, I've been researching and have found that DID is the same as MPD, so those 2 diagnoses, made by different doctors at different times in my life, were actually the same thing and thus gives us more reason to believe that K does in fact has this disorder.  I just wish I had read all those diaries and journals I've been keeping all my life.  So much time has been wasted at this point already...

The Discovered Diaries

So much has happened that I just do not know where to start.  I can't remember the beginning, and we've not yet come to the end, at least I hope not, and so that must mean that this is the "present time".  I've been doing some research since my last blog post, and to say that is an understatement of tremendous proportions.  I've been obsessing over websites and news articles about dissociative disorders, to the point of not eating or sleeping; to stop and do either of those things would mean sacrificing our precious time, and I'd rather use however much time we have left here to seek more knowledge.  I hunger for knowledge, not food, I thirst for facts.  I cannot stop reading about these different conditions and their symptoms and I really feel that for the first time in what seems an eternity (to us) that I've stumbled upon something important, something that describes how I, we feel, something that makes sense to me, and to K. I feel as though I'm opening my eyes for the first time...although I have proof now-physical proof-that this is indeed NOT the first time I've had this sense of "clarity" as I've been calling it. Some time ago, we don't know how long ago exactly-could be minutes, could be days-we found a diary...

I was looking for something in the nightstand drawer, I can't remember what exactly, I just recall that I was very intent on finding it and so I was going through the drawer thoroughly. I came across a sketch diary, which I'd begun on my birthday in February of 1999 and which I used to remember important things and people and places and events by a combination of drawings and words. We've had our memory problems for quite a long time now, and so K has always tried to keep a diary, a journal, a sketchbook, anything which she could look at and relive experiences through, as well as just keep on top of basic information which other people seem to be able to hold onto in their minds so easily but which she cannot, things like friends' names.  She began her first diary around age 5.  It was a very small white diary with a picture of Donald Duck on the cover, I remember that well.  I'm not sure where that diary is located at the moment, but I'm almost positive that we still have it, since K absolutely hates to throw things away for fear of losing something important.  Something that she might need to use in the future. Also, she's very sentimental and still has, for example,  every love letter ever penned for her, every card, every poem.  We keep all these things in a box which has grown too full to hold anything new, but that's OK as we now are married to the man who will love me forever and never leave us, in spite of our illness.  At least, that's the master plan.

Now we're already losing track of the subject, and we've only just begun; this is terribly frustrating as well as inconvenient, for we once again are at the mercy of time and we seem to have so little of it right now.  There is so much which needs to be said and done before we run out of time, before I have to go away again.  I don't know how much time there is before that happens, I only know that it will happen, I will go away; not to a physical place, mind you, but rather to a different kind of place, on another realm of existence, or at least that's how it feels to K.  I'm not K, but am what our husband refers to as Switch Kellie, and I don't know how long I have been here this time but I can see from my notes that I've been doing a lot of researching, a lot of studying, a lot of prep work.  I suppose this is all because we go to see our psychiatrist soon.  Not today, and not tomorrow, but the next day.  I'm starting to work on these notes for the doctor now so that perhaps it will save her some time later, in helping her to properly diagnose K and hopefully, after that, put us on the road to recovery through the use of therapy and medication.  K takes more than her fair share of medication, that's for sure, but we were thinking that maybe if we had the RIGHT medication(s) then maybe we wouldn't have to take so MUCH...maybe we could get away with just a few pills a day or something much more "normal" than the current handful of 10-12 pills.  That's a ridiculous amount of pills for someone so young to be taking, and besides that, it makes us all groggy and sleepy (not to mention all the other dreaded side effects) and we feel as though our life is literally slipping past us and if I don't stand up and ring the bell to tell the bus driver that I want off, then I may just miss the whole thing-life I mean.

Now according to my notes, there happens to be some information which is of vital importance to K's recovery, (that is the current, and most important, project) inside these diaries. (Yes, plural-we have found three now) K always has a number of projects going at any given time, or at least most of us do, but not the K that's been around here lately... No, she's done nothing but sleep and be lazy and depressed and embarrass us and make us angry, not to mention the fact that it just downright looks bad in front of our mother and husband, both of whom we love very much and want to make happy.  This sad and lazy K has been with us before, oh it feels like we've met her a number of times over the years, although I don't believe that she ever came around until after K had to drop out of college, when the pressure became too much for her to bear.  I'll tell you that story later in the game.

