Showing posts with label medication. Show all posts
Showing posts with label medication. Show all posts

Tuesday, May 22, 2012

About a Wedding

I spent most of  yesterday in bed, sleeping, in an attempt to recover from my exhausting weekend. But oh, what a weekend it was!  On Friday, I drove my husband and my mother 7 hours to Savannah, Georgia to attend my nephew's wedding.  From the moment we got there, it was a non-stop whirlwind of activity and celebration up until (and after) we left Sunday.  We stayed in a breathtaking 2 story loft type residence inside an old cabinet making business.  I loved the exposed brick walls, 15-foot ceilings, industrial-looking pipes everywhere-it was very urban and modern and funky.  We had a downstairs apartment with 2 bedrooms and a kitchen and a huge great room with pool table and 50" flatscreen TV; my sister and her husband and my niece and her boyfriend stayed in the upstairs apartment, which was just as hip plus had a fireplace and a balcony.  Savannah is an amazing old city.  In case you've never seen the movie "Midnight in the Garden of Good and Evil", I'll tell you that Savannah is gorgeous. 


The Savannah Historic District is one of the nation's largest; this city is just a beautiful old Southern coastal town with beautiful architecture and gigantic shade trees dripping with Spanish moss, and 22 different parks with fountains and old statues and cobblestone streets complete with horse-driven carriages.  There's a waterfront area where artists set up their easels and paint and artisans sell their crafts and street musicians perform.  There are delightful little cafe's and pubs, and my husband and I found our way to a few of these Friday afternoon. The wedding festivities began with a rehearsal dinner Friday night. I didn't attend that, but it was my responsibility to get my mother dressed and do her hair and makeup.  After everyone left for the rehearsal dinner, I was able to breathe easier, and my husband and I went off on our own and walked the streets of downtown and had dinner at an eclectic little place which offered $2 beer.  After some sightseeing, we headed back to get ready for the pre-wedding cocktail party, held at a fancy old restaurant/bar.  I intentionally skipped all my meds just so I could drink at the party.  And drink I did!  I think I was trying to make up for my lack of Xanax.  After several drinks, my brother-in-law brought me my own bottle of champagne, every drop of which I drank...and then a second bottle appeared.  I drank and danced and smiled and pretended to be at ease, but truthfully I was a nervous wreck. For a person with Social Anxiety Disorder, this was the ultimate test:  It was crowded and noisy and I was surrounded by hundreds of strangers, all of whom seemed young and thin and beautiful.  But I hung next to my husband and my mother, and so I felt somewhat shielded from the dangers of the reality outside my little bubble.  It was so wonderful to spend time with my big sister, whom I rarely get to see as she lives on the other side of the country.  She introduced me to someone as "her beautiful sister" and I took that as a sarcastic comment but my husband said she was being sincere. It's not that I think she'd try to be mean to me, it's just that I'm paranoid by nature and always assume the worst.  We stayed for a good long while, long enough for me to see my 83-year old mother drink and dance with several young men, including her grandson (the groom).  I was thrilled to see her having such a good time, and she said it was the most fun she's had since Daddy died.  After she was too tired to go on, my husband and I took her back to where we were staying and put her to bed.  There was another party to attend, but I didn't think I could handle another crowded social function, so instead we stayed in and my husband made me margaritas (my sister stocked our kitchen with snacks and our bar with liquor!) and he opened a bottle of Captain Morgan's and we did some more partying by ourselves.  I got so drunk that I ended up hugging the toilet for a good part of the evening.  Oh well, it was totally worth it.

The next day was hectic and entailed a breakfast get-together where I consumed much champagne and orange juice.  I intentionally skipped my meds again so I could enjoy all the champagne I wanted.


 I LOVE champagne.  After breakfast, everyone scattered  to do their own thing and my hubby and I went sightseeing.  We walked all over town and ended up in a frozen drink bar.  From a wall of colorful assorted frozen drink machines, I chose the blue one.  I ordered my drink and then saw the sign which proclaimed that the drinks are made with 190 proof pure grain alcohol and are much stronger than regular bar drinks.  Needless to say, I thought that drink was going to put hair on my chest!  We headed back to the apartment to prep for the wedding.  I helped Mom get dressed and did her makeup and hair and Mom left to get wedding pictures made.  Husband and I had an hour to ourselves before we had to leave for the wedding.  Which means that I was ready on time, but that there was enough time for me to get very anxious.  I stuck some Xanax in my purse but really didn't want to take any because I wanted to drink at the reception.  Well, once my husband and I were all decked out in our formal attire (he looked so snappy in his bow tie!) we headed down the street 2 blocks to catch the trolley which my nephew had hired to take everyone to the church.  The wedding was beautiful and afterwards we headed to a mansion for cocktails and hors d'oeuvres.  Servers clad all in black milled about with trays of food and wine, and there was an open bar which we took full advantage of.  I admit, I didn't do any mingling.  I knew no one but a  handful of relatives there, so I wasn't comfortable talking to anyone.  I put Mom in a chair and got myself a Cosmopolitan and spent the next hour or two chatting with my husband and trying not to have an anxiety attack.  It seemed to take an eternity, but at last it was time for dinner, and the wedding party filed into the ballroom and everyone went to their assigned seats.  I was so relieved to find that we were sitting with my mom and sister and niece.  I had a cocktail with me, then a man came around and poured champagne, and then after that a man came around with 4 different kinds of wine. I chose white.  The dinner was ultra gourmet--filet mignon and a single gigantic shrimp served with asparagus. It was much fancier than I am able to describe.  I ate very little but drank plenty.  After that there were speeches and toasts and dancing and general merrymaking.  I can't remember how I got back to the apartment...  it seems that my husband and I did some more drinking that night and I guess I passed out at some point; I woke up in the wee hours of the morning wearing my clothes.  There was no sleeping in that day, for we had to make the journey home.  I stumbled into the kitchen to make coffee, then started packing my suitcase.  For a 3-day trip, we had a ton of luggage.  Plus a cooler filled with drinks and plastic bins filled with snacks and all of Mom's medical equipment...it looked like we were moving.  I think it took Husband 20 minutes to load the car.  It was raining the day we left, and that seemed to match the mood of everyone as we said our goodbyes.  It was sad-Mom cried.  The drive home was long-about 8 hours-and exhausting.  I kept having to stop to throw up, presumably from all the drinking I'd done the night before.  Finally we pulled into our driveway.  I hated that our trip was over but was also glad to be home.  Then I saw the evidence of the stress of the trip.  I found that my legs had been picked at and scratched at and were all bloody and raw.  My upper arms were also covered in sores due to compulsive skin picking.  I don't remember doing it but it's obvious that it was a reaction to stress and the pressure of being around so many strangers.  I skipped all my meds for 3 days and went "all-natural" -something was bound to happen.  And so I dealt with the anxiety by drinking too much and picking at my skin. Also bit my nails but not as bad as it could have been.  In retrospect, I don't think I could've had a better time.  And I'm so proud of myself for not freaking out during all the excitement.  My doctor had warned me I'd probably dissociate during the wedding, but I don't think I ever did.  I remember the ceremony. I remember the reception. I got a little floaty and distracted during dinner, but I think I successfully stayed in my body for most of the whole event... Wow!  This weekend gave me not one, but two things to celebrate.

Sunday, April 22, 2012

Disorderly Eating

I have an eating disorder.  I'm sure I've mentioned it before, but I don't think I've ever talked about it in serious detail. Well, the present time seems appropriate to tell the tale, as I'm currently, right this minute,  in the process of researching the ABC diet.  The ABC diet is also known as Ana Boot Camp (ana is a slang term for anorexia nervosa). In my lifetime, I've had doctors tell me I was anorexic and I've had doctors tell me I was bulimic. I don't know what I am, but it's definitely a disorder.  There's a very loud voice inside me that tells me this is unhealthy, that I'm verging on a relapse, that I should NOT be checking out new, extreme ways to get thin. The ABC Diet lasts 50 days, and is built around a very strict caloric restriction.  Days of fasting are interspersed with days of consuming a maximum of 500 calories.  The calorie intake changes day to day, but the lowest day on the program allows a mere 50 calories. Most days average around 200-300 calories a day. Diet experts say that the minimum recommended daily calories consumed should be no lower than 1000-1500.  So this diet has risks. Any diet has risks, but this particular diet puts the dieter at risk for low blood sugar, which causes low energy and dizziness. Other risks include malnutrition, fatigue, sensitivity to cold temperatures, paranoia, depression, a learned obsession with calories, fat and sugar intakes, and an increased likelihood to participate in other dangerous eating rituals.  Now here's what scares me.  It would be a walk in the park for me to stick to the calorie counting.  There are many days in which I consume less than 500 calories, and I fast at least once a week.  This would just mean getting a food diary and keeping track of every calorie I consume.  So really, it wouldn't be all that hard for me to stick to the diet's rules.  It worries me/us that we are considering starting this diet Monday.  I have a wedding to go to in 4 weeks-that's half the time of the diet.  I really, really would love to shed some pounds before that date. It's a family wedding-I'll be in the photos-and I would hate to ruin a beautiful wedding picture by looking too fat.  It doesn't help anything that the bride has an amazingly hot body. She's tall and thin and gorgeous; I have no desire to stand next to her in any photos. But back to my point-I believe I could do the food part of the diet.  The hard part is that you have to exercise obsessively, preferably something super intense like P90X. There's no way I could handle that kind of workout in my current state of health.  I am simply too out of shape to follow such a hardcore program; sad but true.  I have no strength and no endurance.  It would take me so long to get used to the exercise portion of this diet that half my progress would be spent just getting to a "normal" fitness level.  I just don't know how to remedy this situation.  I can start working out today but there's little chance I can speed up my metabolism and start burning the kind of calories that this diet recommends.  I currently eat so little every day that my body has gone into "starvation mode"-this is according to my medical doctor-and is therefore hoarding calories and storing fat within me. My doctor actually told me that to lose any weight, I'd have to start eating more.  So perhaps this ISN'T the right diet for me, as it certainly isn't an increase in my food consumption, but rather a steep decrease.  I just don't know what to do. 


