An Animated Day

Today (Wednesday) has been quite a trying day, but interesting at least. We were supposed to be at therapy at 9:30 this morning.  I found out around 9:00 that the car wouldn't crank. Luckily, my husband was home and getting ready to go to work at 10:00...so I called my psychiatrist and told her I'd be a half hour late. Obviously I started the day off on a highly stressful note, and that is my greatest trigger, so it really came as no surprise that I had a rough day.  Hubby drove us in his car when we left, and he had to stop at the drugstore on the way to work. I waited in the car, and by the time he came back I was no longer in my body.  I struggled to pull myself back inside my head, but it was a hopeless battle. I dissociated and don't remember anything until he's getting out of the car, and I see that we are at his job, and like a robot I get out of the car and walk around to the driver's side and get behind the wheel... Hubby kissed me goodbye then disappeared inside but I just sat there in the car with the engine running for a long time.  I was trying to figure out how to make the car move. Everything began to physically transform and the inside of the car took on an animated appearance, like a cartoon. I began to operate on auto-pilot.  Driving to my doctor's office was exactly like being in a video game. I don't know how else to describe it. My hands weren't really touching the steering wheel; it seemed very far away, much too far for me to reach. I was looking through the windshield and it was unreal, everything was far in the distance and out of focus. I had the distinct feeling, nay knowledge that I was untouchable, unstoppable, impervious to harm. I knew I could not, would not wreck the car or have any sort of accident or run-in with the police. It wasn't possible, for all of this was just a game.  Not real.  I don't know how long it took to get to the psych's office; everything was in slow motion yet seemed to be flying by very fast at the same time.  I don't understand how that was possible, but that's how it seemed to us.  Once in the parking lot, I just sat in the car for a long time with the air blowing in my face. I pulled the visor down to look in the mirror and was quite upset to see that the reflection looking back at me was wearing bright red lipstick.

 
I do NOT wear bright lipstick, although we're aware that some of the K's do. I unceremoniously wiped it off with the back of my hand, then just stared stupidly at the red streaks coloring my pale skin. Decided I just didn't care-what difference did it make?-and just left the red lipstick smeared all over my hand.  Finally walked into the building but it felt more like I was gliding or floating or something.  I couldn't feel the ground beneath my feet. I made it inside and walked up to the counter and signed my name, but not without some difficulty. I was unable to write in cursive; I had to print my name, and the handwriting was shaky. I had taken 1 mg Xanax while in the car at my husband's job, and as soon as I sat down in my usual corner chair I took another 1 mg.  There were a number of people in the waiting room with me; I'm not sure how many because I kept my head down and wouldn't look at anyone. I pulled my legs up underneath me and tried to curl up into a ball in my seat... and the waiting started. I was antsy and anxious and very eager to see my psychiatrist, as I'd been under a lot of stress since our last appointment.  I got out my notebook and tried to make a list, but just couldn't focus...I was too distracted by the thought that everyone in the room was staring at me. I kept looking down, or took out my journal and flipped through it, or played with my phone, perhaps even tried to tweet I can't remember now.  I just couldn't think about anything except how things were in what looked like claymation...3D cartoons of sorts. I was looking around the room in wonder when this guy came in the door... He was younger than K's body but walked like an elderly person, all hunched over and wobbly and he shuffled across the floor using a crooked wooden can and his jeans were hanging very low around his hips, exposing his striped boxer shorts, and for whatever reason, he scared us. K's heart began to pound just as soon as she laid eyes on him (even though she never looked directly at him) and of course our luck would have it that he came over and sat down in the chair right beside us. Panic started welling up inside me. My body was turned away from the strange young man, and I was intentionally looking across the room, through the other people, staring at the wall with nothing in my head except the irrational fear I felt of the person to my left. I wasn't sure I could handle it, and thought briefly about going outside and sitting in the car, but I was terrified my name would be called while I was out and I'd lose my place and have to wait even longer to see the doctor.  So we sat there, panicking, in the middle of a childlike environment filled with caricatures of people...and then my name was called. The receptionist walked over to me and asked me to come with her. I was confused but did as I was told; I wondered if we were being scolded for some reason.  She walked us out the door and around the building to a back door, while explaining to us that the toilet had overflowed and how sorry she was for the inconvenience. It was bizarre to me, but so was everything right then. Now I'm in the psychiatrist's office and I'm trying to explain to her how everything feels like a video game...and she asked me if I was a different person. I can remember all these things because we wrote them down in our notebook. We take notes in therapy now and it is really helping us.  So she asked me if I was a new K, but I didn't know the answer to the question.  It's strange to not know who you are.  I really can't even begin to put it into words. You feel lost and empty and...like nothing.  I told her I didn't know for sure who I was at the moment, and that I felt "switchy".  I don't remember the rest of the session, except for one part:  she was telling me how to use a calendar to keep up with time, so that I can remember when things happen.  I guess that sounds silly to someone with a normal grasp of time, but to someone who struggles to keep up with what day of the week it is, this is a really big deal.  She asked me if something happened this past Sunday or last Sunday, and I didn't know the difference.  I admitted that I never knew when things happened, that I use old text messages as clues to how I spent my time. So she told me to get a calendar and take notes on it, like it was a diary. Write down when I go places, when I do things.  She said it'd help me put my lost time together.  I intend to try it.  I don't remember the rest of the session, nor do I remember driving home.  The rest of the day is scattered and disconnected. I can only recount bits and pieces of it...someone bought McDonald's fries and K doesn't eat at McDonald's anymore, hasn't in years.  I remember we decided that perhaps if we took a nap, that the proper K would be with us whenever we woke up.  I might have tweeted about that, I'm not sure.  Then there's a big chunk of time missing, where I'm assuming I was napping. Next thing I know, I'm putting on an act for my mother, and pretending everything is normal as I put her to bed.  After that, I found myself hanging out with my husband in our bedroom, and I remember him asking questions like "Which K are you?" and "Are you switching on me?". Again, I remember because I made notes about all these things. I found the questions intriguing. I don't remember anything else after that. I think his questions flipped some switch in my brain, and my reality shifted once again. Next thing I know, I'm waking up in bed in my clothes and wearing my glasses.  And that's when I began to write this blog post.

