Another Day, Another Dilemma

Lost.  A whole day and night, for the most part, just gone.  I feel like I've been manic and have just crashed.  I also feel like I've been doing a hell of a lot of talking and socializing but I can't remember with whom.  Pretty sure we made some new online friends....now if only we could remember their names.  That's so annoying-to know that I made conversation with someone and we got along well but then after it's over I can't remember who they were or what we talked about.  Makes friendships difficult online.  In real life, I can at least recognize a person's face (well, sometimes) but even then I still have trouble remembering conversations, or even names. I've been trying so hard to develop a support system for us on Twitter, and I think we've done a pretty good job, only when I really need to talk to someone about something important, I can't remember just who it is that I'm close to. *sigh*  Truthfully speaking, I don't know if I'm actually close to anyone, either online or in real life.  And it's far too embarrassing to tweet everybody, asking if we're friends or not.  Plus, the paranoia is stifling me.  I'm paranoid I might've been the mean K at some point, and perhaps said something horrible to another Tweep and maybe I've angered someone or worse, hurt someone's feelings.  I worry so much about what other people think about us; that's the number one reason we keep our illness a secret from the outside world.  My closest friends don't know about my mental illness.  A lot of people know I take anti-depressants and so they assume I'm just chronically depressed or maybe bipolar or something they're familiar with.  I would never dare tell anyone about my dissociative disorder.  That's just TOO weird.  People can't wrap their brains around it. I don't want people to look at me differently, or treat me differently, or talk about me behind my back.  So I hide my symptoms.  From everyone.  Most of the people I hang out with in real life have been with different K's at different times but never even knew.  Because I keep quiet.  I'm shy, and I"m scared of revealing my terrible secret.  This disorder I have is the stuff of Hollywood movies, the type of mental illness that's always portrayed in a negative light, as though we are dangerous or deceptive. I don't think I'm either of those things, although I am aware that one of the K's has tendencies to do things which we find questionable or even wrong.  But that's not all of me.

 I have different me's, different parts of me which have different functions and different personalities and I can't always be sure that everyone is doing what they're supposed to be doing.  After all, I don't have access to my entire mind, just to parts of it now and then.  I know about several of the K's, but I don't know how many of us there are, nor do I know which ones come out most frequently or which ones have the most friends or anything like that.  I wonder if we'd have any friends at all if we were to expose ourselves and admit to everyone we have an illness.  I don't think they'd be able to handle it.  I think everything would change and I'd never be looked at the same way again.  So I've turned my search for friends online, where people can't stare at me or pass judgements based upon how I look or dress or behave in public.  Online, I am honest about who and what I am.  Everyone I've met on Twitter knows I'm mental, and they accept it.  Most everyone I talk to on Twitter is mental as well, and that's the way I prefer it.  I can't relate to "normal" people, because I'm not normal.  I would much rather converse with someone who understands what it's like to be afraid of people or to hear voices in their head.  I need empathy, and that's something that my real life, "sane" friends simply cannot give me.  They will never understand.  No one can, unless they've experienced it themselves.  I had a counselor once who'd attempted suicide at one point in her life.  I trusted her because she'd been where I was.  She "got it".  That's what I need.  People who get it.  And I seem to be finding these people-everyday I get up and find evidence of my having chatted or DM'd or emailed or texted people and it seems to me that we've had a conversation or an exchange of some kind that has had a positive impact on my state of mind.  I know I'm finding support, I have physical evidence in the form of notes or a journal or texts on my phone.  So I'm accomplishing my mission, which has been, since I joined Twitter in December, to find others like me.  I just have to sortof start all over every morning, figuring out who I talked with and what we talked about.  This is impossible of course.  So if you are reading this and you are one of the several people with whom I've conversed recently, then by all means say hello!  Please don't take it personally that I can't remember our conversation or personal info about you. Hell, I'm doing good if I can recognize a person's name as that of someone I know.  A lot of times I'll see people in my timeline who I just know I've talked with before, but I'm too afraid to interact with them because it's just too embarrassing to admit that I have forgotten everything I knew about them.  Now, after a certain period of time, these things get better.  If I talk to you everyday, of course I'm going to remember you better than if I only talk to you once a week.  Now I must tell you, some of the K's are very social and love to talk, but others are quite shy and try to avoid contact with others.

 There's no way of knowing which K is tweeting at any particular time (except the mean one is easily recognizable, and probably the little girl too, though she's never used Twitter before as far as I know) so if you send me a Tweet and don't hear back from me, I'm sorry.  It usually means I just can't remember how I know you.  Some of you I've grown quite fond of, but I have trouble separating in my mind the ones I know well and the ones I don't know very well.  I see the names in the timeline everyday, so they are familiar to me and this confuses me further.  I guess what I'm trying to say is, I feel like I've had a very productive week, in that I made new friends and had really nice conversations and made connections with people, I'm just having trouble now remembering who those people were.  If we have interacted before, then by all means you should feel confident in speaking to me.  If I don't remember you at all, I'll be honest and tell you, but please don't take this to mean that I don't like you or that our conversation wasn't meaningful to me.  I just have a shit memory, and with the lost time and blackouts, it's a miracle somedays that I can remember my own name.  To sum up, thank you to everyone who has made an effort to be my friend.  We really do appreciate it.  It means a lot to us.  But if you want to talk to me, it might not be a bad idea to say something like "Hi, we spoke Thursday about the new Tim Burton movie" or just give me some kind of clue as to your identity.  If I interact with you more frequently, I'll learn your name and personal info quicker.  I just need that chance.  If I've introduced myself to someone and then never spoke to you again, it's because I've no memory of us meeting.  I always have to be reminded of everything. And I do mean everything.  To prove my point-it's 6:00 p.m. now and I find that I've forgotten to get dressed today.  I'm still in my pajamas and I don't think I remembered to eat today either.  This is my normal.  It's a guessing game really.  Just be patient with me-I'm a really good friend to have, if you can just stick around long enough to get to that point. I'm not going to lie, it's hard to be my friend. Not just because of the memory loss, but because I'm moody and just plain weird.  Most importantly, perhaps, is the fact that I don't trust people. Not ever. This makes it very difficult to get close to me.  But I long to be close to people, or at least just a couple of people, just so I don't feel so alone in this journey of life. I need friends. Everyone does.  It's usually pretty easy for me to make friends, but hard for me to keep them, because I literally forget them when they're not around.  I guess all of this sounds ridiculous, and I suppose it is, but this is my reality.  I have to be reminded who my friends are.  I don't know what I'd do without Husband with me, telling me who people are when we are out in public. He reminds me of how I know them, when we've hung out, what we've done together.  If I didn't have his support and assistance, I'd never be able to go out. (which I don't do all that often anyway)  To put it simply, please be patient with me and try to understand that I can like you and be your friend, even if I don't always remember you or our previous conversation.  I know it's frustrating, but believe me it's a lot worse for me than for you.  I may ask you the same questions over and over again, but that doesn't mean I'm not listening.  I just have a hard time retaining information.  Stick around and I'll eventually get to know you.  It just takes me a long time.  You know what? I've totally forgotten what this blog post is about.  I have no idea what I've been talking about, or whether this post even has a point.  So now I must read it over again, probably for the twentieth time... God I'm exhausted.  I wonder if I remembered to sleep last night?  To all those Tweeps out there who spoke to me in the past 2 days or 2 months, thank you. Thank you for talking to me, thank you for noticing me, thank you for giving me a chance.  Now let's do it again.

The Criminal

FINALLY!!!  I'm out dammit and I'm looking for some trouble. First thing I did was break the fucking rules and smoked in the house.  Then I self-medicated, and it wasn't even Happy Hour yet! Ha!  K had to go to the store and I wanted to steal something.  Just for the thrill of it, ya know?  That adrenaline high.  Tried and tried to convince the others to shoplift... anything....but they resisted.  Pissed me off too. I don't get out much anymore.  They won't let me cause I do bad things. I can't be trusted.  I wanted some gd cigarettes but OH NO they said. Fucking do-gooders.

Hospitalized at 16

I had never even met with a counselor before, much less a psychiatrist.  So naturally it never even occurred to me that my parents would do something like hospitalize me.  Yes, my behavior was out of control, but I was 16 and my hormones were going wild and I was terribly depressed and confused and of course, unmedicated.  I was acting out and engaging in reckless behavior, skipping school, smoking cigarettes, cutting my arms, and I was shaving parts of my head. I had been dressing all in black and staying in my room alone, listening to depressing music. I never wanted to go out or do anything. I barely ate or slept. I sat in the dark and wrote poems about death.  These days, I'd just be called goth or emo, but back then it wasn't an acceptable lifestyle. Naturally my parents assumed I was on drugs.  The truth was I'd never even smoked pot before! But they decided to send me out of town to a fancy hospital where young people were treated for behavioral problems and substance abuse.