I remember the very day I first decided that I was fat.  I was in 3rd grade, just 8 years old, and I was not at all overweight. (Have you heard this story before? If so, I apologize for being repetitive.)  The weather was very warm and I was wearing shorts. I was sitting in class, in my desk, and I happened to look down at my thighs.  I couldn't help but notice how, when they were pressed flat against the seat, they spread out much wider than when I was standing.  Something clicked in my mind, and right then and there I decided that I was too fat.  I went home and walked to the store and purchased my very first diet soda. I hate to age myself, but it was a Tab; that was the only diet soda made at that time.  It was sweetened with saccharin, and so it was bitter.  I didn't like it, but I forced myself to drink those cancer-causing ingredients, and so began a lifelong habit of drinking diet sodas.  I've been drinking them so long now that I usually can't tell the difference between a regular soda and a diet soda; I'm just used to the bitter taste.  I've been a Diet Coke fiend since it was first introduced, and to this day I drink mostly coffee and Diet Coke.  I realize now that this is a terrible habit, and that even diet sodas still cause bloating and weight gain.  I understand that I must give up my Diet Coke habit in order to successfully lose enough weight to make myself "happy" (whatever that means). So I'm ready. I'm drinking coffee right now, and after I'm done I shall switch to drinking water for the rest of day. I intend to drink water only everyday from Monday until we leave for the wedding, which is on May 19.  I also intend to ingest diuretic pills so as to shed even more water weight.  I realize that this is a quick fix and that I'll only be losing water, not actual fat, but that's OK right now.  I just need to shed some pounds for the wedding; I can begin to focus on body mass index after we get back from the wedding trip. The wedding is out of state, and my husband and my mother and I are driving down for the whole weekend. Mom has to be there for the rehearsal dinner, as she's the grandmother of the groom.  My husband and I are not in the wedding, but we are attending both the wedding and the lavish reception, which is to be held at a mansion in Savannah, Georgia.  It's a very long drive for us, but since my husband has never been to Savannah, and because I simply adore that city, I am really excited to make the trip.  The wedding and everything surrounding it should be a blast.  I will get to spend time with my big sister, whom I rarely see as she lives in Utah, and my niece and of course my nephew is the groom.  He lives in L.A. and so I only see him once a year or less.  He's very, very health/fitness conscious, and I dread having him see how much weight I've gained since he last saw me.  The weight gain is not due to overeating, but rather is a side-effect of the medication which I must now take.  Worst. Side effect. Period.



I first began my dance with medication and weight gain when I was 16 and the doctor put me on Lithium; I gained about 30 pounds. I was horrified at how puffy my face got.  But I endured it until the day came when my medication was switched. Some of the pills they put me on caused me to lose weight, and that was always a pleasant bonus for me.  But many of the psychotropic medications I've been given over the years have had the unwanted side-effect of weight gain, often substantial.  I'm currently prescribed six different medications: 2 atypical anti-psychotics, a regular anti-psychotic, an SSRI antidepressant, an NDRI antidepressant, and an anti-anxiety medication of the benzodiazepine class.  I have no idea which ones of these drugs are causing the weight gain, but when I began my newest prescription I noticed a jump in my weight, a big one.  And so it could be that more than one of them is causing the weight gain; but which ones do I give up to lose the extra pounds?  And seriously, is it worth it to lose my mind in order to be thin? (someone inside me is screaming "Absolutely!")

Now as far as my eating disorder goes, I've been showing signs and symptoms since that fateful day when I was 8.  After that first Tab, I became obsessed with calorie counting and sugar, fat, and carbohydrate control.  I quit using sugar and switched to an artificial sweetener, and I began buying reduced-fat, low-cal, and sugar-free foods. I also began to regulate how much I consumed and adhered to a strict diet.  It was also around this time that I began to exercise obsessively.  At the age of 10 I went running until my legs turned to jelly, played tennis, did aerobics (with my Jane Fonda videotapes), and wouldn't go to bed at night until I'd done a specific number of sit-ups (100) and leg lifts and other floor exercises. All these behaviors stayed with me throughout my teenage years and by high school I'd begun fasting. There were several occasions wherein I passed out at school from lack of food.  But then my prescriptions changed and I gained weight and it was out of my control.  So I began making myself throw up.  After a while, it was easy.  I got sick every time I ate.  This helped drop some weight but was very unhealthy.  I didn't care though. I continued to starve myself and fast and throw up and eventually, in my 20s, I began using laxatives as well.  It was in my 20s that I reached my lowest weight.  I achieved this through the use of diet pills, which were basically just speed, and also I quit taking my psychiatric medications.  If I got hungry, I'd pop a pill and smoke a cigarette instead of eating.  The diet pills, along with the starvation, the obsessively exercising, the vomiting and the laxatives all helped me achieve a weight of 98 pounds.  I was so proud of that fact, although at the time I was convinced that if I'd only lose "a few more pounds" I would really look good.  I remember the constant weigh-ins. I was always on a scale, and I obsessed over each and every pound. Later, my doctor made me get rid of the scale, and I'm forbidden to own one now.  I remember lying in bed, running my hands along my rib cage, counting each rib to see how bony I was.  I also took great pride in having pelvic bones which stuck out prominently.  And I'd lie there and suck in my stomach and see how concave I could get it.  When I see the photos of me from that time, it's bizarre because I'm torn in different directions--the K(s) with the eating disorder think I look good, while the other K's think I look frail and unhealthy. I remember what a typical day's food intake was back then: no more than 5 saltine crackers and a plain baked potato.  That's it, along with coffee and Diet Coke.  And I fasted every 3rd day.  It's amazing I didn't cause some sort of permanent damage to my body. But this is my life, or how it's been for most all of my life.  I also later went through a phase, at age 30, where I'd gained so much weight due to the medications I was on that I became seriously depressed and absolutely gave up at one point and began compulsive overeating. I'd binge and eat everything I could find.  I could eat a whole package of cookies, and sometime I did.  I'd eat like this at night, so that no one would know about it. I was ashamed and I hid my eating.  No one ever saw me eat-it was my secret. But I reached my heaviest weight during this time, and that was 183 pounds. (God, it's hard to admit that, even though I don't weigh that much anymore.) The throwing up and laxatives and diet pills came into play again and I shed it eventually, but because of the medication I am on, it's been a lifelong struggle with my weight-it goes up and down.  Right now, I'm somewhere in the middle, but on the chubby side in my opinion (thank you new meds). I currently flip-flop between complete starvation and binging and purging.  My husband doesn't know about all these habits of mine, and I intend to keep it that way.  All he needs to know is that I want to look good for him, and I'm willing to do whatever it takes.  So I've stocked up on a variety of appetite suppressants, carbohydrate blockers, metabolic stimulators, and calorie-restricting pills.  Plus some good old fashioned "legal speed".  I'm not sure how all of these things are going to fit in with The ABC diet, or if I can fit them in at all.  I don't know exactly how I intend to shed this weight, but I guarantee you it will be unhealthy as hell.  And I will adhere to my strict diet and exercise program at least until the wedding.  After that, we'll settle into a healthier-eating/daily exercise routine and hopefully I can achieve a desirable, "normal" weight.  I just hope I can properly gauge what a "normal" weight is. I can't continue to live this life of extremes.  It's getting more and more dangerous as I get older, and I'm beginning to fear for my health...but not enough to stop. 



