An Animated Day

Today (Wednesday) has been quite a trying day, but interesting at least. We were supposed to be at therapy at 9:30 this morning.  I found out around 9:00 that the car wouldn't crank. Luckily, my husband was home and getting ready to go to work at 10:00...so I called my psychiatrist and told her I'd be a half hour late. Obviously I started the day off on a highly stressful note, and that is my greatest trigger, so it really came as no surprise that I had a rough day.  Hubby drove us in his car when we left, and he had to stop at the drugstore on the way to work. I waited in the car, and by the time he came back I was no longer in my body.  I struggled to pull myself back inside my head, but it was a hopeless battle. I dissociated and don't remember anything until he's getting out of the car, and I see that we are at his job, and like a robot I get out of the car and walk around to the driver's side and get behind the wheel... Hubby kissed me goodbye then disappeared inside but I just sat there in the car with the engine running for a long time.  I was trying to figure out how to make the car move. Everything began to physically transform and the inside of the car took on an animated appearance, like a cartoon. I began to operate on auto-pilot.  Driving to my doctor's office was exactly like being in a video game. I don't know how else to describe it. My hands weren't really touching the steering wheel; it seemed very far away, much too far for me to reach. I was looking through the windshield and it was unreal, everything was far in the distance and out of focus. I had the distinct feeling, nay knowledge that I was untouchable, unstoppable, impervious to harm. I knew I could not, would not wreck the car or have any sort of accident or run-in with the police. It wasn't possible, for all of this was just a game.  Not real.  I don't know how long it took to get to the psych's office; everything was in slow motion yet seemed to be flying by very fast at the same time.  I don't understand how that was possible, but that's how it seemed to us.  Once in the parking lot, I just sat in the car for a long time with the air blowing in my face. I pulled the visor down to look in the mirror and was quite upset to see that the reflection looking back at me was wearing bright red lipstick.

 
I do NOT wear bright lipstick, although we're aware that some of the K's do. I unceremoniously wiped it off with the back of my hand, then just stared stupidly at the red streaks coloring my pale skin. Decided I just didn't care-what difference did it make?-and just left the red lipstick smeared all over my hand.  Finally walked into the building but it felt more like I was gliding or floating or something.  I couldn't feel the ground beneath my feet. I made it inside and walked up to the counter and signed my name, but not without some difficulty. I was unable to write in cursive; I had to print my name, and the handwriting was shaky. I had taken 1 mg Xanax while in the car at my husband's job, and as soon as I sat down in my usual corner chair I took another 1 mg.  There were a number of people in the waiting room with me; I'm not sure how many because I kept my head down and wouldn't look at anyone. I pulled my legs up underneath me and tried to curl up into a ball in my seat... and the waiting started. I was antsy and anxious and very eager to see my psychiatrist, as I'd been under a lot of stress since our last appointment.  I got out my notebook and tried to make a list, but just couldn't focus...I was too distracted by the thought that everyone in the room was staring at me. I kept looking down, or took out my journal and flipped through it, or played with my phone, perhaps even tried to tweet I can't remember now.  I just couldn't think about anything except how things were in what looked like claymation...3D cartoons of sorts. I was looking around the room in wonder when this guy came in the door... He was younger than K's body but walked like an elderly person, all hunched over and wobbly and he shuffled across the floor using a crooked wooden can and his jeans were hanging very low around his hips, exposing his striped boxer shorts, and for whatever reason, he scared us. K's heart began to pound just as soon as she laid eyes on him (even though she never looked directly at him) and of course our luck would have it that he came over and sat down in the chair right beside us. Panic started welling up inside me. My body was turned away from the strange young man, and I was intentionally looking across the room, through the other people, staring at the wall with nothing in my head except the irrational fear I felt of the person to my left. I wasn't sure I could handle it, and thought briefly about going outside and sitting in the car, but I was terrified my name would be called while I was out and I'd lose my place and have to wait even longer to see the doctor.  So we sat there, panicking, in the middle of a childlike environment filled with caricatures of people...and then my name was called. The receptionist walked over to me and asked me to come with her. I was confused but did as I was told; I wondered if we were being scolded for some reason.  She walked us out the door and around the building to a back door, while explaining to us that the toilet had overflowed and how sorry she was for the inconvenience. It was bizarre to me, but so was everything right then. Now I'm in the psychiatrist's office and I'm trying to explain to her how everything feels like a video game...and she asked me if I was a different person. I can remember all these things because we wrote them down in our notebook. We take notes in therapy now and it is really helping us.  So she asked me if I was a new K, but I didn't know the answer to the question.  It's strange to not know who you are.  I really can't even begin to put it into words. You feel lost and empty and...like nothing.  I told her I didn't know for sure who I was at the moment, and that I felt "switchy".  I don't remember the rest of the session, except for one part:  she was telling me how to use a calendar to keep up with time, so that I can remember when things happen.  I guess that sounds silly to someone with a normal grasp of time, but to someone who struggles to keep up with what day of the week it is, this is a really big deal.  She asked me if something happened this past Sunday or last Sunday, and I didn't know the difference.  I admitted that I never knew when things happened, that I use old text messages as clues to how I spent my time. So she told me to get a calendar and take notes on it, like it was a diary. Write down when I go places, when I do things.  She said it'd help me put my lost time together.  I intend to try it.  I don't remember the rest of the session, nor do I remember driving home.  The rest of the day is scattered and disconnected. I can only recount bits and pieces of it...someone bought McDonald's fries and K doesn't eat at McDonald's anymore, hasn't in years.  I remember we decided that perhaps if we took a nap, that the proper K would be with us whenever we woke up.  I might have tweeted about that, I'm not sure.  Then there's a big chunk of time missing, where I'm assuming I was napping. Next thing I know, I'm putting on an act for my mother, and pretending everything is normal as I put her to bed.  After that, I found myself hanging out with my husband in our bedroom, and I remember him asking questions like "Which K are you?" and "Are you switching on me?". Again, I remember because I made notes about all these things. I found the questions intriguing. I don't remember anything else after that. I think his questions flipped some switch in my brain, and my reality shifted once again. Next thing I know, I'm waking up in bed in my clothes and wearing my glasses.  And that's when I began to write this blog post.

