Twitter is More Real Than My Life

Only four people in Real Life know about my DID: my husband and my psychiatrist of course, and also, from another city, my last psychologist, and my ex-boyfriend (who lived with me for a year).  It was he who wrote a letter to my husband explaining how I switch. (You can read the letter here)  I'm only honest about my switching into other K's here, in this blog.  To a lesser extent, I talk about my various mental health issues on Twitter, such as  the voices, the paranoia, and my panic attacks; I don't go into much detail about my alters when I'm tweeting. Also, we K's tend to blog more than tweet (that is, the ones who communicate; some of the K's don't do either).

Mostly I just vent on Twitter.  I follow and am followed by around 150 people, so Twitter remains an intimate experience for me.  I don't think I could follow a ton of people-it'd be overwhelming for us K's. I have a hard enough time just trying to remember a handful of names, I could never communicate with a large group of Tweeps. To be honest, I have to take notes about different people I chat with on Twitter or else I'd never remember anyone.  We like to get to know a handful of people rather than just follow hundreds of strangers.  This is why I don't participate in the whole "Follow Friday" thing, where people on Twitter suggest other Tweeps follow certain accounts.  I don't want to single out any Tweep as being better than any other Tweep, and more importantly, we don't want to encroach upon anyone's privacy. Also, I'd rather not be singled out myself, because the idea of a lot of people following us makes me uncomfortable.

I'm such a paranoid person to begin with, and if I stop to think about the fact that over a hundred people are currently reading my personal thoughts....well, quite frankly it freaks us the fuck out.  I will admit that it'd be nice to get more readers for this blog, although I'm surprised at myself for thinking that.  After all, I began writing the blog for me, for the K's, to use as a record of my symptoms and moodswings and switching.  It seems odd that I'd be looking for exposure...but I would love to help someone out there who might be struggling with some of the same mental issues as we, the K's are.

Mainly, we use Twitter as a support system.  If I'm having an anxiety attack, I can send a tweet out into the universe and maybe, just maybe, someone will answer me and either chat with me until my panic has subsided or at least give us some words of encouragement.  My Tweeps have gotten me through the nightmare that is sitting in a waiting room on many occasions.  In addition to the support, I am also entertained; many of the people I follow are quite funny.  I mostly follow other people with mental health issues, because I can better relate to them than to regular, non-mental people.  In real life, I don't have any friends with whom I can discuss my eating disorder or Social Anxiety Disorder, but on Twitter there's always someone out there who understands and can empathize.

I avoided Twitter for so long....I used to make fun of my husband for using it.  Now, just 3 months after I first began following people, I am hooked.  A few of the K's tweet often, and many mornings when I go back and read the tweets from the past 24 hours, I am surprised at what they've (we've) said.  I'm also frequently embarrassed.  But that goes along with the nature of a dissociative disorder-you never know when you're going to dissociate and perhaps do or say something inappropriate, something that draws unwanted attention to us. I don't remember these things, or else I just get flashes or bits of them; usually I find out because someone will tell me or say something about how funny I was the other night, or make a comment about seeing me totally wasted (often what people think when I'm somewhere else in my mind).  I don't really mind people thinking I'm drunk or stoned; it's less embarrassing to me than the truth, when the truth is that I was someone else, or "out to lunch" in my head.

But on Twitter, and in this blog, I can be truthful about what's going on.  I can exclaim that I'm losing my mind or seeing bugs everywhere or whatever-and no one will think much of it.  In real life, I'd be stared at, laughed at, made to feel self-conscious and foolish.  So in many ways, Twitter and this blog are more representative of my real life than even my Real Life, where I have to hide my true self.  How ironic. Twitter, where people can lie and be whomever or whatever they want...and I happen to be more open and honest there than even in Real Life.

Alone With Our Thoughts

I've only had one meal and 2 hours' sleep in the past two days.  Husband's out of town and I'm feeling alone and vulnerable yet I'm oddly hyper and my brain is going a million miles an hour. I've been all...switchy.  It feels like my mind is a slot machine and life pulls the lever and then whatever comes up from the spin is who I will be, but only until the next spin. I keep coming in and out of time, at least the "here and now" kind of time.  I guess this is how it was for me before I got married.  Just me, alone with the voices, fighting to keep my voice heard over everyone else, but then at the same time I'm wondering if it's my voice that's supposed to be doing the talking anyway, because I have other, different voices talking too, and they somehow all feel like me, even though they don't all sound like me.  Even though my brain is crowded,  I feel so alone.  I am...incomplete.  Like a chunk of me is missing.  My husband is my strength and support and without him I feel weak and uncovered, like I'm a target or something.  It feels like all the world's problems are chasing me and I can't run fast enough to get away.  I'm sprinting through time, and I want very badly to pause for a moment, just a moment, and relax and notice all the little things that I'd normally miss as I'm going by so fast.  My husband helps me slow things down.  He helps me organize my time.  He keeps me on my toes, and on the ball with my medications and doctor's visits and the like.  Husband helps me get through the day, everyday, even when he doesn't know he's helping me.  A simple text from him can transform my mood, and it very often does.  Sometimes, after he leaves for work, a dark cloud will descend upon me and threaten to ruin my whole day.  But a message from him is like the sun bursting through the clouds.  He is my light at the end of every day's tunnel.  I don't know what I'd do without him and his support. 