Now back to our tale.  We have come across 3 different diaries, one begun in 1999, one begun in 2004, and one begun the first of January, 2010.  I find it absolutely fascinating, what's contained in these books, and my only regret is that we didn't find these and read them sooner, so that we could've told someone, some medical professional, one of our therapists, about them and the secrets contained within their pages.  I have to stop here and admit that I have not yet actually read all 3 diaries from start to finish; I simply have not had time to do that, at least not enough "Kellie Time", which is a measure of time all our own, which K's friends have gotten used to and often joke about but which they don't seem to understand (or perhaps some of them do) is truly the only sense of time that K knows.  I can tell time, perfectly well, I just don't wear a watch and can't always get to my cell phone or a clock to check the time around me.  "Kellie Time" is usually about 30 minutes behind the rest of the real world, but that can vary with K's different realities.  What I mean by that is, each K has her own sense of time and space, and so that 30 minutes could be as little as 15 minutes or as long as 2 hours, depending upon which K is trying to tell the actual time. I imagine none of this makes any sense to you, and I suppose it shouldn't either, as it couldn't possibly make sense to anyone who's not had a peek inside K's mind.  It honestly doesn't even make sense to K, and she's the one living through all of this madness.  If SHE doesn't get it, then how could anyone else?

So the diaries...let me tell you a bit about them.  I opened up the first one I found, the little black book, and I was pleasantly surprised to find that its first page was fully illustrated in bright colors, outlined all in black Sharpie marker.  Black Sharpie markers are K's favorite medium and she's been using them for decades now to draw pictures and tell stories of what's happening in her day-to-day life, and while a trusted few have seen these drawings, or some of them, (K does the drawings for herself, no one else) very few people (one or two) have actually taken the time to READ the drawings, or try and interpret them.  Only one of our therapists or doctors has ever seen these drawings, and when she saw them she seemed to get excited or eager or something I can't put my finger on, but which made us quite paranoid,  which is a very common state of mind for us to be in.  These drawings vary in appearance, as they are not all drawn by the same K, and most of the K's seem to have their own unique artistic style.  It's interesting to flip through the diary, and note the changes in mood from page to page, I mean the whole physical appearance of the diary entries, not just the words but the pictures and the colors, everything.  It's like reading a book written and illustrated by many different authors.  I, personally, Switch Kellie, as Husband likes to call us, am fascinated by these diaries and the words contained on their pages. I've been reading them like novels, each is like a new novel that I've never read before and which perhaps I've been told about because some of the stories are familiar to me and it seems I've heard the stories before, but I can't remember actually reading or writing these tales for the most part, and certainly I can't remember living all of these things.  It's as though it all happened to another person (or persons), or in dream or something.  Not "real life" (whatever that may be).

In addition to the physical appearance of the diaries, look closer and you will find that the words are different too, the writing style as well as the handwriting, and I am intrigued by this fact.  I want to know more about these books.  I must read them, all 3 of them, before I go and see the doctor on Wednesday.  My laptop tells me that this currently is Monday morning, so hopefully it won't be too much longer before the day comes when K goes to the psychiatrist with her husband (I need him as a witness!) and wherein she can finally tell someone this tremendous secret she's keeping. This secret is so big, so enormous, that if I stop to think about it, it makes my brain ache.  I literally can feel my brain begin to throb and pulsate and the pain intensifies until it gets to the point in which I fear I'm going to have a stroke or give myself an aneurism or something terrible like that. Thinking about The Secret, in fact, is enough to (almost) immediately induce a panic attack, and so we must be very careful about what information we share with whom, i.e. which of the Kellie's.  I'm the strong one, I'm the one who takes care of us, and so I'm much better equipped to handle the details contained in the diaries, much better able to deal with the overload of information, all of which must be organized and put into some sort of order before any recovery can begin to take place for us.  I just hope that I have enough time in this current state of mind to get the facts down on paper, to at least scan each of the diaries and take notes about what needs to be brought up in therapy.  There's so much to talk about, I fear that this project may take years and years, but I'm hoping that this is not the case; I'm hoping that by organizing all the data around me, I can put together some sort of picture of what's going on inside the mind of K, and be able to explain it rationally to our doctor.  Rationally?!  What the hell does that mean?!