Monday, April 16, 2012

Journal Entry

SUNDAY, APRIL 15, 2012

1:00 PM
I'm back. I, being the persona who's writing this post, being, I believe, (I hate to say it yet I'm excited by it as well), it is I--Switch Kellie. That's the name Husband gave to me when he first met me in January 2012, just a few days before our 2nd wedding anniversary if I'm not mistaken.  It was quite the night, that night of our introduction. Switch Kellie is mentioned here: Blog Post A and here: Blog Post B I'm faced once again with the choice of whether or not I should tell Husband that I'm here.  I'm wondering if he'd notice eventually anyway...I mean, there are clues. For one thing, I'm making lists. Tons of highly-detailed lists, of a variety of things.  What to do, Who to call, Where to go, etc. I'm also doing a lot of paperwork, researching, Googling, taking notes. I have so much work to do, I fear I won't have enough time to finish it all.  It is 1:02 PM and I'm pausing just long enough to make a note of the current time, so that I might be able to keep up with how long I've been here. Here being this moment in time, this "now". How I value time...probably because I lose so much of it. *deep breath* OK, feeling a panic attack coming on...I better go take the meds I forgot to take this morning, since it's now time for the afternoon pills.  Drat.


4:28 pm
 I'm still here, or so it would seem.  I successfully kept my presence a secret and now Husband has gone to work so I'm safe for a few hours. If only I can keep Mom from noticing. I think she might be suspicious, because I was making and maintaining eye contact with her earlier.  That's NOT something I can do very easily, and it's rare that I even try.  But I did it without thought or effort, just action. Just knowing. Just do it.  Oh dear God, have I ended up a Nike commercial rip-off? Sigh. Went to a chocolate festival with Husband this afternoon; he wants to go walk thru the carnival rides section tonight after work, so we just hit the food and vendors side today. There was an appalling lack of chocolate at the supposed chocolate festival. Now, let's get serious. I can't believe how bad this "Kellie World" situation has become. For one thing, K totally flaked out and forgot to pay a number of bills last month. Now I'm getting phone calls from people wanting their money. I had to combine money from my savings and checking accounts to cover them, and even then I had to borrow money to cover everything, since I had 2 months' payments due. *Sigh*  For another thing, K is really looking bad, in so many different areas.  Her skin is all messed up; stress has caused her to break out all over, and her Dermatillomania has caused her to pick at all the zits. Therefore, she looks like an acne-ridden teenager.  Her arms also look horrendous from CSP (compulsive skin picking) so she's been wearing long-sleeves even though the temperatures have been in the 80's F.  Her self-injury is the worst it's been in years-her calves are covered in big, bloody scabby sores. Gross. The new medications have made her gain weight so she sees herself as obese now, although that's probably not really the case. (Maybe it is though, we really don't know how to tell; we see a fat person in the mirror no matter how much I weigh)  Still, it's a major stress factor in K's life. Her hair color needs to be touched up-she's got roots showing, and her bangs are far too long.  I can't tell you the last time she had a manicure, and her nails look like hell. Apparently we've been biting them, just like old times. HA. So NOT funny.  I've been binging on Easter candy lately, and that has got to stop immediately. Also, it's time to start working out regularly again, better yet obsessively.  K has some vitamin deficiencies and needs a multi-vitamin supplement, which she's not been taking. She's been flip-flopping between starvation and overeating. Binging and purging is the norm around here on days that she eats. There is no happy, healthy medium.  This is the worst, perhaps, she's ever been; I don't mean the thinnest of course, I mean nutritionally speaking. K is very unhealthy at the moment. I mean, K is unrecognizable.  Her face is so puffy from the medications that she looks positively round. It's a nightmare. Very unattractive.  And we're supposed to go to our nephew's wedding in mid-May.  Damn.  So much business to attend to, even without all the physical makeover stuff that I must now do.  K has utterly let herself go, and I'm ashamed of her.  Obviously, she's quite depressed.  That's the number one reason she looks this bad.  Am thinking perhaps this switch was brought on by the stress of having to sleep with Mom again recently so that I would be able to hear her calling my name (she was in so much pain the she got scared and kept calling out for me).  I was afraid I'd not wake up seeing as how Dr. H increased my nighttime meds to 4 pills a night rather than 3.  And indeed, I slept long after Mom had gotten up. I slept in til about 8:15 this morning.  Well, not I per se, but us. The K's.  This K is getting antsy now.  Feel the urge to go clean something, or to self-pamper, to give myself a deep conditioning treatment and a fizzy foot soak and a mani/pedi and then I've got to get off my fat ass and get to work.  The bathroom needs sanitizing.


6:09 pm
 Paranoia is putting crazy thoughts in my head. This is making me wonder if I'm faking it, this dissociative disorder. Is this all just in my head?  Am I really all that different from the other K's? Signs point to yes, as I am thinking more clearly and quicker and just...differently.  I see things in a whole other light than what K sees.  I'm more responsible than she is, more able to multitask, I'm more mature and dependable. I don't do drugs. Cigarettes? No. Not Switch Kellie. I might have a drink or two (well, I would if I were allowed to drink; my meds interact badly with alcohol) but I'm definitely not a party girl. I'm more serious than that.  I think about things like our future...Mine and Husband's....I think about what's going to happen after Mom dies. I don't know if we'll be able to continue to afford to live here in this house. Plus, Sis will probably want to sell the house and split the money.  I would do anything for Mom, I'd give away all that I have if it'd make her pain stop. The Dilaudid seems to help a lot, and they gave her some pain patches which I've cut in half and put on her back and chest. Things with Hubby's health are sketchy too. His asthma attacks are getting frequent and more serious. Aunt B gave us some Advair that she had for her husband but he never used. Too bad she gave it to us the day after we'd spent $266 (borrowed from Mom) on a month's supply. At least by the time those run out he'll be enrolled and active in the discount prescription drug plan at the medical complex and can get his meds for like $15 or something. What else has been happening? It's so hard to remember.  A few things on my Master List:  Wash car, Fax letters to banks to add me to Mom's account, a facial masque, dusting the bedroom, cleaning the bathroom, painting the porch, refill the sugar canister, blog about Switch Kellie, Cancel online gaming subscription, etc.  Notice how the list is so scattered-they can be trivial, like the sugar dish, or labor intensive, such as painting the porch. I also have written down to call a dermatologist. It's time to get my legs looked at. What started out as a light rash has now become large scaly patches of itchy, red skin. I've been self harming by scratching them until there are bloody holes in my legs, and now I have awful looking scabs over most of my calves in a spotted pattern. It's quite a shame. I've been trying to let Crickette (Husband's little dog) lick the wounds to help them heal. Speaking of Crickette, did I tell you that Mom was telling me what she wanted on her headstone (just what someone who's a big baby with abandonment issues wants to talk about), and she said she wants her dogs. Sam (Daddy's, now Mom's schnauzer) & Crickette, their photos or engravings or something like that on her marker.  I told Husband that and he teared up; said it was touching.  I thought it was sad to be thinking stuff like that.  But I, being the smart one, know in my heart that Mom is not much longer on this earth.  I don't know if she can ever learn to live with the pain of PHN. She told me that she understands now what Daddy had to go through all those years he was suffering. I would do anything to take away her pain; I can only wake her up to give her Dilaudid, put ice packs on her back, and stick pain patches on her.  She squeezed my hand really tight tonight and thanked me for taking care of her.  I told her that I didn't really do much, and she said "You're here with me, and that's something". Or something along those lines. Damn I can't remember exactly as I keep switching, or trying to switch or something.  Something happened to me sometime around 1 pm this afternoon, and I became Switch Kellie.  I don't drink, or at least very rarely/lightly, and I don't smoke and I don't do drugs. I enjoy reading and crossword puzzles and brain teasers and philosophical debates and hot cups of tea in my "#1 Wife" (isn't that funny? as in #1 of many) mug that Hubby gave me for Christmas.  Now I think, but I can't really be certain without going back into the bedroom and asking Husband the question, but I think that I told him that Switch Kellie was out. He asked, I believe, if "the other Kellie was here", and I told him I'd been here since this morning but didn't want to tell him. I didn't want to freak him out.  But it must not have freaked him out, or else he's just drunk enough beer to cope really well, for he's back there now on the phone with his buddy, not even thinking twice about me or her or any of us.  OK, I've got to get back to my list. I have so many things to do and so little time to do them all. Well, I don't know how much time I have actually; I've stayed over a week before...longer if I'm needed.  OK. Gonna change clothes and start cleaning the bathroom.  Also going to dust the bedroom ceiling/corners/walls.  Need to get some sticky tape and remove the dust from my wigs, especially my favorite blue & black one. I hope it's not ruined.  :(  The K that wears the wigs hasn't been around in a long time, that's why the wigs are all covered in dust.  She last came out.. I believe the year was 2008 or 2009. I really should tell you about her sometime; I find her fascinating, if I do say so myself.  And I do say so, to myself. HEHE  Mental illness humor.  OK, now let's see. Here are the facts as we know them: Switch Kellie was triggered, possibly by stress (from worrying about Mom's health and money and Husband's asthma), possibly by the new increased medication dosage.  At any rate, she's here now, I'm here now, I am in control and I will see to it that all this business gets taken care of.  K has let her finances really get into a mess. We have to close one bank account and switch to a credit union account in order to save $11/month.  We have to write letters and fax them to banks and financial institutions, so that I can do banking for my mother and also talk to phone support about her accounts. OH and VERY important-we have to find our misplaced medical insurance cards!!! Or call and request new ones.