Should I Come Out?

May is Mental Health Awareness Month.  I announced on Twitter recently that I was mentally ill (it's no big secret), and proceeded to name some of my ailments.  I have a laundry list of them you know.  I'm pretty sure it cost me some followers.  (Oh, well.  If they can't handle me crazy, they don't need to be in my life.)  So far, that is all I have done to spread awareness.  But I've been thinking of doing more.  I am seriously considering coming out to a friend in Real Life about my being mentally ill. I keep weighing the pros and cons, and I repeatedly keep coming back to the point of it being really important to have support.  We don't have a ton of support.  I mean, I have our shrink, and Husband, and social media, like Twitter.  I can't tell you how many times a simple @ tweet directed to me has affected my mood in a positive manner, perhaps even pulled me away from the edge of insanity.  It feels good to send out a message in a cyber bottle, and have someone from around the world answer that message, and give me words of encouragement,  or just make me laugh. I think the narcissist in us loves being singled out.  Of course, at least one of us hates the attention and would rather no one pay us any mind.  It's an inner struggle most every day.

If I do decide to come out to someone, I need to plan out what I will say, how I will put it into words.  So let me think about that for a minute.  What exactly do I want to tell them?  How much information do I need to share?  I certainly don't want to overwhelm them with too much, too soon.  And it would be a shame to tell more than is necessary and cause myself greater embarrassment.  Yes, this will be very embarrassing.  And what about their questions?  I need to be prepared with answers to the basic questions which they are bound to ask me after I drop such a bomb on them.  I don't even know which of my illnesses to share with them; certainly not all of them-that'd be too much information.  So I need to pick an ailment, and prepare a little speech about it...  But first, before any of this comes to pass, there's something even more important that I must do.  I must decide which friend I want to reveal my secret to.  I know that whomever I choose will forever see me in a different light after my confession, so I have to choose carefully.  Whom do I feel closest to? Whom do we need support from?  Who do I trust enough to tell?  That last question is easy. Answer: No one. I don't trust anyone enough to tell them about my mental health issues.  I'm afraid, I admit it.  Afraid I'll be thought less of, afraid I won't be invited to socialize anymore, afraid the person I tell will spread rumors about me.  It would be a huge risk on my part to open up to an outsider.  I don't take this decision lightly.

