Showing posts with label self-sufficient. Show all posts
Showing posts with label self-sufficient. Show all posts

Tuesday, January 17, 2012

Finding Funding

We've never-and I do mean NEVER- been good with money.  Over the years this has been a constant  source of a great deal of stress, shame, and a lot of problems, both financially as well as legally, for K and her family.  Since the only jobs K was capable of handling (after dropping out of college due to a breakdown) were entry-level positions, they offered little pay and no benefits.  I was almost always just scraping by each month, and I inevitably ended up the same way: in the red.  The damage to my credit rating and bank account compounded each day/month/year until there was simply no way to get myself out of trouble.  I was too proud to ask for help-I waited until it was offered-and usually I'd find myself in a black pit of debt which I can't even venture a guess as to how many times Daddy and/or Mom had to bail us out of.  They helped K with her credit card troubles, paid her bills, and saved the day...for years.   K is very ashamed of and embarrassed by this; she wants to take care of herself and be independent; she hates her unemployed status.   Twice I've considered filing for bankruptcy but I'm proud to say I did NOT take that route.

Growing up with parents who were raised during the Great Depression means you are hard-wired from the get-go to be frugal, or at least that's the way it was in K's house.  Her father's most-used expression was "Money doesn't grow on trees",  and he knew better than anyone the value of a dollar, as he began working at the age of 9 (he picked up golf balls at a golf course).  He taught K from the time she first began walking to watch the ground for lost change (the man could spot a dime from across a mall parking lot!) and stick her finger inside coin slots on vending machines to see if someone had forgotten a quarter. (To this very day, I'm compelled to do this)  I don't want to infer that he was cheap; rather, he was thrifty. He wanted very much for K to be financially stable and to have enough money to be comfortable and never have to struggle the way he and his family had during the Depression of the 1930's, or even the way he'd struggled when he and my mother first got married.  He, like many from his generation, wanted his daughter to grow up and marry someone "from a good background" who would work hard and take care of her; instead she got married at 19 to a con artist who stole thousands from me and my family. But that's a whole other story.

K absolutely, positively can NOT handle money, not by herself.  It gets spent or it gets lost.   (I have a theory that I actually misplace just as much money as I "foolishly" spend.) We tend to be quite frugal, but at least 2 of us are the type to enjoy shopping, and we overspend when manic. During her brief teenage marriage, (it lasted less than a year)  K attempted to balance a checkbook and pay bills and such and it was a colossal failure.  (It didn't help matters that her husband was stealing checks from her and forging her signature)  On one hand, K is exceedingly frugal, to the point of being obsessive about it; she'll drive out of her way simply to save a few cents on gas or to buy something on sale.  On the other hand, we have no way to gauge how much is too much (we tend to overdo it) and we're generous to people and always try to help them out and many people (mostly boyfriends) over the years have taken advantage of that.


Most of us are non-materialistic.  (I'm being told, no-urged to say that.) There are periods of time scattered throughout the years in which K was responsible for herself, times when she had run away from her problems (financial and otherwise)  and started a new life elsewhere and had a job and even went to school several times over the years. At one time, she even owned a house of her own; she had to sell it when she suddenly decided to move to the other side of the country.  She'd up and disappear to a different state sometimes, the first time at about age 17.  In instances like that, her parents would use money as a lure to try and get K to come back home; but K was always a free spirit and wanted to be on her own and would often refuse to cash the checks her parents would send her.  She would rather ask passers-by for quarters all day long, (but  K was never a panhandler)  or sell her blood at the plasma center, if she wasn't making enough money at whatever job she happened to be holding at that time, rather than accept help.

K was very good at getting a job.  A job application was just paperwork after all, which we're good at, and the proper person almost always showed up for the interviews.  K would get a job and keep it for as long as she was able to maintain the facade of being "a regular person"; if someone suspected anything, or if her paranoia told us they did, then we'd just go home and never go back to that job. K did NOT ever tell anyone at her job(s) about her mental health problems; she was too ashamed and embarrassed and didn't want her co-workers to treat her differently.  What kinds of jobs did we have?  Well, K got her first job at a fast-food joint when she was 16 and after that she worked various jobs in retail (three times selling shoes, at one time she was actually the assistant manager at a funky little clothing store in the mall) or customer service, or in an office doing paperwork. I'm really good with paperwork, as long as I'm taking my medication properly and am not having a "schizo" day (which can happen at any time).  Stress is K's biggest trigger and eventually any and every job, no matter how trivial or mundane or even enjoyable, would become too stressful for her and she'd have a meltdown and usually quit her job without warning, or a lot of times she got fired for calling in sick too many times. (When our mental health was too fragile to deal with Real Life, or when the voices were so loud she couldn't hear herself think much less answer a phone, K called in sick.)