5:15 am (Monday)
Sigh. So much to do. K has really dropped the ball here. But I'm a hard worker.  I've already cleaned everywhere, thoroughly. I never went to bed last night because I felt like I had too much to do, and so I cleaned all night/morning instead of sleeping.  There's just so much that needs to be taken care of.  So much adult stuff.  Not many of the K's can handle adult stuff, so I've got to hurry up and accomplish as much as is humanly possible before I go away again.  If only I knew how to control which one of us comes out when... wow...I'd be like a super hero! *mind wanders again*

Friday, April 13, 2012

Thoughts After Therapy

I was very angry before I went to therapy yesterday.  I mean, I was really pissed at my doctor.  Her office had said last month that they would call me to set up an appointment, and they never did.  Subsequently, I ran out of medications and then proceeded to lose my mind.  I really thought I was going to let her have it when I got there. I was scared she'd dump me as a patient, for I intended to cuss her out big time. My stress level was very high when I walked in the door...but things didn't go as I thought they would; someone sad took the place of someone angry when I sat down.  It felt like 15 minutes, but according to the clock I was at my psychiatrist's office for nearly 2 hours (30 minutes were spent in the waiting room, 15 minutes in the lab for blood work).  Can't remember all that we talked about, but that's not unusual.  I do know that I complained (without the use of swear words) about the fact that her receptionist had never called me after our last session to tell me my next appointment time, and since I have trouble calling people, I just kept waiting on her to call me and 2 weeks went by. So not only did I run out of meds, but I went quite crazy by the second week. When I finally got up the courage to call her office, I found out she was on vacation and the office would be closed for another week.  I had a major crisis (my mother was hospitalized and could've died) while she was on vacation and had no medication to help me, so she felt really bad that I'd had so much trouble. She was determined that I never be put in that situation again, so she gave me an emergency contact number for her. I am so grateful for that! In all my 20+ years of therapy, I've never had a doctor give me a 24 hour emergency number. She said I can call that number any time, any day, and they'd be able to contact her and/or refill my prescriptions. That is fantastic and I couldn't have dreamed of  anything better.



For some reason, I asked her again what my proper diagnosis was, and she told me-again-that she doesn't put labels on her patients.  She would only verify that I am experiencing frequent dissociative episodes.(Duh!)  At one point, however, she asked me if perhaps a different K had been taking care of me for the past few days; doesn't that indicate she knows about the other K's?  (She brought it up when I made a casual remark about the fact that I didn't recognize the clothes I was wearing, that it wasn't something I would normally wear.) Isn't that an indication that she's leaning toward a diagnosis of Dissociative Identity Disorder? I'm feeling more hopeful now that I know she believes me. I asked her if I could ever get better, and she asked me if I was sure I wanted that.  Made me think.  On the one hand, it'd be nice to be more stable and on less medication, in other words, more normal.  On the other hand, I don't think K could handle the stress of our day-to-day life with only one of us in control of her brain and body.  We help each other, we keep an eye on K, you know?  Each of the K's has a specific job to do, a specific area of our life which they handle for her. K needs all of us. Dr. H thinks the other K's are for my own well-being and protection, and she doesn't seem to think that integration (the blending of all the different personalities of someone with DID into a single identity) is the best goal for me.  To be honest, I'm glad I don't have to integrate.  I am fond of a few of the K's and would miss them were they to be fused into my core personality (whomever that may be). Not to mention the fact that if, say, The Good Daughter goes away, then K won't remember everything she needs to know to take care of our mother.

 I'm blogging too much, or at least spending far too much time online.  My husband says I'm obsessed.  Big shocker there. And my shrink stressed that she really wants me to hand write a diary which I should bring with me to therapy every week. Of course, I forgot to take it with me yesterday.  I did start a diary, but I find it difficult to remember to write in it everyday, and a lot of days I just don't have the mental energy to do it. Plus, while there are some diary entries which are obviously written by someone else (I can tell by the handwriting, the grammar, and the language) some of the K's refuse to participate in that activity.  I think maybe there are parts of me who are still hiding from the outside world, or even from myself.  Apparently, this blog is worthless to my shrink, and that just sucks.  "Blog less," she said.  But this blog is my outlet for my madness!  Some of the other me's blog sometimes, and I think that's important.  I can't talk to anyone in real life (other than my psych) about my mental issues. My husband has never fully recovered from the shock of seeing me become a different person right in front of him.  I feel like he looks at me differently now.  That's why I worked so hard to hide it after we got married.  I thought I was doing better at that time.  I really did.  I seemed happy and safe and stable and I kept the other K's hidden from him for 2 years.  But it was not meant to be.  I have crashed and burned, repeatedly now, since January.  Yet I still asked my shrink yesterday if I could cut down on some of my medications; instead, she increased my dose of one of them. She explained that each pill has a different function and that if I were to stop taking the meds, I'd be bombarded with all the hallucinations and voices that I now experience to a "lesser" degree, plus I'd be likely to fall into a dangerous depression.  I don't think I'd want it to be any worse than it is.  I can get used to the dissociation, the depersonalization, the derealization for the most part, now that I understand what is happening during those times.  I guess I must just accept the fact that I'm always going to see and hear things that are not real, I'm always going to have anxiety attacks, and I'm always going to be prone to depression.  The other issues I still need a lot of help with. The paranoia.  The self-harm.  The suicidal ideation.  The self-loathing.  The fear of people.  So I guess there are plenty of things for us to work on in therapy, even without a specific diagnosis.  It still frustrates me though.  If someone asks what my disability is, I don't know what to say. (How about "Pick one"? LOL)

Tuesday, March 20, 2012

Shut Up Already!

K has a big fucking mouth and she just will not shut up. God! She embarrasses us to death! She must drive everyone crazy with her ramblings. On and on. She never stops. I'm not sure which K was in charge yesterday, but I'm ashamed of her. She completely crossed the line and talked to too many people, gave out too much personal information, and even shared some of our secrets.  We, the K's, are very angry with her for this lapse in judgement.  I'm not sure who she was, but she's a talker.


Man, she would not be silenced, and she spoke quickly (according to Husband) and loudly (according to our mother) and I'm totally humiliated today.  We had a couple of friends over last night, and I'm afraid that K got on their nerves.  Now, they gave no indication that this had happened last night, I'm just assuming that if this K got on our nerves, then she got on everyone else's as well.  I'm terrified of going back through my Tweets; God only knows what all was said and to whom.  It's a sad fact that even though I seem to recall a number of different conversations, I'm not certain today who those conversations were with.  This is quite common with us, in fact it's pretty much a daily occurrence in our life.  So every morning, whomever is out and about is supposed to go back through our Tweets and text messages and emails and Facebook posts, and try and piece together what happened the day before.  This doesn't always take place--a lot of times we forget to do this.  It depends on which K is in charge. Some of us are very self-conscious and worry incessantly about what was said and done the previous day and will not relax until we've read all those pieces of information which are available to us via computer or phone or handwritten journal entries.  Some days we find that K didn't talk to anyone at all, or she just barely interacted with others, choosing to show herself only to those certain few with whom she feels comfortable and who she likes and trusts (to some degree, not completely of course).  Just today our husband told us that there are days in which we talk a great deal (like yesterday) and days in which we stay quiet and hardly talk at all.  He knows now that these are different K's, and he's come to accept that.  He even admitted to me this morning that he very much likes the one he calls Switch Kellie, the one who first showed herself to him for a week back in January.  It seems to me that Dr. H, our psychiatrist, got to meet her too.  I really can't remember.  I suppose I should take the time everyday to re-read all the blog posts and journal entries so that I know exactly where we stand, mentally speaking, and so that we have knowledge of our prior behavior and activities.  But I've come to realize within the past 24 hours that I have a good many blog entries at this point, or at least more than I have time to read over again everyday.  Time is short, especially when you are someone who tends to lose time on a regular basis, and so we can't afford to spend too much of it refreshing our memory of the past several months.  We just have to check our day-to-day activities and interactions, and hope for the best, i.e. hope that we don't say something inappropriate or ask a stupid question (again) or in any way give away the secret that we actually don't remember much of anything that happened to us the day or night before.  Hell, we can't even remember what happened to us a few hours ago, much less days or months ago.  So everyday is like a crap shoot for us...We have to decide which blog posts to read, how many texts and Tweets to go back through, and how far back in our journal to explore, and all of these decisions will, in the end, affect our ability to carry on conversations with Tweeps or friends which make sense and follow the proper timeline. Since K has no concept of time, she usually can't recall when something happened to her, even if it happened that very morning or sometimes even in the past half hour.  I can't stress enough how frustrating this is, not just to K, but to all those parties involved.  K always ends up looking foolish, but she tries to play it off by just pretending that she'd been drunk or drugged at the time.  That's her fall-back excuse: that she was too impaired to remember things properly.  And the thing is, most of the time it works.  Most people really do believe that her forgetfulness is caused by pot-smoking or alcohol or all those pills K has to ingest every day.  We worry that our friends will figure out our secret at some point, hell I guess some of them have already figured it out by this time... I guess our memory loss is severe enough to be quite noticeable to everyone who's around us frequently.  I wonder what they think about that. I wonder if they think K is an idiot.  Or just a stupid pothead. 