They had to lie to me to get me there.  They said we were taking a weekend trip, which didn't seem unusual since my family traveled a lot, but I was pissed that they were making me go with them.  I climbed in the backseat of the car and sulked for the hour's drive to the hospital.  Of course, I didn't realize we were going to a hospital until we were there.  Before I knew what was happening, some people dressed in white grabbed my arms and started pulling me towards the door, all the while telling me to relax and not fight them.  RELAX?  When strangers are assaulting me? When I'm being forcefully taken inside what looks to me like a prison, it's difficult to relax and stay calm.  I started screaming curse words at the nurses, my parents (who disappeared as soon as they'd taken my suitcase out of the trunk; they didn't even say goodbye) and anyone within earshot.  I was furious with my parents, for lying to me, for deceiving me, for leaving me in such a place.  At first I didn't know where I was or what was happening so I thought maybe they'd shipped me off to a half-way house. I was both angry and scared.  I remember a desk and some papers I had to sign....they wanted me to read a bunch of crap and then sign if I agreed to it but I didn't bother to read it-I didn't give a shit what those papers said.  I just wanted to be alone.  Just leave me the fuck alone, I thought, or maybe I screamed, I can't remember now.

I do remember this part quite well--the strip search.  The nearly-unbearable humiliation of the strip search.  Full body cavity search, performed by a very large football-playerish woman, and just to be clear I had to stand there completely naked and let her touch me. Everywhere.  Even inside of me. God-I swear I just felt a chill run up my back.  I haven't thought about these events in many, many years.  Apparently, they still get to me though.  She was checking for drugs I suppose, or razor blades or anything else I might use to hurt myself with. The funny thing, if you can call it that, was that I'd recently been sick with mono, and so I had these bruises on my inner arms where the doctors had drawn blood.  Well, to the people at the hospital, these were "tracks" and this made me look like a heroin addict. They started asking about all the drugs I used.  I tried to tell them that I'd never used any drugs at all, but they told me that "Denial is the first sign of addiction" and so I had to get drug tested at random times throughout the course of my stay.  I don't think I ever actually convinced them I was drug-free, despite my clean urine tests. Interestingly enough, not only was I the only person there who did NOT have a drug or alcohol problem, but I learned more about drugs and how to use them and how to hide them than I ever could have learned on my own.

I was placed on Suicide Watch, which meant another nurse came into my room and unpacked my suitcase and removed any and every little thing that I might possibly find a way to self-harm with.  She took my belts, my shoelaces, my ink pens, my jewelry, my razor (of course), my toothpaste, my mouthwash, and any other liquid I had in my suitcase.  I didn't see the point in all of that, but I was powerless to stop it.  The whole while she was searching my things, I was being watched.  I found out the next day that being watched was going to be my norm for months.  I wasn't allowed to take a shower without a nurse in the bathroom with me, watching. I was not allowed to shave my legs.  I was given toothpaste to brush my teeth with, but was not allowed to have it in my bathroom. (Did you know that you can die from eating toothpaste?) I was watched every moment of every day.  I had to have a witness go with me whenever I went to pee. Talk about embarrassing!  I was lower than low already, and the humiliation of all of this just compounded my feelings of hopelessness and despair.

One day I was caught staring out of a window, and because they took this as a sign I might be planning to jump out of it, I was punished and sent to isolation.  This was a tiny room with no windows and only a mattress.  If I had to use the bathroom, I had to call for the nurse, who escorted me to the bathroom, watched me do my business, then took me back to my little cave.  I'm not sure how many days they kept me in isolation; I have no sense of time anyway, plus without windows I couldn't tell if it was day or night.  After I was allowed to go back to my room, I found I now had a roommate.  She was mean.  I did not like her, so I chose not to speak to her. She'd threaten me at times or curse at me, but I just stayed silent. I really didn't talk to anyone much the whole time I was hospitalized. I had no interest in making friends. I had nothing in common with these people-they were all junkies or sex addicts or criminals in my mind. I was different.  I was just depressed.

Every morning we were awakened at the crack of dawn and sent to a large sitting room, where we had "morning meditation".  The counselors gave us pep talks and read "inspirational" materials to us. We were given our schedule for the day and released to go dress for breakfast.  I wasn't actually allowed to go down to the cafeteria with the rest of the group, as I was on suicide watch.  I ate alone at a table in the corner of the sitting room, supervised by an orderly, and given only a plastic spoon to eat with.  I guess they thought I might hurt myself with a plastic fork.  Anyway, this whole eating in silence thing lasted for about a month and a half.  After that, I had earned the privilege to go to the lunchroom with the rest of the group, but I was still only allowed plastic utensils.  The nurses circled our table, making sure we were actually eating, and we were not allowed to leave unless we'd consumed what they considered to be an acceptable amount of food. This was hard to do, as the food was terrible and I'm so finicky anyway.  But I loved mealtimes, as it was one of the only times I got to leave the ward and see evidence of the outside world.  There were windows in the cafeteria, so I would gaze at the trees and watch the birds and dream of running away.

After breakfast, we went to "school". I sat in a classroom with kids of all ages and was given assignments, which to me were quite simple and so I used most of my classroom time to draw or write depressing poetry.  Class time was the only time I was allowed to use a pencil, and I would sketch and write letters to my friends back home (not sure if those letters ever actually got mailed).  After school was over, we had gym.  Now when I'd been at my high-school, I'd gotten out of taking gym by being the teacher's aide in the art department.  I hated exercising. But since it was so friggin' boring in this place, I began to work out in the weight room (supervised of course) and by the time I got to leave the hospital I had lost weight and toned up a good bit.

After gym, we were allowed to shower (again, I was watched) and then got to rest for half an hour, and then we went to group therapy.  This was when all the patients sat in a circle and we went around the room and talked about what was wrong with us.  Everyone had all these exciting tales of drug use and promiscuous sex and shoplifting, but I was innocent.  I had no stories to tell. I was a drug-free virgin.  I remember my shock upon meeting this one little girl who was 11 years old and who slept with men in their 30's; she guessed that she'd had sex with over 25 men.  I just couldn't believe it.  I always listened to everyone's stories with great interest, because my stories were so boring.  I mean, I looked like a delinquent, but I didn't actually do anything wrong. It seems there may have been a suicide attempt at one point in my teens, but I don't really remember that; I just have a scar on my left wrist to show where I'd cut myself. This was the reason I was kept on suicide watch throughout my stay.

What I longed to do was go outside though.  We were never allowed outside of the hospital.  I didn't feel the sun on my face for over 3 months.  And I don't even like the sun, but I was really just wanting to get away from the cold, clinical, all-white rooms which were all I saw every day.  The highlight of the day was when we got smoke break.  I guess this ages me, but back then there were no laws preventing teens from smoking.  So every day at the same time, all the smokers (which was pretty much everyone on that floor) got to congregate in the recreation room and smoke cigarettes.  The lighter was mounted to the wall, one of those things which got hot but didn't actually have a flame, and it had bars over it so that none of us could burn ourselves.  There was just enough space between these bars to fit a cigarette into, and that was how we lit our cigarettes. Naturally we were closely watched during smoke break. We were all allowed one pack of cigarettes per week; if you ran out, too bad. 

Now there were very strict rules at this hospital, and one of the rules was that we were not allowed to share things with the other patients.  One day, a boy had no cigarettes, and I felt bad for him, as he'd been brought in a few days before, all bloody from having punched through a window while high on cocaine. So I gave him a cigarette.  Just one.  And that's all it took.  He and I were both punished for a week, in isolation, in 2 separate locations of course.  After my second stint in isolation, I followed the rules. Now every other day I was visited by a psychiatrist, who determined that I was Bipolar (except at that time it was called Manic-Depressive) and I was placed on Lithium and some anti-depressants. I hated that doctor, and I'll be specific as to why.  She actually had the nerve to tell me one day that I would NOT be depressed if I only dressed in colorful clothes!  She said I felt bad because of how I looked. I was livid, and argued with her about this matter until the day I was released.  I never gave in to her wishes.  I continued to wear my all-black wardrobe.  She did NOT like that at all.

One day, she told me that I was going to be allowed a parental visit.  I had mixed feelings about that. On the one hand, I loved and missed them, but on the other hand I was still very angry with them for sticking me in such a hell-hole.  I recall the day quite vividly, as it was the first time I was allowed to go outside the building in 3 months. I loved the feel of the sun on my skin and the cool breeze...I got to go out to lunch with my folks, and of course they had a million questions, to which I gave the answers I thought they'd want to hear.  I lied and said I wasn't so depressed anymore.  I told them I wanted to come home.  But it'd be another month before that would happen. When I got back to the hospital, I was strip-searched again.  Also, the gift of chocolates my mother had given me was confiscated, because apparently there is a drug in chocolate and I wasn't allowed any stimulants of any kind. No coffee, no soda. Another thing they did was take away the stamps my father gave me with which to mail them letters. The nurse told me that in the past patients had used postage stamps to smuggle in LSD, so they were forbidden.

Although I was only there for about 4 months, it felt like years. Afterwards, when I told my parents how I'd been treated-the strip searches, the supervised bathroom visits, the isolation room-they felt terribly guilty about having made me go through such an ordeal. In an attempt to make up for it, they bought me a new car.  I don't think they ever understood just how horrible the whole experience had been for me, though, because after my discharge I was still made to visit that same psychiatrist for about a year or so.  She was a bitch. I resented the fact that she drove a different luxury sports car every time I saw her; I decided she only went into psychiatry for the money.  One day, my parents were told to come with me for a family session. At some point the doctor told my parents that they had, in fact, played a role in my becoming so depressed and out of control.  My parents were furious at this accusation, and my father cursed at the doctor and pulled me out of there and I never saw her again. I was taken off the medication (my father decided she'd just been drugging me to bill the insurance company) and I wouldn't have another doctor for a few years.  In that time period, I got much, much worse, but I hid this from my parents, for fear I'd be sent back to a hospital.

