Showing posts with label stigma. Show all posts
Showing posts with label stigma. Show all posts

Thursday, May 24, 2012

Should I Come Out?

May is Mental Health Awareness Month.  I announced on Twitter recently that I was mentally ill (it's no big secret), and proceeded to name some of my ailments.  I have a laundry list of them you know.  I'm pretty sure it cost me some followers.  (Oh, well.  If they can't handle me crazy, they don't need to be in my life.)  So far, that is all I have done to spread awareness.  But I've been thinking of doing more.  I am seriously considering coming out to a friend in Real Life about my being mentally ill. I keep weighing the pros and cons, and I repeatedly keep coming back to the point of it being really important to have support.  We don't have a ton of support.  I mean, I have our shrink, and Husband, and social media, like Twitter.  I can't tell you how many times a simple @ tweet directed to me has affected my mood in a positive manner, perhaps even pulled me away from the edge of insanity.  It feels good to send out a message in a cyber bottle, and have someone from around the world answer that message, and give me words of encouragement,  or just make me laugh. I think the narcissist in us loves being singled out.  Of course, at least one of us hates the attention and would rather no one pay us any mind.  It's an inner struggle most every day.

If I do decide to come out to someone, I need to plan out what I will say, how I will put it into words.  So let me think about that for a minute.  What exactly do I want to tell them?  How much information do I need to share?  I certainly don't want to overwhelm them with too much, too soon.  And it would be a shame to tell more than is necessary and cause myself greater embarrassment.  Yes, this will be very embarrassing.  And what about their questions?  I need to be prepared with answers to the basic questions which they are bound to ask me after I drop such a bomb on them.  I don't even know which of my illnesses to share with them; certainly not all of them-that'd be too much information.  So I need to pick an ailment, and prepare a little speech about it...  But first, before any of this comes to pass, there's something even more important that I must do.  I must decide which friend I want to reveal my secret to.  I know that whomever I choose will forever see me in a different light after my confession, so I have to choose carefully.  Whom do I feel closest to? Whom do we need support from?  Who do I trust enough to tell?  That last question is easy. Answer: No one. I don't trust anyone enough to tell them about my mental health issues.  I'm afraid, I admit it.  Afraid I'll be thought less of, afraid I won't be invited to socialize anymore, afraid the person I tell will spread rumors about me.  It would be a huge risk on my part to open up to an outsider.  I don't take this decision lightly.

When, or if, I decide to open up to someone, I need to make sure that person understands that this is a very private matter and that I'd rather not have everyone in town know about my condition.  They need a strong ability to keep a secret.  I have to assume that whomever I tell will most likely tell their spouse, and that fact makes the decision even harder.  Right now, the only people who know about my DID are my doctor and my husband.  I've only come to accept this diagnosis myself as of January, so all of this is new territory for me.  I'm still learning about myself, about the different me's, about who and what we are.  I can't imagine trying to explain all that to another person.  How can I, when I don't even understand it myself?  I am still learning to recognize my parts, so I couldn't possibly introduce them to an outsider.  I know what the first question out of their mouth would be: "How many of you are there?"  This is the question everybody always asks, and I wish I had the answer.  The truth is, I don't know how many of me there are.  I've identified a half dozen personalities, but there are still more voices inside my head which haven't been singled out.  So I don't know how many K's there are. Hmm. Perhaps telling about my Dissociative Identity Disorder would be too much; I don't want to overwhelm my friend(s).  Maybe I should confess only to something simpler, something easier to come to grips with, like my Obsessive Compulsive Disorder or Social Anxiety Disorder.  I'm pretty sure my friends already have their suspicions about these things, so it wouldn't be such a stretch for me to just come out and admit that I have these disorders.  I'm fairly certain that whomever I choose to tell will be understanding and sympathetic, and I don't think it will have any sort of negative impact on our friendship.  Knowing that then, why is it so hard for me to imagine revealing my secrets?  What am I so afraid of?

stig·ma [stig-muh]
noun, plural stig·ma·ta [stig-muh-tuh, stig-mah-tuh, -mat-uh], stig·mas.
 
a mark of disgrace or infamy; a stain or reproach, as on one's reputation.  Social stigma is the severe disapproval of, or discontent with, a person on the grounds of characteristics that distinguish them from other members of a society.
 