Here's a good example of how easily we forget things: I am unable to remember what this blog post is about. I can't recall what I've just typed, and can't remember unless I scroll back up to the beginning and read it all over again.  I hesitate to do that, as it not only makes the perfectionist within us go crazy and try to correct each and every little mistake and we could end up spending hours rewriting this whole blog entry, but it also breaks the stream of consciousness which I like to just let go of and see where it leads us.  So I'm stuck now, stuck here in this situation in which I can't remember what I was talking about, but I don't really have time to find out, and so I'll just flounder and  flail about and try to compose some sort of blog post which has an understandable point and which all ties in together somehow.  I know, in my heart, that this is not going to happen.  I know that I will repeat myself, not just today and tonight but probably in this post alone, and that I do so all the time.  All the time.  Sigh. So much wasted time. So many lost memories.  Some of which we're glad to be rid of, others which could really help us in our recovery process if only we'd remember them.  It could be that every time K goes to therapy, she starts all over again, from the beginning, with her therapist. 


 I'm having a memory clip play in my mind right now, and it's showing me my doctor, and she's explaining to us that we've discussed these things before, whatever these things may be. I can see her looking at us, with this look in her eye, that says "I've told you this a hundred times".  I wonder if she and I are making any progress at all in K's treatment.  I wonder if she'll decide I'm too difficult to treat and just give up on me ever getting better, and dump us as a patient.  Our last therapist dumped us for forgetting too many appointments.  What if this doctor does the same thing? What if we get dropped again, and any progress which has been made is lost, and we must once again go to a new doctor, and spend the approximate 2 years it always takes for them to get an idea of what's really wrong with us? This would be a tragedy.  I don't know what makes me think this, but I have an idea that we, the K's, have gone further in our therapy with this current psychiatrist than we've ever come with any one prior to her.  We are learning, we are taking steps toward healing. We've made some progress.  I know this because I read some of our journal and some of our blog and I found that we're starting to remember things from our childhood.  Now K is absolutely terrified at the thought of having total recall of her childhood trauma(s).  She's not sure that she wants to remember, but some people (we can't remember who now) have told us that we can't truly heal unless we face our fears head-on.  So in order to get better, we have to see what all the fuss is about-we have to relive the horror that must've taken place at about age 4 (we've gleaned this information from the memories we've recovered and from old diary entries).

Shit.  I just paused to take a drink of water and I've once again lost my place and have no idea what I was talking about.  I don't want to read this post again. Maybe I should just shut the hell up.  Maybe I've said a whole lot of nothing.  I wouldn't be surprised at that. Not at all.  If only our brain would stay on track for more than just minutes at a time!  If only we could focus long and hard enough to finish a blog post!  Have any of our previous blog posts made sense or had a message?  Has this entire blog been a huge waste of my time, and yours, the reader's?  I shall stop now, for the shame and embarrassment is overtaking me at this point.  I'll just go take a pill and try and forget my humiliation.  It just popped into my mind that I could have blog posts which look and sound pretty much exactly like this one... now wouldn't that be funny and sad at the same time?  All I can really remember right now is that yesterday there was a K here who had a big mouth and wouldn't stop talking and spilled the beans to just about anyone and everyone and now, today, right now, the K that's doing the typing of this post is completely humiliated and feels as though everyone out there in the cyber world is laughing at us.  Are you laughing at us?  Do all of you make fun of us all the time?  Am I the laughing stock of Twitter?  Or is this just K's paranoia taking control of our mind and twisting things around so that K looks like a failure at everything she's attempted to do with this blog?  What was this blog post about again? Oh yes. One more thing, before I forget (HAHA!), I'd like to apologize to all those Tweeps with whom I had interactions yesterday and last night and even early this morning. I'm very sorry that I talked your ears off.  I'm sorry that I was a nuisance.  I'm sorry if I bothered you, or if I've been bothering you for quite some time now.  I really can't remember what's been happening since...well, I don't know.  I just can't remember.

Friday, March 9, 2012

Hospitalized at 16

I had never even met with a counselor before, much less a psychiatrist.  So naturally it never even occurred to me that my parents would do something like hospitalize me.  Yes, my behavior was out of control, but I was 16 and my hormones were going wild and I was terribly depressed and confused and of course, unmedicated.  I was acting out and engaging in reckless behavior, skipping school, smoking cigarettes, cutting my arms, and I was shaving parts of my head. I had been dressing all in black and staying in my room alone, listening to depressing music. I never wanted to go out or do anything. I barely ate or slept. I sat in the dark and wrote poems about death.  These days, I'd just be called goth or emo, but back then it wasn't an acceptable lifestyle. Naturally my parents assumed I was on drugs.  The truth was I'd never even smoked pot before! But they decided to send me out of town to a fancy hospital where young people were treated for behavioral problems and substance abuse.

They had to lie to me to get me there.  They said we were taking a weekend trip, which didn't seem unusual since my family traveled a lot, but I was pissed that they were making me go with them.  I climbed in the backseat of the car and sulked for the hour's drive to the hospital.  Of course, I didn't realize we were going to a hospital until we were there.  Before I knew what was happening, some people dressed in white grabbed my arms and started pulling me towards the door, all the while telling me to relax and not fight them.  RELAX?  When strangers are assaulting me? When I'm being forcefully taken inside what looks to me like a prison, it's difficult to relax and stay calm.  I started screaming curse words at the nurses, my parents (who disappeared as soon as they'd taken my suitcase out of the trunk; they didn't even say goodbye) and anyone within earshot.  I was furious with my parents, for lying to me, for deceiving me, for leaving me in such a place.  At first I didn't know where I was or what was happening so I thought maybe they'd shipped me off to a half-way house. I was both angry and scared.  I remember a desk and some papers I had to sign....they wanted me to read a bunch of crap and then sign if I agreed to it but I didn't bother to read it-I didn't give a shit what those papers said.  I just wanted to be alone.  Just leave me the fuck alone, I thought, or maybe I screamed, I can't remember now.

I do remember this part quite well--the strip search.  The nearly-unbearable humiliation of the strip search.  Full body cavity search, performed by a very large football-playerish woman, and just to be clear I had to stand there completely naked and let her touch me. Everywhere.  Even inside of me. God-I swear I just felt a chill run up my back.  I haven't thought about these events in many, many years.  Apparently, they still get to me though.  She was checking for drugs I suppose, or razor blades or anything else I might use to hurt myself with. The funny thing, if you can call it that, was that I'd recently been sick with mono, and so I had these bruises on my inner arms where the doctors had drawn blood.  Well, to the people at the hospital, these were "tracks" and this made me look like a heroin addict. They started asking about all the drugs I used.  I tried to tell them that I'd never used any drugs at all, but they told me that "Denial is the first sign of addiction" and so I had to get drug tested at random times throughout the course of my stay.  I don't think I ever actually convinced them I was drug-free, despite my clean urine tests. Interestingly enough, not only was I the only person there who did NOT have a drug or alcohol problem, but I learned more about drugs and how to use them and how to hide them than I ever could have learned on my own.



I was placed on Suicide Watch, which meant another nurse came into my room and unpacked my suitcase and removed any and every little thing that I might possibly find a way to self-harm with.  She took my belts, my shoelaces, my ink pens, my jewelry, my razor (of course), my toothpaste, my mouthwash, and any other liquid I had in my suitcase.  I didn't see the point in all of that, but I was powerless to stop it.  The whole while she was searching my things, I was being watched.  I found out the next day that being watched was going to be my norm for months.  I wasn't allowed to take a shower without a nurse in the bathroom with me, watching. I was not allowed to shave my legs.  I was given toothpaste to brush my teeth with, but was not allowed to have it in my bathroom. (Did you know that you can die from eating toothpaste?) I was watched every moment of every day.  I had to have a witness go with me whenever I went to pee. Talk about embarrassing!  I was lower than low already, and the humiliation of all of this just compounded my feelings of hopelessness and despair.

One day I was caught staring out of a window, and because they took this as a sign I might be planning to jump out of it, I was punished and sent to isolation.  This was a tiny room with no windows and only a mattress.  If I had to use the bathroom, I had to call for the nurse, who escorted me to the bathroom, watched me do my business, then took me back to my little cave.  I'm not sure how many days they kept me in isolation; I have no sense of time anyway, plus without windows I couldn't tell if it was day or night.  After I was allowed to go back to my room, I found I now had a roommate.  She was mean.  I did not like her, so I chose not to speak to her. She'd threaten me at times or curse at me, but I just stayed silent. I really didn't talk to anyone much the whole time I was hospitalized. I had no interest in making friends. I had nothing in common with these people-they were all junkies or sex addicts or criminals in my mind. I was different.  I was just depressed.