It seems odd to me now that I was able to live my life all these years without any support.  I mean, no one knew about my dissociative disorder.  People thought I was a strange girl, of that you can be certain!  But no one ever guessed how fractured my mind really is.  Coming out to my husband was difficult to say the least, and not just for me.  He was overwhelmed at first, and shocked that I could hide such a secret from him for all the years we've known each other.  But we didn't live together then, so he never saw the sudden, dramatic transformations which sometimes occur.  He just thought I was moody.  Yes, yes I am. Quite. When I finally did come out and tell him, it was Switch Kellie who did the explaining.  I'm not sure, but perhaps that was the reason he was so freaked out; to his knowledge, he'd never met Switch Kellie.  In truth, he had met her, in fact she was the one who had handled all the wedding planning and she came every day to check on the details and see to it that all the wedding and honeymoon plans were in place.  She was a constant for 2 months, then she receded back inside me, where she stays until I need her.  She comes when the stress gets to be too much.  She comes when I'm overwhelmed and can't handle the pressure.  Switch Kellie is smart and tough and can take care of business while keeping a clear head. HA!  "A clear head"-I don't think that's something we ever really have.  There's always something going on in there, always people talking.

This is the longest I've been without support in what feels like an eternity.  I've not been apart from my husband for this long since we got married 2 years ago.  I miss him terribly. It's very early and normally we'd both be sleeping right now, but I am unable to sleep without him beside me. I feel unsafe.  For whatever reason, the strong K's are nowhere to be found; it's just us weaklings here now.  Last night, I got scared of the dark at more than one point in the night, and I had no one to turn to, no one to put their arms around me and tell me I am safe.  I had more than one anxiety attack last night.  In between those, I was nearly manic. So much energy, so full of conversation...but no one to talk to and so I was unable to relax and calm down.  I'm all wound up and am having trouble being in the moment; I keep jumping ahead of myself, going too fast.  I need to slow things down to a manageable pace.  This hyperactivity on my part is damn annoying! I'm trying to keep quiet so that Mom doesn't know I'm awake. I'm just not ready for interaction with others yet.  I might just hide out in my room all day until Husband gets home.  The only thing I need is coffee, and I'm pretty sure I can sneak into the kitchen unnoticed...

Jewelry Jumble

I just had one of those moments.  Those moments when I remember that there's something "wrong" with me.  Those moments wherein I seem particularly symptomatic, or especially mentally...confused.(?)  It was trivial really, but for some reason it just struck me, and I can't stop thinking about it now.  I was going through my closet, and I found a box containing a bunch of necklaces and bracelets and some earrings.  According to the evidence and my husband, this jewelry was all made by K (She's an artist who has worked in many different mediums over the years) but I couldn't remember making it.  I couldn't remember the jewelry at all in fact.  That was not me who had done that, who had designed and created those delicate glass-beaded necklaces and colorful gemstone bracelets. When I got to the bottom of the box, I found a whole cluster of necklaces and other pieces of jewelry, all wadded up together in a big mass.  It looked as though it'd been long ago forgotten.  As I carefully separated each piece from the tangled mess, I looked at the necklaces, bracelets, earrings, and anklets with the eyes of a new beholder.  Here I was,  someone who liked jewelry, and I was checking out this random lady's jewelry that she'd made and collected over the years.  I liked some of it but not all of it.  It's hard to describe how it felt.... it was like I was a stranger going through my own things. They didn't feel like MY things.  In fact, they weren't my things.  They were HER things.  There was one necklace that was familiar to me, but it seemed like I'd only seen pictures of it before or something. It felt like I was touching it for the first time. Strange. Very strange.  I can't remember the last time I made jewelry...

                                                           

Another Day, Another Dilemma

Lost.  A whole day and night, for the most part, just gone.  I feel like I've been manic and have just crashed.  I also feel like I've been doing a hell of a lot of talking and socializing but I can't remember with whom.  Pretty sure we made some new online friends....now if only we could remember their names.  That's so annoying-to know that I made conversation with someone and we got along well but then after it's over I can't remember who they were or what we talked about.  Makes friendships difficult online.  In real life, I can at least recognize a person's face (well, sometimes) but even then I still have trouble remembering conversations, or even names. I've been trying so hard to develop a support system for us on Twitter, and I think we've done a pretty good job, only when I really need to talk to someone about something important, I can't remember just who it is that I'm close to. *sigh*  Truthfully speaking, I don't know if I'm actually close to anyone, either online or in real life.  And it's far too embarrassing to tweet everybody, asking if we're friends or not.  Plus, the paranoia is stifling me.  I'm paranoid I might've been the mean K at some point, and perhaps said something horrible to another Tweep and maybe I've angered someone or worse, hurt someone's feelings.  I worry so much about what other people think about us; that's the number one reason we keep our illness a secret from the outside world.  My closest friends don't know about my mental illness.  A lot of people know I take anti-depressants and so they assume I'm just chronically depressed or maybe bipolar or something they're familiar with.  I would never dare tell anyone about my dissociative disorder.  That's just TOO weird.  People can't wrap their brains around it. I don't want people to look at me differently, or treat me differently, or talk about me behind my back.  So I hide my symptoms.  From everyone.  Most of the people I hang out with in real life have been with different K's at different times but never even knew.  Because I keep quiet.  I'm shy, and I"m scared of revealing my terrible secret.  This disorder I have is the stuff of Hollywood movies, the type of mental illness that's always portrayed in a negative light, as though we are dangerous or deceptive. I don't think I'm either of those things, although I am aware that one of the K's has tendencies to do things which we find questionable or even wrong.  But that's not all of me.