The older she got, the worse her mental illness got, and with age came new symptoms.  K had stopped taking her medication after she got married, because she'd lost her father's health insurance, and simply couldn't afford to pay for it on her own. (Psychiatric medications are very expensive) So she was off her meds for several years and during that time period, she had a number of "episodes".  I'm not sure how many, that was lifetimes ago and I don't even remember who that was.  Sometimes, though, I'd somehow end up at a clinic or doctor's office, and somebody would be kind enough to help me or advise me, and on many occasions I would see a doctor who would give me medication(s).  They'd usually make some sort of arrangements with me to come back, see a therapist or psychiatrist, and get medication refills.  A lot of these clinics had a sliding-scale fee, and I only had to pay what I could afford. I honestly don't know what would have become of me were it not for these clinics.


I bounced around from city to city, year after year,  but I tried very hard to maintain at least some type of medication schedule and therapy sessions.  There were years in which I lost my doctor for some reason (once I threatened to punch my shrink in the face and he threatened to call the police, so he was no longer my doctor after that) and thus had to go without medication for stretches of time every few years.  During these times, I'd hold it together for as long as possible, and then I'd crack.  First a tiny crack, then the whole fucking thing crumbles and emotions and thoughts and words come gushing out and I am just trying to stay afloat in a sea of crazy.  Sometimes when this happened, K could easily be influenced by the "wrong crowd" to do something bad, to shoplift or do something illegal, even though K is a good person and such behavior isn't like her...But I fear I've gotten way off the subject, which was supposed to be money.

I don't know if it needs to be said or if it's implied by my crazy ramblings, but in case you're wondering, no, K does not work anymore.  I'm embarrassed and ashamed to say that she last held down an actual job in approximately 1998.  After the year 2000, K applied for Disability-at the urging of her then-doctor (he told K that she had a "brain disease" and that she had no business trying to handle the stress of a job, which would only make her symptoms worse); up to that point, K didn't even realize that there was such a system in place to help people  like her.  The process was long and tedious and complicated and the only reason K was able to get through all the paperwork and interviews was the fact that she had a very dear friend, who happened to be disabled herself, (only her disability was physical rather than mental), and this friend walked K through the process.  She helped her fill out forms and applications-which seemed to be never-ending.  She accompanied K to interviews with mental health professionals and doctors and Social Security people.  Thinking about it now, and realizing how much she went through to get to the other side, I'm really surprised that K was able to successfully complete the application process and get her Disability payments-it literally took years to get all that stuff sorted out.  But she finally did, and she is now on Social Security Disability and has Medicare to help with her doctor's bills and prescriptions.  Otherwise, I'm not sure what might've happened to us.  Disability has saved K's life, literally.  She wouldn't have been able to continue with her existence were it not for the medical insurance she is now eligible for.  Thank the gods for Medicare and Medicaid!


Let me sum up.  Money is the root of all that is evil (K really feels this way), it changes people, it makes them greedy and selfish.  K has seen this phenomenon in Real Life, as in when one of her friends was in a bad car accident and received a hefty settlement; K finally cut him out of her life because he'd become so obsessed with the money, the possessions, the THINGS, that he was no longer the friend K knew and loved.  This has happened more than once and each time these things happen, it just proves to K that she is right about money being a bad thing.  Money is the devil.  We hate it.  We'd much rather live in a world where bartering was the norm.  K would love to trade paintings or handmade jewelry or some sort of art for food and clothes, etc. but unfortunately, that's just not the way it works in the Real World.  Too bad for K.

These days, K is married to a loving, generous man who takes care of her and the bills.  Sometimes K is able to write checks and see that the bills get paid on time, sometimes she can't even handle something as simple as that, and she must depend upon Husband to manage her money, or lack thereof.  It's difficult to stay on top of your finances when you have blackouts and can't remember writing checks or using a debit or credit card.  She definitely still struggles with money; they are on a tight budget to say the least, but things are much better and much less stressful now, and therefore K can relax, just a little bit, and not worry so much about being homeless. (Yes, this is one of her actual fears.)

Wednesday, January 4, 2012

Major Breakthrough or Break From Reality?

(When we started writing this blog post, it was yesterday? Last night? Some time in the past, not terribly long ago, yet it seems I've been typing for so very long...at least 12-16 hours now, but since time is foreign to us there's really no way to be certain)

I'm not sure how to start...Something has happened. To me, to us, to K.  She really, very much needs to see her doctor!  That's not a viable option for us right now, however, as it's currently either horribly late or ridiculously early, take your pick.  Now it could be that she's just experiencing what is known as a psychotic break...

(Wikipedia says: A psychotic break is a term used to describe an occasion of a person experiencing an episode of acute primary psychosis, either for the first time or after a significant period of relative asymptomaticity.)