I, Switch Kellie, am taking it upon myself to be in charge of the diaries, to navigate these waters as it were, to read them and analyze them and figure out the mystery that IS K.  I am curious about her, I really am.  I think that perhaps she is a piece of me, or I am a piece of her....I haven't figured out yet how all of this works but I'm hoping to at least get some sort of grasp, some idea of what exactly is happening right now and will happen in the near future, when The Secret is revealed.  I have to stop now and tell you that this big secret is too much for K's mother and therefore we will NOT be telling her anything about any of this.  She absolutely cannot know, she mustn't find out what's been going on right under her nose, for that information would be too much for her to bear, she's not open-minded enough, she could never imagine the likes of what I need to to say, to share, to understand.  K's mother is over 80 years old and is very old-fashioned and naive about things, particularly things which one generally does not hear about on TV or in newspapers. She doesn't really have friends at her age, aside from a couple of relatives who come to check on her and socialize with her from time to time. These times, the times when, say Aunt B comes over and takes Mom to the grocery store, these are the times which K looks forward to, not because she doesn't enjoy being with her mother-she does love and enjoy being with her mother-but because while Mom is out of the house, K can relax her brain and let go and not have to put forth such an effort to appear "sane", which is absolutely exhausting for us to do everyday.  K's mother has no real concept of what the internet is, she just knows that she can ask K a question and K can look it up on her computer and find an answer usually.  This is important!  This is how I intend to find out about what's "wrong" with K, even though I detest that we must use that word "wrong", for it implies that K is defective, which I suppose she must be to be going through all of these symptoms and what have you, but which I, Switch Kellie, find hard to accept.  I don't want to be defective. I just want to be happy.

Happy is a fairly foreign concept to us, to K, for she's been unhappy for so long that she can barely remember what it's like to feel anything else, except that now that she's gotten married, this feeling of "happiness" has come over her and to be honest, it freaks her out a great deal.  It freaks her out because it just feels so alien to her, this feeling of true happiness (we have faked being happy for eons); K has suffered from depression for almost her entire life and she's therefore used to being unhappy and she understands these dark feelings of doom and gloom and while they may not be ideal for her, she's at least familiar with them and is comfortable feeling them.  This new feeling of "happiness" makes K very nervous, for we are unsure how to go about it, it's something different, something scary, something we've not been around much, and K doesn't know exactly how to "be" happy.  It frightens her, this new concept, although she'd very much like to experience it the way that other people, regular people, seem to experience it.  And wouldn't it be lovely if K could appreciate life and all that it has to offer, without being bothered by that nasty depression cloud which has hung over her head for so many years now...Perhaps we are on the pathway to that place, that feeling, to being "happy" (which we've been on and off before throughout the years but the feeling never lingers, it's always been a temporary rush).  I just hope I can get there, to that place, to "happy" before I run out of time.