 I have different me's, different parts of me which have different functions and different personalities and I can't always be sure that everyone is doing what they're supposed to be doing.  After all, I don't have access to my entire mind, just to parts of it now and then.  I know about several of the K's, but I don't know how many of us there are, nor do I know which ones come out most frequently or which ones have the most friends or anything like that.  I wonder if we'd have any friends at all if we were to expose ourselves and admit to everyone we have an illness.  I don't think they'd be able to handle it.  I think everything would change and I'd never be looked at the same way again.  So I've turned my search for friends online, where people can't stare at me or pass judgements based upon how I look or dress or behave in public.  Online, I am honest about who and what I am.  Everyone I've met on Twitter knows I'm mental, and they accept it.  Most everyone I talk to on Twitter is mental as well, and that's the way I prefer it.  I can't relate to "normal" people, because I'm not normal.  I would much rather converse with someone who understands what it's like to be afraid of people or to hear voices in their head.  I need empathy, and that's something that my real life, "sane" friends simply cannot give me.  They will never understand.  No one can, unless they've experienced it themselves.  I had a counselor once who'd attempted suicide at one point in her life.  I trusted her because she'd been where I was.  She "got it".  That's what I need.  People who get it.  And I seem to be finding these people-everyday I get up and find evidence of my having chatted or DM'd or emailed or texted people and it seems to me that we've had a conversation or an exchange of some kind that has had a positive impact on my state of mind.  I know I'm finding support, I have physical evidence in the form of notes or a journal or texts on my phone.  So I'm accomplishing my mission, which has been, since I joined Twitter in December, to find others like me.  I just have to sortof start all over every morning, figuring out who I talked with and what we talked about.  This is impossible of course.  So if you are reading this and you are one of the several people with whom I've conversed recently, then by all means say hello!  Please don't take it personally that I can't remember our conversation or personal info about you. Hell, I'm doing good if I can recognize a person's name as that of someone I know.  A lot of times I'll see people in my timeline who I just know I've talked with before, but I'm too afraid to interact with them because it's just too embarrassing to admit that I have forgotten everything I knew about them.  Now, after a certain period of time, these things get better.  If I talk to you everyday, of course I'm going to remember you better than if I only talk to you once a week.  Now I must tell you, some of the K's are very social and love to talk, but others are quite shy and try to avoid contact with others.

 There's no way of knowing which K is tweeting at any particular time (except the mean one is easily recognizable, and probably the little girl too, though she's never used Twitter before as far as I know) so if you send me a Tweet and don't hear back from me, I'm sorry.  It usually means I just can't remember how I know you.  Some of you I've grown quite fond of, but I have trouble separating in my mind the ones I know well and the ones I don't know very well.  I see the names in the timeline everyday, so they are familiar to me and this confuses me further.  I guess what I'm trying to say is, I feel like I've had a very productive week, in that I made new friends and had really nice conversations and made connections with people, I'm just having trouble now remembering who those people were.  If we have interacted before, then by all means you should feel confident in speaking to me.  If I don't remember you at all, I'll be honest and tell you, but please don't take this to mean that I don't like you or that our conversation wasn't meaningful to me.  I just have a shit memory, and with the lost time and blackouts, it's a miracle somedays that I can remember my own name.  To sum up, thank you to everyone who has made an effort to be my friend.  We really do appreciate it.  It means a lot to us.  But if you want to talk to me, it might not be a bad idea to say something like "Hi, we spoke Thursday about the new Tim Burton movie" or just give me some kind of clue as to your identity.  If I interact with you more frequently, I'll learn your name and personal info quicker.  I just need that chance.  If I've introduced myself to someone and then never spoke to you again, it's because I've no memory of us meeting.  I always have to be reminded of everything. And I do mean everything.  To prove my point-it's 6:00 p.m. now and I find that I've forgotten to get dressed today.  I'm still in my pajamas and I don't think I remembered to eat today either.  This is my normal.  It's a guessing game really.  Just be patient with me-I'm a really good friend to have, if you can just stick around long enough to get to that point. I'm not going to lie, it's hard to be my friend. Not just because of the memory loss, but because I'm moody and just plain weird.  Most importantly, perhaps, is the fact that I don't trust people. Not ever. This makes it very difficult to get close to me.  But I long to be close to people, or at least just a couple of people, just so I don't feel so alone in this journey of life. I need friends. Everyone does.  It's usually pretty easy for me to make friends, but hard for me to keep them, because I literally forget them when they're not around.  I guess all of this sounds ridiculous, and I suppose it is, but this is my reality.  I have to be reminded who my friends are.  I don't know what I'd do without Husband with me, telling me who people are when we are out in public. He reminds me of how I know them, when we've hung out, what we've done together.  If I didn't have his support and assistance, I'd never be able to go out. (which I don't do all that often anyway)  To put it simply, please be patient with me and try to understand that I can like you and be your friend, even if I don't always remember you or our previous conversation.  I know it's frustrating, but believe me it's a lot worse for me than for you.  I may ask you the same questions over and over again, but that doesn't mean I'm not listening.  I just have a hard time retaining information.  Stick around and I'll eventually get to know you.  It just takes me a long time.  You know what? I've totally forgotten what this blog post is about.  I have no idea what I've been talking about, or whether this post even has a point.  So now I must read it over again, probably for the twentieth time... God I'm exhausted.  I wonder if I remembered to sleep last night?  To all those Tweeps out there who spoke to me in the past 2 days or 2 months, thank you. Thank you for talking to me, thank you for noticing me, thank you for giving me a chance.  Now let's do it again.

My Psychiatrist is Making Me Crazy!!!