About a Wedding

I spent most of  yesterday in bed, sleeping, in an attempt to recover from my exhausting weekend. But oh, what a weekend it was!  On Friday, I drove my husband and my mother 7 hours to Savannah, Georgia to attend my nephew's wedding.  From the moment we got there, it was a non-stop whirlwind of activity and celebration up until (and after) we left Sunday.  We stayed in a breathtaking 2 story loft type residence inside an old cabinet making business.  I loved the exposed brick walls, 15-foot ceilings, industrial-looking pipes everywhere-it was very urban and modern and funky.  We had a downstairs apartment with 2 bedrooms and a kitchen and a huge great room with pool table and 50" flatscreen TV; my sister and her husband and my niece and her boyfriend stayed in the upstairs apartment, which was just as hip plus had a fireplace and a balcony.  Savannah is an amazing old city.  In case you've never seen the movie "Midnight in the Garden of Good and Evil", I'll tell you that Savannah is gorgeous. 

The Savannah Historic District is one of the nation's largest; this city is just a beautiful old Southern coastal town with beautiful architecture and gigantic shade trees dripping with Spanish moss, and 22 different parks with fountains and old statues and cobblestone streets complete with horse-driven carriages.  There's a waterfront area where artists set up their easels and paint and artisans sell their crafts and street musicians perform.  There are delightful little cafe's and pubs, and my husband and I found our way to a few of these Friday afternoon. The wedding festivities began with a rehearsal dinner Friday night. I didn't attend that, but it was my responsibility to get my mother dressed and do her hair and makeup.  After everyone left for the rehearsal dinner, I was able to breathe easier, and my husband and I went off on our own and walked the streets of downtown and had dinner at an eclectic little place which offered $2 beer.  After some sightseeing, we headed back to get ready for the pre-wedding cocktail party, held at a fancy old restaurant/bar.  I intentionally skipped all my meds just so I could drink at the party.  And drink I did!  I think I was trying to make up for my lack of Xanax.  After several drinks, my brother-in-law brought me my own bottle of champagne, every drop of which I drank...and then a second bottle appeared.  I drank and danced and smiled and pretended to be at ease, but truthfully I was a nervous wreck. For a person with Social Anxiety Disorder, this was the ultimate test:  It was crowded and noisy and I was surrounded by hundreds of strangers, all of whom seemed young and thin and beautiful.  But I hung next to my husband and my mother, and so I felt somewhat shielded from the dangers of the reality outside my little bubble.  It was so wonderful to spend time with my big sister, whom I rarely get to see as she lives on the other side of the country.  She introduced me to someone as "her beautiful sister" and I took that as a sarcastic comment but my husband said she was being sincere. It's not that I think she'd try to be mean to me, it's just that I'm paranoid by nature and always assume the worst.  We stayed for a good long while, long enough for me to see my 83-year old mother drink and dance with several young men, including her grandson (the groom).  I was thrilled to see her having such a good time, and she said it was the most fun she's had since Daddy died.  After she was too tired to go on, my husband and I took her back to where we were staying and put her to bed.  There was another party to attend, but I didn't think I could handle another crowded social function, so instead we stayed in and my husband made me margaritas (my sister stocked our kitchen with snacks and our bar with liquor!) and he opened a bottle of Captain Morgan's and we did some more partying by ourselves.  I got so drunk that I ended up hugging the toilet for a good part of the evening.  Oh well, it was totally worth it.