Time For Words

Here we go again.  I wonder how long I've been doing this?  and by "This" I mean coming to reality, waking up from my dreamworld, snapping into focus.  I'm back, I've been here very recently, perhaps in the last 24 hours, I can't say for sure because of the damn time thing. K has no concept of time, not time the way you know it, but rather we have what we affectionately refer to as "Kellie Time".  I'm still having trouble in learning which words to use, which phrases are proper, which ideas hold "true" (whatever that means).  I think that perhaps Kellie is hoping to come to a good stopping point before she takes a break from her studies to write a blog post.  Blog post. How funny.  Kellie is such a non-techie, in spite of the fact that her astrological sign, Aquarius, is supposedly very much into computers and technology and gadgets and the like.  Oh dear.  I've just come to the somewhat distressing realization that this could take an exceptionally long time to complete, this latest project.  Perhaps even a lifetime. (I wonder how long that is...)<--- Naturally, we know how long a "lifetime" averages, we know this based upon what we've learned in school and in books, and besides that, these days it's simply a matter of going to your favorite search engine and asking. Currently,  the life expectancy of a female living in my country of residence is 80.8 years.  Now we must compare that age to the one which we find on K's birth certificate, and in doing so we see that Kellie is roughly half-way through her current physical body's life expectancy. That's too bad; I think perhaps, if this Mental Illness had been correctly diagnosed and properly treated sooner in Kellie's life, then she might've been able to recover enough to live a productive and dare we say "normal" life, maybe even excelled in a career, most likely in the arts.  But I'm jumping way, way ahead in our story, so let's stop and rewind, now hit "Play" again.  Listen to this.  Kellie is quite creative and artistic and always has been, for as long as she's been alive practically.  She started drawing around the age of 3 and has done so throughout her life.  Kellie likes to keep a diary, at least some of us do, and a lot of times these diaries don't have words, but rather they have drawings, because it's so much easier for Kellie to express herself through drawings and sketches and doodles than in words.  She is quite good with words, or at least she used to be, before her memory problems became so pronounced.  Granted, the substance abuse which came about in her 20's and early 30's certainly did nothing to help her memory problems.  Kellie was always worried about what the drugs,  I guess we can go ahead and say it out loud now, the marijuana Kellie likes to smoke, would do to her memory. 

She didn't want to impair her memory in any way, and she used to give that as her main reason for NOT smoking pot, but of course she loosened up, so to speak, in college,  and began experimenting with drugs and then the obsessive-compulsive nature of Kellie took over and it went downhill from there.  As the problem with drugs grew larger, her memory recall grew smaller.  Certainly, if she had known for sure that her memory would be so adversely affected, she would never have allowed herself to smoke so much of it, and in the end become the thing that I, the smart one, feared so much back in those days, and that is a pothead.  Kellie used to laugh at them when she'd see them on TV or whatever; she's always been fascinated by and drawn to the hippie culture, for as long as she has been physically alive.  I say that with no disrespect directed towards hippies whatsoever, I must make that perfectly clear.  Kellie loves 1960's and 1970's culture, and I suppose it's interesting to note that many of the Kellie's have a particular decade which they are most drawn to and influenced by, and what we are experiencing right now people, right at this very moment, is I believe something important, something of a clue, so to speak-could that fact, the fact that different Kellie's have their favorite decades...maybe this is a clue as to their ages?  Hmm.  I suppose, if I pause to think about it, each Kellie has her own favorite everything, from music to clothing  to books-I could go on but surely you see the point.  Each Kellie has her own distinct sense of being, her own style, her own sense of "self". I don't personally know all of the Kellie's, and I don't know whether any of us have ever met or who knows whom....well, I take that back, I DO know some of the Kellie's, or at least I'm aware of their existence.  There is the Good Daughter, who takes care of Mom and sees that she gets what she needs and feels loved and needed.  Kellie is NOT the Good Daughter, and I don't believe that Mom knows Kellie, but it's likely that she's met her considering she's "known" Kellie for so many years.  This is really and truly exhausting, I have to interject that.  It's currently 5:42 A.M. on Sunday, January 8, 2012.  We, or I, I being the Smart Kellie, the one who gets things done, the one who takes care of things, I have been having a fascinating conversation with Kellie's husband.  He's really above and beyond anything that Kellie ever could have hoped for or expected to find in her life.  The Kellie had lots of lovers and was very popular, and she had a number of marriage proposals at different points in time throughout her life, but The Kellie is most definitely NOT the marrying kind.  I'm not sure whether I should take this opportunity to talk about The Kellie or whether I should just continue on with my work, with my research, with my "mission".  That's how I described it to K's husband, that I'm on a mission, that I'm here to take over the reins for awhile and see that things get done and business is taken care of.  I am in current need of supplies, namely notebooks and pens, with which we can take notes and keep track of our research, which is currently, and I believe correctly directed at Dissociative Identity Disorder.  I think this is what Kellie has, but I can't say for certain as I am not a licensed medical doctor and haven't studied psychology and psychiatry in the classic senses of the words i.e. I never went to school to be a shrink.  However, I DID take some psychology courses while I was in college, and I've always been intrigued by and fascinated with the subject, and have always enjoyed reading about the subject,  perhaps because we are so ill.  Kellie has always believed that if she learns enough about her illness, she might be able to get well, and for her sake, and I guess for the sake of all of us, us being the Kellie's, I hope that is true.  I, myself, that being the Smart Kellie, or as our husband called us earlier, Switch Kellie.  That's a label which he says I gave myself, but which I have only a vague memory of, and it's more like he gave me the name and I remember hearing it than it is like me giving myself the name.