This day has been more than we could handle.  Was so anxious about therapy that I didn't sleep for 2 days, nor did I eat.  Once there, the myriad of questions I'd had for her completely vanished from my mind and I couldn't remember what it was I wanted to talk to her about. I pulled out my notebook, in which we've been noting things like questions for the shrink and ideas for blog topics.  I read her several of our questions, but she was no help at all. Yesterday, I was ready to accept my DID.  Today, I flat-out asked for a diagnosis.  She says she doesn't believe in putting labels on her patients.  So all I could get her to verify is that I have  a lot of dissociative episodes and I also have at least one mood disorder. (Again, she would not be specific) 

So I don't know which disorder I have, only that I have a great deal of trouble with dissociation and amnesia and losing time and dozens of other symptoms which you'd think she could use to give me a motherfucking specific diagnosis.  FUCK ALL THIS SHIT!!!  Just fucking say what you want to say for God's sake.  I am upset with my psychiatrist because she refused to give me a specific diagnosis.  I want a label.  I need to know who and what I am.  This shit can't be normal. I've been pretending my whole life and we're absolutely exhausted by it at this point.  I don't think I can fake it anymore.  I don't think I can paste on a smile and be whomever you need me to be without blowing my cover, so to speak.  I need to be ME, who happens to be an US.  And I'm OK with that.

Obviously there must have been something terrible in my childhood to mess me up in the head this badly.  We can't even discuss this shit with our doctor.  To my horror, we talked about psychiatric hospitals, and she pretty much said that if it comes down to it and we get worse, she won't hesitate to hospitalize me.  NOT what I wanted to hear. I've had some horrific experiences in mental hospitals over the years.  Most important question I asked her was this: "Do I have to remember the childhood abuse in order to get better?"  I was relieved to hear that no, it isn't always necessary or desirable.  I don't think I could handle the truth anyways.

Fuck this shit.  Just fucking take a pain pill and go to bed.  Your head feels like it's been hit with a hammer.  You've been in a manic state and haven't slept but 3 out of 48 hours. I've eaten one meal this whole week. I think I might be dying.  And FUCK ME I haven't told you the rest of it.  How Hubby says I'm spending too much time on the computer and he says I don't do anything else anymore.  Nothing. No eating, no sleeping, no sex.  He says I'm obsessed.  He's right.  I'm obsessed with learning about my mental illness so that I can take better care of myself and live a better quality of life.

FUCK ALL THIS SHIT just fucking give it up.  You're beyond help.  You can't even talk to your own husband about your true feelings because it freaks him out.  None of your Real Life friends know you're sick, except for some depression.  I'm living a LIE.  Our life is a sham.  I'm not K, I'm an imposter.  I don't know who or what we are anymore. Just want to sleep away the pain.

(The Next Day:)

Which I did.  Took a handful of pills and slept for 12 hours straight.  God I needed that.  Still, woke up feeling frustrated and angry, at everything it seemed.  To make things even worse, Mom had a talk with me about how I'm being a terrible wife and am going to lose my man if I don't stop spending every minute on the computer.  Apparently, I'm ignoring him, the housework, cooking, laundry, etc.  I don't mean to. It just seems less important to me than this project I'm on, this project of self-discovery.  I just need some support from people who understand some of what I'm experiencing.  I'm going through a major mental health crisis right now.  I mean, I just found out that the diagnosis I've had since 1998 is incorrect. I'm NOT Schizophrenic.  It's going to take me some time to realize that I'm not that person anymore.  As soon as the diagnosis was stuck to me, I became that.  This is why my current shrink says she won't label a patient; she says they become the label.

So how am I supposed to fill out forms which ask about my mental health?  Just put down "non-specific madness"?  Or "Sometimes psychotic weirdo who's kept heavily sedated"?   Every so often, paperwork comes in the mail to reassess my mental health for The System.  I just hope that Dr. H refusing to give me a clear-cut diagnosis doesn't cause me to lose my benefits, i.e. my health insurance.  FUCKFUCKFUCK   What a miserable day.  Too much worry about being hospitalized, too much worry about losing my husband, too much worry that Twitter has taken over my life.

Well, this morning, I started my hand-written diary, just as my psych told me to do.  I didn't know what I was going to say, but it took 7 pages front and back anyway.  And I'm 99.9% certain that I'll be writing in it some more tonight.  Man.  I wish I could talk to someone in Real Life about this, someone who also dissociates, someone who also doesn't recognize them self when they look in the mirror half the time.  Someone who won't be freaked out if I switch and start speaking differently or acting differently.  Fuck.  This just fucking blows. I'm not important enough to wear a label I guess. And the kicker is, I've always resented the labels.  I've worn so many over the years....it's ironic that I'm now label-free and feel lost without one.  Who the hell are we and what the fuck is wrong with us?!?  Be specific, doc. We need to know.

Incidentally, while I was in therapy, I asked my shrink what her job was and why I come to see her.  (I'm not sure which K was at the session, but she had a ton of information and questions and wanted answers)  She told me that the reasons I came to therapy are whatever I want them to be.  She said it's her job to help me anyway she can, but that what I got out of it depended upon what I put into it.  Once again, non-specific answers. Fuck this!  I think I"m just going to get trashed tonight and be pissed off and drink til I pass the fuck out. Yeah, that sounds like a plan. And I bet I'll be an angry drunk tonight. Oh fun.

What's Wrong With Us?

I've been avoiding writing this blog post because to be honest, I'm still somewhat hesitant to accept the fact that I have this. I was first diagnosed with DID back in 2004, but I've been hiding it ever since (from everyone, including my family and my doctors) and I thought I had it under control. I was in denial all these years, and some of the K's are still in denial at this very moment.

Dissociative Identity Disorder is a psychiatric diagnosis whose essential feature is the presence of two or more distinct identities or personality states that recurrently take control of a person's behavior. It is also known as Multiple Personality Disorder. Memory loss which goes far beyond normal forgetfulness accompanies this condition when an alternate part of the personality becomes dominant.  At least two distinct personalities must be present in order to receive this diagnosis.