This was not the only time I've ever been hospitalized, this was just the first time.  To this day, I am absolutely terrified of psychiatric hospitals because of the horrible experiences I had while I was in this place.  I tried talking to my current psychiatrist about my nightmares of this hospital stay just the other day, and she told me that things like that simply do not happen in psych hospitals these days.  She thinks my memories are delusions or false memories or something.  But I know better.  I had nightmares for years after this little hospital stint.  I've been sent back to hospitals several times since then, but I've never had to stay as long as I did this first visit.  And to this day, I get a chill up my spine when I drive past such a hospital.  They scare the living shit out of me. Because of this fact, I have been lying to my psychiatrists for years about my true thoughts and actions; I'm scared that if I tell the truth, I'll be locked up again. I don't think I could handle that. In therapy this week, my shrink talked about how she believed in hospitalization for patients with severe symptoms. This haunts me. I don't know if I'll ever be able to open up to her again, I'm too afraid.

My Psychiatrist is Making Me Crazy!!!

This day has been more than we could handle.  Was so anxious about therapy that I didn't sleep for 2 days, nor did I eat.  Once there, the myriad of questions I'd had for her completely vanished from my mind and I couldn't remember what it was I wanted to talk to her about. I pulled out my notebook, in which we've been noting things like questions for the shrink and ideas for blog topics.  I read her several of our questions, but she was no help at all. Yesterday, I was ready to accept my DID.  Today, I flat-out asked for a diagnosis.  She says she doesn't believe in putting labels on her patients.  So all I could get her to verify is that I have  a lot of dissociative episodes and I also have at least one mood disorder. (Again, she would not be specific) 

So I don't know which disorder I have, only that I have a great deal of trouble with dissociation and amnesia and losing time and dozens of other symptoms which you'd think she could use to give me a motherfucking specific diagnosis.  FUCK ALL THIS SHIT!!!  Just fucking say what you want to say for God's sake.  I am upset with my psychiatrist because she refused to give me a specific diagnosis.  I want a label.  I need to know who and what I am.  This shit can't be normal. I've been pretending my whole life and we're absolutely exhausted by it at this point.  I don't think I can fake it anymore.  I don't think I can paste on a smile and be whomever you need me to be without blowing my cover, so to speak.  I need to be ME, who happens to be an US.  And I'm OK with that.

Obviously there must have been something terrible in my childhood to mess me up in the head this badly.  We can't even discuss this shit with our doctor.  To my horror, we talked about psychiatric hospitals, and she pretty much said that if it comes down to it and we get worse, she won't hesitate to hospitalize me.  NOT what I wanted to hear. I've had some horrific experiences in mental hospitals over the years.  Most important question I asked her was this: "Do I have to remember the childhood abuse in order to get better?"  I was relieved to hear that no, it isn't always necessary or desirable.  I don't think I could handle the truth anyways.

Fuck this shit.  Just fucking take a pain pill and go to bed.  Your head feels like it's been hit with a hammer.  You've been in a manic state and haven't slept but 3 out of 48 hours. I've eaten one meal this whole week. I think I might be dying.  And FUCK ME I haven't told you the rest of it.  How Hubby says I'm spending too much time on the computer and he says I don't do anything else anymore.  Nothing. No eating, no sleeping, no sex.  He says I'm obsessed.  He's right.  I'm obsessed with learning about my mental illness so that I can take better care of myself and live a better quality of life.

FUCK ALL THIS SHIT just fucking give it up.  You're beyond help.  You can't even talk to your own husband about your true feelings because it freaks him out.  None of your Real Life friends know you're sick, except for some depression.  I'm living a LIE.  Our life is a sham.  I'm not K, I'm an imposter.  I don't know who or what we are anymore. Just want to sleep away the pain.

(The Next Day:)

Which I did.  Took a handful of pills and slept for 12 hours straight.  God I needed that.  Still, woke up feeling frustrated and angry, at everything it seemed.  To make things even worse, Mom had a talk with me about how I'm being a terrible wife and am going to lose my man if I don't stop spending every minute on the computer.  Apparently, I'm ignoring him, the housework, cooking, laundry, etc.  I don't mean to. It just seems less important to me than this project I'm on, this project of self-discovery.  I just need some support from people who understand some of what I'm experiencing.  I'm going through a major mental health crisis right now.  I mean, I just found out that the diagnosis I've had since 1998 is incorrect. I'm NOT Schizophrenic.  It's going to take me some time to realize that I'm not that person anymore.  As soon as the diagnosis was stuck to me, I became that.  This is why my current shrink says she won't label a patient; she says they become the label.

So how am I supposed to fill out forms which ask about my mental health?  Just put down "non-specific madness"?  Or "Sometimes psychotic weirdo who's kept heavily sedated"?   Every so often, paperwork comes in the mail to reassess my mental health for The System.  I just hope that Dr. H refusing to give me a clear-cut diagnosis doesn't cause me to lose my benefits, i.e. my health insurance.  FUCKFUCKFUCK   What a miserable day.  Too much worry about being hospitalized, too much worry about losing my husband, too much worry that Twitter has taken over my life.

Well, this morning, I started my hand-written diary, just as my psych told me to do.  I didn't know what I was going to say, but it took 7 pages front and back anyway.  And I'm 99.9% certain that I'll be writing in it some more tonight.  Man.  I wish I could talk to someone in Real Life about this, someone who also dissociates, someone who also doesn't recognize them self when they look in the mirror half the time.  Someone who won't be freaked out if I switch and start speaking differently or acting differently.  Fuck.  This just fucking blows. I'm not important enough to wear a label I guess. And the kicker is, I've always resented the labels.  I've worn so many over the years....it's ironic that I'm now label-free and feel lost without one.  Who the hell are we and what the fuck is wrong with us?!?  Be specific, doc. We need to know.

Incidentally, while I was in therapy, I asked my shrink what her job was and why I come to see her.  (I'm not sure which K was at the session, but she had a ton of information and questions and wanted answers)  She told me that the reasons I came to therapy are whatever I want them to be.  She said it's her job to help me anyway she can, but that what I got out of it depended upon what I put into it.  Once again, non-specific answers. Fuck this!  I think I"m just going to get trashed tonight and be pissed off and drink til I pass the fuck out. Yeah, that sounds like a plan. And I bet I'll be an angry drunk tonight. Oh fun.

What's Wrong With Us?

I've been avoiding writing this blog post because to be honest, I'm still somewhat hesitant to accept the fact that I have this. I was first diagnosed with DID back in 2004, but I've been hiding it ever since (from everyone, including my family and my doctors) and I thought I had it under control. I was in denial all these years, and some of the K's are still in denial at this very moment.

Dissociative Identity Disorder is a psychiatric diagnosis whose essential feature is the presence of two or more distinct identities or personality states that recurrently take control of a person's behavior. It is also known as Multiple Personality Disorder. Memory loss which goes far beyond normal forgetfulness accompanies this condition when an alternate part of the personality becomes dominant.  At least two distinct personalities must be present in order to receive this diagnosis.

              Symptoms of DID:  (I have 14 of the following 20 symptoms)

• Current memory loss of everyday events
• Depersonalization
• Depression
• Derealization
• Disruption of identity characterized by two or more distinct personality states
• Distortion or loss of subjective time
• Flashbacks of abuse/trauma
• Frequent panic/anxiety attacks
• Identity confusion
• Mood swings
• Multiple mannerisms, attitudes and beliefs
• Paranoia
• Pseudoseizures or other conversion symptoms
• Psychotic-like symptoms such as hearing voices
• Self-alteration (feeling as if one's body belongs to someone else)
• Somatic symptoms that vary across identities
• Sudden anger without a justified cause
• Spontaneous trance states
• Suicidal and para-suicidal behaviors (such as self-injury)
• Unexplainable phobias

 Individuals diagnosed with DID frequently report severe physical and sexual abuse as a child.  The psyche splits into separate identities so as to distance the abused person from the trauma which is happening.  Many people, myself included, block those traumatic memories in their mind because they are unable to process and accept what has happened to them. DID is a coping mechanism.

 Co-morbid mental illnesses are the rule rather than the exception in all dissociative disorder cases, with 82% of DID patients being diagnosed with at least one other psychiatric diagnosis in their lifetime. DID co-morbidities include anxiety disorders such as posttraumatic stress disorder (up to 80%), social phobia, panic disorder  and obsessive-compulsive disorder.  Other common co-morbid conditions include mood disorders such as major depressive disorder. Also common are substance-related disorders, eating disorders such as bulimia nervosa, and somatoform disorders. In addition, a majority of those diagnosed with DID meet the criteria for borderline personality disorder. Studies have shown that DID patients are diagnosed with five to 7.3 co-morbid disorders on average - much higher than other mental illnesses.