The next day was hectic and entailed a breakfast get-together where I consumed much champagne and orange juice.  I intentionally skipped my meds again so I could enjoy all the champagne I wanted.

 I LOVE champagne.  After breakfast, everyone scattered  to do their own thing and my hubby and I went sightseeing.  We walked all over town and ended up in a frozen drink bar.  From a wall of colorful assorted frozen drink machines, I chose the blue one.  I ordered my drink and then saw the sign which proclaimed that the drinks are made with 190 proof pure grain alcohol and are much stronger than regular bar drinks.  Needless to say, I thought that drink was going to put hair on my chest!  We headed back to the apartment to prep for the wedding.  I helped Mom get dressed and did her makeup and hair and Mom left to get wedding pictures made.  Husband and I had an hour to ourselves before we had to leave for the wedding.  Which means that I was ready on time, but that there was enough time for me to get very anxious.  I stuck some Xanax in my purse but really didn't want to take any because I wanted to drink at the reception.  Well, once my husband and I were all decked out in our formal attire (he looked so snappy in his bow tie!) we headed down the street 2 blocks to catch the trolley which my nephew had hired to take everyone to the church.  The wedding was beautiful and afterwards we headed to a mansion for cocktails and hors d'oeuvres.  Servers clad all in black milled about with trays of food and wine, and there was an open bar which we took full advantage of.  I admit, I didn't do any mingling.  I knew no one but a  handful of relatives there, so I wasn't comfortable talking to anyone.  I put Mom in a chair and got myself a Cosmopolitan and spent the next hour or two chatting with my husband and trying not to have an anxiety attack.  It seemed to take an eternity, but at last it was time for dinner, and the wedding party filed into the ballroom and everyone went to their assigned seats.  I was so relieved to find that we were sitting with my mom and sister and niece.  I had a cocktail with me, then a man came around and poured champagne, and then after that a man came around with 4 different kinds of wine. I chose white.  The dinner was ultra gourmet--filet mignon and a single gigantic shrimp served with asparagus. It was much fancier than I am able to describe.  I ate very little but drank plenty.  After that there were speeches and toasts and dancing and general merrymaking.  I can't remember how I got back to the apartment...  it seems that my husband and I did some more drinking that night and I guess I passed out at some point; I woke up in the wee hours of the morning wearing my clothes.  There was no sleeping in that day, for we had to make the journey home.  I stumbled into the kitchen to make coffee, then started packing my suitcase.  For a 3-day trip, we had a ton of luggage.  Plus a cooler filled with drinks and plastic bins filled with snacks and all of Mom's medical equipment...it looked like we were moving.  I think it took Husband 20 minutes to load the car.  It was raining the day we left, and that seemed to match the mood of everyone as we said our goodbyes.  It was sad-Mom cried.  The drive home was long-about 8 hours-and exhausting.  I kept having to stop to throw up, presumably from all the drinking I'd done the night before.  Finally we pulled into our driveway.  I hated that our trip was over but was also glad to be home.  Then I saw the evidence of the stress of the trip.  I found that my legs had been picked at and scratched at and were all bloody and raw.  My upper arms were also covered in sores due to compulsive skin picking.  I don't remember doing it but it's obvious that it was a reaction to stress and the pressure of being around so many strangers.  I skipped all my meds for 3 days and went "all-natural" -something was bound to happen.  And so I dealt with the anxiety by drinking too much and picking at my skin. Also bit my nails but not as bad as it could have been.  In retrospect, I don't think I could've had a better time.  And I'm so proud of myself for not freaking out during all the excitement.  My doctor had warned me I'd probably dissociate during the wedding, but I don't think I ever did.  I remember the ceremony. I remember the reception. I got a little floaty and distracted during dinner, but I think I successfully stayed in my body for most of the whole event... Wow!  This weekend gave me not one, but two things to celebrate.

Look & Listen

Currently hallucinating. Watching the shadows of people in my kitchen move across the floor. Only no one is in my kitchen.  Am simultaneously listening to all the noise coming from the living room...sounds of the cat jumping on furniture and scratching at the carpet. Except the cat is outside. There's no one in the living room. Shit! Now I'm hearing footsteps...  this is the part where I get scared. Is someone in the house?? Did Hubby forget to lock the back door when he last went out to get a beer? Has someone bad entered my home? Am I going to die?? I'm not finished living yet, in fact I feel like I haven't even started yet. *sigh*  And here comes the panic attack...I better go take a Xanax before it gets too bad.
                                         
LATER--
Have taken anti-anxiety meds and am just waiting for them to kick in. It still sounds like there is someone in the other room.  Everyone that lives here is asleep, I'm sure of it.  So what the hell is that?!  Heart pounding, chest heaving, sweating, shaking, head feels like it's going to explode...just your typical panic attack, which always makes me think I'm going to die, literally.  Come on, Xanax...work your magic. I took a full 2 mg bar; I wasn't playing around with it tonight.