              Symptoms of DID:  (I have 14 of the following 20 symptoms)

• Current memory loss of everyday events
• Depersonalization
• Depression
• Derealization
• Disruption of identity characterized by two or more distinct personality states
• Distortion or loss of subjective time
• Flashbacks of abuse/trauma
• Frequent panic/anxiety attacks
• Identity confusion
• Mood swings
• Multiple mannerisms, attitudes and beliefs
• Paranoia
• Pseudoseizures or other conversion symptoms
• Psychotic-like symptoms such as hearing voices
• Self-alteration (feeling as if one's body belongs to someone else)
• Somatic symptoms that vary across identities
• Sudden anger without a justified cause
• Spontaneous trance states
• Suicidal and para-suicidal behaviors (such as self-injury)
• Unexplainable phobias

 Individuals diagnosed with DID frequently report severe physical and sexual abuse as a child.  The psyche splits into separate identities so as to distance the abused person from the trauma which is happening.  Many people, myself included, block those traumatic memories in their mind because they are unable to process and accept what has happened to them. DID is a coping mechanism.

 Co-morbid mental illnesses are the rule rather than the exception in all dissociative disorder cases, with 82% of DID patients being diagnosed with at least one other psychiatric diagnosis in their lifetime. DID co-morbidities include anxiety disorders such as posttraumatic stress disorder (up to 80%), social phobia, panic disorder  and obsessive-compulsive disorder.  Other common co-morbid conditions include mood disorders such as major depressive disorder. Also common are substance-related disorders, eating disorders such as bulimia nervosa, and somatoform disorders. In addition, a majority of those diagnosed with DID meet the criteria for borderline personality disorder. Studies have shown that DID patients are diagnosed with five to 7.3 co-morbid disorders on average - much higher than other mental illnesses.

I have a number of co-morbid disorders, but at this point I'm uncertain just how many.  This is probably the reason I've had so many different psychiatric diagnoses over the years, and also the reason it took so long for a doctor to conclude I have DID.  While I was first labeled with a dissociative disorder more than a decade ago, I have received very little treatment for it.  This is because the first doctor to diagnose me had barely scratched the surface of our therapy when I suddenly had to move to another city.  My next doctor, whom I currently see, has diagnosed me as definitely having a dissociative disorder, but we are just now starting to explore my condition. This is because I hid it from her for two years, and she had no idea about my symptoms until I came to therapy one day in a switched state.  A very different K had therapy that day.  Dr. H was very understanding, which is a blessing, for many doctors believe that DID is just a myth.

OK, so now you know about my disorder, probably about as much as I know. No, I cannot remember my childhood abuse specifically, but I do have certain memories which seem to support the existence of trauma.  Namely, I have childhood memories which are completely inappropriate for children to have. That's all I'm going to say about that subject.

Now, I would like to someday introduce you to the K's.  However, the truth of the matter is this: I don't know them all. I have a number of "alters" which I can recognize, but I have no idea how many of us there are. I'm still learning about this condition and I know very little at this point.  I know that my "switching" can happen at any time but seems to coincide with stress.  I know that I very often leave my body, and sometimes watch as another "me" interacts with the world; it's very strange to hear a voice coming out of your mouth when you are not talking. I also have a persistent feeling that I am not really living my life, but rather that I'm watching a movie of this life, with me being the lead character.

All of this is difficult to explain.  I have trouble talking to my psychiatrist about my thoughts and feelings.  I feel strange. Disconnected from the world. I've always, my whole life, felt different from everyone around me.  I've been hearing voices and hallucinating since I was 4, but I didn't realize that this was abnormal-I thought everyone experienced these things.  By my teens, I'd realized that the hallucinations were not supposed to happen, so therefore I kept them a secret.  I told no one.  When I was first sent to a psychiatrist at the age of 16, I was careful not to tell her very much about the real me, for fear she'd have me locked up in an insane asylum.  This fear has followed me to this very day.  In fact, just last week while I was in therapy,  I was crying but unable to tell my doctor what was wrong for fear she'd have me hospitalized.  For this reason, I believe my DID therapy is going to be a long and difficult process.  Thank God I have a doctor who does indeed believe in such a disorder.  Now we just have to figure out who K really is, and what happened to her to cause this splitting of her mind.  I think that scares me most of all.  I'm not sure I want to remember my childhood trauma(s).  Supposedly you can't heal unless you come to terms with the cause of your pain.  I'm just afraid that once I remember the cause, it'll just create MORE pain.  I already have problems with feeling guilty; I don't need to be made to feel even more guilty, in addition to feeling dirty and ashamed. Plus, what if I find out my abuser was someone I was close to, and it destroys my relationship with that person?  What if I'd rather not know who hurt me?  What if I can't handle the truth?