I have a number of co-morbid disorders, but at this point I'm uncertain just how many.  This is probably the reason I've had so many different psychiatric diagnoses over the years, and also the reason it took so long for a doctor to conclude I have DID.  While I was first labeled with a dissociative disorder more than a decade ago, I have received very little treatment for it.  This is because the first doctor to diagnose me had barely scratched the surface of our therapy when I suddenly had to move to another city.  My next doctor, whom I currently see, has diagnosed me as definitely having a dissociative disorder, but we are just now starting to explore my condition. This is because I hid it from her for two years, and she had no idea about my symptoms until I came to therapy one day in a switched state.  A very different K had therapy that day.  Dr. H was very understanding, which is a blessing, for many doctors believe that DID is just a myth.

OK, so now you know about my disorder, probably about as much as I know. No, I cannot remember my childhood abuse specifically, but I do have certain memories which seem to support the existence of trauma.  Namely, I have childhood memories which are completely inappropriate for children to have. That's all I'm going to say about that subject.

Now, I would like to someday introduce you to the K's.  However, the truth of the matter is this: I don't know them all. I have a number of "alters" which I can recognize, but I have no idea how many of us there are. I'm still learning about this condition and I know very little at this point.  I know that my "switching" can happen at any time but seems to coincide with stress.  I know that I very often leave my body, and sometimes watch as another "me" interacts with the world; it's very strange to hear a voice coming out of your mouth when you are not talking. I also have a persistent feeling that I am not really living my life, but rather that I'm watching a movie of this life, with me being the lead character.

All of this is difficult to explain.  I have trouble talking to my psychiatrist about my thoughts and feelings.  I feel strange. Disconnected from the world. I've always, my whole life, felt different from everyone around me.  I've been hearing voices and hallucinating since I was 4, but I didn't realize that this was abnormal-I thought everyone experienced these things.  By my teens, I'd realized that the hallucinations were not supposed to happen, so therefore I kept them a secret.  I told no one.  When I was first sent to a psychiatrist at the age of 16, I was careful not to tell her very much about the real me, for fear she'd have me locked up in an insane asylum.  This fear has followed me to this very day.  In fact, just last week while I was in therapy,  I was crying but unable to tell my doctor what was wrong for fear she'd have me hospitalized.  For this reason, I believe my DID therapy is going to be a long and difficult process.  Thank God I have a doctor who does indeed believe in such a disorder.  Now we just have to figure out who K really is, and what happened to her to cause this splitting of her mind.  I think that scares me most of all.  I'm not sure I want to remember my childhood trauma(s).  Supposedly you can't heal unless you come to terms with the cause of your pain.  I'm just afraid that once I remember the cause, it'll just create MORE pain.  I already have problems with feeling guilty; I don't need to be made to feel even more guilty, in addition to feeling dirty and ashamed. Plus, what if I find out my abuser was someone I was close to, and it destroys my relationship with that person?  What if I'd rather not know who hurt me?  What if I can't handle the truth?

Twitter to the Rescue

[I still have the second half of my two-part blog post called "The Evolution of My Self-Mutilation" ready to go. It really should probably be posted here, now, but I still don't have the courage to publish it. I'm just too ashamed, too embarrassed, too humiliated to let people read about the secrets contained in that post. I might just sit on it forever.] So instead... I've been racking my brain trying to think then of what subject would best follow two posts (really just 1 1/2) about self-harm.  I've decided that I don't know, and I'm just going to empty my head and see what this post ends up being about.  My mind is working at a furious pace right now; I can't even put into words how fast the thoughts are coming at me and the voices are all excited and talking at once and I'm overwhelmed when I pause to listen to the inner workings of my brain, to all the conversations. This is exhausting, all this thinking. I never went to bed last night because of it, because of all the noise in my head, all the ideas bouncing around in my skull.  I believe it started yesterday afternoon but it could have been the day before.  I just can't remember.  All I can say for sure is that I've been reading, researching, studying, Googling, Wikipedia'ing obsessively about dissociative disorders, especially Dissociative Identity Disorder.  I've also tried to develop some friendships online, and more importantly, I've been seeking out others who suffer from dissociative disorders such as I do. Keep in mind that my Social Anxiety Disorder makes it unbelievably difficult for me to reach out to people, to talk to people, and especially to initiate communication with strangers. So I must pat myself on the back for making the effort. (only one person I tried to talk to was rude to me)  It seems to be paying off in ways I hadn't even imagined. Not only have I met a few people online with whom I enjoy chatting and who I'm hoping to one day call my friends, but I'm beginning to develop a bit of a support system, which I desperately need.  I've never had a support system before.  I've hidden my mental illness from everyone, my whole life, so I don't have any real-life friends I can talk to about it, I've never confided in a boyfriend, hell my own sister didn't even know I was ill until just a few years ago.  My father never understood how I could have everything a person needs and still be depressed.  Now, it's just my mother, and she's too old and set in her ways to be open-minded enough to even talk to about all of this.  So I hide my symptoms from her.  I avoid her when I'm having an especially hard time. Sometimes I just have to disappear.  Wow, I guess that sentence takes on a whole new meaning when it's used in reference to someone who may be suffering from DID.

You must remember that this is all new territory for us-I'm still in a state of shock about my psychiatrist telling me the other day that my Schizophrenia diagnosis was incorrect.  I wore that label for more than a decade, and I suffered discrimination and ridicule and self-hatred because of it.  It's been a heavy diagnosis to bear, and I am beyond thrilled to find out that it is wrong. I am NOT Schizophrenic!  So then, what am I?  Well, my shrink tells me that I am definitely suffering from a dissociative disorder, she just doesn't have enough information yet to properly name it. I found my diary from 2004 wherein my doctor first attached the possibility of DID to my chart, and I've been reading about all the "episodes" I'd forgotten. My psychiatrist wants to use that diary in our sessions. It seems I've been in denial for the past 8 years.  I've been doing some reading on the different types of dissociative disorders, and more importantly, I actually found a few people on Twitter who suffer from Dissociative Identity Disorder or who have problems with dissociation.  These ladies have been wonderful and have helped me tremendously in a very short period of time. I learn a great deal from reading their blogs.  I had some basic questions which they were happy to answer for me.  One of them put me in touch with another one who directed me to a Yahoo group specifically for people suffering from this type of disorder.  As I said earlier, my doctor hasn't officially diagnosed me as having DID, but from what I've read, from what I've been told by people who have it, and based upon my symptoms, I'd say DID is a good fit. In fact, I've never found a disorder which seemed to describe me as well as DID does. So, for the moment, I'm going to study all I can about Dissociative Identity Disorder. If it turns out I have something else, well then we'll just study that instead when the time comes.  But I really and truly feel that I'm closer than I've ever been to being properly diagnosed and treated for my mental illness(es).

I've been going from doctor to doctor since 1986, and each one gave me a new diagnosis and a different explanation for my thoughts and behaviors. And then there are the medications-Oh the thousands of pills I must've consumed at this point.  Anti-depressants, tranquilizers, SSRI's, anti-psychotics, sedatives, hypnotics, sleeping pills, uppers, downers.  So many pills.  I wonder sometimes-a lot of the time actually-what I'd be like if I didn't take the medication.  Now to be realistic, I am far too ill to go "all natural" and give up all medications.  I have gone down that road many times, thinking each time that I could do it, I could handle it, I could live without chemical assistance.  Each time, I failed miserably, and always ended up feeling much, much worse than I'd ever felt even before I began taking the pills. The truth is, I have something wrong with my brain.  It does not work as it's supposed to.  I am destined to take some sort of medication for the rest of my life.  But what kind? Which pills?  My sister believes I'm overly-medicated and wishes I'd take only the bare minimum.  Just what I need to function day-to-day.  But how do we figure out which pills those are? I currently take seven prescriptions, a dozen pills a day.  Surely some of those are unnecessary, wouldn't you think?  I mean, if I'm not really Schizophrenic, it seems we should be able to drop some of the pills I'm taking everyday.  But instead of cutting down on our meds, at my last therapy session my shrink actually added a prescription to my regimen. Maybe she's just trying to pull me out of this pit of despair I've been living in since October.  I don't talk much about my depression, because it really is one of the lesser of the mental evils for me at this point in time.  I've been depressed my whole life.  I'm used to it.  I know how to do it.  I'm good at it.  But I must admit, my traditional holiday blues this year have lingered, as they're usually over by mid-February. So yes, I guess I AM more depressed than usual, and struggling to maintain my sanity.  I find it extremely hard to get out of bed, to shower, to get dressed.  Mostly I sit around in my pajama's, reading and talking to myself and wallowing in our misery.  My energy level is at zero.  If my body worked out as hard as my brain does, I'd be built like a supermodel. (except much shorter)  All this excessive thinking, this obsessing, has me physically exhausted.  Yet sleep doesn't come easily, especially when it's supposed to. No, whenever I lie down to catch up on my rest, that's when my brain seems to be at its most active.  Maybe someone inside me is doing this on purpose to get my attention.  We don't know what to think anymore. I'm a hundred emotions all at once-I'm excited, I'm scared, I'm sad, I'm worried, I'm eager, I'm anxious... I just want to get to the meat of the matter.  I want to know what is wrong with me and I want to know how to get better.  If that means pills, OK.  If it means weekly therapy sessions, OK. I am willing to do whatever it takes to get to a point in my life where something makes some sort of sense, because nothing ever has before.

Looking For Part II of the Self-Mutilation Post?