Disconnected

We've been struggling.  We feel terribly guilty, but we can't remember what it is we did wrong.  I can't figure out who I'm supposed to be today.  The Good Daughter is taking care of Mom but it's not real.  I'm not in control of that "me", she just comes out and takes charge of things around the house.  I'm glad she's able to do those things, such as give our mother her medications and put ice packs on her back and bring her food and water.  Mom is very sick right now and is in a lot of pain.  She needs us.

Husband needed K this morning, but she just couldn't pull it together. Tried to fake it for his sake. We're all over the place, feel disconnected from everything. We went into some kind of trance state, or maybe we were just dissociating, but Husband says I was staring into space and unresponsive for a few minutes.  We were at a shopping mall, and then Husband left us alone for just a few minutes, and I had a freakout.  There was just too much for me to deal with-too many people, too many voices, too many colors-I was overstimulated. Just too much noise. Too much movement. Everything was just too much. Had to get out of there.

Took an Alprazalam and tried to drive home, but it was hard. Couldn't concentrate. Can't focus. Had to keep repeating out loud to myself where it was that I was going, or else I'd have forgotten. So we're driving down the road saying, "We're going home. We're going home. Just go home." but man it was hard today.  Sometimes we can't drive.  Too much to look at.  Distractions everywhere. And I forget what I'm doing, I forget that I'm driving.  It's amazing I've not wrecked and died.

We haven't Tweeted in what seems like a long time, but I don't really know how long it's been-could be days, could be months.  For some reason I'm afraid to get on Twitter now.  We miss several of the Tweeps but feel too ashamed to come out of hiding.  I guess that's what we're doing now, hiding.  Not unusual for the K's.  But I miss Twitter. It was an outlet for my madness. Why did I stop? Why can't I go back?  I just can't remember. I can't remember how to get back to being "here". We are lost. Lost inside our head apparently. Who the hell am I now? Need to take meds and just go to bed.  Maybe when we wake up, we'll be someone everybody likes.  I hope so.  It's so important that people like us. Don't know why, it just is.

I caught myself smoking a cigarette this morning. I don't smoke anymore.  Thought that was odd. Blog post from last night (? I think) is embarrassing and I'm ashamed of us.  I'd delete it but this blog is my record of my illness and symptoms and I guess it's important to keep it since it was written by that angry K.  I hate when she comes out.  She draws negative attention to us. And she hurts people. I seem to recall that she screamed at Husband sometime....not sure when, but I remember the look in his eyes and it was very sad. We feel terrible about that. He doesn't understand our sudden outbursts of anger. I think he's worried about us...

Damn.  I want to blog but can't concentrate. Can't figure out what to write about. Need to empty my head, which is overflowing with information and thoughts of all kinds, but can't seem to do that today.  Hmm.  Pills I took are kicking in and I'm getting sleepy.  Yay;! Naptime at last!  Hope this works, and brings "me" back.

I'm so very sorry if I've said or done something bad or hurtful or inconsiderate. I don't want to be like that. But I realize that some of the K's are less congenial.  Shit.  We're just going to go to bed for a while..,

Therapy Trainwreck

We have been having a very difficult time lately but can't concentrate long enough to blog about it, which is the homework assignment given to us by our psychiatrist on Friday.  She asked me at our last session to start keeping a diary and bring it in to our sessions; instead, I brought an old diary from 2004, which was written in various states of consciousness,  often while we were dissociating. There was so much I wanted to tell her, to read to her from the diary, to explain to her-but I just couldn't stop crying long enough to get the words out, and I didn't have the energy to talk to her anyway.

It was all I could do just to get to the appointment.  On the way there, in the car, I pounded on the steering wheel and screamed and yelled curse words, tears streaming down my cheeks.  I was shaking and hyperventilating and my heart felt like it was going to burst out of my chest.  I took 1 mg Xanax- thankfully there was part of a bottle of water still in the cup holder from a couple of days earlier.  It was difficult to see through my tears as I drove to my doctor's office. Not only that, but once I got close-within a few blocks-I got confused and forgot which way to go and I took a wrong turn...sigh...I got lost on the way to a psychiatrist's office which I've been visiting regularly for 2 years.  I figured this would make us late but as it turned out there was another patient ahead of us.