Every morning we were awakened at the crack of dawn and sent to a large sitting room, where we had "morning meditation".  The counselors gave us pep talks and read "inspirational" materials to us. We were given our schedule for the day and released to go dress for breakfast.  I wasn't actually allowed to go down to the cafeteria with the rest of the group, as I was on suicide watch.  I ate alone at a table in the corner of the sitting room, supervised by an orderly, and given only a plastic spoon to eat with.  I guess they thought I might hurt myself with a plastic fork.  Anyway, this whole eating in silence thing lasted for about a month and a half.  After that, I had earned the privilege to go to the lunchroom with the rest of the group, but I was still only allowed plastic utensils.  The nurses circled our table, making sure we were actually eating, and we were not allowed to leave unless we'd consumed what they considered to be an acceptable amount of food. This was hard to do, as the food was terrible and I'm so finicky anyway.  But I loved mealtimes, as it was one of the only times I got to leave the ward and see evidence of the outside world.  There were windows in the cafeteria, so I would gaze at the trees and watch the birds and dream of running away.

After breakfast, we went to "school". I sat in a classroom with kids of all ages and was given assignments, which to me were quite simple and so I used most of my classroom time to draw or write depressing poetry.  Class time was the only time I was allowed to use a pencil, and I would sketch and write letters to my friends back home (not sure if those letters ever actually got mailed).  After school was over, we had gym.  Now when I'd been at my high-school, I'd gotten out of taking gym by being the teacher's aide in the art department.  I hated exercising. But since it was so friggin' boring in this place, I began to work out in the weight room (supervised of course) and by the time I got to leave the hospital I had lost weight and toned up a good bit.

After gym, we were allowed to shower (again, I was watched) and then got to rest for half an hour, and then we went to group therapy.  This was when all the patients sat in a circle and we went around the room and talked about what was wrong with us.  Everyone had all these exciting tales of drug use and promiscuous sex and shoplifting, but I was innocent.  I had no stories to tell. I was a drug-free virgin.  I remember my shock upon meeting this one little girl who was 11 years old and who slept with men in their 30's; she guessed that she'd had sex with over 25 men.  I just couldn't believe it.  I always listened to everyone's stories with great interest, because my stories were so boring.  I mean, I looked like a delinquent, but I didn't actually do anything wrong. It seems there may have been a suicide attempt at one point in my teens, but I don't really remember that; I just have a scar on my left wrist to show where I'd cut myself. This was the reason I was kept on suicide watch throughout my stay.

What I longed to do was go outside though.  We were never allowed outside of the hospital.  I didn't feel the sun on my face for over 3 months.  And I don't even like the sun, but I was really just wanting to get away from the cold, clinical, all-white rooms which were all I saw every day.  The highlight of the day was when we got smoke break.  I guess this ages me, but back then there were no laws preventing teens from smoking.  So every day at the same time, all the smokers (which was pretty much everyone on that floor) got to congregate in the recreation room and smoke cigarettes.  The lighter was mounted to the wall, one of those things which got hot but didn't actually have a flame, and it had bars over it so that none of us could burn ourselves.  There was just enough space between these bars to fit a cigarette into, and that was how we lit our cigarettes. Naturally we were closely watched during smoke break. We were all allowed one pack of cigarettes per week; if you ran out, too bad. 

Now there were very strict rules at this hospital, and one of the rules was that we were not allowed to share things with the other patients.  One day, a boy had no cigarettes, and I felt bad for him, as he'd been brought in a few days before, all bloody from having punched through a window while high on cocaine. So I gave him a cigarette.  Just one.  And that's all it took.  He and I were both punished for a week, in isolation, in 2 separate locations of course.  After my second stint in isolation, I followed the rules. Now every other day I was visited by a psychiatrist, who determined that I was Bipolar (except at that time it was called Manic-Depressive) and I was placed on Lithium and some anti-depressants. I hated that doctor, and I'll be specific as to why.  She actually had the nerve to tell me one day that I would NOT be depressed if I only dressed in colorful clothes!  She said I felt bad because of how I looked. I was livid, and argued with her about this matter until the day I was released.  I never gave in to her wishes.  I continued to wear my all-black wardrobe.  She did NOT like that at all.

One day, she told me that I was going to be allowed a parental visit.  I had mixed feelings about that. On the one hand, I loved and missed them, but on the other hand I was still very angry with them for sticking me in such a hell-hole.  I recall the day quite vividly, as it was the first time I was allowed to go outside the building in 3 months. I loved the feel of the sun on my skin and the cool breeze...I got to go out to lunch with my folks, and of course they had a million questions, to which I gave the answers I thought they'd want to hear.  I lied and said I wasn't so depressed anymore.  I told them I wanted to come home.  But it'd be another month before that would happen. When I got back to the hospital, I was strip-searched again.  Also, the gift of chocolates my mother had given me was confiscated, because apparently there is a drug in chocolate and I wasn't allowed any stimulants of any kind. No coffee, no soda. Another thing they did was take away the stamps my father gave me with which to mail them letters. The nurse told me that in the past patients had used postage stamps to smuggle in LSD, so they were forbidden.

Although I was only there for about 4 months, it felt like years. Afterwards, when I told my parents how I'd been treated-the strip searches, the supervised bathroom visits, the isolation room-they felt terribly guilty about having made me go through such an ordeal. In an attempt to make up for it, they bought me a new car.  I don't think they ever understood just how horrible the whole experience had been for me, though, because after my discharge I was still made to visit that same psychiatrist for about a year or so.  She was a bitch. I resented the fact that she drove a different luxury sports car every time I saw her; I decided she only went into psychiatry for the money.  One day, my parents were told to come with me for a family session. At some point the doctor told my parents that they had, in fact, played a role in my becoming so depressed and out of control.  My parents were furious at this accusation, and my father cursed at the doctor and pulled me out of there and I never saw her again. I was taken off the medication (my father decided she'd just been drugging me to bill the insurance company) and I wouldn't have another doctor for a few years.  In that time period, I got much, much worse, but I hid this from my parents, for fear I'd be sent back to a hospital.

This was not the only time I've ever been hospitalized, this was just the first time.  To this day, I am absolutely terrified of psychiatric hospitals because of the horrible experiences I had while I was in this place.  I tried talking to my current psychiatrist about my nightmares of this hospital stay just the other day, and she told me that things like that simply do not happen in psych hospitals these days.  She thinks my memories are delusions or false memories or something.  But I know better.  I had nightmares for years after this little hospital stint.  I've been sent back to hospitals several times since then, but I've never had to stay as long as I did this first visit.  And to this day, I get a chill up my spine when I drive past such a hospital.  They scare the living shit out of me. Because of this fact, I have been lying to my psychiatrists for years about my true thoughts and actions; I'm scared that if I tell the truth, I'll be locked up again. I don't think I could handle that. In therapy this week, my shrink talked about how she believed in hospitalization for patients with severe symptoms. This haunts me. I don't know if I'll ever be able to open up to her again, I'm too afraid.

Monday, March 5, 2012

Twitter to the Rescue

[I still have the second half of my two-part blog post called "The Evolution of My Self-Mutilation" ready to go. It really should probably be posted here, now, but I still don't have the courage to publish it. I'm just too ashamed, too embarrassed, too humiliated to let people read about the secrets contained in that post. I might just sit on it forever.] So instead... I've been racking my brain trying to think then of what subject would best follow two posts (really just 1 1/2) about self-harm.  I've decided that I don't know, and I'm just going to empty my head and see what this post ends up being about.  My mind is working at a furious pace right now; I can't even put into words how fast the thoughts are coming at me and the voices are all excited and talking at once and I'm overwhelmed when I pause to listen to the inner workings of my brain, to all the conversations. This is exhausting, all this thinking. I never went to bed last night because of it, because of all the noise in my head, all the ideas bouncing around in my skull.  I believe it started yesterday afternoon but it could have been the day before.  I just can't remember.  All I can say for sure is that I've been reading, researching, studying, Googling, Wikipedia'ing obsessively about dissociative disorders, especially Dissociative Identity Disorder.  I've also tried to develop some friendships online, and more importantly, I've been seeking out others who suffer from dissociative disorders such as I do. Keep in mind that my Social Anxiety Disorder makes it unbelievably difficult for me to reach out to people, to talk to people, and especially to initiate communication with strangers. So I must pat myself on the back for making the effort. (only one person I tried to talk to was rude to me)  It seems to be paying off in ways I hadn't even imagined. Not only have I met a few people online with whom I enjoy chatting and who I'm hoping to one day call my friends, but I'm beginning to develop a bit of a support system, which I desperately need.  I've never had a support system before.  I've hidden my mental illness from everyone, my whole life, so I don't have any real-life friends I can talk to about it, I've never confided in a boyfriend, hell my own sister didn't even know I was ill until just a few years ago.  My father never understood how I could have everything a person needs and still be depressed.  Now, it's just my mother, and she's too old and set in her ways to be open-minded enough to even talk to about all of this.  So I hide my symptoms from her.  I avoid her when I'm having an especially hard time. Sometimes I just have to disappear.  Wow, I guess that sentence takes on a whole new meaning when it's used in reference to someone who may be suffering from DID.