Twitter to the Rescue

[I still have the second half of my two-part blog post called "The Evolution of My Self-Mutilation" ready to go. It really should probably be posted here, now, but I still don't have the courage to publish it. I'm just too ashamed, too embarrassed, too humiliated to let people read about the secrets contained in that post. I might just sit on it forever.] So instead... I've been racking my brain trying to think then of what subject would best follow two posts (really just 1 1/2) about self-harm.  I've decided that I don't know, and I'm just going to empty my head and see what this post ends up being about.  My mind is working at a furious pace right now; I can't even put into words how fast the thoughts are coming at me and the voices are all excited and talking at once and I'm overwhelmed when I pause to listen to the inner workings of my brain, to all the conversations. This is exhausting, all this thinking. I never went to bed last night because of it, because of all the noise in my head, all the ideas bouncing around in my skull.  I believe it started yesterday afternoon but it could have been the day before.  I just can't remember.  All I can say for sure is that I've been reading, researching, studying, Googling, Wikipedia'ing obsessively about dissociative disorders, especially Dissociative Identity Disorder.  I've also tried to develop some friendships online, and more importantly, I've been seeking out others who suffer from dissociative disorders such as I do. Keep in mind that my Social Anxiety Disorder makes it unbelievably difficult for me to reach out to people, to talk to people, and especially to initiate communication with strangers. So I must pat myself on the back for making the effort. (only one person I tried to talk to was rude to me)  It seems to be paying off in ways I hadn't even imagined. Not only have I met a few people online with whom I enjoy chatting and who I'm hoping to one day call my friends, but I'm beginning to develop a bit of a support system, which I desperately need.  I've never had a support system before.  I've hidden my mental illness from everyone, my whole life, so I don't have any real-life friends I can talk to about it, I've never confided in a boyfriend, hell my own sister didn't even know I was ill until just a few years ago.  My father never understood how I could have everything a person needs and still be depressed.  Now, it's just my mother, and she's too old and set in her ways to be open-minded enough to even talk to about all of this.  So I hide my symptoms from her.  I avoid her when I'm having an especially hard time. Sometimes I just have to disappear.  Wow, I guess that sentence takes on a whole new meaning when it's used in reference to someone who may be suffering from DID.

You must remember that this is all new territory for us-I'm still in a state of shock about my psychiatrist telling me the other day that my Schizophrenia diagnosis was incorrect.  I wore that label for more than a decade, and I suffered discrimination and ridicule and self-hatred because of it.  It's been a heavy diagnosis to bear, and I am beyond thrilled to find out that it is wrong. I am NOT Schizophrenic!  So then, what am I?  Well, my shrink tells me that I am definitely suffering from a dissociative disorder, she just doesn't have enough information yet to properly name it. I found my diary from 2004 wherein my doctor first attached the possibility of DID to my chart, and I've been reading about all the "episodes" I'd forgotten. My psychiatrist wants to use that diary in our sessions. It seems I've been in denial for the past 8 years.  I've been doing some reading on the different types of dissociative disorders, and more importantly, I actually found a few people on Twitter who suffer from Dissociative Identity Disorder or who have problems with dissociation.  These ladies have been wonderful and have helped me tremendously in a very short period of time. I learn a great deal from reading their blogs.  I had some basic questions which they were happy to answer for me.  One of them put me in touch with another one who directed me to a Yahoo group specifically for people suffering from this type of disorder.  As I said earlier, my doctor hasn't officially diagnosed me as having DID, but from what I've read, from what I've been told by people who have it, and based upon my symptoms, I'd say DID is a good fit. In fact, I've never found a disorder which seemed to describe me as well as DID does. So, for the moment, I'm going to study all I can about Dissociative Identity Disorder. If it turns out I have something else, well then we'll just study that instead when the time comes.  But I really and truly feel that I'm closer than I've ever been to being properly diagnosed and treated for my mental illness(es).

I've been going from doctor to doctor since 1986, and each one gave me a new diagnosis and a different explanation for my thoughts and behaviors. And then there are the medications-Oh the thousands of pills I must've consumed at this point.  Anti-depressants, tranquilizers, SSRI's, anti-psychotics, sedatives, hypnotics, sleeping pills, uppers, downers.  So many pills.  I wonder sometimes-a lot of the time actually-what I'd be like if I didn't take the medication.  Now to be realistic, I am far too ill to go "all natural" and give up all medications.  I have gone down that road many times, thinking each time that I could do it, I could handle it, I could live without chemical assistance.  Each time, I failed miserably, and always ended up feeling much, much worse than I'd ever felt even before I began taking the pills. The truth is, I have something wrong with my brain.  It does not work as it's supposed to.  I am destined to take some sort of medication for the rest of my life.  But what kind? Which pills?  My sister believes I'm overly-medicated and wishes I'd take only the bare minimum.  Just what I need to function day-to-day.  But how do we figure out which pills those are? I currently take seven prescriptions, a dozen pills a day.  Surely some of those are unnecessary, wouldn't you think?  I mean, if I'm not really Schizophrenic, it seems we should be able to drop some of the pills I'm taking everyday.  But instead of cutting down on our meds, at my last therapy session my shrink actually added a prescription to my regimen. Maybe she's just trying to pull me out of this pit of despair I've been living in since October.  I don't talk much about my depression, because it really is one of the lesser of the mental evils for me at this point in time.  I've been depressed my whole life.  I'm used to it.  I know how to do it.  I'm good at it.  But I must admit, my traditional holiday blues this year have lingered, as they're usually over by mid-February. So yes, I guess I AM more depressed than usual, and struggling to maintain my sanity.  I find it extremely hard to get out of bed, to shower, to get dressed.  Mostly I sit around in my pajama's, reading and talking to myself and wallowing in our misery.  My energy level is at zero.  If my body worked out as hard as my brain does, I'd be built like a supermodel. (except much shorter)  All this excessive thinking, this obsessing, has me physically exhausted.  Yet sleep doesn't come easily, especially when it's supposed to. No, whenever I lie down to catch up on my rest, that's when my brain seems to be at its most active.  Maybe someone inside me is doing this on purpose to get my attention.  We don't know what to think anymore. I'm a hundred emotions all at once-I'm excited, I'm scared, I'm sad, I'm worried, I'm eager, I'm anxious... I just want to get to the meat of the matter.  I want to know what is wrong with me and I want to know how to get better.  If that means pills, OK.  If it means weekly therapy sessions, OK. I am willing to do whatever it takes to get to a point in my life where something makes some sort of sense, because nothing ever has before.