Whew~what a relief to get to her office safely, to park the car, to look around frantically and find no other people in the parking lot. I cursed out loud to no one. I took another drink of water and looked at myself in the visor mirror.  I was a wreck, an absolute mess.  My hair was all wind-blown and I had sweat pouring down my face, mixing with the tears pouring from my eyes...I was wearing black sunglasses but you could still see the tears running down my cheeks.  My bangs were sweaty and stuck to our forehead.  I had on no makeup, not even lipstick, and the sunlight accentuated each blemish, scar, and bump on our face.  My cheeks were flushed red from crying and I was huffing and puffing and I looked like I might explode or something.  I searched the car desperately for a napkin or tissue, to wipe my forehead and face, but I found nothing, so I pulled my shirt up and used it to dry my eyes and cheeks and forehead.  I didn't have a brush with me, so I finger-styled my hair and longed for a hat.  Thought about taking another Xanax, but can't remember now if I did or not.  I was quite unsteady on my feet as I got out of the car and walked to the door.

 Inside, I found a couple sitting in my usual spot (the corner) so I was upset about that on top of already having to hold my breath to keep from crying.  I watched my hands trembling as I tried to sign my name but for a minute I was unable to remember how to write it.  I had to think really hard, and even then it seemed foreign to me as I wrote out my first and last names; I don't think I used my typical handwriting-it looked unfamiliar to me.  I sat down and took out my phone to Tweet.  (I Tweet when I'm nervous or upset.)  Pretty much immediately I started having a serious freakout, but luckily at that moment the doctor called for the couple in the corner, and realizing I had some precious time to spare, I somehow found a voice with which to squeak out to the receptionist, "Do I have time to go smoke a cigarette?"  That's funny because I quit smoking 2 years ago, although we have been known to cheat now and then.  At that time, Friday morning, I would've given just about anything to smoke a cigarette, but we had none. She told us the doctor would be a few minutes, so I practically sprinted out of the office.

I got into my car and locked the doors, looking around me, all paranoid.  I suppose I could've turned on some music but at the time it was so loud in my head that I couldn't stand any more noise around me.  The noise on the inside was louder than the noise on the outside, and it was nearly unbearable.  I did the only thing I knew to do to quiet the voices, the yelling, my screams--I dug around in the car until I found a small stash, and I smoked a couple of hits of marijuana.  Sometimes it really is the only thing that will help calm me down.  So I took a couple of tokes-not enough to get me stoned, just enough to take the edge off- and tried to talk myself down from this state of panic and sense of being overwhelmed.  I wasn't sure I'd be able to make it through a therapy session, and I pondered driving away, but part of us knew that we desperately needed to see the psychiatrist and so we stayed.  Didn't get out of our car until we saw the couple from before come out of the office.

The doctor was waiting for me inside, and as soon as she told me to sit down, I collapsed into a chair and started sobbing.  There was just too much to tell her, too many thoughts, too many feelings, I had too many questions for her and didn't even know where to start.  I was having trouble getting words out at all, so she paged the receptionist and asked her to bring me a glass of water.  With it in my hand, I took another 1.5 mg Xanax.  Tried to take slow, deep breaths and finally, after what seemed a really long time, I was able to speak.  I couldn't sort my thoughts and found it quite difficult to express myself with words.  Pictures would have been better--I'll have to remember to take a sketchbook and pencil next week.  Every time it seemed I was going to get my point across, I'd forget what I was talking about and start stammering, searching for the end of a sentence which no longer made sense to me.  God it was frustrating!  And the tears kept interfering, and the gasping for breath...

It's a terribly inconvenient time for me to be this depressed.  Mom doesn't know; well, she knows we're blue and not eating and wearing my pj's a lot.  But she has no idea that I've given up on my personal care altogether.  I'm not eating or drinking anything but caffeine and alcohol.  I'm self-harming.  Two weeks ago I was binging and purging, now I'm just purging.  I don't have enough energy to shower or get dressed.  I haven't washed my hair in over a week, probably longer. I don't know, and frankly, I don't care right now.  It's hard to care about shit like flossing your teeth when you're searching for a reason to exist, just one more day. I told her I'd been sleeping for about 15 hours a day, sometimes more.

I can NOT do this right now--my mother needs me.  She's very sick-she has shingles-and is physically suffering a great deal; she cries out in pain often, and it tears at my heart.  I can do nothing to help her, and the doctor tells us she could be sick with these shingles for 3 weeks.  Sigh.  I just don't have time to be depressed right now!  There's so much work to be done at home and in therapy.