 
That's your answer. The stigma of mental illness is what I'm afraid of.  Don't think that there isn't one-it's alive and well and I've seen it firsthand.  I know what it is to be discriminated against because of my mental status. I know how it feels to be the butt of jokes at the workplace. I've seen that look that people get in their eye just as soon as my mental health is brought up. It is impossible to fully understand it unless you've experienced it.  People treat you differently.  Medical doctors often think the physical ailments I complain about are simply "in my head".  They are afraid to prescribe medications as I'm seen as a suicide risk.  At work, I'm not trusted with important tasks or asked for input on anything serious.  People seem to think that because I'm mentally ill, I'm less intelligent than they are. I'm not taken seriously. Or I'm thought to be lying, or making up stories.  There are a thousand different ways in which to discriminate against the mentally ill. Unfortunately, I've dealt with quite a few of them; I'm not eager to deal with any more.  So perhaps I'll just keep my mental illness to myself.  After all, I'm very good at keeping secrets.  As far as Mental Health Awareness Month goes...I assure you, I am aware.
 

Wednesday, January 4, 2012

The Lost Blog Post

I was editing our blog-we are still trying to figure out how to do this-and I came across this draft.  I have some memory of someone writing it...Not sure who or when...Anyhoo, I thought perhaps I'd share it with you, as I myself found it rather insightful.  Or something. It goes like this:


Hello and good day there! It's about time that someone, anyone, step up to the plate and tell the (non-)Real World who, and perhaps more importantaly, WHAT we are!  I apparently need to get off my ever-increasing ass and do something about this situation! So while it may be true that according to phone records and internet timestamps, we've only been asleep for say, 3 hours, and during that 3 hours let's say that I took some Seroquel and every one of us knows how much that frightens K, and that technically she should still be sleeping due to it's sedating qualities...i.e. This shit usually knocks us on our face and we sleep for at least 12 hours, so therefore WTF am I doing awake this damn early?!? Sigh. Things just can't seem to go as planned these days...


We're only a few entries (unless it's changed since I woke up; not saying it hasn't--) into this New Blog, and I've said this to someone before, perhaps you, that I'm dissatisfied with the look and feel of it.  I am looking at this and reading this and this just WILL NOT DO at all!  This blog seems rushed and NOT put-together-right and our OCD simply will NOT stand by and let this go on any further! It should be perfect.  It should be entertaining, and interesting, and maybe even a bit controversial as well, since K so enjoys that feeling of risk-taking, and after having read this so-called Blog, we have decided that K is NOT up to the task and someone else positively MUST take over the reins for awhile.  And that someone appears to be me today.


Who the hell am I? you may be asking yourselves, and I will be happy to answer that question.  We are K, not to be confused with The Kellie, (who is fabulous but rarely comes around anymore from what we can tell), we are the conglomeration of all the things and people and ideas and whatnot which belong to K but which she currently cannot express because K suffers from "mild"(?!) Schizophrenia and Major Depressive Disorder and perhaps even Dissociative Identity Disorder (we were just making strides in that area when our therapist dropped us; damn the luck!) even though she thinks (HAHA) that she's currently OK, she truly is very seriously depressed and/or mentally ill and just unable to talk about it.  For a number of reasons which shall become (at least somewhat) clear by the end of this post.  Hmm.  I wonder how long this post will be??  (cue dramatic music, then cut sharply, and zoom in to the center) We shall see, Oh yes, we shall see indeed.


The story starts as many stories do, only ours doesn't necessarily start at the beginning...rather, it starts somewhere in the middle and then jumps back and forth from past to future, never really lingering long enough in the NOW to have a "normal" life, whatever that may be. In our mind, "normal life" means literally "the life that most normal people lead" and it entails a job and a spouse and some kids and probably a dog and a mortgage and plans for some sort of future in which the star of the show has grandchildren and memories of a long and fulfilling life, with the usual ups and downs along the way but which ultimately has a happy ending.  The "...and they lived happily ever after" part of the movie. But NO, not us, not now, not EVER, that's just not the hand that was dealt us in life, and we must face the facts. K is still (after all these years) in denial, and probably always will be.  It's just in her nature to be negative, only she considers this "realistic" and gets pissy if someone calls her a pessimist for she very clearly is a realist.  But I'm jumping ahead again. Damn.  I forget sometimes that this is NEW, that you don't know us, that you are NOT my doctor or my therapist or my partner or even my friend yet, and that some explaining needs to be done.  How could anyone possibly jump into the middle of this madness and be able to successfully navigate their way through  these troubled waters? Not even I can do that, and at the moment, I am the captain of the damn boat! ("Ship" I hear Daddy whisper in my ear "A boat fits on a ship, a ship cannot fit on a boat!") K's father was in the Navy and loved all things ship-related. So let's dive right in, shall we say, and start swimming.  I'll be nearby with a life preserver for you in case of sharks or piranha or whatnot.  You will be safe, I (cannot) promise. Just keep swimming.