When, or if, I decide to open up to someone, I need to make sure that person understands that this is a very private matter and that I'd rather not have everyone in town know about my condition.  They need a strong ability to keep a secret.  I have to assume that whomever I tell will most likely tell their spouse, and that fact makes the decision even harder.  Right now, the only people who know about my DID are my doctor and my husband.  I've only come to accept this diagnosis myself as of January, so all of this is new territory for me.  I'm still learning about myself, about the different me's, about who and what we are.  I can't imagine trying to explain all that to another person.  How can I, when I don't even understand it myself?  I am still learning to recognize my parts, so I couldn't possibly introduce them to an outsider.  I know what the first question out of their mouth would be: "How many of you are there?"  This is the question everybody always asks, and I wish I had the answer.  The truth is, I don't know how many of me there are.  I've identified a half dozen personalities, but there are still more voices inside my head which haven't been singled out.  So I don't know how many K's there are. Hmm. Perhaps telling about my Dissociative Identity Disorder would be too much; I don't want to overwhelm my friend(s).  Maybe I should confess only to something simpler, something easier to come to grips with, like my Obsessive Compulsive Disorder or Social Anxiety Disorder.  I'm pretty sure my friends already have their suspicions about these things, so it wouldn't be such a stretch for me to just come out and admit that I have these disorders.  I'm fairly certain that whomever I choose to tell will be understanding and sympathetic, and I don't think it will have any sort of negative impact on our friendship.  Knowing that then, why is it so hard for me to imagine revealing my secrets?  What am I so afraid of?

stig·ma [stig-muh]

noun, plural stig·ma·ta  [stig-muh-tuh, stig-mah-tuh, -mat-uh], stig·mas.
 

a mark of disgrace or infamy; a stain or reproach, as on one's reputation.  Social stigma is the severe disapproval of, or discontent with, a person on the grounds of characteristics that distinguish them from other members of a society.

 

 

That's your answer. The stigma of mental illness is what I'm afraid of.  Don't think that there isn't one-it's alive and well and I've seen it firsthand.  I know what it is to be discriminated against because of my mental status. I know how it feels to be the butt of jokes at the workplace. I've seen that look that people get in their eye just as soon as my mental health is brought up. It is impossible to fully understand it unless you've experienced it.  People treat you differently.  Medical doctors often think the physical ailments I complain about are simply "in my head".  They are afraid to prescribe medications as I'm seen as a suicide risk.  At work, I'm not trusted with important tasks or asked for input on anything serious.  People seem to think that because I'm mentally ill, I'm less intelligent than they are. I'm not taken seriously. Or I'm thought to be lying, or making up stories.  There are a thousand different ways in which to discriminate against the mentally ill. Unfortunately, I've dealt with quite a few of them; I'm not eager to deal with any more.  So perhaps I'll just keep my mental illness to myself.  After all, I'm very good at keeping secrets.  As far as Mental Health Awareness Month goes...I assure you, I am aware.

 

Hospitalized at 16

I had never even met with a counselor before, much less a psychiatrist.  So naturally it never even occurred to me that my parents would do something like hospitalize me.  Yes, my behavior was out of control, but I was 16 and my hormones were going wild and I was terribly depressed and confused and of course, unmedicated.  I was acting out and engaging in reckless behavior, skipping school, smoking cigarettes, cutting my arms, and I was shaving parts of my head. I had been dressing all in black and staying in my room alone, listening to depressing music. I never wanted to go out or do anything. I barely ate or slept. I sat in the dark and wrote poems about death.  These days, I'd just be called goth or emo, but back then it wasn't an acceptable lifestyle. Naturally my parents assumed I was on drugs.  The truth was I'd never even smoked pot before! But they decided to send me out of town to a fancy hospital where young people were treated for behavioral problems and substance abuse.