I told my psych, Dr. H, that I absolutely had to see her more than every other week.  I tried to explain to her that I was too sick to be left alone for 2 weeks at a time.  I tried to tell her that there were different people all living in my head, and that some of them were very ill and needed intense psychiatric care.  I tried to briefly explain about the K's, and how I desperately needed the "strong one" to come out and take control of my life.  I can't understand why she hasn't come to my rescue this time, like she has before.  Usually when things get really bad, when there is just more stress than I can handle, then she comes out and takes over my life and sees to it that everything gets done, everything gets taken care of.  She's the Smart One.  She's quite productive and can multitask and is very capable of handling stressful situations.  She needs to be here taking care of Mom, and taking care of K.  She'd fix things.  I just don't know how to force her out; I haven't learned how to control things like that yet.  I don't have any control over who comes out of my mind when, but usually, say in a social situation, the right K will automatically appear and handle things until she's no longer needed.  And no one ever notices that there are different K's because generally, no one sees different K's, just the one that they know.  Each friend knows their own version of K.

But I've gotten way off topic.  I was talking about my therapy session.  I can't remember everything that we talked about, I mainly just remember getting very upset and worrying that she was going to put us in a hospital.  I tried to tell her that in the 2 years we'd been seeing her, we'd not had the courage to be honest with her about what was in our head.  I'm always afraid that if they find out how sick K really is, they'll lock her away.  That, and the fact that I just do NOT trust people, makes it difficult to open up and be honest in therapy.  I fear my thoughts and feelings.  If they scare me, I figure they'll scare the doctor too.  And I don't want another label, I want an accurate diagnosis.  But she told me at one point during the session that it would take more than a couple of sessions to make a clear diagnosis; since I've only just now started to talk to her, really, we had a way to go to get to proper diagnosis and treatment.

One more thing I just remembered....  she asked me if I remembered any abuse from my childhood.  I told her I couldn't remember the actual abuse (I've blocked those memories) but I had little clips of memories of things which seem suspicious or not normal.  So I told her about the 3 or 4 things that I recall from childhood that I find to be inappropriate memories for a little kid  She asked me again to write in my diary and bring it with me next week. Incidentally, I guess I got my point across about needing to see her more frequently--I saw her Friday morning and she wants to see me again Monday afternoon.  That's as quickly as is possible.  (She also gave me a prescription for yet another medication.  Abilify.)  Or maybe I just scared her and she's keeping a close eye on me lest I become suicidal.  So far, that's not been a problem.  Self-harm is not at all the same as suicidal actions.  I can't kill myself right now-not only is it bad karma, but my mother needs me to take care of her.  I have too much to do to die right now.

Memories Lost and Found

Memory is a funny thing...I think.  That's my attempt at humor. I have to make fun of myself or I'd have no relief at all from the teasing and taunting and laughter that comes at me from all sides much of my waking life. But I'm already going off on a tangent-we can't have that! Let's try again.  I can't explain this very clearly, I can only tell the story as it exists in my current state of consciousness.  I remember on a different plane of "reality", which an alternate K presides over, and which sometimes drops us bits of information or pictures in our mind of things from K's past (and sometimes her future!).  Sometimes this works out well, the right version of K will remember what she needs to know, but more often than not, K is unable to retrieve the information and she feels foolish and frustrated and angry with herself. 

It's so embarrassing to not be able to remember someone's name, someone whom you've known for years.  How do you play that down, or get out of that situation gracefully? You really can't.  Blame it on getting older or being intoxicated, anything to keep the truth hidden from the Outside World.  It's reasons like these which cause us to want to stay home.  At least, some of us do, the current K included.  I'm not sure where I've been, but I've been reading the blog and a book I found at the library, and I've determined that K has been having a dissociative episode, and has switched several times over the course of 2 weeks or so.  I'm here now, to try and make sense of all these notes and writings and websites.  This is going to take some work, and some time.  But-in the end, I'm hoping to help K get better, to live a somewhat stable life, to be HAPPY. (K doesn't really know what that means, she only pretends to know)  I've touched on happiness since we got married, actually since we began dating our husband, which was about 4 years ago.  My happiness swelled to such an extent I thought my heart was literally going to burst out of my chest on our honeymoon, and has been present more days than not ever since.  Yes, we still have days in which we're depressed, or want to hurt ourselves, but a lot of days we wake up and look over at our husband and emotions pool inside of us and I can often feel tears run down my cheeks and I know those are tears of joy.  K had such a hard time for so many years of her life, it's just awesome that she's finally found a piece of happiness, a life with purpose, a future worth living to see.