I have no idea whether we've stated this fact before, and since Kellie's memory is so horrendous it's really impossible for me to say without re-reading it, but I am quite concerned with Kellie being taken seriously, and Kellie being embarrassed.  Now, mind you, I'm not the one who gets embarrassed easily, that is very Kellie, but NOT The Kellie of course.  I, being the Smart Kellie, am worried that I, we, Kellie won't be taken seriously.  I have very strong fears regarding these matters, and it would seem to stem from the fact that as a child I was often accused of lying and I was NOT lying and it was so incredibly frustrating for us, and still is apparently.  Now we must stop for a moment here and clarify the facts as I know them, and the facts are these: My sister's husband does NOT believe we're ill.  He thinks that Kellie has been making it up her whole life just to get attention and get out of her responsibilities.  I guess he feels that way because he's never seen any indication that we were ill.  I've certainly never spoken to him about these matters, but once a long time ago, Kellie did something wrong, I can't remember now what it was, but it was bad and Mom and Dad called my sister and things were said and tears were shed, and in the end my brother-in-law wrote an email to my father, telling him that Kellie was a fake and a liar.  He pointed out that if she were truly so ill, that she'd have no way of going out into the world and buying pot and rolling a joint and getting high and whatnot.  So he seems to think that Kellie is just a junkie or something.  (That's ridiculous, although The Kellie certainly is an addict; I'll tell you about her later) There's so much to be said and so little time in which to say it!  I don't know how to make that any clearer.  I, being in my current state of awareness, have a job to do, a mission to accomplish, a goal to reach, and that goal is Kellie's recovery.  We want nothing more than for Kellie to be well.  (Although Kellie herself doesn't really want to be classified as "normal", for she feels that to be normal is boring)

While we were talking to Kellie's husband earlier (he's asleep now, as it's currently 6:17 A.M.), it occurred to us that it were as though we, he and I, were meeting for the first time or like we had just begun dating and were still getting to know each other.  I rather enjoyed that aspect of the evening, I have to admit that.  I found him to be intellectually stimulating as well as creative and interesting and unique in a way that Kellie really relates to and is genuinely attracted to.  He is something special and I think that Kellie truly could not have a more suitable life partner.  He's a writer, and therefore Kellie appreciates his artistic and sensitive nature, and loves him for his creativity and talent.  He's a very good writer actually; dark but good.  But I digress.  I was telling you about our conversation... this seemed to last a very long time, or as long as say, an LSD trip lasts, which I guess is subjective as well as literal.  It was so much fun talking to him, and getting to know him and hearing him tell us about what he likes and what he collects and what his interests are.  I was trying to tell him things about myself as well, things like the fact that I do NOT smoke cigarettes, although Kellie did for years before finally quitting in May 2010 (because of the ARDS incident) although we must admit that she's been cheating lately due to stress factors, and the fact which The Kellie chain-smokes.  I intended to tell him how I drink hot tea rather than coffee, although I very much like coffee; Kellie LOVES coffee and is an absolute caffeine fiend.  Since I kept coming out with information which seemed important, I remarked that perhaps Kellie's husband should start keeping notes, which is ironic because of my whole obsessive need to make lists and such things; you'd think that I would want to take the notes myself, and let me assure you, I am, but it is just that there is more to be studied here than Kellie could actually remember or I could write down.  So at some point, Kellie's husband brought out his cell phone, and it has a recording device built into it, and so he placed it in front of us and turned it on and told us to speak.  At first I was too self-conscious to talk, too embarrassed as it were.  But after a while, I don't know how long of course, I forgot about the recording and began to just relax and be myself (LOL) and talk to him without thinking of the device.  It seemed as though I were really making strides towards progress, or at least as much progress as can be made without the help of a trained psychiatrist or psychologist.  I can't say how long we recorded our conversation, and I have no idea what we talked about-I can't remember now-but I can recall the specific moment we stopped recording, for Kellie's husband laid down on the bed and I approached him and told the cell phone in my hand that he was going to sleep and that I guess it was time to stop talking to him and let him rest or something.  And so we were able to get back to our project, which is currently this.  What is this?  Oh yes, the blog.  I believe that the creation of the blog was in fact a trigger, that something inside Kellie switched on whenever she created the blog, and that I came out to take over and tell the story because I'm better with words than she is. We both seem to enjoy words though, to a magnified amount, and much of Kellie's art contains words embedded within the pictures. I recently looked at photographs of some artwork that Kellie had done, and I was immediately struck by the fact that she has completely different styles at different points in time; this seemed important to the story of Kellie and therefore I'm writing it down. 