You must remember that this is all new territory for us-I'm still in a state of shock about my psychiatrist telling me the other day that my Schizophrenia diagnosis was incorrect.  I wore that label for more than a decade, and I suffered discrimination and ridicule and self-hatred because of it.  It's been a heavy diagnosis to bear, and I am beyond thrilled to find out that it is wrong. I am NOT Schizophrenic!  So then, what am I?  Well, my shrink tells me that I am definitely suffering from a dissociative disorder, she just doesn't have enough information yet to properly name it. I found my diary from 2004 wherein my doctor first attached the possibility of DID to my chart, and I've been reading about all the "episodes" I'd forgotten. My psychiatrist wants to use that diary in our sessions. It seems I've been in denial for the past 8 years.  I've been doing some reading on the different types of dissociative disorders, and more importantly, I actually found a few people on Twitter who suffer from Dissociative Identity Disorder or who have problems with dissociation.  These ladies have been wonderful and have helped me tremendously in a very short period of time. I learn a great deal from reading their blogs.  I had some basic questions which they were happy to answer for me.  One of them put me in touch with another one who directed me to a Yahoo group specifically for people suffering from this type of disorder.  As I said earlier, my doctor hasn't officially diagnosed me as having DID, but from what I've read, from what I've been told by people who have it, and based upon my symptoms, I'd say DID is a good fit. In fact, I've never found a disorder which seemed to describe me as well as DID does. So, for the moment, I'm going to study all I can about Dissociative Identity Disorder. If it turns out I have something else, well then we'll just study that instead when the time comes.  But I really and truly feel that I'm closer than I've ever been to being properly diagnosed and treated for my mental illness(es).

I've been going from doctor to doctor since 1986, and each one gave me a new diagnosis and a different explanation for my thoughts and behaviors. And then there are the medications-Oh the thousands of pills I must've consumed at this point.  Anti-depressants, tranquilizers, SSRI's, anti-psychotics, sedatives, hypnotics, sleeping pills, uppers, downers.  So many pills.  I wonder sometimes-a lot of the time actually-what I'd be like if I didn't take the medication.  Now to be realistic, I am far too ill to go "all natural" and give up all medications.  I have gone down that road many times, thinking each time that I could do it, I could handle it, I could live without chemical assistance.  Each time, I failed miserably, and always ended up feeling much, much worse than I'd ever felt even before I began taking the pills. The truth is, I have something wrong with my brain.  It does not work as it's supposed to.  I am destined to take some sort of medication for the rest of my life.  But what kind? Which pills?  My sister believes I'm overly-medicated and wishes I'd take only the bare minimum.  Just what I need to function day-to-day.  But how do we figure out which pills those are? I currently take seven prescriptions, a dozen pills a day.  Surely some of those are unnecessary, wouldn't you think?  I mean, if I'm not really Schizophrenic, it seems we should be able to drop some of the pills I'm taking everyday.  But instead of cutting down on our meds, at my last therapy session my shrink actually added a prescription to my regimen. Maybe she's just trying to pull me out of this pit of despair I've been living in since October.  I don't talk much about my depression, because it really is one of the lesser of the mental evils for me at this point in time.  I've been depressed my whole life.  I'm used to it.  I know how to do it.  I'm good at it.  But I must admit, my traditional holiday blues this year have lingered, as they're usually over by mid-February. So yes, I guess I AM more depressed than usual, and struggling to maintain my sanity.  I find it extremely hard to get out of bed, to shower, to get dressed.  Mostly I sit around in my pajama's, reading and talking to myself and wallowing in our misery.  My energy level is at zero.  If my body worked out as hard as my brain does, I'd be built like a supermodel. (except much shorter)  All this excessive thinking, this obsessing, has me physically exhausted.  Yet sleep doesn't come easily, especially when it's supposed to. No, whenever I lie down to catch up on my rest, that's when my brain seems to be at its most active.  Maybe someone inside me is doing this on purpose to get my attention.  We don't know what to think anymore. I'm a hundred emotions all at once-I'm excited, I'm scared, I'm sad, I'm worried, I'm eager, I'm anxious... I just want to get to the meat of the matter.  I want to know what is wrong with me and I want to know how to get better.  If that means pills, OK.  If it means weekly therapy sessions, OK. I am willing to do whatever it takes to get to a point in my life where something makes some sort of sense, because nothing ever has before.

Wednesday, February 29, 2012

School Daze

I've been asked how it is that I was able to get through high school/college and maintain a 4.0 GPA as long as I did with a memory as spotty as mine as well as the dissociative episodes I've had since childhood.  It was not easy, that's what I'm supposed to say.  But, well, actually, it was at first... I believe I've already blogged about how I was such a perfectionist and so I had to be a straight-A student.  I had to win all the awards, get my picture in the paper, have a closet full of trophies and plaques. Everything I did had to be PERFECT.  Well, believe it or not,  from 1st through 12th grade, my memory was extraordinary-photographic even. (But it was only when pertaining to books and school work; I've never remembered  much about my earlier years or ballet classes or soccer practice, etc)  I never studied for a test, I simply read the material in the morning, before that class, and I was able to recall all the information later when taking the test.  I think I became Smart K on the way to school and she stayed in control of my body and mind for the school day.  I'm not kidding.  Some part of me was always whispering answers in my ear and plus I could remember things in a way that suggests a camera taking a snapshot. 


 I could literally see the pages of my textbook in my mind and read what was written on them.  It was simultaneously bizarre and cool. Sometimes, it even seemed I knew the answers before the questions were asked, as though I were psychic or something; I always explained this as my spirit leaving my body and peeking at the answers, then willing me the knowledge. Weird, yes, but I know now that I was dissociating at those moments. But I took advantage of this special ability,  up until the day came when I simply could no longer do it.  Perhaps due to my taking psych meds ages 16-19, I'm not sure. I lost my photographic memory shortly after I'd transferred from business school back to art school.  I don't remember when or how or even why it happened.  (You can't blame it on smoking pot-I never tried that until my mid-20's) I just remember being unable to recall phone numbers and apartment numbers, little things at first, hardly noticeable. Then my grades began to slip-I remember my first "imperfect" grade; I physically wanted to die. I was studying like a maniac, at all hours of the day and night. At some point in time, my memory began to seriously slip, and it rapidly got worse, until I had/have the memory of a senile old lady. As my memory worsened, my dissociation seemed to increase in severity and duration. But remember- at that time, not only was I living "all natural" (meaning without psych meds) but I didn't realize that anything was really wrong with me when it came to these "out of body experiences".  Yes, I'd been to see countless therapists and doctors and taken all sorts of medications for different mental illnesses, so I knew something was wrong, but I had no idea that my losing time and memories and talking to the voices in my head was abnormal.  I just thought I was different.  People always talk about that "little voice inside your head". I thought I was special and had more than one. 

Go back to my first year of college, when the pressure was first building....I had always been a good student and now suddenly I was having to work hard to maintain my grade point average.  I couldn't concentrate anymore, I was unable to focus my attention on my studies.  I became so stressed out that I overdosed on sleeping pills and my friend had to take me to the hospital to get my stomach pumped.  I don't remember that; I think it happened to "someone else" and I just heard about it from my friends.  Another time, that same year (Freshman year) I overdosed on No-Doze.  I told myself I had to stay awake to study, so I swallowed the whole box.  At the ER, the doctor told me I had enough caffeine in me to kill an elephant; I told him he just didn't understand-I had a very important philosophy paper to write.  I never realized until then that you could OD and/or die on caffeine.  After that I was careful about what kinds and how many pills we kept in the house. It was pretty obvious that someone inside me was a threat to my own self.


As my memory continued to slip away, so did my social life.  I was no longer eager to attend all the parties and social functions that we once had enjoyed so much (Note only some of the K's are very sociable).  Memory problems lead to embarrassment (like when you forget your teacher's name in class) and humiliation (like when a guy asked for my phone number and I couldn't remember it).  Classes got harder and harder as the years passed.  I went from being on the President's Honors List and taking extra-load classes in order to graduate early, to dropping courses and taking only a few art classes which I could barely concentrate on.  I was getting further and further behind in my school work.  I was an artist but found it harder and harder to pick up my paintbrush.  Somewhere during this time period, about age 23, I went back on psych meds, and that did wonders for my mood but squelched my creativity.  I could no longer think.  After 6 years, I had changed my major 4 times, switched schools 3 times, and finally just had to give up and drop out. (I was also having some health problems) It was supposed to be a temporary break-a vacation of sorts, to help me get my life back together and relax for awhile and become more stable.  But months turned into years and instead of going back to school, I went back to the psych hospital.  Sigh. 