I wonder if K will live to see her future... I don't mean to sound so doom and gloomy but I mean, her health is not so great considering how young she is.  She already has to wear oxygen at night when she sleeps (that's something that came about only recently but is because of the ARDS incident (The story of my ARDS ordeal).  She has COPD (Chronic Obstructive Pulmonary Disease) as a result of the ARDS too.  Needless to say, by the time she got out of the hospital, she was a non-smoker.  (It's interesting to note that some of the K's DO smoke)  She recently had exploratory surgery to find the cause of some severe pain she'd been having in her right side for several months.  The surgeon found something called adhesions (the abnormal union of adjacent tissues) growing on her colon and he had to scrape this tissue off her organs.  She was really sore after that, and ran out of pain pills too quickly,  but the doctor refused to refill them.  It's often hard to get some medications, such as pain relievers and sleeping pills, when you have a history of mental illness.  My theory is that the doctors are afraid you'll intentionally take an overdose of the pills.  Or perhaps they believe that people will take advantage of our impaired judgement and we will sell them or give them away.  Now I will confess that on certain nights, rarely, my mother will be so nervous and anxious that she cannot sleep, and on those nights I will give her a quarter of one of my Xanax pills to calm her down and help her relax.  Is that really so wrong?  Mom's always worried she's going to become an addict, which I think is hilarious-she's 82 for Christ's sake!  So what if she DOES get hooked?  What difference would that make now?


Damn! I've gone and forgotten what it was that I wanted to write about tonight.  I HATE when that happens, and unfortunately, it happens a lot.  It's embarrassing and drives me crazy, pun intended.  K used to always have a pad of paper and a pen with her , as well as a sketch book, a pencil, and a fine-point black Sharpie marker.  We got out of that habit at some point when other, less active K's came to visit our mind.and K became lethargic and less inclined to do anything (anything at all by the end of that time period)  I guess after we dropped out of college our mind and memories started to get fuzzy from neglect.  I, and the other smart K's (I don't know how many there are, I'm still figuring all this out), will try and focus our energy on remembering what to blog about.  OH YES, and we've begun to carry a pad of paper and a pen in our pocket at all times now.  I think that's as good a place to start as any. If you want to remember, write it down. If I find some notes or remember something on the subject later, I"ll be sure and post those thoughts  here.

New Years Evil

Ah, New Year's Eve.  A time for reflecting upon the triumphs and tragedies of the past year and looking ahead to the bright, shiny possibilities of the upcoming year.  Ideally, that's what I'd be doing, along with drinking champagne throughout the day.  Instead, I'm just waking up from a sedative-induced sleep which I forced myself into after having a major meltdown this morning.  We were so excited, eager, and anxious about going out to celebrate New Year's Eve tonight that I was completely overwhelmed by the thought of it all.  I was supposed to come up with something special to wear, and get all dressed up, and go out to a party or two with my darling husband, whom I planned to kiss at midnight. But the pressure of doing all those things was just too much for me to bear and I completely flipped out and had the worst anxiety attack I've had in ages.  My heart was pounding so hard I could feel my whole body shaking.  I couldn't catch my breath, and began to pant as though I'd run a marathon. I was enveloped in a desire to self-harm, but was unable to do so because my eyes couldn't focus and everything was fuzzy. I tried really hard to make myself dissociate so I could escape this agony but that never works when I want it to.  My head felt like it was in an ever-tightening vise, and I could feel the blood rushing through my brain; the pain was so intense that I thought I might have a stroke at any moment. I thought I was going to die, literally. All because I had plans to go out tonight...

Well, we didn't even have specific plans at the time of my freakout.  We were pondering two choices: a large, rowdy party with some friends and a ton of strangers and massive quantities of booze and whatnot, or a small, intimate get-together with 2 other couples, some fireworks and, of course, more drinking.  I intentionally skipped all my meds this morning, specifically so that I might drink more tonight without fear of drug interactions.  Apparently, that was a bad idea.  Not a half hour had passed after I'd made that decision before I had a complete and utter breakdown.  My only option was to take 2 mg Alprazolam and lie down on the bed with my eyes closed and my head hidden. My husband was quick to discover I'd skipped my pills and thus forced me to take them and eventually I passed out. (I was doing my yoga breathing to calm down and I guess that plus the drugs worked wonders)  Not sure how long I was asleep, but when I woke up it was no longer this morning, it was well into this afternoon, so I'm guessing I slept for hours. I just don't know for sure. I have no concept of time. I'm not kidding. NONE. But that's a story for another time...


When I woke up, my husband came to my bedside and asked if I was OK.  That's when it all came rushing back to me and I remembered that I had lost my mind for a bit there. Suddenly I was embarrassed and ashamed.and humiliated and felt as though I'd ruined our holiday even before it had begun.  At the same time, the person waking up from her drug-induced coma was someone new and different and she didn't feel anxious about going out to a party at all.  I was stoked about New Year's Eve and eager to find out where we'd be spending our evening. Well, my husband told me then that he'd decided it best for us to just stay home tonight.  I knew immediately that it was because of me/her/"us".  He was giving up his night of partying because he didn't think I was stable enough to be out in public. That made me feel like utter shit. But he wouldn't admit that I was the cause of it-he gave me perfectly logical reasons to stay home (too many drunks on the roads, cops everywhere looking to pull people over, etc) and I could say nothing to change his mind.  So I have already messed up our New Year's weekend (and it hasn't even started yet). What a fitting end to a fucked up year.