OK, now we really must get back to our research, there's so much work to be done, so many hours of reading  which needs catching up on and notes which need to be made.  Also, Kellie's husband told her things that we need to remember, things like the fact that I, whom he is now calling Switch Kellie, but whom I have been referring to as Smart Kellie, told him that I appear whenever things get very bad.  He said that I said that Kellie was stressed out and that this was the reason for my arrival.  I have tried repeatedly to recall when I was last present in this existence, this lifetime, this "reality" but I cannot remember.  I have a journal which was last used in October of 2010, so it would seem that I've not been here for at least that long, as I like very much to write and am always trying to write things, lists, prose, lines of poetry, things of that nature.  It was me who wanted the new journal for Christmas that first year we were married, and it's that very journal to which I am referring now.  I've begun to use that journal again, in case I need to tell you.  It's being used as a tool, as a guide, as a point of reference I guess one could say.  Kellie can use the journal to find out what's been happening.  Now granted, this particular journal is not nearly as interesting as the purple velvet one, the one we found the other night or day or whenever that was, the journal in which we first (I think) mention Dissociative Identity Disorder as our diagnosis.  That journal was written beginning in January of 2004.  I don't know when we quit writing in it; from what I can remember, it became too much for us to handle, I or we or any of the Kellie's.  The stress of watching her father die was just more than she could bear, and in the end Kellie went to a very dark place and we didn't write there, or at least I've not found any writings from that time period.  I do know about paintings from back then, but we no longer have those.

I've just opened the window blinds and I see that it is raining.  We love the rain, Kellie simply adores the rain and always has.  Which I guess might explain one of the reasons Kellie was so happy when she lived in Seattle, Washington, since it rains there for the majority of the year.  Funny we should remember that time period as being so happy, yet in the end, Kellie was in a very dark place and could've easily died. But that's another story for another day-I don't want to be a buzzkill.  I've got so much to tell you, so much to share with you!  I cannot stress enough how important it seems to me to write all of this stuff down, to put it in writing so that we have some sort of proof, some sort of evidence that we existed.  Kellie has a fear of being forgotten, of not being remembered, which is hilarious when you look at it in the sense that I'm looking at it now, and that is, that Kellie is afraid of going unnoticed, while at the same time we are so incredibly self-conscious that we cannot stand for people to look at us.  Interesting, wouldn't you agree?  I've made several interesting discoveries in this, this most recent episode, as the husband called it.  Like an episode of a television show.  Kellie is the star of the show, and there are different co-stars and various extras, along with wardrobe and costuming and sets and even a soundtrack.  I've always compared it to a movie; Kellie is living a movie that others can see but no one can recognize that it's not real, that it's only a movie.  One time, a long time ago, Kellie had an "episode", and during that episode she became so frightened that she called her best girlfriend to come over and stay with her, for she was afraid to be alone.  I can't imagine how hard that phone call must've been, for that friend had never seen us "switch" before and she didn't know us.  I wonder who made it, the phone call.  I wonder which one of us knew to do that? Perhaps it was me, as I'm the responsible one, the one who takes care of Kellie.  I don't know if there are others who are responsible or mature or whatever.  I have no way of remembering that, except for my precious notes, which I've unfortunately not been keeping for the past 2 years so I'm lost in all of this, I have nothing to help me with recall.

A gradual build-up of symptoms of schizophrenia may or may not lead to an acute or crisis episode called a schizoid break - a short and intense period that involves delusions, hallucinations, distorted thinking, and an altered sense of self.  