This post is supposed to be the second part of our last blog post, The Evolution of My Self-Mutilation-Part I.  In fact, I have already written and edited Part II.  I just can't bring myself to publish it.  I'm too ashamed and embarrassed for anyone to find out the secrets contained within that post.  I mean, I've written about some stuff since I began this blog in late December that made K feel really self-conscious, like posts about my dissociation or my hallucinations or our eating disorder.  The latest post, about self-harm, was hard to write, because thinking about cutting naturally made us want to cut.  I didn't get too graphic to prevent triggering-both others' and my own. I've had a number of people read "Evolution of Self-Mutilation",  but so far no one has left a comment or sent me a message so I have no clue what people are thinking or feeling after they've read it.  What if I offended someone?  My cutting is not so severe as some people's, I mean I've never almost bled to death or been hospitalized for a wound.  Does that mean my self-harm is less real, or less emotionally charged?  It certainly seems real enough to me, and I have decades' worth of scars as evidence.  So it seems I'm coming to accept my compulsion to injure myself, and perhaps now that I've talked about it, I'll feel less humiliated about it.  So.  Now the big questions is, what about Part II of the blog post?  Why can't we publish it?  What am I so deathly afraid of?  Well, for one thing, the second part of the SH post is much different from the first part.  Part II contains secrets I've kept since childhood, secrets I've told no one, ever, not family or friends or even a psychiatrist.  I've seen so many psych docs, yet I never said a word about this particular issue, which I've dealt with on a daily basis for what feels like an eternity.  I felt, and feel, so much shame that it's just impossible to imagine admitting the activity out loud, even to strangers whose faces I cannot see.  So I don't know whether I'll be able to publish "The Evolution of My Self-Mutilation-Part II".  It could take some time to work up my courage.  It might require encouragement from other people, or at least from other K's.  It might get posted tomorrow, or maybe never.  It was the hardest thing I've ever written, so I will definitely not delete it...I just don't know what to do with it. I was thinking that by writing all of those terrible things down, it would ease the humiliation. Instead, it brings me nothing but shame, anxiety, and self-loathing.  I disgust myself.

The Evolution of My Self-Mutilation, Part I

I don't know what the trigger was, or what initially drew me to it. All I can remember is that sometime around the age of 13, I began cutting.  It was my secret.  I wasn't doing it because I was suicidal-I didn't want to die (well, sometimes I did, but that's a whole different story)-I just wanted to feel the pain and see the blood. Cutting is totally different than suicidal actions.  I certainly wasn't doing it for attention, as I've actually heard some therapists say about the practice of self-injury. (OOH that makes us mad!) I didn't want attention, I wanted everyone to just leave me the hell alone. I was careful to cut in places that other people wouldn't be able to see, like my thighs and my upper arms.  Sometimes I used a knife, sometimes a razor blade, sometimes scissors, once or twice even a piece of broken glass.  It didn't matter to me.  What mattered was the physical act of hurting myself, of disfiguring myself, of punishing myself.  I had different reasons for the cutting at different times, but the compulsion was always the same: to draw blood.  Cutting was a release of all the pent-up anger and anxiety that I was suffering through not only as a hormone-driven teenager, but also as an unmedicated psych patient who was majorly depressed as well as manic and at times even psychotic. I was a wreck. I took everything out on my body. I chewed my fingernails down to bloody stubs when I was in school and couldn't hurt myself as I'd have liked. I stole a scalpel from the Biology lab and it became a favorite cutting utensil. By the time I was 15 I was carving words into my forearms.  I was terribly depressed as a teenager and the cutting was a way to relieve some of the agony of living.  The pain on the inside was so great, that the only way I could handle it was by experiencing pain on the outside.  So I cut, my arms and my thighs, inside my arms and calves.  Perfect rows of cuts, spaced evenly, all the same length. I'm even OCD when I'm in self-injure mode. The cuts had to be PERFECT, and I'd spend exorbitant amounts of time making each cut perfectly align with the ones beside it.  Sometimes, I'd use a needle or nail scissors and draw swirly patterns on my arms and I loved watching as the blood ran down my arms, mixing with each other, the patterns and blood resembling roses on my arm.  I felt better about the pain in my head and heart when I could feel the pain on my body.

 And speaking of that, I should explain that better.  When I'm doing any type of self-harming behavior, I get so caught up in what I'm doing that I am in a whole other world.  I guess what I'm talking about is dissociation, but I'm not sure it happens every time.  Sometimes, I can't feel the pain as I'm not in my body. Sometimes I'm a K who either is strong enough to endure the pain, or else I actually get psyched about it and enjoy it. (One or two of the K's is into BDSM). And of course, many times I don't remember the self-injury at all, I just find the bloody mess left behind. That, and the scars.

  So many scars.  I lie about how they came to be on my skin.  I have told the same story for many years, about how I was in a terrible car accident (true) and how all those little scars on my arms came from a broken windshield and pieces of metal showering down on me. (Truth? Some of them are cigarette burns, others are from needles/sharp objects)  Or I'll explain the round scars by saying that I had horrible acne in my teens.  Or I will just act like my skin has always been that way, and that those aren't scars, they're birthmarks.  Or something like that.  (sigh)  So many lies. At least I'm very pale-skinned, so the scars show less than they would on someone with darker skin.  After so many years though, it became impossible to come up with a sufficient lie and so we just started wearing long-sleeves at all times. And long pants or dresses.  We avoided the beach or pools-no way in hell could I bare that much skin-and I'm sad to say that I missed out on a lot of good times throughout my life because of my embarrassment and shame due to the results of cutting.  At other times we'd let all our wounds heal, and it was during those times, in our early 20's, when our skin was pale and smooth, that we did artists' modeling.  Since K is an artist and was an art major, she had lots of friends who approached her to model for photography class or sculpture.  For several years K modeled for art classes.  Now during this period in my life, I gave up the self-injury altogether. Naturally I couldn't cut while I was posing, sometimes nude, for artists, so I began getting pierced. For those of you reading this who cut, please do not be offended by my likening body piercing with cutting; I understand there's a huge difference, I'm just saying that for me the two interchanged nicely.  I found body piercing to be a natural replacement for cutting.  I mean, I still got to experience the pain, which I longed for and even needed, plus I was tearing into my flesh, stabbing sharp metal needles into my skin, causing bleeding and wounds and a pain which would linger until it had healed up.  Now some of my piercings, in addition to my compulsive need to scar my body, were also decorative (such as my navel or nose); other piercings I got strictly for the pain.  For those, I'd leave the jewelry in for a couple of days and then take it out and let the piercing heal. (Example=both sides of my labia) It should come as no surprise then that I have a number of tattoos as well; again, it just seemed to me to be another form of self-mutilation, only I was paying someone else to hurt me.  I insisted on designing all my own tattoos, and each one has a special symbolism behind it.  I get tattooed when something life-altering happens; I get pierced when I'm in extreme emotional pain. I have six tattoos, including a large black piece which covers my stomach and wraps around my navel.  I've been pierced 34 times, including a corset piercing which was 12 piercings done all in one sitting, up my back (then I was laced up with satin ribbon; it was for a photo shoot)  The most painful piercing, by far, was my urethra, and I had it done twice. Is this too much information?  I'm just talking about my wounds, wasn't that the point of this blog post?  Forgive me for rambling on about my body modifications.  But it was my psychiatrist who told me that tattoos and piercings are the "grown-up" version of my cutting and self-harm.  One other thing I found to be especially fulfilling and painful was getting branded with blessed cone incense, three at once in an inverted triangle on my lower back.  A Buddhist performed the ritual and placed the incense cones on my back and then just let them burn all the way down until they went out by themselves. Yes, it hurt.  And I'd love to do it again, on top of the same scars. So I guess the only question left to ask now is, Do I ever still cut, like with a razor blade? The answer, unfortunately, is yes, but it's not nearly as bad as it once was. The stress would have to be over the top and unbearable to make me cut with razors again.  I'm well-medicated and have a husband who keeps an eye (he times my bathroom visits) on me and besides, I can always just go get inked or pierced.  And I always have that special scar on my left wrist as a reminder of darker days.

An Apology To My Readers

I'm sitting here, and I'm reading over my last three blog posts, and I'm thinking to myself A) These are so  boring! and B) I sound like an arrogant bitch and C) I'm going to lose a lot of readers/followers.  So I've decided that you, dear readers, deserve an explanation as well as an apology.  First of all, you have to realize that I started this blog for myself, and then later my psychiatrist asked if we could use it in therapy, so it's intended to be just a record of someone mental's day to day life, no matter how mundane.  I wrote this for ME, to help me remember my symptoms and dissociative states.  It was not intended to be a source of information or entertainment (although if you find it entertaining, then that's awesome).  The only thing, if anything, that I hoped to accomplish through this blog was to perhaps help someone out there not feel alone.  I've felt alone most of my life, and I know how hard that is. I hope that if anyone who reads this who has some sort of psych issues will find some comfort or reassurance or hope from my writing.  As for those of you who began reading my blog from the beginning, then you might have a better understanding of what this blog represents, as it is a record of my journey of self-discovery and (proper) diagnosis. It's also a history lesson, collected memories which I need to have handy, details I would otherwise forget that are important to my recovery or life in general.  I'm rambling. Again.  And I don't think I've even apologized yet.  Sorry, readers, that my blog has been dull lately. I promise to spice things up a bit soon. It shouldn't be too hard--I missed over two weeks of meds recently and am expecting the aftermath at any time now.