They had to lie to me to get me there.  They said we were taking a weekend trip, which didn't seem unusual since my family traveled a lot, but I was pissed that they were making me go with them.  I climbed in the backseat of the car and sulked for the hour's drive to the hospital.  Of course, I didn't realize we were going to a hospital until we were there.  Before I knew what was happening, some people dressed in white grabbed my arms and started pulling me towards the door, all the while telling me to relax and not fight them.  RELAX?  When strangers are assaulting me? When I'm being forcefully taken inside what looks to me like a prison, it's difficult to relax and stay calm.  I started screaming curse words at the nurses, my parents (who disappeared as soon as they'd taken my suitcase out of the trunk; they didn't even say goodbye) and anyone within earshot.  I was furious with my parents, for lying to me, for deceiving me, for leaving me in such a place.  At first I didn't know where I was or what was happening so I thought maybe they'd shipped me off to a half-way house. I was both angry and scared.  I remember a desk and some papers I had to sign....they wanted me to read a bunch of crap and then sign if I agreed to it but I didn't bother to read it-I didn't give a shit what those papers said.  I just wanted to be alone.  Just leave me the fuck alone, I thought, or maybe I screamed, I can't remember now.

I do remember this part quite well--the strip search.  The nearly-unbearable humiliation of the strip search.  Full body cavity search, performed by a very large football-playerish woman, and just to be clear I had to stand there completely naked and let her touch me. Everywhere.  Even inside of me. God-I swear I just felt a chill run up my back.  I haven't thought about these events in many, many years.  Apparently, they still get to me though.  She was checking for drugs I suppose, or razor blades or anything else I might use to hurt myself with. The funny thing, if you can call it that, was that I'd recently been sick with mono, and so I had these bruises on my inner arms where the doctors had drawn blood.  Well, to the people at the hospital, these were "tracks" and this made me look like a heroin addict. They started asking about all the drugs I used.  I tried to tell them that I'd never used any drugs at all, but they told me that "Denial is the first sign of addiction" and so I had to get drug tested at random times throughout the course of my stay.  I don't think I ever actually convinced them I was drug-free, despite my clean urine tests. Interestingly enough, not only was I the only person there who did NOT have a drug or alcohol problem, but I learned more about drugs and how to use them and how to hide them than I ever could have learned on my own.

I was placed on Suicide Watch, which meant another nurse came into my room and unpacked my suitcase and removed any and every little thing that I might possibly find a way to self-harm with.  She took my belts, my shoelaces, my ink pens, my jewelry, my razor (of course), my toothpaste, my mouthwash, and any other liquid I had in my suitcase.  I didn't see the point in all of that, but I was powerless to stop it.  The whole while she was searching my things, I was being watched.  I found out the next day that being watched was going to be my norm for months.  I wasn't allowed to take a shower without a nurse in the bathroom with me, watching. I was not allowed to shave my legs.  I was given toothpaste to brush my teeth with, but was not allowed to have it in my bathroom. (Did you know that you can die from eating toothpaste?) I was watched every moment of every day.  I had to have a witness go with me whenever I went to pee. Talk about embarrassing!  I was lower than low already, and the humiliation of all of this just compounded my feelings of hopelessness and despair.

One day I was caught staring out of a window, and because they took this as a sign I might be planning to jump out of it, I was punished and sent to isolation.  This was a tiny room with no windows and only a mattress.  If I had to use the bathroom, I had to call for the nurse, who escorted me to the bathroom, watched me do my business, then took me back to my little cave.  I'm not sure how many days they kept me in isolation; I have no sense of time anyway, plus without windows I couldn't tell if it was day or night.  After I was allowed to go back to my room, I found I now had a roommate.  She was mean.  I did not like her, so I chose not to speak to her. She'd threaten me at times or curse at me, but I just stayed silent. I really didn't talk to anyone much the whole time I was hospitalized. I had no interest in making friends. I had nothing in common with these people-they were all junkies or sex addicts or criminals in my mind. I was different.  I was just depressed.