Is this what keeps happening to us?  Is this what those periods of clarity are?  Those moments in which I seem to "wake up" and become aware of my existence?s  Or is it in fact the absence of those moments wherein lies the schizoid break? Damn.  I really can't tell you how much we'd like to talk to our psychiatrist.  I really should have called her whenever this all started.  Husband told us before he went to sleep that I've been here for 4 days now.  He said he's tired, that he needs a break.  I get that.  I understand that I'm a lot to take, Kellie in general is a lot to take, for anyone but especially for those who have close relationships with her.  She's very melodramatic.  What else can I tell you about her?  I'm not sure.  I'll have to think for awhile, and see if I can remember anything about her, or us, or any of the Kellie's.  This is all so strange.  I don't know how to describe it, I really don't and even if I did it still wouldn't come close to what actually living it is like.  So the world will never know, but I am trying, in my own way, to tell the tale, to share the story, to help people understand what it's like to live with this particular mental illness, which technically I still have no proper name for.

This is the part where I tell you that I do NOT have a current diagnosis handy.  Which each new doctor has come a new diagnosis, at least that's what's been happening for most of her physical being.  Kellie has worn so many different labels throughout the course of her life that it's difficult to say exactly what is wrong with her at this point.  She seems to exhibit symptoms from a multitude of disorders, which I've learned is called comorbidity.  Commorbidities are diseases or conditions that coexist with a primary disease but they also stand on their own as specific diseases.  Kellie is definitely OCD (obsessive-compulsive disorder, an anxiety disorder in which people have unwanted and repeated thoughts, feelings, ideas, sensations (obsessions), or behaviors that make them feel driven to do something (compulsions). Kellie has a multitude of obsessions which seem to change over time; perhaps they change with my "self", with each entity having obsessions and compulsions all her own.  Often the person carries out the behaviors to get rid of the obsessive thoughts, but this only provides temporary relief.  Not performing the obsessive rituals can cause great anxiety-if I don't do whatever it is I'm compelled to do, then I get antsy, nervous, on edge. It is completely impossible to think of anything else outside of that one thought, that one idea, whatever it may be.  Sometimes this can be a good thing, like when I, Switch Kellie, am focused on the task in front of me, which currently happens to be the all-important project of researching Kellie's mental illness and taking notes about it, which we intend to show and discuss with our doctor when we go and see her on Wednesday, January 11. Another example of a good obsession would be Kellie's aversion to dirt, which causes her to clean, but that's not really Kellie, that's one of her alters, for Kellie has never been one to clean her room.  That's most certainly a different Kellie, the one who cleans and who has a phobia about dirt and who gets freaked out if she focuses on something and finds it to be dusty or dirty.  She is literally afraid of dirt, afraid it will hurt her in some way, contaminate her, ruin her forever.  I'd rather like it if she came around more often, for we could really use the help with housekeeping.

I've never thought about it before.  That's a funny phrase to me.  "I've never thought about it before."  As if I would be able to remember it if I had!  And each of us has her own memories, some shared of course, but many unique to only that persona, or "alter" I guess I'm supposed to say, based on the research I've been doing.  I can't say for certain how long I've been researching this subject matter, but it feels like a very long time indeed, perhaps weeks.  I'm cross-referencing my information, using multiple search engines and websites and a myriad of windows to try and organize all this data.  I MUST get organized if I ever intend to get better.  I MUST.  Kellie loves to organize things because of her OCD, but she has a hard time keeping things organized because of her other selves, several of whom are sloppy unfortunately.  These messy Kellie's  have in the past caused great shame and embarrassment for us by revealing to the outside world that we are not perfect.  If someone comes to visit, and the house is messy, then they will see that I am not doing a good job,  and that I, Kellie, am disappointing them, which we absolutely cannot stand to do or perceive to do to any extent.  Kellie does NOT want to disappoint anyone, and she has a hard time saying "no" and in that she can't always be ME or any of the other higher-functioning Kellie's and therefore she's bound to drop the ball at some point and lose control and not be able to satisfy someone's need.  And Kellie will feel just terrible about that.  She really and truly wants to make everyone happy, she really does, but no matter how hard she tries, it is never good enough. Never.