School Daze

I've been asked how it is that I was able to get through high school/college and maintain a 4.0 GPA as long as I did with a memory as spotty as mine as well as the dissociative episodes I've had since childhood.  It was not easy, that's what I'm supposed to say.  But, well, actually, it was at first... I believe I've already blogged about how I was such a perfectionist and so I had to be a straight-A student.  I had to win all the awards, get my picture in the paper, have a closet full of trophies and plaques. Everything I did had to be PERFECT.  Well, believe it or not,  from 1st through 12th grade, my memory was extraordinary-photographic even. (But it was only when pertaining to books and school work; I've never remembered  much about my earlier years or ballet classes or soccer practice, etc)  I never studied for a test, I simply read the material in the morning, before that class, and I was able to recall all the information later when taking the test.  I think I became Smart K on the way to school and she stayed in control of my body and mind for the school day.  I'm not kidding.  Some part of me was always whispering answers in my ear and plus I could remember things in a way that suggests a camera taking a snapshot. 

 I could literally see the pages of my textbook in my mind and read what was written on them.  It was simultaneously bizarre and cool. Sometimes, it even seemed I knew the answers before the questions were asked, as though I were psychic or something; I always explained this as my spirit leaving my body and peeking at the answers, then willing me the knowledge. Weird, yes, but I know now that I was dissociating at those moments. But I took advantage of this special ability,  up until the day came when I simply could no longer do it.  Perhaps due to my taking psych meds ages 16-19, I'm not sure. I lost my photographic memory shortly after I'd transferred from business school back to art school.  I don't remember when or how or even why it happened.  (You can't blame it on smoking pot-I never tried that until my mid-20's) I just remember being unable to recall phone numbers and apartment numbers, little things at first, hardly noticeable. Then my grades began to slip-I remember my first "imperfect" grade; I physically wanted to die. I was studying like a maniac, at all hours of the day and night. At some point in time, my memory began to seriously slip, and it rapidly got worse, until I had/have the memory of a senile old lady. As my memory worsened, my dissociation seemed to increase in severity and duration. But remember- at that time, not only was I living "all natural" (meaning without psych meds) but I didn't realize that anything was really wrong with me when it came to these "out of body experiences".  Yes, I'd been to see countless therapists and doctors and taken all sorts of medications for different mental illnesses, so I knew something was wrong, but I had no idea that my losing time and memories and talking to the voices in my head was abnormal.  I just thought I was different.  People always talk about that "little voice inside your head". I thought I was special and had more than one. 

Go back to my first year of college, when the pressure was first building....I had always been a good student and now suddenly I was having to work hard to maintain my grade point average.  I couldn't concentrate anymore, I was unable to focus my attention on my studies.  I became so stressed out that I overdosed on sleeping pills and my friend had to take me to the hospital to get my stomach pumped.  I don't remember that; I think it happened to "someone else" and I just heard about it from my friends.  Another time, that same year (Freshman year) I overdosed on No-Doze.  I told myself I had to stay awake to study, so I swallowed the whole box.  At the ER, the doctor told me I had enough caffeine in me to kill an elephant; I told him he just didn't understand-I had a very important philosophy paper to write.  I never realized until then that you could OD and/or die on caffeine.  After that I was careful about what kinds and how many pills we kept in the house. It was pretty obvious that someone inside me was a threat to my own self.

As my memory continued to slip away, so did my social life.  I was no longer eager to attend all the parties and social functions that we once had enjoyed so much (Note only some of the K's are very sociable).  Memory problems lead to embarrassment (like when you forget your teacher's name in class) and humiliation (like when a guy asked for my phone number and I couldn't remember it).  Classes got harder and harder as the years passed.  I went from being on the President's Honors List and taking extra-load classes in order to graduate early, to dropping courses and taking only a few art classes which I could barely concentrate on.  I was getting further and further behind in my school work.  I was an artist but found it harder and harder to pick up my paintbrush.  Somewhere during this time period, about age 23, I went back on psych meds, and that did wonders for my mood but squelched my creativity.  I could no longer think.  After 6 years, I had changed my major 4 times, switched schools 3 times, and finally just had to give up and drop out. (I was also having some health problems) It was supposed to be a temporary break-a vacation of sorts, to help me get my life back together and relax for awhile and become more stable.  But months turned into years and instead of going back to school, I went back to the psych hospital.  Sigh. 

So much potential, wasted.  I don't think I'll ever get over the guilt I feel for not finishing school.  My parents were so proud of me at one point-I was the first in the immediate family to go to college.  Then I became a subject "we just don't talk about".  My sister, who is 20 years my senior, was never told of my mental illness back then, and so she hated me for squandering my education and opportunities.  She thought I was a selfish, lazy bitch who just wanted to have fun and not take life seriously.  How ironic it is that now, I take life TOO seriously.  Oh yes, and my sister knows now about my mental illness, but she doesn't understand at all.  At least she doesn't hate me anymore, but it'd be nice to be able to talk to her about my problems.  Oh well, I guess that's what my psychiatrist is for.  And who knows?  Maybe one day I WILL go back to school.  I'll have to win the lottery first, since from what I understand, my being deemed mentally disabled means I'm unable to attend school without losing my benefits i.e. my health insurance. So until the day comes when I can afford insurance (or can move to some country with free healthcare) I'll have to remain a college drop-out.  I should've had a master's degree by now.  Damn.  Still, I can dream...Stranger things have happened to me/us!

A Good Day?! How'd That Happen?

I'm still having a hard time believing it, but it seems that I had a good day. I need to write down everything that happened so that I can read this in the future on a bad day and be able to remember this good day, since they are so few and far between. (the idea was a Twitter pal's) DISCLAIMER: This post is boring.  There's no violence, no self-injury, no drug use, no sex. It's a totally Disney blog post. But I'm writing this for ME, and I need to hear all these little details. 

First of all, I got up without the aid of an alarm clock, and was able to get into the kitchen and brew a pot of coffee before our mother ever got out of bed.  I lurked on Twitter for a little while, never actually making my presence known, while waiting for Mom.  After she was up, I helped her take her medications, then I went back to my room and sipped my coffee leisurely as I thumbed through my closet.  In no time at all, I'd picked out an outfit to wear to the psychiatrist's office.  It surprised me just how easy this task was for me; picking something to wear is an ordeal which often takes hours (sometimes from trying on so many different outfits, sometimes from indecisiveness).  Today, I didn't even think twice before grabbing a new pair of jeans.  I even went so far as to pick out a top in a color other than black, which practically never happens.  I still refuse to believe it, but I've had more than one therapist tell me I'd be less depressed if I quit wearing black all the time. Whatever.  Black is K's favorite color (well, most of us) and we wear it at some point every day.

After finishing my coffee, I took a long steamy shower using a luxuriously scented body wash and even went so far as to shave, which I've not done in a long while since I've been so depressed.  I dried off with my over-sized, super fluffy towel and then put on our favorite black velvety robe with the leopard trim.  I then took the time to apply perfumed body lotion all over, and I really enjoyed the scent-it made me happy.  After that I got myself a refill of coffee-I even had my favorite flavored creamer-and I paused to scan the headlines on Google news on my laptop.  Checked my email and was thrilled to find an unexpected message from a dear friend.  (I hope I remember to write her back!)  So back to the bedroom and time to get dressed.  My jeans seemed to button a little easier than normal-could we have lost a pound or two?  That was the first truly awesome moment of the day, the thought that I'd perhaps lost a little weight.  I fixed my hair, and considered putting on makeup (I really wanted to wear some) but I thought about how I often cry at some point in therapy and decided no makeup was better than smeared makeup.  Of course I donned my black sunglasses-to hide my face-and I kissed my Husband goodbye.  He was supposed to go to therapy with us, but he worked the night before until after 2:00 A.M. and I hated to wake him so early. So I went alone.

The drive was easy and I wasn't even nervous, which is VERY rare.  I think I might even have sung along to some music on the way there.  Next memory I have is sitting in my psychiatrist's office, wondering if I could even think of anything to talk about.  I don't remember much about our last session, (that was a different K) and I seemed to be having a good day so I didn't know of any immediate problems which needed addressing.  I sat down, and I think I might even have smiled a little bit, and luckily Dr. H began asking me questions.  That's so much easier for me to deal with, with her choosing the topic. It's hard when she just asks "How are you?"

She asked me if I'd done my homework assignment, and I was proud to tell her I'd accomplished 2 of the 3 things she'd wanted me to do.  I was even able to briefly make eye contact with her today, but I don't think she knew it because I kept on my magic you-can't-see-me-when-I-wear-them sunglasses.  Even though I was having a good day, it still wasn't enough to give me the courage to take them off.  They are part of my disguise.  Hiding, always, always hiding...

She asked me if I had any sort of rituals.  I was quiet for a bit, then admitted that yes, I do have rituals, but I didn't think she'd like them if I told her what they were.  Those are my own personal rituals, which I share with no one.  Suffice it to say they are controversial and self-destructive.  She told me she wanted me to come up with some new ritual, something that I can do at the same time every morning or at bedtime or whenever I choose.  She wants me to come up with something healthy, relaxing, and healing.  I'll be thinking about that for several days I'm sure.  Hopefully, I can come up with something and begin practicing it right away.  I need something to clear my head and unburden my heart.  Maybe a bedtime bubble bath? A pedicure? Drawing in my sketch diary?