The Discovered Diaries

So much has happened that I just do not know where to start.  I can't remember the beginning, and we've not yet come to the end, at least I hope not, and so that must mean that this is the "present time".  I've been doing some research since my last blog post, and to say that is an understatement of tremendous proportions.  I've been obsessing over websites and news articles about dissociative disorders, to the point of not eating or sleeping; to stop and do either of those things would mean sacrificing our precious time, and I'd rather use however much time we have left here to seek more knowledge.  I hunger for knowledge, not food, I thirst for facts.  I cannot stop reading about these different conditions and their symptoms and I really feel that for the first time in what seems an eternity (to us) that I've stumbled upon something important, something that describes how I, we feel, something that makes sense to me, and to K. I feel as though I'm opening my eyes for the first time...although I have proof now-physical proof-that this is indeed NOT the first time I've had this sense of "clarity" as I've been calling it. Some time ago, we don't know how long ago exactly-could be minutes, could be days-we found a diary...

I was looking for something in the nightstand drawer, I can't remember what exactly, I just recall that I was very intent on finding it and so I was going through the drawer thoroughly. I came across a sketch diary, which I'd begun on my birthday in February of 1999 and which I used to remember important things and people and places and events by a combination of drawings and words. We've had our memory problems for quite a long time now, and so K has always tried to keep a diary, a journal, a sketchbook, anything which she could look at and relive experiences through, as well as just keep on top of basic information which other people seem to be able to hold onto in their minds so easily but which she cannot, things like friends' names.  She began her first diary around age 5.  It was a very small white diary with a picture of Donald Duck on the cover, I remember that well.  I'm not sure where that diary is located at the moment, but I'm almost positive that we still have it, since K absolutely hates to throw things away for fear of losing something important.  Something that she might need to use in the future. Also, she's very sentimental and still has, for example,  every love letter ever penned for her, every card, every poem.  We keep all these things in a box which has grown too full to hold anything new, but that's OK as we now are married to the man who will love me forever and never leave us, in spite of our illness.  At least, that's the master plan.

Now we're already losing track of the subject, and we've only just begun; this is terribly frustrating as well as inconvenient, for we once again are at the mercy of time and we seem to have so little of it right now.  There is so much which needs to be said and done before we run out of time, before I have to go away again.  I don't know how much time there is before that happens, I only know that it will happen, I will go away; not to a physical place, mind you, but rather to a different kind of place, on another realm of existence, or at least that's how it feels to K.  I'm not K, but am what our husband refers to as Switch Kellie, and I don't know how long I have been here this time but I can see from my notes that I've been doing a lot of researching, a lot of studying, a lot of prep work.  I suppose this is all because we go to see our psychiatrist soon.  Not today, and not tomorrow, but the next day.  I'm starting to work on these notes for the doctor now so that perhaps it will save her some time later, in helping her to properly diagnose K and hopefully, after that, put us on the road to recovery through the use of therapy and medication.  K takes more than her fair share of medication, that's for sure, but we were thinking that maybe if we had the RIGHT medication(s) then maybe we wouldn't have to take so MUCH...maybe we could get away with just a few pills a day or something much more "normal" than the current handful of 10-12 pills.  That's a ridiculous amount of pills for someone so young to be taking, and besides that, it makes us all groggy and sleepy (not to mention all the other dreaded side effects) and we feel as though our life is literally slipping past us and if I don't stand up and ring the bell to tell the bus driver that I want off, then I may just miss the whole thing-life I mean.

Now according to my notes, there happens to be some information which is of vital importance to K's recovery, (that is the current, and most important, project) inside these diaries. (Yes, plural-we have found three now) K always has a number of projects going at any given time, or at least most of us do, but not the K that's been around here lately... No, she's done nothing but sleep and be lazy and depressed and embarrass us and make us angry, not to mention the fact that it just downright looks bad in front of our mother and husband, both of whom we love very much and want to make happy.  This sad and lazy K has been with us before, oh it feels like we've met her a number of times over the years, although I don't believe that she ever came around until after K had to drop out of college, when the pressure became too much for her to bear.  I'll tell you that story later in the game.

Now back to our tale.  We have come across 3 different diaries, one begun in 1999, one begun in 2004, and one begun the first of January, 2010.  I find it absolutely fascinating, what's contained in these books, and my only regret is that we didn't find these and read them sooner, so that we could've told someone, some medical professional, one of our therapists, about them and the secrets contained within their pages.  I have to stop here and admit that I have not yet actually read all 3 diaries from start to finish; I simply have not had time to do that, at least not enough "Kellie Time", which is a measure of time all our own, which K's friends have gotten used to and often joke about but which they don't seem to understand (or perhaps some of them do) is truly the only sense of time that K knows.  I can tell time, perfectly well, I just don't wear a watch and can't always get to my cell phone or a clock to check the time around me.  "Kellie Time" is usually about 30 minutes behind the rest of the real world, but that can vary with K's different realities.  What I mean by that is, each K has her own sense of time and space, and so that 30 minutes could be as little as 15 minutes or as long as 2 hours, depending upon which K is trying to tell the actual time. I imagine none of this makes any sense to you, and I suppose it shouldn't either, as it couldn't possibly make sense to anyone who's not had a peek inside K's mind.  It honestly doesn't even make sense to K, and she's the one living through all of this madness.  If SHE doesn't get it, then how could anyone else?