I guess this is where I should go into details about all the important things that happened in 2011.  That's what the average person would do, right? But I'm not the average person and besides that, my memory is so bad that I've forgotten most of the past year anyway! I remember LAST New Year's Eve however. My husband and I rented a cabin with 2 other couples (the same ones who've invited us to hang out tonight) and we spent the weekend in the mountains.  We had a fabulous time, drinking and feasting on grilled steaks and dancing and singing and being silly and dressing up and playing board games and lounging in the 2-person hammock and chilling out in the hot tub with the always-present glass of champagne in my hand... When the time warrants, I can become this person who is sociable and funny and seems to be normal. It's a mask I wear. (another story for another time) Now I have to admit, the main reason I'm able to remember all this so well is because that Christmas, I'd received a mini video camera and I was filming our whole trip.  So I can watch the video and relive the experience. That camera has become an invaluable tool to me, for it gives me the ability to document my daily life and remember the important events/people/etc that I'd otherwise forget due to my ever-shrinking memory. The only problem I have now is, I always FORGET that I have the damn camera!


After starting off 2011 with a bang (fireworks!), it was only a short time before my husband and I were celebrating our very first wedding anniversary.  Yes, I am just recently married, and my husband is the most supportive, understanding, kind-hearted man I've ever known.  He's my best friend and I absolutely adore him and can't imagine life without him. I don't know how he puts up with me (us?).  I really don't.  Hopefully, my mental illness won't drive him away like it drove away so many boyfriends/friends/family members/co-workers...(big sigh here) Now back to our story. February brought Valentine's, my birthday, and my mother's hospitalization. I very nearly lost her this past year.  She's 81 and precious to me, and her near death brought on alot of mental problems for me. But you must understand one thing: I NEVER tell my mother what is going on in my head.  We don't talk about the voices, or the hallucinations, or the dissociation, or any other symptom which she might perceive as serious.  I hide avoid her when I'm having an episode.  She really has no idea exactly how ill I truly am.  But I digress-


My husband (whom I need to come up with some name for, so that I don't have to continually type "husband") threw me a birthday party at the bar we normally hang out in.  I like it because it's dark and smoky and usually empty. The owner knows us, and my husband bartends there sometimes, and so the bartenders and waitresses and everyone there went out of their way to make my night special.  Balloons, party hats, cake, the whole shebang.  My sister was there, which is simultaneously awesome and bizarre, since she lives so far away from me, but she'd flown in to be with Mom on her supposed death bed and was therefore able to attend my little soiree.  I drank until I got sick (it's not a party until you puke!) and ended up talking and laughing with my hubby and sister all night,  long after the bar had closed and we'd stumbled home.


The next 6 months I don't remember at all. Seriously.  Not a clue. Sitting here right now, I can't tell you if we were sick or stable or up or down. I can't recall a thing. I have some photos of the birthday party I threw my husband in August, so I'm able to vaguely remember that.  We rented 2 hotel rooms (so no one had to drive home drunk) and invited everyone to party and hang out with us at the pool.  Actually, it wasn't nearly that smooth and easy, but I'm going to gloss over it for you. After that, I can't remember anything until near Halloween.  October is my favorite month, I LOVE Halloween and all things spooky and I usually get manic and ridiculously happy during that time of year.  I'm having trouble remembering what we actually did for Halloween.  Hmm.  Oh well.


With November comes the onset of my traditional holiday blues, and this will last until just after my birthday in February.  Thanksgiving was stressful to the max, but we can't remember any specific details about it. Next was Christmas, which sucked, and that brings us to where we are now.  I'm quite certain that you're sick to death of my rambling by this point anyway. And besides that--SHIT!--the whole day has already gone--I have to go get dressed for tonight.  Tonight.  New Year's Eve.  This will be the first time I've stayed at home for this night in decades, I kid you not. As it turned out, I've spent my entire day either sleeping or working on this blog entry.  Yes, it has literally taken us all day to write this post.  I can't remember how long this entry is or even what I've been talking about.  My OCD tells me to reread it for the 1000th time but at this point I'm so mentally exhausted that I just want to stop thinking.  So I'm going to post this without a final edit. Holy shit, I can't believe she's doing that! But I'm tired, so very tired.  And the night has yet to begin, along with the new year. Let's pop some fucking champagne, shall we?