I'm not sure my psych realized it, but the person sitting in front of her on this day was NOT the same person who'd been in her office just 3 days earlier.  She was the sad, weak, pathetic K who can't control her emotions or actions.  I'm a much better person, more in control of myself, and I'd even go so far as to say that I'm happy, not all the time, but way more than the others.  I'm the K who many of my friends know. Smiling, witty, fun to be around, capable of handling herself in a crisis.  Too bad I'm not always around; I can't remember being around for a good long while now.  Anyway, back to the story of my very rare good day.  I got through therapy and never shed a tear; after all, I am not the depressed K.  Seems like I told my doc I'd try and take better care of K, but it's all fuzzy now and I can't really remember.

Once I got home, I took my meds and went outside on the back porch and sat in the swing for awhile.  It was a beautiful day-sunny and warm-and I took advantage of that fact.  I also figured it'd be good for us to get some sun.  K doesn't like to get out in the sun as she has very pale skin and the two don't mix well. Plus, she's obsessed with staying young and the sun ages you; she always wears sunscreen even if she doesn't go outside.  But back to our story.  We stayed outside for a little while, listening to the birds singing, feeling the warm Spring-like breeze, noticing that some of the flowers in the yard have started to bloom.  It was good for my soul, just relaxing outside like that, and I don't do things like that very often.  I don't like to waste time, since I lose so much of it already.

When it was time for lunch, not only did I eat a delicious AND sensible meal, but I did not throw up afterwards.  I actually kept my food down.  So that's an accomplishment.  I cleaned up the lunch dishes and by this time it was 3:00 in the afternoon and my husband had some errands to do.  So I asked if I could come along and he said sure and so we rode in the car with Husband, listening to music and chatting pleasantly.  No drama. Nothing serious came up.  We just talked, about silly stuff, nothing really.  It was awesome!  I was so proud of myself for keeping things light.  But then again, I AM casual and light-hearted, whenever I'm around. So we drove downtown and went here and there and I was smiling and friendly the whole time.  After he finished all his work, sometime around 5ish, he asked me if I'd like to go to happy hour somewhere.  I told him that sounded great, and I meant it.  I was excited to go out to a bar and have a drink or two.  I mean, I was in a fantastic mood.  So he chose one of his favorite bars, it's dark and smoky and filled with regulars, many of whom know my husband.  So there were some conversations here and there, and we sat at the bar and had drinks and just chilled out for a while.  I actually had a good time, and that's not usually the case in a crowded public place.

We headed home about 6:00 and I thought to stop and get Mom a salad to have for dinner; she was really happy about that.  She ate her salad and Husband went back to his study to do some work and so I had free time.  I got on the laptop and I still can't believe it, but not only did I make my presence known on Twitter, but I actually interacted with 5 different people!  That's a record for me-I usually talk to no one.  K is quite shy and usually just Tweets to no one or reads other people's Tweets; she doesn't have the courage to talk to anyone.  So it was quite a big deal to me.  I felt very satisfied at the end of the day.  And I have to say that conversing with someone on Twitter is far more therapeutic than just lurking.  I must remember that!

We watched a little TV that night, and of course took a ton of medications, but for a change I didn't take a nap at all. (Usually K has to take a nap or two because the meds make her so sleepy)  A friend of Husband's came over later in the evening and we all drank some beers and goofed off.  I felt very social and made jokes and was quite charming, if I do say so.  At the end of the day, I put on my freshly-washed soft pajamas and took a cup of tea to my bedside, where I sat up reading for a good while. We've been reading books on dissociative disorders, and this particular book was written by a man who has DID/MPD.  K is learning as much as possible about dissociative disorders and derealization and depersonalization.  So we read for awhile, then Husband came to bed and we turned off the lights and cuddled.  I fell asleep in his arms, feeling warm and safe and loved.

My good day was Monday.  I probably should've written this post that night, while all the memories and feelings were still fresh.  But K procrastinates and/or forgets things...so this post wasn't written until Wednesday.  Hopefully I didn't forget anything important about my good day.  Oh yes, and incidentally, Monday was the only good day; everything was back to "normal" the next morning, unfortunately. At least the rarity of good days makes me appreciate them more.

Scaredy Cat

I'm scared of the dark. Really I am.  Our husband just asked us to go get him a beer.  Well, it's after 2:00 A.M., and he keeps his beer in a fridge outside in the garage.  That's a spooky place for me to be at night.  I don't like to leave the house after it gets dark.  Some of the K's are nightowls and love to prowl the streets in the wee hours, but that's not me.  I'm just a little kid.  I'm a scaredy cat.  And Daddy isn't here to protect me from the monsters anymore.  I haven't told Husband about the monsters that lurk in the dark.  I'm afraid he'll laugh at me.  I don't think he'll understand.  I'm embarrassed.  I want to act like a big girl and be grown up and not be scared but I just can't stand being out in the garage.  There are sounds.  And shadows.  And places for bad men to hide.  I don't want to go out there.  I slam the door shut and lock it as fast as I can, and I imagine I can see the shadows moving towards me, coming to get me.  My heart is always pounding after a 45 second visit to the garage.  I hate it there but don't want Husband to know I'm scared so a lot of nights I suffer through this small trauma.  I could turn on the garage light I suppose, but then someone else might see me, like a neighbor, and that's scary too.  I don't want anybody to see me. I like to hide.

Therapy Trainwreck

We have been having a very difficult time lately but can't concentrate long enough to blog about it, which is the homework assignment given to us by our psychiatrist on Friday.  She asked me at our last session to start keeping a diary and bring it in to our sessions; instead, I brought an old diary from 2004, which was written in various states of consciousness,  often while we were dissociating. There was so much I wanted to tell her, to read to her from the diary, to explain to her-but I just couldn't stop crying long enough to get the words out, and I didn't have the energy to talk to her anyway.

It was all I could do just to get to the appointment.  On the way there, in the car, I pounded on the steering wheel and screamed and yelled curse words, tears streaming down my cheeks.  I was shaking and hyperventilating and my heart felt like it was going to burst out of my chest.  I took 1 mg Xanax- thankfully there was part of a bottle of water still in the cup holder from a couple of days earlier.  It was difficult to see through my tears as I drove to my doctor's office. Not only that, but once I got close-within a few blocks-I got confused and forgot which way to go and I took a wrong turn...sigh...I got lost on the way to a psychiatrist's office which I've been visiting regularly for 2 years.  I figured this would make us late but as it turned out there was another patient ahead of us.

Whew~what a relief to get to her office safely, to park the car, to look around frantically and find no other people in the parking lot. I cursed out loud to no one. I took another drink of water and looked at myself in the visor mirror.  I was a wreck, an absolute mess.  My hair was all wind-blown and I had sweat pouring down my face, mixing with the tears pouring from my eyes...I was wearing black sunglasses but you could still see the tears running down my cheeks.  My bangs were sweaty and stuck to our forehead.  I had on no makeup, not even lipstick, and the sunlight accentuated each blemish, scar, and bump on our face.  My cheeks were flushed red from crying and I was huffing and puffing and I looked like I might explode or something.  I searched the car desperately for a napkin or tissue, to wipe my forehead and face, but I found nothing, so I pulled my shirt up and used it to dry my eyes and cheeks and forehead.  I didn't have a brush with me, so I finger-styled my hair and longed for a hat.  Thought about taking another Xanax, but can't remember now if I did or not.  I was quite unsteady on my feet as I got out of the car and walked to the door.

 Inside, I found a couple sitting in my usual spot (the corner) so I was upset about that on top of already having to hold my breath to keep from crying.  I watched my hands trembling as I tried to sign my name but for a minute I was unable to remember how to write it.  I had to think really hard, and even then it seemed foreign to me as I wrote out my first and last names; I don't think I used my typical handwriting-it looked unfamiliar to me.  I sat down and took out my phone to Tweet.  (I Tweet when I'm nervous or upset.)  Pretty much immediately I started having a serious freakout, but luckily at that moment the doctor called for the couple in the corner, and realizing I had some precious time to spare, I somehow found a voice with which to squeak out to the receptionist, "Do I have time to go smoke a cigarette?"  That's funny because I quit smoking 2 years ago, although we have been known to cheat now and then.  At that time, Friday morning, I would've given just about anything to smoke a cigarette, but we had none. She told us the doctor would be a few minutes, so I practically sprinted out of the office.

I got into my car and locked the doors, looking around me, all paranoid.  I suppose I could've turned on some music but at the time it was so loud in my head that I couldn't stand any more noise around me.  The noise on the inside was louder than the noise on the outside, and it was nearly unbearable.  I did the only thing I knew to do to quiet the voices, the yelling, my screams--I dug around in the car until I found a small stash, and I smoked a couple of hits of marijuana.  Sometimes it really is the only thing that will help calm me down.  So I took a couple of tokes-not enough to get me stoned, just enough to take the edge off- and tried to talk myself down from this state of panic and sense of being overwhelmed.  I wasn't sure I'd be able to make it through a therapy session, and I pondered driving away, but part of us knew that we desperately needed to see the psychiatrist and so we stayed.  Didn't get out of our car until we saw the couple from before come out of the office.