This has happened to us before, I can't say for sure how often it happens or even when it last happened, but it's certainly not something we are unfamiliar with.  If that is not the case, (and I have my suspicions) then we are having a MAJOR BREAKTHROUGH. I really can't stress enough that we're not sure at the moment what is happening to us, and I'm not sure if THIS has ever happened before. (I have a terrible memory, for a number of reasons which I'm not going into but which include my mental disorder(s) and my medication side effects)

psy·cho·sis [sahy-koh-sis] noun


1. a mental disorder characterized by symptoms, such as delusions or hallucinations, that indicate impaired contact with reality.
2. any severe form of mental disorder, as schizophrenia or paranoia.
I feel, at this moment, that something profound has occurred to us. I'm not sure exactly when it happened and I can't be certain how long this has been going on.  I've tried to trace this "event"(?) back to the beginning, using Tweets and Facebook posts and my phone data.  I would normally just check out my personal journal, but we were shocked to discover that K hasn't made an entry in that particular journal since October 21, 2010, so that really didn't help us much at all.  K has spent her entire life trying so hard to hide her symptoms from the outside world, that it feels somewhat liberating for her to open up and let things show now.  Several of the K's are shy, but I am not.  I guess that's a good place to start...
Hello. I'm the K that takes care of business, the K that gets things done, the K that is responsible and does necessary things such as pay the bills and take care of our mother (who is frequently in poor health) at times when things are just too stressful for K to handle them on her own.  K is currently unavailable but will (hopefully?) return at some point and things will settle back down to what we know as "normal". Not that it is normal in any way, mind you.  That's one thing I'm starting to realize.  There's something strange going on around here, and I intend to get to the bottom of it.  This feels SO important, I really can't stress that enough.  This feels like something of vital importance to our very existence, we being the K.  Now K has been in therapy for most of her life.  For over 20 years, we've gone from doctor to doctor, looking for answers, and hoping someone would say "Oh, you have this condition and you should take these pills and then everything will be fine. You'll get better."  We are painfully aware by now that this is just NOT going to happen for us.  I don't know if it ever happens for anyone (but I sincerely hope that it does). But television commercials and the media in general would have you believe that everything can be cured with a magic pill or X number of therapy sessions.  If either of those things were true, I'd be long cured.  I've been placed on a veritable cornucopia of psychotropic drugs since I was given my first prescription (for Lithium) at the age of 16. I know for a fact that I'd never be able to name them all, as I've been on so many, and of course because of my memory problems.  Depakote, Trazodone, Zyprexa,  Ritalin, Paxil, Zoloft, Celexa, Ativan, Valium, Lexapro...I could go on but I won't. You get the idea. I've been on different combinations of different drugs for years now; for so long, in fact, that I can no longer remember what it feels like to be completely drug-free. I'm currently prescribed 60 mg Prozac, 300 mg Wellbutrin, 50 mg Seroquel XR, 3 mg Risperidone and 4 mg Alprazalam per day, plus a Folic Acid tablet for what my relatively-new medical doctor (non-psych) tells me is a deficiency which supposedly affects your moods. The last time we were without our pills, we turned to self-medicating to help us feel more "sane".  It's very common behavior in people with mental illness and since I have an obsessive-compulsive personality, it can lead to a lot of problems, physically, mentally, legally, financially,,,(sigh) You get my point. I tend to overdo things, become obsessed, act impulsively and compulsively. K, according to some people, "just doesn't know when to quit", but the obsessions themselves generally come and go over the course of "time".  Time is something we have a special relationship with, and no realistic sense of, but I'm afraid I don't have enough of it at the moment to go into that story, so please let me continue before I switch again.
I have both a relatively-new medical doctor as well as a new psychiatrist (I can't remember how long I've been seeing her, but she was unable to get my medical records and/or therapy notes from my last doctor, whom I disliked).  OOH just checked my neglected hardbound journal and found out that I started seeing this new shrink sometime after Feb. 9, 2010 and before April 17, 2010.  (WOW I had no idea it'd been that long; maybe she knows me better than I give her credit for) I saw my last therapist (not to be confused with my psychiatrist, whom I usually refer to as my shrink, even though I know they hate that) sometime in early April of 2010.  She dumped me after 7 years together!  Because I missed 3 appointments at various times throughout our relationship.  She said that was the limit; that after 3 misses you're automatically kicked out of the system on your 4th miss for being a "non-compliant" patient.  So even though I have this alleged illness-which she herself was attempting to properly diagnose and treat, and which she herself brought up first in our sessions-and even though she knows that we have issues with understanding time and "reality", still she cut me loose just as soon as I had walked into her office and plopped down on her up-until-that-moment-"comfortable & familiar" couch.  Well, actually I think she let me rant first for a minute-I recall I was dying to talk to her about my (often-recurring) then-current obsession (suicide) so she let me spill for a few minutes, then asked the obligatory questions: "Are you thinking about hurting yourself?  Do you have urges to harm yourself?  Are the voices telling you to hurt yourself or someone else?"  I told her that at that time, I did NOT have any plans to hurt myself, and I'd certainly never hurt anyone else!, and so as soon as she was satisfied that I wasn't going to leave her office and kill myself, she dumped me like a bag of garbage.  Up until that point, I'd been seeing her at least every other week, or weekly if I was struggling., for 7 years. A few times I had more than one appointment in a single week.  And I tried to always see my psychiatrist in tandem with my therapist, as they shared a clinic location, and because I was driving an hour to get there from my home. While I may not recall the exact date of our last appointment, I do recall parts of the session.  It was quite brief, or at least it seemed so to me.  I described to her my obsessing over suicide, and how I'd been Googling it and researching and reading news articles and how everyone around me seemed to be doing it at that time, like the voices were trying to get me to "do what everybody else was doing" and how fascinated I was by the whole process. At that time, I explained excitedly, there had been a number of prominent suicides in the news, including a famous fashion designer as well as a former television actor. I had intended to tell her how the TV was speaking to me personally about these things. She didn't like that I was talking about people killing themselves, and as I've stated earlier, she quickly asked me the "suicide watch" questions...and I gave her the answers I knew she needed to hear.  Don't get me wrong.  I had NO intention of killing myself that day, or any day soon, as K was and still is a big believer in Karma and I think that killing yourself is bad karma, regardless of your religious beliefs. Plus I'd never put my family through the humiliation and pain and suffering of the whole suicide event. (some of us do indeed have suicidal tendencies though) I love them too much to do that to them.  Also, I don't think that anyone would be able to style my hair nor do my makeup as I would like, or even pick out the right outfit for me to wear to my funeral.  This may seem trivial to you, but to K,  it is really important.  Damn.  Now I've gone off on a tangent and can't recall where I was in telling the story...