So the diaries...let me tell you a bit about them.  I opened up the first one I found, the little black book, and I was pleasantly surprised to find that its first page was fully illustrated in bright colors, outlined all in black Sharpie marker.  Black Sharpie markers are K's favorite medium and she's been using them for decades now to draw pictures and tell stories of what's happening in her day-to-day life, and while a trusted few have seen these drawings, or some of them, (K does the drawings for herself, no one else) very few people (one or two) have actually taken the time to READ the drawings, or try and interpret them.  Only one of our therapists or doctors has ever seen these drawings, and when she saw them she seemed to get excited or eager or something I can't put my finger on, but which made us quite paranoid,  which is a very common state of mind for us to be in.  These drawings vary in appearance, as they are not all drawn by the same K, and most of the K's seem to have their own unique artistic style.  It's interesting to flip through the diary, and note the changes in mood from page to page, I mean the whole physical appearance of the diary entries, not just the words but the pictures and the colors, everything.  It's like reading a book written and illustrated by many different authors.  I, personally, Switch Kellie, as Husband likes to call us, am fascinated by these diaries and the words contained on their pages. I've been reading them like novels, each is like a new novel that I've never read before and which perhaps I've been told about because some of the stories are familiar to me and it seems I've heard the stories before, but I can't remember actually reading or writing these tales for the most part, and certainly I can't remember living all of these things.  It's as though it all happened to another person (or persons), or in dream or something.  Not "real life" (whatever that may be).

In addition to the physical appearance of the diaries, look closer and you will find that the words are different too, the writing style as well as the handwriting, and I am intrigued by this fact.  I want to know more about these books.  I must read them, all 3 of them, before I go and see the doctor on Wednesday.  My laptop tells me that this currently is Monday morning, so hopefully it won't be too much longer before the day comes when K goes to the psychiatrist with her husband (I need him as a witness!) and wherein she can finally tell someone this tremendous secret she's keeping. This secret is so big, so enormous, that if I stop to think about it, it makes my brain ache.  I literally can feel my brain begin to throb and pulsate and the pain intensifies until it gets to the point in which I fear I'm going to have a stroke or give myself an aneurism or something terrible like that. Thinking about The Secret, in fact, is enough to (almost) immediately induce a panic attack, and so we must be very careful about what information we share with whom, i.e. which of the Kellie's.  I'm the strong one, I'm the one who takes care of us, and so I'm much better equipped to handle the details contained in the diaries, much better able to deal with the overload of information, all of which must be organized and put into some sort of order before any recovery can begin to take place for us.  I just hope that I have enough time in this current state of mind to get the facts down on paper, to at least scan each of the diaries and take notes about what needs to be brought up in therapy.  There's so much to talk about, I fear that this project may take years and years, but I'm hoping that this is not the case; I'm hoping that by organizing all the data around me, I can put together some sort of picture of what's going on inside the mind of K, and be able to explain it rationally to our doctor.  Rationally?!  What the hell does that mean?!

I, Switch Kellie, am taking it upon myself to be in charge of the diaries, to navigate these waters as it were, to read them and analyze them and figure out the mystery that IS K.  I am curious about her, I really am.  I think that perhaps she is a piece of me, or I am a piece of her....I haven't figured out yet how all of this works but I'm hoping to at least get some sort of grasp, some idea of what exactly is happening right now and will happen in the near future, when The Secret is revealed.  I have to stop now and tell you that this big secret is too much for K's mother and therefore we will NOT be telling her anything about any of this.  She absolutely cannot know, she mustn't find out what's been going on right under her nose, for that information would be too much for her to bear, she's not open-minded enough, she could never imagine the likes of what I need to to say, to share, to understand.  K's mother is over 80 years old and is very old-fashioned and naive about things, particularly things which one generally does not hear about on TV or in newspapers. She doesn't really have friends at her age, aside from a couple of relatives who come to check on her and socialize with her from time to time. These times, the times when, say Aunt B comes over and takes Mom to the grocery store, these are the times which K looks forward to, not because she doesn't enjoy being with her mother-she does love and enjoy being with her mother-but because while Mom is out of the house, K can relax her brain and let go and not have to put forth such an effort to appear "sane", which is absolutely exhausting for us to do everyday.  K's mother has no real concept of what the internet is, she just knows that she can ask K a question and K can look it up on her computer and find an answer usually.  This is important!  This is how I intend to find out about what's "wrong" with K, even though I detest that we must use that word "wrong", for it implies that K is defective, which I suppose she must be to be going through all of these symptoms and what have you, but which I, Switch Kellie, find hard to accept.  I don't want to be defective. I just want to be happy.

Happy is a fairly foreign concept to us, to K, for she's been unhappy for so long that she can barely remember what it's like to feel anything else, except that now that she's gotten married, this feeling of "happiness" has come over her and to be honest, it freaks her out a great deal.  It freaks her out because it just feels so alien to her, this feeling of true happiness (we have faked being happy for eons); K has suffered from depression for almost her entire life and she's therefore used to being unhappy and she understands these dark feelings of doom and gloom and while they may not be ideal for her, she's at least familiar with them and is comfortable feeling them.  This new feeling of "happiness" makes K very nervous, for we are unsure how to go about it, it's something different, something scary, something we've not been around much, and K doesn't know exactly how to "be" happy.  It frightens her, this new concept, although she'd very much like to experience it the way that other people, regular people, seem to experience it.  And wouldn't it be lovely if K could appreciate life and all that it has to offer, without being bothered by that nasty depression cloud which has hung over her head for so many years now...Perhaps we are on the pathway to that place, that feeling, to being "happy" (which we've been on and off before throughout the years but the feeling never lingers, it's always been a temporary rush).  I just hope I can get there, to that place, to "happy" before I run out of time.