The doctor was waiting for me inside, and as soon as she told me to sit down, I collapsed into a chair and started sobbing.  There was just too much to tell her, too many thoughts, too many feelings, I had too many questions for her and didn't even know where to start.  I was having trouble getting words out at all, so she paged the receptionist and asked her to bring me a glass of water.  With it in my hand, I took another 1.5 mg Xanax.  Tried to take slow, deep breaths and finally, after what seemed a really long time, I was able to speak.  I couldn't sort my thoughts and found it quite difficult to express myself with words.  Pictures would have been better--I'll have to remember to take a sketchbook and pencil next week.  Every time it seemed I was going to get my point across, I'd forget what I was talking about and start stammering, searching for the end of a sentence which no longer made sense to me.  God it was frustrating!  And the tears kept interfering, and the gasping for breath...

It's a terribly inconvenient time for me to be this depressed.  Mom doesn't know; well, she knows we're blue and not eating and wearing my pj's a lot.  But she has no idea that I've given up on my personal care altogether.  I'm not eating or drinking anything but caffeine and alcohol.  I'm self-harming.  Two weeks ago I was binging and purging, now I'm just purging.  I don't have enough energy to shower or get dressed.  I haven't washed my hair in over a week, probably longer. I don't know, and frankly, I don't care right now.  It's hard to care about shit like flossing your teeth when you're searching for a reason to exist, just one more day. I told her I'd been sleeping for about 15 hours a day, sometimes more.

I can NOT do this right now--my mother needs me.  She's very sick-she has shingles-and is physically suffering a great deal; she cries out in pain often, and it tears at my heart.  I can do nothing to help her, and the doctor tells us she could be sick with these shingles for 3 weeks.  Sigh.  I just don't have time to be depressed right now!  There's so much work to be done at home and in therapy.

I told my psych, Dr. H, that I absolutely had to see her more than every other week.  I tried to explain to her that I was too sick to be left alone for 2 weeks at a time.  I tried to tell her that there were different people all living in my head, and that some of them were very ill and needed intense psychiatric care.  I tried to briefly explain about the K's, and how I desperately needed the "strong one" to come out and take control of my life.  I can't understand why she hasn't come to my rescue this time, like she has before.  Usually when things get really bad, when there is just more stress than I can handle, then she comes out and takes over my life and sees to it that everything gets done, everything gets taken care of.  She's the Smart One.  She's quite productive and can multitask and is very capable of handling stressful situations.  She needs to be here taking care of Mom, and taking care of K.  She'd fix things.  I just don't know how to force her out; I haven't learned how to control things like that yet.  I don't have any control over who comes out of my mind when, but usually, say in a social situation, the right K will automatically appear and handle things until she's no longer needed.  And no one ever notices that there are different K's because generally, no one sees different K's, just the one that they know.  Each friend knows their own version of K.

But I've gotten way off topic.  I was talking about my therapy session.  I can't remember everything that we talked about, I mainly just remember getting very upset and worrying that she was going to put us in a hospital.  I tried to tell her that in the 2 years we'd been seeing her, we'd not had the courage to be honest with her about what was in our head.  I'm always afraid that if they find out how sick K really is, they'll lock her away.  That, and the fact that I just do NOT trust people, makes it difficult to open up and be honest in therapy.  I fear my thoughts and feelings.  If they scare me, I figure they'll scare the doctor too.  And I don't want another label, I want an accurate diagnosis.  But she told me at one point during the session that it would take more than a couple of sessions to make a clear diagnosis; since I've only just now started to talk to her, really, we had a way to go to get to proper diagnosis and treatment.

One more thing I just remembered....  she asked me if I remembered any abuse from my childhood.  I told her I couldn't remember the actual abuse (I've blocked those memories) but I had little clips of memories of things which seem suspicious or not normal.  So I told her about the 3 or 4 things that I recall from childhood that I find to be inappropriate memories for a little kid  She asked me again to write in my diary and bring it with me next week. Incidentally, I guess I got my point across about needing to see her more frequently--I saw her Friday morning and she wants to see me again Monday afternoon.  That's as quickly as is possible.  (She also gave me a prescription for yet another medication.  Abilify.)  Or maybe I just scared her and she's keeping a close eye on me lest I become suicidal.  So far, that's not been a problem.  Self-harm is not at all the same as suicidal actions.  I can't kill myself right now-not only is it bad karma, but my mother needs me to take care of her.  I have too much to do to die right now.

How To Be Our Friend

It has come to my attention this weekend that I have very few good friends, either in Real Life or online.  I'd like to change this.  I figure the best way to cultivate new friendships is by giving easy-to-follow instructions on how to get to know us, as this is a somewhat tricky task.  These guidelines apply to both Real Life as well as online.

NOTE: You will probably have to approach us and initiate the conversation.  We have Social Anxiety Disorder and are most of the time very shy.  Once that is understood, here are the basics.

1. BE PATIENT WITH US
     It takes me a really long time to learn people's names in real life; I literally have to be introduced over and over again before I can recall someone's name.  Online, it's even harder because I often don't have a face to put with the name. If I only interact with you once in a while, chances are I won't remember you very well, or will have forgotten our past conversations. There's also a chance that you can catch me during a period of time in which I'm somewhere/someone else and I'll be clueless.  It's not that I don't try to pay attention, it's just that I lose memories every instance in which I lose time, and that is often.  Please don't take it personally!

2. HAVE AN OPEN MIND
     I am liable to say anything. I'm brutally honest and moody as hell.  And some of us speak or tweet without thinking.  Sometimes I ramble on and on about crazy meaningless shit.  Sometimes I get up on a soapbox. Sometimes I wallow in self-pity.  Different moods, different me's, different conversations.  Sometimes I curse like a sailor.  Sometimes I'm terribly insecure and/or paranoid.  Please don't judge me. Just because I say something that offends you one moment, doesn't mean that the next moment I won't be a different person with a different attitude.  Stick around-you might find one of us that you like.

3. HAVE A SENSE OF HUMOR
     I have to make fun of my mental illness, or else I would lose my freaking mind. See that? Humor.  It's what gets me through life.  Well, humor and pills. Now in Real Life, I try to play off the mental illness jokes as just jokes; only a handful of people know that when I make those jokes, I'm really being serious. Online, I don't hide my crazy thoughts, just my identity. Don't be offended by my jokes-I only joke about different disorders because chances are, I've been diagnosed with those disorders, and so I feel entitled to poke fun at myself.

4. BE PREPARED FOR REPETITION
     This goes back to my poor memory and also losing time and switching.  I can't remember what stories I've told, so I'll sometimes tell the same ones over and over. I know how annoying that is.  Just tell me to shut the hell up. I'm used to it in Real Life. Also, be prepared to repeat your own stories, as I will forget them and the details of your life, such as your job or your pet's name, and ask you questions. 

5. DON'T EXPECT ME TO BE ON TIME
   I have my own sense of time, and unfortunately it's about a half hour behind the rest of the world.  So if you want me somewhere at 8:00, you best tell me to be there at 7:30.  I'm not exaggerating.  You also can't expect me to keep track of time, such as how long a phone conversation is; sometimes I can talk for hours, sometimes five minutes seems too long. 

6. BE PREPARED FOR SUDDEN DISAPPEARANCES
     I can be in the middle of an online chat, and lose time, and vanish for an hour or an afternoon.  Or I can go to a party and stay five minutes and have a freakout and slip out the back door without saying goodbye to anyone.  I can appear without warning-at bizarre times or bursting into the middle of a conversation-and I can disappear without warning, leaving you hanging, waiting for an answer perhaps.  This just comes with the territory.

7. BE FORGIVING
     Sometimes, I'm an evil bitch.  Part of us is quite mean and says horrible, hateful things. This is not the real me, it's just an unfortunate part of me. I don't know where she comes from or what triggers her, but she's cost me countless friendships and relationships even some family.  I don't like to talk about her. If you meet her,  it's best to keep your mouth shut and run.

I'm sure there are probably a few other tips I could give you, but my brain is exhausted and I'm ready to do some serious drinking now.  Hopefully, this post will be read by someone who's looking for a new, perhaps unconventional friend who's trustworthy and a good listener.  I figure the best way to acquire new friends is to make it as easy as possible for people to approach me.  Someone in Real Life once told me that I was "unapproachable".  Fast forward several years. That person is now my husband.  I think that says something.

Statistics

Inspiration for this post comes from our real life Facebook page, which we checked for the first time in ages on Friday (our birthday), and which was found to contain Happy Birthday comments from over 50 so-called friends. Yes, all of those comments came from actual people, but actual friends?  Not even close.  In fact, let's break it down so that we can analyze it properly. 

Number of Birthday Wishes/comments/pics posted on our Facebook page=56. 
Number of those people whose name we actually recognize=47.
Number of those people whom we've actually hung out with, in real life, ever=40. 
Number of those people we've hung out with in the past 5 years=19 
Number of those people we actually communicate with currently, either in person or online=16.
Number of those people whose phone numbers we have=12. 
Number of those people we've actually called, ever=6.
Number of those people we've actually called in the past year=3. 
Number of those original 56 people who actually "know me"=2 or less.