So much potential, wasted.  I don't think I'll ever get over the guilt I feel for not finishing school.  My parents were so proud of me at one point-I was the first in the immediate family to go to college.  Then I became a subject "we just don't talk about".  My sister, who is 20 years my senior, was never told of my mental illness back then, and so she hated me for squandering my education and opportunities.  She thought I was a selfish, lazy bitch who just wanted to have fun and not take life seriously.  How ironic it is that now, I take life TOO seriously.  Oh yes, and my sister knows now about my mental illness, but she doesn't understand at all.  At least she doesn't hate me anymore, but it'd be nice to be able to talk to her about my problems.  Oh well, I guess that's what my psychiatrist is for.  And who knows?  Maybe one day I WILL go back to school.  I'll have to win the lottery first, since from what I understand, my being deemed mentally disabled means I'm unable to attend school without losing my benefits i.e. my health insurance. So until the day comes when I can afford insurance (or can move to some country with free healthcare) I'll have to remain a college drop-out.  I should've had a master's degree by now.  Damn.  Still, I can dream...Stranger things have happened to me/us!

Sunday, February 26, 2012

Therapy Trainwreck

We have been having a very difficult time lately but can't concentrate long enough to blog about it, which is the homework assignment given to us by our psychiatrist on Friday.  She asked me at our last session to start keeping a diary and bring it in to our sessions; instead, I brought an old diary from 2004, which was written in various states of consciousness,  often while we were dissociating. There was so much I wanted to tell her, to read to her from the diary, to explain to her-but I just couldn't stop crying long enough to get the words out, and I didn't have the energy to talk to her anyway.

It was all I could do just to get to the appointment.  On the way there, in the car, I pounded on the steering wheel and screamed and yelled curse words, tears streaming down my cheeks.  I was shaking and hyperventilating and my heart felt like it was going to burst out of my chest.  I took 1 mg Xanax- thankfully there was part of a bottle of water still in the cup holder from a couple of days earlier.  It was difficult to see through my tears as I drove to my doctor's office. Not only that, but once I got close-within a few blocks-I got confused and forgot which way to go and I took a wrong turn...sigh...I got lost on the way to a psychiatrist's office which I've been visiting regularly for 2 years.  I figured this would make us late but as it turned out there was another patient ahead of us.



Whew~what a relief to get to her office safely, to park the car, to look around frantically and find no other people in the parking lot. I cursed out loud to no one. I took another drink of water and looked at myself in the visor mirror.  I was a wreck, an absolute mess.  My hair was all wind-blown and I had sweat pouring down my face, mixing with the tears pouring from my eyes...I was wearing black sunglasses but you could still see the tears running down my cheeks.  My bangs were sweaty and stuck to our forehead.  I had on no makeup, not even lipstick, and the sunlight accentuated each blemish, scar, and bump on our face.  My cheeks were flushed red from crying and I was huffing and puffing and I looked like I might explode or something.  I searched the car desperately for a napkin or tissue, to wipe my forehead and face, but I found nothing, so I pulled my shirt up and used it to dry my eyes and cheeks and forehead.  I didn't have a brush with me, so I finger-styled my hair and longed for a hat.  Thought about taking another Xanax, but can't remember now if I did or not.  I was quite unsteady on my feet as I got out of the car and walked to the door.

 Inside, I found a couple sitting in my usual spot (the corner) so I was upset about that on top of already having to hold my breath to keep from crying.  I watched my hands trembling as I tried to sign my name but for a minute I was unable to remember how to write it.  I had to think really hard, and even then it seemed foreign to me as I wrote out my first and last names; I don't think I used my typical handwriting-it looked unfamiliar to me.  I sat down and took out my phone to Tweet.  (I Tweet when I'm nervous or upset.)  Pretty much immediately I started having a serious freakout, but luckily at that moment the doctor called for the couple in the corner, and realizing I had some precious time to spare, I somehow found a voice with which to squeak out to the receptionist, "Do I have time to go smoke a cigarette?"  That's funny because I quit smoking 2 years ago, although we have been known to cheat now and then.  At that time, Friday morning, I would've given just about anything to smoke a cigarette, but we had none. She told us the doctor would be a few minutes, so I practically sprinted out of the office.

I got into my car and locked the doors, looking around me, all paranoid.  I suppose I could've turned on some music but at the time it was so loud in my head that I couldn't stand any more noise around me.  The noise on the inside was louder than the noise on the outside, and it was nearly unbearable.  I did the only thing I knew to do to quiet the voices, the yelling, my screams--I dug around in the car until I found a small stash, and I smoked a couple of hits of marijuana.  Sometimes it really is the only thing that will help calm me down.  So I took a couple of tokes-not enough to get me stoned, just enough to take the edge off- and tried to talk myself down from this state of panic and sense of being overwhelmed.  I wasn't sure I'd be able to make it through a therapy session, and I pondered driving away, but part of us knew that we desperately needed to see the psychiatrist and so we stayed.  Didn't get out of our car until we saw the couple from before come out of the office.

The doctor was waiting for me inside, and as soon as she told me to sit down, I collapsed into a chair and started sobbing.  There was just too much to tell her, too many thoughts, too many feelings, I had too many questions for her and didn't even know where to start.  I was having trouble getting words out at all, so she paged the receptionist and asked her to bring me a glass of water.  With it in my hand, I took another 1.5 mg Xanax.  Tried to take slow, deep breaths and finally, after what seemed a really long time, I was able to speak.  I couldn't sort my thoughts and found it quite difficult to express myself with words.  Pictures would have been better--I'll have to remember to take a sketchbook and pencil next week.  Every time it seemed I was going to get my point across, I'd forget what I was talking about and start stammering, searching for the end of a sentence which no longer made sense to me.  God it was frustrating!  And the tears kept interfering, and the gasping for breath...



It's a terribly inconvenient time for me to be this depressed.  Mom doesn't know; well, she knows we're blue and not eating and wearing my pj's a lot.  But she has no idea that I've given up on my personal care altogether.  I'm not eating or drinking anything but caffeine and alcohol.  I'm self-harming.  Two weeks ago I was binging and purging, now I'm just purging.  I don't have enough energy to shower or get dressed.  I haven't washed my hair in over a week, probably longer. I don't know, and frankly, I don't care right now.  It's hard to care about shit like flossing your teeth when you're searching for a reason to exist, just one more day. I told her I'd been sleeping for about 15 hours a day, sometimes more.

I can NOT do this right now--my mother needs me.  She's very sick-she has shingles-and is physically suffering a great deal; she cries out in pain often, and it tears at my heart.  I can do nothing to help her, and the doctor tells us she could be sick with these shingles for 3 weeks.  Sigh.  I just don't have time to be depressed right now!  There's so much work to be done at home and in therapy.

I told my psych, Dr. H, that I absolutely had to see her more than every other week.  I tried to explain to her that I was too sick to be left alone for 2 weeks at a time.  I tried to tell her that there were different people all living in my head, and that some of them were very ill and needed intense psychiatric care.  I tried to briefly explain about the K's, and how I desperately needed the "strong one" to come out and take control of my life.  I can't understand why she hasn't come to my rescue this time, like she has before.  Usually when things get really bad, when there is just more stress than I can handle, then she comes out and takes over my life and sees to it that everything gets done, everything gets taken care of.  She's the Smart One.  She's quite productive and can multitask and is very capable of handling stressful situations.  She needs to be here taking care of Mom, and taking care of K.  She'd fix things.  I just don't know how to force her out; I haven't learned how to control things like that yet.  I don't have any control over who comes out of my mind when, but usually, say in a social situation, the right K will automatically appear and handle things until she's no longer needed.  And no one ever notices that there are different K's because generally, no one sees different K's, just the one that they know.  Each friend knows their own version of K.

But I've gotten way off topic.  I was talking about my therapy session.  I can't remember everything that we talked about, I mainly just remember getting very upset and worrying that she was going to put us in a hospital.  I tried to tell her that in the 2 years we'd been seeing her, we'd not had the courage to be honest with her about what was in our head.  I'm always afraid that if they find out how sick K really is, they'll lock her away.  That, and the fact that I just do NOT trust people, makes it difficult to open up and be honest in therapy.  I fear my thoughts and feelings.  If they scare me, I figure they'll scare the doctor too.  And I don't want another label, I want an accurate diagnosis.  But she told me at one point during the session that it would take more than a couple of sessions to make a clear diagnosis; since I've only just now started to talk to her, really, we had a way to go to get to proper diagnosis and treatment.

One more thing I just remembered....  she asked me if I remembered any abuse from my childhood.  I told her I couldn't remember the actual abuse (I've blocked those memories) but I had little clips of memories of things which seem suspicious or not normal.  So I told her about the 3 or 4 things that I recall from childhood that I find to be inappropriate memories for a little kid  She asked me again to write in my diary and bring it with me next week. Incidentally, I guess I got my point across about needing to see her more frequently--I saw her Friday morning and she wants to see me again Monday afternoon.  That's as quickly as is possible.  (She also gave me a prescription for yet another medication.  Abilify.)  Or maybe I just scared her and she's keeping a close eye on me lest I become suicidal.  So far, that's not been a problem.  Self-harm is not at all the same as suicidal actions.  I can't kill myself right now-not only is it bad karma, but my mother needs me to take care of her.  I have too much to do to die right now.