We are known collectively as K, and we were first diagnosed with a "mental disorder" and given a diagnosis of Bipolar Disorder (although at the time it was called "Manic-Depressive Disorder"; I suppose this dates me EEK!) when we were 16. Now granted, just because this is when the illness was brought to the attention of us and (some of) our family, it does NOT mean this is when we first got sick. No, we've been hearing voices and/or having hallucinations since roughly the age of 4.  For as long as we can remember, in other words. It just didn't really become a problem for us until I was a teenager. Actually, K had no idea that anything was wrong with her at all, because this way was the ONLY way she'd ever known. She assumed everyone else also had a sports broadcaster in their reality, commentating on their "game" of life.  Throughout her childhood, she heard people refer to "that little voice inside your head", so she thought it was perfectly normal to have someone in your ear telling you to do things.  The fact that she had more than one voice didn't make her ill, it just made her special, and so we lived with these voices and were not afraid at that time.  They were nice to her back then, perhaps because she was innocent. The visual hallucinations were her "imaginary friends" that a lot of children have.  K's secret is that she never outgrew them as other children do. (They are no longer my imaginary "friends" however; more like enemies)


Now we come to the childhood trauma which every therapist seems to think mental illness comes from, although I'm not sure mine was all that traumatic for me until I began seeing a certain therapist in my mid-20's,  which seems a long time ago now, (but how would I know? I have no concept of time. And K has issues with her age-she doesn't believe she's as old as she is-but that is definitely another tale for another time) and she told us that I was displaying all the signs and symptoms of sexual abuse. (Yes, I do exhibit the classic signs. I'm not going to list them here; you can easily find out for yourself online what exactly those signs/symptoms are) Now we've tried to revert back to our childhood and remember who exactly did what and when...Yes, it happened. Yes, it was a family member.  Two actually (but NOT our beloved parents!) But in the end we  only succeeded in making ourselves feel more uncomfortable than ever in our own skin and brought about feelings of guilt, as though she had done something to deserve it and it was her own fault that she got molested. No, K was unable to handle that reality and therefore she dissociated and created her own reality and we can't really remember those super-traumatic things anymore. K isn't allowed to think about that stuff.  It's best we not go down that path again, I assure you. It's a slippery slope and we always fall and it takes literally years for us to get back up again.  So we will NOT be talking about the molestation OR the rape(s). Another time, another place. Maybe.


Jump ahead now, and K is a teenager, and puberty kicks in and the hormones start to take over and this starts to compete with the Mental Illness (which of course is going untreated at this time) and what happens is  she becomes a suicidal mess and gets sent away to the loony bin for what seemed years but which we now know was only 3 months.  And in those 3 months, K's parents did all they could to hide K's illness from the rest of the family; they were ashamed that something like this could happen to them and they thought they'd be judged, and let's face it folks, there IS a stigma, and back then it was much worse even than it is today.  We certainly never had famous actors going on national television and announcing they were Bipolar or Bulimic or anything like that; it was something we didn't talk about, something to be ashamed of and embarrassed by, something that happens to other families, not ours. So K's sister, her very own sister, was never even told that K had been hospitalized for attempting to commit suicide (the wrist slashing we can't remember-it was too traumatic; we just have the scars and nightmares now) not once but several times, using different methods, which we obsessed about and which we were constantly in our head planning out for K's future. She intended to be dead by age 25 anyway.       


That's the end of the draft.  As I've stated earlier, we're not sure which one of us wrote that.  But it seems important to share it with someone, anyone, and that someone turned out to be you.