Every morning we were awakened at the crack of dawn and sent to a large sitting room, where we had "morning meditation".  The counselors gave us pep talks and read "inspirational" materials to us. We were given our schedule for the day and released to go dress for breakfast.  I wasn't actually allowed to go down to the cafeteria with the rest of the group, as I was on suicide watch.  I ate alone at a table in the corner of the sitting room, supervised by an orderly, and given only a plastic spoon to eat with.  I guess they thought I might hurt myself with a plastic fork.  Anyway, this whole eating in silence thing lasted for about a month and a half.  After that, I had earned the privilege to go to the lunchroom with the rest of the group, but I was still only allowed plastic utensils.  The nurses circled our table, making sure we were actually eating, and we were not allowed to leave unless we'd consumed what they considered to be an acceptable amount of food. This was hard to do, as the food was terrible and I'm so finicky anyway.  But I loved mealtimes, as it was one of the only times I got to leave the ward and see evidence of the outside world.  There were windows in the cafeteria, so I would gaze at the trees and watch the birds and dream of running away.

After breakfast, we went to "school". I sat in a classroom with kids of all ages and was given assignments, which to me were quite simple and so I used most of my classroom time to draw or write depressing poetry.  Class time was the only time I was allowed to use a pencil, and I would sketch and write letters to my friends back home (not sure if those letters ever actually got mailed).  After school was over, we had gym.  Now when I'd been at my high-school, I'd gotten out of taking gym by being the teacher's aide in the art department.  I hated exercising. But since it was so friggin' boring in this place, I began to work out in the weight room (supervised of course) and by the time I got to leave the hospital I had lost weight and toned up a good bit.

After gym, we were allowed to shower (again, I was watched) and then got to rest for half an hour, and then we went to group therapy.  This was when all the patients sat in a circle and we went around the room and talked about what was wrong with us.  Everyone had all these exciting tales of drug use and promiscuous sex and shoplifting, but I was innocent.  I had no stories to tell. I was a drug-free virgin.  I remember my shock upon meeting this one little girl who was 11 years old and who slept with men in their 30's; she guessed that she'd had sex with over 25 men.  I just couldn't believe it.  I always listened to everyone's stories with great interest, because my stories were so boring.  I mean, I looked like a delinquent, but I didn't actually do anything wrong. It seems there may have been a suicide attempt at one point in my teens, but I don't really remember that; I just have a scar on my left wrist to show where I'd cut myself. This was the reason I was kept on suicide watch throughout my stay.

What I longed to do was go outside though.  We were never allowed outside of the hospital.  I didn't feel the sun on my face for over 3 months.  And I don't even like the sun, but I was really just wanting to get away from the cold, clinical, all-white rooms which were all I saw every day.  The highlight of the day was when we got smoke break.  I guess this ages me, but back then there were no laws preventing teens from smoking.  So every day at the same time, all the smokers (which was pretty much everyone on that floor) got to congregate in the recreation room and smoke cigarettes.  The lighter was mounted to the wall, one of those things which got hot but didn't actually have a flame, and it had bars over it so that none of us could burn ourselves.  There was just enough space between these bars to fit a cigarette into, and that was how we lit our cigarettes. Naturally we were closely watched during smoke break. We were all allowed one pack of cigarettes per week; if you ran out, too bad. 

Now there were very strict rules at this hospital, and one of the rules was that we were not allowed to share things with the other patients.  One day, a boy had no cigarettes, and I felt bad for him, as he'd been brought in a few days before, all bloody from having punched through a window while high on cocaine. So I gave him a cigarette.  Just one.  And that's all it took.  He and I were both punished for a week, in isolation, in 2 separate locations of course.  After my second stint in isolation, I followed the rules. Now every other day I was visited by a psychiatrist, who determined that I was Bipolar (except at that time it was called Manic-Depressive) and I was placed on Lithium and some anti-depressants. I hated that doctor, and I'll be specific as to why.  She actually had the nerve to tell me one day that I would NOT be depressed if I only dressed in colorful clothes!  She said I felt bad because of how I looked. I was livid, and argued with her about this matter until the day I was released.  I never gave in to her wishes.  I continued to wear my all-black wardrobe.  She did NOT like that at all.