Interesting.  I just left the safety of my bedroom, wherein I've been holed up for roughly 9 hours now, and went into the kitchen for a cup of coffee, which K is almost always able to make (she's a coffee fiend) and which, sure enough, she had prepared much earlier, as in last night.  Now we must interact with our mother, for she is in said kitchen and expects some sort of recognition and acknowledgement.  I'd been wondering what would happen as I walked up the hallway, before I ever saw her.  And then-BOOM-I'm in the room with her and the Good Daughter is hugging her mom and asking how she slept and how she was feeling that day, which is today. I know because I've begun taking notes in a notebook, and I see the date and time written on the notebook and I can compare it to the date and time on my new cell phone, and I can get an idea of "when" I am existing, I being the current K, the smart one, the one who used to attend college and hold down a job (hard to believe now).  We are the K that has ambition.  We are the K that dreams of going back to school and finishing her degree, and of having an actual career that she could nurture and benefit from and perhaps even earning a living and being completely self-sufficient, which up until this point, we don't think she's ever been.  She has always ended up needing some help.  She just can't do it on her own.  She can't make enough money.  She can't have the proper benefits of medical insurance and retirement funds.  As much as K HATES to admit it, she is completely held hostage by, and controlled by, The System.  The System currently considers K "mentally disabled" (due to schizophrenia I believe) and we get a Disability check every month for a set amount of money.  Not a lot, let me tell you.  In fact, I've NEVER been able to afford to pay all my bills in addition to buying food and gas for the car.  K is really ashamed of that fact.  She came close to being self-sufficient once; she had a full-time job and was in management, and she had a checking account and a house and a car and a seemingly "normal" (only NOT) life. Sigh. (That was before our first, and most severe, "nervous breakdown") We're really rambling here.  I need to wrap this up before some other K comes along and messes it up, or erases these words without posting or saving them because of our over-the-top paranoia. I still very strongly feel that these events, happening to us "now"-whenever that may be-are going to have an enormous impact on K's future, hopefully for the better.  Hopefully, this is a brain-altering, life-changing moment of clarity within our foggy, crowded existence.  Hopefully this is K taking the first steps at realizing how she can go about getting the sort of help that she really needs, and not just drugging us to keep us at bay.

We've tried to explain this, or some of this, to K's husband, but he is having quite a difficult time in wrapping his brain around these concepts. We have, in fact, completely blown his mind by telling him openly and honestly what K was thinking and feeling. Now K feels completely vulnerable and fragile and I have to alter my train of thought before the stifling paranoia takes over again... My husband is my best friend, but even he has never seen me like this before,  he's never witnessed me switching from one K to another. I imagine it is quite upsetting and disturbing to him, as it would freak anybody out who wasn't prepared for it. Sigh.  I really, REALLY hope I don't scare off my husband...!!! I tried, very hard, to warn him, to prepare him, for the day he'd see the real me.  "US".  And now it turns out he can't handle it, or at least not at the moment.