One day, she told me that I was going to be allowed a parental visit.  I had mixed feelings about that. On the one hand, I loved and missed them, but on the other hand I was still very angry with them for sticking me in such a hell-hole.  I recall the day quite vividly, as it was the first time I was allowed to go outside the building in 3 months. I loved the feel of the sun on my skin and the cool breeze...I got to go out to lunch with my folks, and of course they had a million questions, to which I gave the answers I thought they'd want to hear.  I lied and said I wasn't so depressed anymore.  I told them I wanted to come home.  But it'd be another month before that would happen. When I got back to the hospital, I was strip-searched again.  Also, the gift of chocolates my mother had given me was confiscated, because apparently there is a drug in chocolate and I wasn't allowed any stimulants of any kind. No coffee, no soda. Another thing they did was take away the stamps my father gave me with which to mail them letters. The nurse told me that in the past patients had used postage stamps to smuggle in LSD, so they were forbidden.

Although I was only there for about 4 months, it felt like years. Afterwards, when I told my parents how I'd been treated-the strip searches, the supervised bathroom visits, the isolation room-they felt terribly guilty about having made me go through such an ordeal. In an attempt to make up for it, they bought me a new car.  I don't think they ever understood just how horrible the whole experience had been for me, though, because after my discharge I was still made to visit that same psychiatrist for about a year or so.  She was a bitch. I resented the fact that she drove a different luxury sports car every time I saw her; I decided she only went into psychiatry for the money.  One day, my parents were told to come with me for a family session. At some point the doctor told my parents that they had, in fact, played a role in my becoming so depressed and out of control.  My parents were furious at this accusation, and my father cursed at the doctor and pulled me out of there and I never saw her again. I was taken off the medication (my father decided she'd just been drugging me to bill the insurance company) and I wouldn't have another doctor for a few years.  In that time period, I got much, much worse, but I hid this from my parents, for fear I'd be sent back to a hospital.

This was not the only time I've ever been hospitalized, this was just the first time.  To this day, I am absolutely terrified of psychiatric hospitals because of the horrible experiences I had while I was in this place.  I tried talking to my current psychiatrist about my nightmares of this hospital stay just the other day, and she told me that things like that simply do not happen in psych hospitals these days.  She thinks my memories are delusions or false memories or something.  But I know better.  I had nightmares for years after this little hospital stint.  I've been sent back to hospitals several times since then, but I've never had to stay as long as I did this first visit.  And to this day, I get a chill up my spine when I drive past such a hospital.  They scare the living shit out of me. Because of this fact, I have been lying to my psychiatrists for years about my true thoughts and actions; I'm scared that if I tell the truth, I'll be locked up again. I don't think I could handle that. In therapy this week, my shrink talked about how she believed in hospitalization for patients with severe symptoms. This haunts me. I don't know if I'll ever be able to open up to her again, I'm too afraid.

Scaredy Cat

I'm scared of the dark. Really I am.  Our husband just asked us to go get him a beer.  Well, it's after 2:00 A.M., and he keeps his beer in a fridge outside in the garage.  That's a spooky place for me to be at night.  I don't like to leave the house after it gets dark.  Some of the K's are nightowls and love to prowl the streets in the wee hours, but that's not me.  I'm just a little kid.  I'm a scaredy cat.  And Daddy isn't here to protect me from the monsters anymore.  I haven't told Husband about the monsters that lurk in the dark.  I'm afraid he'll laugh at me.  I don't think he'll understand.  I'm embarrassed.  I want to act like a big girl and be grown up and not be scared but I just can't stand being out in the garage.  There are sounds.  And shadows.  And places for bad men to hide.  I don't want to go out there.  I slam the door shut and lock it as fast as I can, and I imagine I can see the shadows moving towards me, coming to get me.  My heart is always pounding after a 45 second visit to the garage.  I hate it there but don't want Husband to know I'm scared so a lot of nights I suffer through this small trauma.  I could turn on the garage light I suppose, but then someone else might see me, like a neighbor, and that's scary too.  I don't want anybody to see me. I like to hide.